08/16/2024
An experimental therapy, brilaroxazine showed a treatment potential in models of idiopathic pulmonary fibrosis and pulmonary hypertension. https://buff.ly/3yDhCfz
Pulmonary Fibrosis News
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Pulmonary Fibrosis News is a digital news publication dedicated to offering comprehensive daily news
08/13/2024
Getting to know people outside their health journeys was rewarding for columnist Sam Kirton, who likes to discover shared experiences. https://buff.ly/3YIlXsl
08/09/2024
Brainomix is partnering with Boehringer Ingelheim to bring its AI-powered imaging tool, e-Lung, for PF diagnosis to U.S. pulmonology centers. https://buff.ly/4ck00mv
08/08/2024
Managing a rare disease comes with high costs, says columnist Charlene Marshall, who had to stop taking a medication because of its price. https://buff.ly/3M47orr
08/06/2024
Columnist Sam Kirton describes necessary precautions for IPF and post-transplant patients during times of increasingly rising temperatures. https://buff.ly/46DS8eI
08/02/2024
Enrollment has been completed for a Phase 2a study testing IPF treatment BBT-877, Bridge Biotherapeutics' investigational therapy. https://buff.ly/4fu29yU
07/31/2024
Four years after her mother's death, columnist Ann Reynoso works through the lingering grief in a "Dear Mom" letter. https://buff.ly/4d3uSsJ
07/30/2024
Columnist Sam Kirton asks his PF community to support the SOAR Act, which aims to improve patient access to supplemental oxygen. https://buff.ly/4c5zFIZ
07/26/2024
Enrollment for the Phase 3 TETON 2 trial testing Tyvaso in adults with IPF is complete, with data expected in 2025. https://buff.ly/3Yqcead
07/23/2024
While columnist Sam Kirton's quality of life improved after his lung transplant, the healing journey hasn't been easy, he says. https://buff.ly/4cY5K6U
07/19/2024
UW-Madison researchers have been granted nearly $11 million to explore mechanisms that drive idiopathic pulmonary fibrosis progression. https://buff.ly/4daBC7F
07/16/2024
Columnist Sam Kirton remembers getting his new lungs and doing his exercises during his first 10 days of transplant recovery. https://buff.ly/3zSho4d
07/12/2024
Phase 2a trials of oral IPF treatment candidate INS018_055 are moving forward in the U.S. and China, with a Phase 2b study planned for 2025. https://buff.ly/3xL6TiO
07/09/2024
In honor of his lung transplant anniversary, columnist Sam Kirton pays tribute to his donor and raises awareness about organ donation. https://buff.ly/3VP2Ppq
07/03/2024
Growing older and living with pulmonary fibrosis means some heavy physical and emotional consequences to analyze, says columnist Ann Reynoso. https://buff.ly/4cIibmH
07/02/2024
Getting your affairs in order benefits both you and your loved ones, says columnist Sam Kirton, who took action after his IPF diagnosis. https://buff.ly/4boz3xz
06/28/2024
A tracer known as FAPI performed better than the commonly used 18F-FDG for capturing early signs of pulmonary fibrosis on PET/CT scans. https://buff.ly/45NqSKk
06/25/2024
After spending a week with his young granddaughters, columnist Sam Kirton gives thanks for the transplant that granted him the opportunity. https://buff.ly/4bh6emU
06/21/2024
AGMB-447, an inhaled IPF treatment being tested in a Phase 1 clinical trial, has been granted FDA orphan drug designation by the FDA. https://buff.ly/3RCVhVQ
06/20/2024
Columnist Charlene Marshall shares her tips for how to deal with guilt from having a chronic lung disease, particularly while traveling. https://buff.ly/3zb6S86
06/18/2024
In preparation for a visit with his granddaughters, columnist Sam Kirton works on childproofing his home to make it safe for everyone. https://buff.ly/3KQmhNM
06/14/2024
The FDA has granted its orphan drug designation to Alentis Therapeutics’ lixudebart (ALE.F02) for idiopathic pulmonary fibrosis. https://buff.ly/3x95YZc
06/07/2024
ENV-101 improved lung function and reversed key signs of lung scarring in patients with IPF, according to data from a Phase 2a trial. https://buff.ly/3RFRNSv
06/06/2024
Despite her IPF, columnist Charlene Marshall has found these weight loss strategies to be accessible and effective. https://buff.ly/3x9b8UT
06/04/2024
Deciding whether to pursue a lung transplant for idiopathic pulmonary fibrosis is a complex and personal decision, says columnist Sam Kirton. https://buff.ly/45qjJPX
05/31/2024
The PF Foundation's Community Registry, a database of patient and family member information, logged its 2,000th participant. https://buff.ly/4bHrFOM
05/28/2024
Columnist Sam Kirton explains what an acute exacerbation of IPF can look like, and why urgent action is needed. https://buff.ly/44WQwf7
05/24/2024
In the U.K., people with idiopathic pulmonary fibrosis who live in economically deprived areas tend to have worse survival outcomes, a study finds. https://buff.ly/3WTFpS0
05/21/2024
Columnist Sam Kirton encourages his readers to check out the forums, news articles, and other columns on Pulmonary Fibrosis News. https://buff.ly/3wRzNwX
05/17/2024
Once-daily bexotegrast reversed the signs of lung scarring while improving lung function and cough in IPF patients, an imaging study finds. https://buff.ly/3wFILxg
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Videos
AWIR% Learning From Each Other
Patient advocate Liza Bernstein explains how #AWindowIntoRare will highlight what we can learn from each other as members of the #raredisease community. Join #BioNews in an online panel discussion + Q&A on #RareDiseaseDay at 3 p.m. EST Feb 28. Register: https://bit.ly/Bionews_RegisterNow
Rare Disease Day - A Window Into Rare
Patient advocate Liza Bernstein gives some insight into what will be discussed during "A Window Into Rare," our #RareDiseaseDay online panel discussion on Feb. 28. Register for this live event here: https://bit.ly/Bionews_RegisterNow #AWindowIntoRare #BioNews
A Window Into Rare - Rare Disease Day
"I have an understanding of what it feels like to feel isolated and erased": Patient advocate Liza Bernstein is hosting "A Window Into Rare," our #RareDiseaseDay panel discussion on Feb. 28. Register for this live event here: https://bit.ly/Bionews_RegisterNow #AWindowIntoRare #BioNews
We Are Rare. We Are BioNews.
Pulmonary Fibrosis News is part of the BioNews family, and 60% of us behind the scenes live with a rare condition. This is why we strive to provide you with trustworthy content, meaningful resources and a safe space. #WeAreRare. We are #BioNews. Learn more: https://bionews.com #RareDiseases #PFNews #pulmonaryfibrosisnews #livingwithPF #pulmonaryfibrosis
RECAP PF
🎧 We strive to be inclusive and prioritize our communities’ needs. Our team works on the most accessible ways to deliver our news content so no one is left out. ✨ Our Flash Briefings are audio readings of some of our news. These newscasts are available on Soundcloud and Alexa, and on our website. ⠀⠀⠀ ⠀⠀ This is a recap of what we covered this week: ⠀⠀ ⠀⠀ "Why September Is Hard for Me as an IPF Patient" https://soundcloud.com/pulmonaryfibrosisnews/why-september-is-hard-for-me-as-an-ipf-patient ⠀⠀ "Review Study Does Not Recommend Adding Antibiotics to Standard IPF Care" https://soundcloud.com/pulmonaryfibrosisnews/review-study-does-not-recommend-adding-antibiotics-to-standard-ipf-care-1 . . #pulmonaryfibrosis #idiopathicpulmonaryfibrosis #pulmonaryfibrosispodcast #healthpodcast #flashbriefings #pulmonaryfibrosisnews #pulmonaryfibrosisflashbriefings #treatingpulmonaryfibrosis
PF FLASHBRIEFING% POST
In this flash briefing episode 🎧 Charlene Marshall reads a column she wrote about typical trajectories of life and how IPF unapologetically interferes with that. Our Flash Briefings and Podcasts are available for free. You can stream from platforms such as Alexa (Amazon), SoundCloud, Spotify, Apple Podcasts, Google Podcasts, iHeart, Deezer, Radio.com, RadioPublic and Stitcher. ⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀ Who’s listening? 😄 Click here to listen: https://soundcloud.com/pulmonaryfibrosisnews/pulmonary-fibrosis-alters-the-trajectory-of-our-lives-1 . . . #pulmonaryfibrosis #podcast #healthpodcast #flashbriefings #pulmonaryfibrosisnews #pulmonaryfibrosisflashbriefings #IPF #idiopathicpulmonaryfibrosis #PFwarrior #PFcommunity #livingwithPF
FLASHB RECAP PF
Accessibility and inclusivity are part of our DNA. 🎧 Our news content is aimed at leaving no one behind, like our Flash Briefings, which are audio readings of some of our news. Find these newscasts on our website, on Soundcloud, Alexa (Amazon), and other platforms!⠀ ⠀ Check out this recap to see we covered this week:⠀ ⠀⠀⠀ "Serious Mortality, Ventilation Risk Seen in IPF Patients With COVID-19": https://soundcloud.com/pulmonaryfibrosisnews/serious-mortality-ventilation-risk-seen-in-ipf-patients-with-covid-19 "Metformin, for Diabetics, Effectively Treats Models of Silica-induced PF": https://soundcloud.com/pulmonaryfibrosisnews/metformin-for-diabetics-effectively-treats-models-of-silica-induced-pf . . #pulmonaryfibrosis #idiopathicpulmonaryfibrosis #pulmonaryfibrosispodcast #healthpodcast #flashbriefings #pulmonaryfibrosisnews #pulmonaryfibrosisflashbriefings #esbriet #treatingpulmonaryfibrosis
PF FLASHBRIEFING% POST
In this flash briefing episode 🎧 Charlene Marshall reads an article summarizing a database study out of West Virginia University, examining the effects and risks of COVID-19 on IPF patients. Our Flash Briefings and Podcasts are available for free. You can stream from platforms such as Alexa (Amazon), SoundCloud, Spotify, Apple Podcasts, Google Podcasts, iHeart, Deezer, Radio.com, RadioPublic and Stitcher. Who’s listening? 😊 Listen here: https://soundcloud.com/pulmonaryfibrosisnews/serious-mortality-ventilation-risk-seen-in-ipf-patients-with-covid-19 . . . . #pulmonaryfibrosis #podcast #healthpodcast #flashbriefings #pulmonaryfibrosisnews #pulmonaryfibrosisflashbriefings #IPF #idiopathicpulmonaryfibrosis #PFwarrior #PFcommunity #livingwithPF
FLASHB RECAP PF
🎉 And just like that… it’s Friday! 🎉 Which means it’s time for our Flash Briefings recap. Our accessible news content is also available as audio recordings. You can listen to these newscasts on our website, on Soundcloud, Alexa (Amazon), and other platforms! 🎧 This is what we covered this week: 1. "Many Wait a Year or Longer for PF Diagnosis, Survey Finds": https://soundcloud.com/pulmonaryfibrosisnews/many-wait-a-year-or-longer-for-pf-diagnosis-survey-finds 2. "Pulmonary Fibrosis Alters the Trajectory of Our Lives": https://soundcloud.com/pulmonaryfibrosisnews/pulmonary-fibrosis-alters-the-trajectory-of-our-lives . . . #pulmonaryfibrosis #idiopathicpulmonaryfibrosis #pulmonaryfibrosispodcast #healthpodcast #flashbriefings #pulmonaryfibrosisnews #pulmonaryfibrosisflashbriefings #ipf #treatingpulmonaryfibrosis
PF FLASHBRIEFING% POST
🎧 Accessibility and inclusivity are part of our DNA. Our news content is aimed at leaving no one behind, like our Flash Briefings, which are audio readings of some of our news. Find these newscasts on our website, on Soundcloud, Alexa (Amazon), and other platforms!⠀ ⠀ Check out this recap to see we covered this week:⠀ ⠀⠀⠀ "How to Make Your Event Safer for Vulnerable Guests": https://soundcloud.com/pulmonaryfibrosisnews/how-to-make-your-event-safer-for-vulnerable-guests "Controversial Conversations: A Chronically Ill Patient’s Perspective": https://soundcloud.com/pulmonaryfibrosisnews/controversial-conversations-a-chronically-ill-patients-perspective . . . #pulmonaryfibrosis #idiopathicpulmonaryfibrosis #pulmonaryfibrosispodcast #healthpodcast #flashbriefings #pulmonaryfibrosisnews #pulmonaryfibrosisflashbriefings #esbriet #treatingpulmonaryfibrosis
PF FLASHBRIEFING% POST
In this flash briefing episode 🎧 Charlene Marshall reads a piece from co-columnist Christie Patient as she works hard to plan her wedding, and shares tips on making an event safe for vulnerable guests as such as those with IPF or who are post-lung transplant. Our Flash Briefings and Podcasts are available for free. You can stream from platforms such as Alexa (Amazon), SoundCloud, Spotify, Apple Podcasts, Google Podcasts, iHeart, Deezer, Radio.com, RadioPublic and Stitcher. Who’s listening? 😊 Click here to listen: https://soundcloud.com/pulmonaryfibrosisnews/how-to-make-your-event-safer-for-vulnerable-guests #pulmonaryfibrosis #podcast #healthpodcast #flashbriefings #pulmonaryfibrosisnews #pulmonaryfibrosisflashbriefings #IPF #idiopathicpulmonaryfibrosis
FLASHB RECAP PF
Just when you thought the weekend would never come... 🎉 it’s time for our Flash Briefings recap! 🎉 Our accessible news content is also available as audio recordings. You can listen to these newscasts on our website, on Soundcloud, Alexa (Amazon), and other platforms! 🎧This is what we covered this week:⠀ "Meeting the 3 Requirements for Hospital Discharge After Lung Transplant": https://soundcloud.com/pulmonaryfibrosisnews/meeting-the-3-requirements-for-hospital-discharge-after-lung-transplant "Fine Crackles – Velcro-like Sounds – in Exams May Be IPF Screening Tool": https://soundcloud.com/pulmonaryfibrosisnews/fine-crackles-velcro-like-sounds-in-exams-may-be-ipf-screening-tool .⠀⠀ .⠀⠀ .⠀⠀ #pulmonaryfibrosis #pfnews #livingwithpulmonaryfibrosis #PFpodcast #flashbriefings #pulmonaryfibrosisflashbriefings #lungtransplant #treatingPF
PF FLASHBRIEFING% POST
In this flash briefing episode 🎧 Charlene Marshall reads a column by co-columnist Kevin Olson regarding the discharge requirements post-transplant. Kevin elaborates on his experience and efforts to accomplish the three requirements, but not without a few setbacks and frustrations. Our Flash Briefings and Podcasts are available for free. You can stream from platforms such as Alexa (Amazon), SoundCloud, Spotify, Apple Podcasts, Google Podcasts, iHeart, Deezer, Radio.com, RadioPublic and Stitcher. Who’s listening? 😊 Listen here: https://soundcloud.com/pulmonaryfibrosisnews/meeting-the-3-requirements-for-hospital-discharge-after-lung-transplant #pulmonaryfibrosis #podcast #healthpodcast #flashbriefings #pulmonaryfibrosisnews #pulmonaryfibrosisflashbriefings #IPF #idiopathicpulmonaryfibrosis #hyperbaricoxygentherapy #oxygentherapy #hyperbaricoxygen #IPFtherapy #treatingpulmonaryfibrosis
PF FLASHBRIEFING% POST
🎧 In this flash briefing episode, Charlene Marshall reads a column from her co-columnist Christie Patient on an item of hope and connection throughout her Mom’s ICU stay due to idiopathic pulmonary fibrosis (IPF); a wedding dress. Our Flash Briefings and Podcasts are available for free. You can stream from platforms such as Alexa (Amazon), SoundCloud, Spotify, Apple Podcasts, Google Podcasts, iHeart, Deezer, Radio.com, RadioPublic and Stitcher. Who’s listening? Who’s listening? 😄 Click here: https://soundcloud.com/pulmonaryfibrosisnews/in-the-icu-we-said-yes-to-the-hope-of-a-dress #PFnews #PulmonaryFibrosisnews ##PulmonaryFibrosisPodcast #podcast #healthpodcast #flashbriefings #PF #PFflashbriefings #PulmonaryFibrosis
FLASHB RECAP PF
Just when you thought the weekend would never come... 🎉 it’s time for our Flash Briefings recap! 🎉 Our accessible news content is also available as audio recordings. You can listen to these newscasts on our website, on Soundcloud, Alexa (Amazon), and other platforms! 🎧 This is what we covered this week: #PulmonaryFibrosisnews #accessiblenews #audionews #healthpodcast
PF FLASHBRIEFING% POST
🎧 In this flash briefing episode, Pulmonary Fibrosis News Columnist and Forum Moderator Charlene Marshall reads a column she wrote on the ups and downs that many patients with a chronic illness experience. Our Flash Briefings and Podcasts are available for free. You can stream from platforms such as Alexa (Amazon), SoundCloud, Spotify, Apple Podcasts, Google Podcasts, iHeart, Deezer, Radio.com, RadioPublic and Stitcher. Who’s listening? Who’s listening? 😄 Click here: https://buff.ly/3iFZEgz #PFnews #PulmonaryFibrosisnews ##PulmonaryFibrosisPodcast #podcast #healthpodcast #flashbriefings #PF #PFflashbriefings #PulmonaryFibrosis
FLASHB RECAP PF
🎉 And just like that… it’s Friday! 🎉 Which means it’s time for our Flash Briefings recap. Our accessible news content is also available as audio recordings. You can listen to these newscasts on our website, on Soundcloud, Alexa (Amazon), and other platforms! 🎧 This is what we covered this week: 1. "Planning for Retirement Despite My Anxieties": https://soundcloud.com/pulmonaryfibrosisnews/planning-for-retirement-despite-my-anxieties 2. "PFF Summit Will Focus on Research And Quality of Life": https://soundcloud.com/pulmonaryfibrosisnews/pff-summit-will-focus-on-research-and-quality-of-life #pulmonaryfibrosis #idiopathicpulmonaryfibrosis #pulmonaryfibrosispodcast #healthpodcast #flashbriefings #pulmonaryfibrosisnews #pulmonaryfibrosisflashbriefings #esbriet #treatingpulmonaryfibrosis
PF FLASHBRIEFING% POST
🎧 In this flash briefing episode, Charlene Marshall reads a piece from co-columnist Ann Reynoso regarding the retirement of her husband and her anxieties surrounding how to care to for her family financially. Our Flash Briefings and Podcasts are available for free. You can stream from platforms such as Alexa (Amazon), SoundCloud, Spotify, Apple Podcasts, Google Podcasts, iHeart, Deezer, Radio.com, RadioPublic and Stitcher. Listen here: https://soundcloud.com/pulmonaryfibrosisnews/planning-for-retirement-despite-my-anxieties #pulmonaryfibrosis #idiopathicpulmonaryfibrosis #healthpodcast #flashbriefings #pulmonaryfibrosisnews #pulmonaryfibrosisflashbriefings #IPF #treatingpulmonaryfibrosis
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