07/05/2024
Here is this week's most read article featured on our website! Are you caught up? https://bit.ly/3L8sAfB
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07/05/2024
Our brand new resource dives into the most common myths associated with ALS. Check it out here: https://bit.ly/4cG3CQs
07/04/2024
What is the first thing you notice or look for when meeting a new physician?
07/04/2024
Research involving nonpharmacological treatment in ALS is limited, but a recent meta-analysis does reveal a few findings: https://bit.ly/3xDX3z6
07/03/2024
Building on these data, the therapy’s developer is planning to launch more extensive clinical studies with larger groups of patients. https://bit.ly/3W6GQvu
07/03/2024
Explore how a better understanding of these “molecular players” could lead to the development of novel therapeutic approaches: https://bit.ly/3xwNqSS
07/02/2024
Following your diagnosis, what do you remember being the best advice you received? Share with our forums community: https://bit.ly/3LrVV53
07/02/2024
Did you know that, although ALS is 20% more common in men than in women, the gender difference disappears with advancing age? Review other statistics here: https://bit.ly/4cDuFMn
07/02/2024
Since the therapy’s launch, more than 9,600 patients have been treated with the medication, 82% of whom continued for three months or more. https://bit.ly/3XGfqOo
07/01/2024
As her husband’s caregiver, Kristin Neva has to stay close to home — but that hasn’t stopped her from finding hobbies nearby. https://bit.ly/3XJsEKi
07/01/2024
While nonpharmacological interventions are sometimes effective in other conditions, they were not found to be for ALS patients, though more research is suggested. https://bit.ly/3RIHZak
07/01/2024
What would make ALS a “livable disease”? A recent report maps a way toward making it that way in ten years’ time. https://bit.ly/4cj1qhT
06/30/2024
Catch up on the Column of the Week here: https://bit.ly/4cBLLKA
06/30/2024
Are you taking advantage of all the therapies, medication and otherwise, available to help manage your ALS? See if you’re getting the most from your treatment plan: https://bit.ly/3zmT8Hs
06/29/2024
See what new clinical trial data says about the investigational oral therapy and how it may work in ALS patients: https://bit.ly/4cxjKUn
06/29/2024
Our new resource explores all things cannabis and ALS, including treatment options and potential benefits. Check it out here: https://bit.ly/3w6Lwr5
06/28/2024
Here is this week's most read article featured on our website! Are you caught up? https://bit.ly/3RJPpKd
06/28/2024
Several care approaches beyond medication can help preserve function and improve overall well-being. We dive into them here: https://bit.ly/4csW0AO
06/27/2024
What was the hardest part of accepting your ALS diagnosis?
06/27/2024
One compassionate use program is now providing a regulated pathway for as many as 180 patients to gain access to the treatment. https://bit.ly/3XG0FLx
06/26/2024
The device, designed to ease hyperexcitability, works by delivering an electrical current to electrodes near the top of the spinal cord. https://bit.ly/3xxX2wy
06/26/2024
The Phase 1 trial is expected to be complete by the end of the year, with its developer planning to study ALS patients next year. https://bit.ly/4eFkyIu
06/25/2024
Many patients say support groups have made a meaningful difference in their journeys. Have you explored in-person or online support? https://bit.ly/3zaY8P8
06/25/2024
Research continues to explore how people’s experiences, habits, and careers may influence their risk of ALS. Here’s what we know so far: https://bit.ly/3xv0urL
06/25/2024
Therapies approved for ALS mostly help patients maintain functional abilities for longer. Explore how they might help you here: https://bit.ly/3xwuEec
06/24/2024
Despite her husband’s ALS, Kristin Neva has never felt like a single parent. She shares how he prioritizes having a constant presence in their kids’ lives. https://bit.ly/3RBWgp9
06/24/2024
Are you living with ALS but not receiving care from a neurologist? New findings may change your mind: https://bit.ly/3RyWDAA
06/24/2024
Over the past two years, more than 9,600 ALS patients have been treated with the oral medication, with 82% continuing treatment for three months or more. https://bit.ly/3RvZ9aL
06/23/2024
Catch up on the Column of the Week here: https://bit.ly/3Xy7Gy6
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Here's a recap of the news and columns we featured this week. Head to our website to read them all: https://bit.ly/3OAIula #ALSDisease #ALSTreatment #ALSResearch #ALSCommunity #ALSSupport
This week on ALS News Today
Here's a recap of the news and columns we featured this week. Head to our website to read them all: https://bit.ly/3OAIula #ALSDisease #ALSTreatment #ALSResearch #ALSCommunity #ALSSupport
This week on ALS News Today
Here's a recap of the news and columns we featured this week. Head to our website to read them all: https://bit.ly/3OAIula #als #amyotrophiclateralsclerosis #alsdisease #alstreatment #alsresearch #alscommunity #livingwithals #alsawareness
This week on ALS News Today
Here's a recap of the news and columns we featured this week. Head to our website to read them all: https://bit.ly/3OAIula #als #amyotrophiclateralsclerosis #alsdisease #alstreatment #alsresearch #alscommunity #livingwithals #alsawareness
Our team is proud to bring you the latest ALS news coverage and research. Thank you for being part of our community, and we look forward to serving you in 2024! https://bit.ly/3SfEJnb #als #amyotrophiclateralsclerosis #alscommunity #livingwithals #alsawareness
Here's a recap of the news and columns we featured this week. Head to our website to read them all: https://bit.ly/alsnews #ALS #ALSNewsToday #amyotrophiclateralsclerosis #livingwithALS #ALScommunity
This week on ALS News Today
Here's a recap of the news and columns we featured this week. Head to our website to read them all: https://bit.ly/alsnews #ALS #ALSNewsToday #amyotrophiclateralsclerosis #livingwithALS #ALScommunity
This week on ALS News Today
Here's a recap of the news and columns we featured this week. Head to our website to read them all: https://bit.ly/alsnews #ALS #ALSNewsToday #amyotrophiclateralsclerosis #livingwithALS #ALScommunity
Here's a recap of the news and columns we featured this week. Head to our website to read them all: https://bit.ly/alsnews #ALS #ALSNewsToday #amyotrophiclateralsclerosis #livingwithALS #ALScommunity
Here's a recap of the news and columns we featured this week. Head to our website to read them all: https://bit.ly/alsnews #ALS #ALSNewsToday #amyotrophiclateralsclerosis #livingwithALS #ALScommunity
Here's a recap of the news and columns we featured this week. Head to our website to read them all: https://bit.ly/alsnews #ALS #ALSNewsToday #amyotrophiclateralsclerosis #livingwithALS #ALScommunity
Here's a recap of the news and columns we featured this week. Head to our website to read them all: https://bit.ly/alsnews #ALS #ALSNewsToday #amyotrophiclateralsclerosis #livingwithALS #ALScommunity
Here's a recap of the news and columns we featured this week. Head to our website to read them all: https://bit.ly/alsnews #ALS #ALSNewsToday #amyotrophiclateralsclerosis #livingwithALS #ALScommunity
Here's a recap of the news and columns we featured this week. Head to our website to read them all: https://bit.ly/alsnews #ALS #ALSNewsToday #amyotrophiclateralsclerosis #livingwithALS #ALScommunity
AWIR% Learning From Each Other
Patient advocate Liza Bernstein explains how #AWindowIntoRare will highlight what we can learn from each other as members of the #raredisease community. Join #BioNews in an online panel discussion + Q&A on #RareDiseaseDay at 3 p.m. EST Feb 28. Register: https://bit.ly/Bionews_RegisterNow
Rare Disease Day - A Window Into Rare
Patient advocate Liza Bernstein gives some insight into what will be discussed during "A Window Into Rare," our #RareDiseaseDay online panel discussion on Feb. 28. Register for this live event here: https://bit.ly/Bionews_RegisterNow #AWindowIntoRare #BioNews
A Window Into Rare - Rare Disease Day
"I have an understanding of what it feels like to feel isolated and erased": Patient advocate Liza Bernstein is hosting "A Window Into Rare," our #RareDiseaseDay panel discussion on Feb. 28. Register for this live event here: https://bit.ly/Bionews_RegisterNow #AWindowIntoRare #BioNews
We Are Rare. We Are BioNews.
ALS News Today is part of the BioNews family, and 60% of us behind the scenes live with a rare condition. This is why we strive to provide you with trustworthy content, meaningful resources and a safe space. #WeAreRare. We are #BioNews. Learn more: https://bionews.com #RareDiseases #ALS #ALSNewsToday #amyotrophiclateralsclerosis #livingwithALS #ALScommunity
FLASHB RECAP ALS
🎧 Accessibility and inclusivity are part of our DNA. Our news content is aimed at leaving no one behind, like our Flash Briefings, which are audio readings of some of our news. Find these newscasts on our website, on Soundcloud, Alexa (Amazon), and other platforms!⠀⠀⠀ ⠀ Check out this recap to see we covered this week:⠀⠀⠀⠀ ⠀⠀⠀⠀⠀⠀ "Health Canada to Review AMX0035 as ALS Treatment" https://soundcloud.com/alsnewstoday/health-canada-to-review-amx0035-as-als-treatment⠀ ⠀⠀⠀ "Changing Your Expectations While Living with ALS" https://soundcloud.com/alsnewstoday/changing-your-expectations-while-living-with-als ⠀⠀⠀ .⠀⠀⠀⠀ .⠀⠀⠀⠀ .⠀⠀⠀⠀ #alsnewstoday #als #alspodcast #amyotrophiclateralsclerosis #podcast #healthpodcast #flashbriefings #alsflashbriefings #treatingals
ALS FLASHBRIEFING% POST
In this flash briefing episode 🎧 Amanda Sifford, discusses How Health Canda is Reviewing AMX0035 as a Treatment for ALS, While the U.S. Food and Drug Administration requested data from an additional controlled clinical trial — the PHOENIX trial — before considering AMX0035 for approval. ⠀⠀⠀⠀⠀⠀⠀⠀ Our Flash Briefings and Podcasts are available for free. You can stream from platforms such as Alexa (Amazon), SoundCloud, Spotify, Apple Podcasts, Google Podcasts, iHeart, Deezer, Radio.com, RadioPublic and Stitcher. Who’s listening? 😄 ⠀⠀⠀ ⠀⠀⠀ >> Listen here: https://soundcloud.com/alsnewstoday/health-canada-to-review-amx0035-as-als-treatment .⠀⠀⠀⠀ .⠀⠀⠀⠀ .⠀⠀⠀⠀ #ALSnews #ALSpodcast #ALS #podcast #healthpodcast #flashbriefings #ALSflashbriefings #MotorNeuronDiseases #ALSwarrior #ALScommunity #amyotrophiclateralsclerosis
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