Pulmonary Fibrosis News

Pulmonary Fibrosis News Pulmonary Fibrosis News is a digital news publication dedicated to offering comprehensive daily news

An experimental therapy, brilaroxazine showed a treatment potential in models of idiopathic pulmonary fibrosis and pulmo...
08/16/2024

An experimental therapy, brilaroxazine showed a treatment potential in models of idiopathic pulmonary fibrosis and pulmonary hypertension. https://buff.ly/3yDhCfz

Getting to know people outside their health journeys was rewarding for columnist Sam Kirton, who likes to discover share...
08/13/2024

Getting to know people outside their health journeys was rewarding for columnist Sam Kirton, who likes to discover shared experiences. https://buff.ly/3YIlXsl

Brainomix is partnering with Boehringer Ingelheim to bring its AI-powered imaging tool, e-Lung, for PF diagnosis to U.S....
08/09/2024

Brainomix is partnering with Boehringer Ingelheim to bring its AI-powered imaging tool, e-Lung, for PF diagnosis to U.S. pulmonology centers. https://buff.ly/4ck00mv

Managing a rare disease comes with high costs, says columnist Charlene Marshall, who had to stop taking a medication bec...
08/08/2024

Managing a rare disease comes with high costs, says columnist Charlene Marshall, who had to stop taking a medication because of its price. https://buff.ly/3M47orr

Columnist Sam Kirton describes necessary precautions for IPF and post-transplant patients during times of increasingly r...
08/06/2024

Columnist Sam Kirton describes necessary precautions for IPF and post-transplant patients during times of increasingly rising temperatures. https://buff.ly/46DS8eI

Enrollment has been completed for a Phase 2a study testing IPF treatment BBT-877, Bridge Biotherapeutics' investigationa...
08/02/2024

Enrollment has been completed for a Phase 2a study testing IPF treatment BBT-877, Bridge Biotherapeutics' investigational therapy. https://buff.ly/4fu29yU

Four years after her mother's death, columnist Ann Reynoso works through the lingering grief in a "Dear Mom" letter. htt...
07/31/2024

Four years after her mother's death, columnist Ann Reynoso works through the lingering grief in a "Dear Mom" letter. https://buff.ly/4d3uSsJ

Columnist Sam Kirton asks his PF community to support the SOAR Act, which aims to improve patient access to supplemental...
07/30/2024

Columnist Sam Kirton asks his PF community to support the SOAR Act, which aims to improve patient access to supplemental oxygen. https://buff.ly/4c5zFIZ

Enrollment for the Phase 3 TETON 2 trial testing Tyvaso in adults with IPF is complete, with data expected in 2025. http...
07/26/2024

Enrollment for the Phase 3 TETON 2 trial testing Tyvaso in adults with IPF is complete, with data expected in 2025. https://buff.ly/3Yqcead

While columnist Sam Kirton's quality of life improved after his lung transplant, the healing journey hasn't been easy, h...
07/23/2024

While columnist Sam Kirton's quality of life improved after his lung transplant, the healing journey hasn't been easy, he says. https://buff.ly/4cY5K6U

UW-Madison researchers have been granted nearly $11 million to explore mechanisms that drive idiopathic pulmonary fibros...
07/19/2024

UW-Madison researchers have been granted nearly $11 million to explore mechanisms that drive idiopathic pulmonary fibrosis progression. https://buff.ly/4daBC7F

Columnist Sam Kirton remembers getting his new lungs and doing his exercises during his first 10 days of transplant reco...
07/16/2024

Columnist Sam Kirton remembers getting his new lungs and doing his exercises during his first 10 days of transplant recovery. https://buff.ly/3zSho4d

Phase 2a trials of oral IPF treatment candidate INS018_055 are moving forward in the U.S. and China, with a Phase 2b stu...
07/12/2024

Phase 2a trials of oral IPF treatment candidate INS018_055 are moving forward in the U.S. and China, with a Phase 2b study planned for 2025. https://buff.ly/3xL6TiO

In honor of his lung transplant anniversary, columnist Sam Kirton pays tribute to his donor and raises awareness about o...
07/09/2024

In honor of his lung transplant anniversary, columnist Sam Kirton pays tribute to his donor and raises awareness about organ donation. https://buff.ly/3VP2Ppq

Growing older and living with pulmonary fibrosis means some heavy physical and emotional consequences to analyze, says c...
07/03/2024

Growing older and living with pulmonary fibrosis means some heavy physical and emotional consequences to analyze, says columnist Ann Reynoso. https://buff.ly/4cIibmH

Getting your affairs in order benefits both you and your loved ones, says columnist Sam Kirton, who took action after hi...
07/02/2024

Getting your affairs in order benefits both you and your loved ones, says columnist Sam Kirton, who took action after his IPF diagnosis. https://buff.ly/4boz3xz

A tracer known as FAPI performed better than the commonly used 18F-FDG for capturing early signs of pulmonary fibrosis o...
06/28/2024

A tracer known as FAPI performed better than the commonly used 18F-FDG for capturing early signs of pulmonary fibrosis on PET/CT scans. https://buff.ly/45NqSKk

After spending a week with his young granddaughters, columnist Sam Kirton gives thanks for the transplant that granted h...
06/25/2024

After spending a week with his young granddaughters, columnist Sam Kirton gives thanks for the transplant that granted him the opportunity. https://buff.ly/4bh6emU

AGMB-447, an inhaled IPF treatment being tested in a Phase 1 clinical trial, has been granted FDA orphan drug designatio...
06/21/2024

AGMB-447, an inhaled IPF treatment being tested in a Phase 1 clinical trial, has been granted FDA orphan drug designation by the FDA. https://buff.ly/3RCVhVQ

Columnist Charlene Marshall shares her tips for how to deal with guilt from having a chronic lung disease, particularly ...
06/20/2024

Columnist Charlene Marshall shares her tips for how to deal with guilt from having a chronic lung disease, particularly while traveling. https://buff.ly/3zb6S86

In preparation for a visit with his granddaughters, columnist Sam Kirton works on childproofing his home to make it safe...
06/18/2024

In preparation for a visit with his granddaughters, columnist Sam Kirton works on childproofing his home to make it safe for everyone. https://buff.ly/3KQmhNM

The FDA has granted its orphan drug designation to Alentis Therapeutics’ lixudebart (ALE.F02) for idiopathic pulmonary f...
06/14/2024

The FDA has granted its orphan drug designation to Alentis Therapeutics’ lixudebart (ALE.F02) for idiopathic pulmonary fibrosis. https://buff.ly/3x95YZc

ENV-101 improved lung function and reversed key signs of lung scarring in patients with IPF, according to data from a Ph...
06/07/2024

ENV-101 improved lung function and reversed key signs of lung scarring in patients with IPF, according to data from a Phase 2a trial. https://buff.ly/3RFRNSv

Despite her IPF, columnist Charlene Marshall has found these weight loss strategies to be accessible and effective. http...
06/06/2024

Despite her IPF, columnist Charlene Marshall has found these weight loss strategies to be accessible and effective. https://buff.ly/3x9b8UT

Deciding whether to pursue a lung transplant for idiopathic pulmonary fibrosis is a complex and personal decision, says ...
06/04/2024

Deciding whether to pursue a lung transplant for idiopathic pulmonary fibrosis is a complex and personal decision, says columnist Sam Kirton. https://buff.ly/45qjJPX

The PF Foundation's Community Registry, a database of patient and family member information, logged its 2,000th particip...
05/31/2024

The PF Foundation's Community Registry, a database of patient and family member information, logged its 2,000th participant. https://buff.ly/4bHrFOM

Columnist Sam Kirton explains what an acute exacerbation of IPF can look like, and why urgent action is needed. https://...
05/28/2024

Columnist Sam Kirton explains what an acute exacerbation of IPF can look like, and why urgent action is needed. https://buff.ly/44WQwf7

In the U.K., people with idiopathic pulmonary fibrosis who live in economically deprived areas tend to have worse surviv...
05/24/2024

In the U.K., people with idiopathic pulmonary fibrosis who live in economically deprived areas tend to have worse survival outcomes, a study finds. https://buff.ly/3WTFpS0

Columnist Sam Kirton encourages his readers to check out the forums, news articles, and other columns on Pulmonary Fibro...
05/21/2024

Columnist Sam Kirton encourages his readers to check out the forums, news articles, and other columns on Pulmonary Fibrosis News. https://buff.ly/3wRzNwX

Once-daily bexotegrast reversed the signs of lung scarring while improving lung function and cough in IPF patients, an i...
05/17/2024

Once-daily bexotegrast reversed the signs of lung scarring while improving lung function and cough in IPF patients, an imaging study finds. https://buff.ly/3wFILxg

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Videos

AWIR% Learning From Each Other
AWIR% Learning From Each Other

Patient advocate Liza Bernstein explains how #AWindowIntoRare will highlight what we can learn from each other as members of the #raredisease community. Join #BioNews in an online panel discussion + Q&A on #RareDiseaseDay at 3 p.m. EST Feb 28. Register: https://bit.ly/Bionews_RegisterNow

Rare Disease Day - A Window Into Rare
Rare Disease Day - A Window Into Rare

Patient advocate Liza Bernstein gives some insight into what will be discussed during "A Window Into Rare," our #RareDiseaseDay online panel discussion on Feb. 28. Register for this live event here: https://bit.ly/Bionews_RegisterNow #AWindowIntoRare #BioNews

A Window Into Rare - Rare Disease Day
A Window Into Rare - Rare Disease Day

"I have an understanding of what it feels like to feel isolated and erased": Patient advocate Liza Bernstein is hosting "A Window Into Rare," our #RareDiseaseDay panel discussion on Feb. 28. Register for this live event here: https://bit.ly/Bionews_RegisterNow #AWindowIntoRare #BioNews

We Are Rare. We Are BioNews.
We Are Rare. We Are BioNews.

Pulmonary Fibrosis News is part of the BioNews family, and 60% of us behind the scenes live with a rare condition. This is why we strive to provide you with trustworthy content, meaningful resources and a safe space. #WeAreRare. We are #BioNews. Learn more: https://bionews.com #RareDiseases #PFNews #pulmonaryfibrosisnews #livingwithPF #pulmonaryfibrosis

RECAP PF
RECAP PF

🎧 We strive to be inclusive and prioritize our communities’ needs. Our team works on the most accessible ways to deliver our news content so no one is left out. ✨ Our Flash Briefings are audio readings of some of our news. These newscasts are available on Soundcloud and Alexa, and on our website. ⠀⠀⠀ ⠀⠀ This is a recap of what we covered this week: ⠀⠀ ⠀⠀ "Why September Is Hard for Me as an IPF Patient" https://soundcloud.com/pulmonaryfibrosisnews/why-september-is-hard-for-me-as-an-ipf-patient ⠀⠀ "Review Study Does Not Recommend Adding Antibiotics to Standard IPF Care" https://soundcloud.com/pulmonaryfibrosisnews/review-study-does-not-recommend-adding-antibiotics-to-standard-ipf-care-1 . . #pulmonaryfibrosis #idiopathicpulmonaryfibrosis #pulmonaryfibrosispodcast #healthpodcast #flashbriefings #pulmonaryfibrosisnews #pulmonaryfibrosisflashbriefings #treatingpulmonaryfibrosis

PF FLASHBRIEFING% POST
PF FLASHBRIEFING% POST

In this flash briefing episode 🎧 Charlene Marshall reads a column she wrote about typical trajectories of life and how IPF unapologetically interferes with that. Our Flash Briefings and Podcasts are available for free. You can stream from platforms such as Alexa (Amazon), SoundCloud, Spotify, Apple Podcasts, Google Podcasts, iHeart, Deezer, Radio.com, RadioPublic and Stitcher. ⠀⠀⠀⠀⠀ ⠀⠀⠀⠀⠀ Who’s listening? 😄 Click here to listen: https://soundcloud.com/pulmonaryfibrosisnews/pulmonary-fibrosis-alters-the-trajectory-of-our-lives-1 . . . #pulmonaryfibrosis #podcast #healthpodcast #flashbriefings #pulmonaryfibrosisnews #pulmonaryfibrosisflashbriefings #IPF #idiopathicpulmonaryfibrosis #PFwarrior #PFcommunity #livingwithPF

FLASHB RECAP PF
FLASHB RECAP PF

Accessibility and inclusivity are part of our DNA. 🎧 Our news content is aimed at leaving no one behind, like our Flash Briefings, which are audio readings of some of our news. Find these newscasts on our website, on Soundcloud, Alexa (Amazon), and other platforms!⠀ ⠀ Check out this recap to see we covered this week:⠀ ⠀⠀⠀ "Serious Mortality, Ventilation Risk Seen in IPF Patients With COVID-19": https://soundcloud.com/pulmonaryfibrosisnews/serious-mortality-ventilation-risk-seen-in-ipf-patients-with-covid-19 "Metformin, for Diabetics, Effectively Treats Models of Silica-induced PF": https://soundcloud.com/pulmonaryfibrosisnews/metformin-for-diabetics-effectively-treats-models-of-silica-induced-pf . . #pulmonaryfibrosis #idiopathicpulmonaryfibrosis #pulmonaryfibrosispodcast #healthpodcast #flashbriefings #pulmonaryfibrosisnews #pulmonaryfibrosisflashbriefings #esbriet #treatingpulmonaryfibrosis

PF FLASHBRIEFING% POST
PF FLASHBRIEFING% POST

In this flash briefing episode 🎧 Charlene Marshall reads an article summarizing a database study out of West Virginia University, examining the effects and risks of COVID-19 on IPF patients. Our Flash Briefings and Podcasts are available for free. You can stream from platforms such as Alexa (Amazon), SoundCloud, Spotify, Apple Podcasts, Google Podcasts, iHeart, Deezer, Radio.com, RadioPublic and Stitcher. Who’s listening? 😊 Listen here: https://soundcloud.com/pulmonaryfibrosisnews/serious-mortality-ventilation-risk-seen-in-ipf-patients-with-covid-19 . . . . #pulmonaryfibrosis #podcast #healthpodcast #flashbriefings #pulmonaryfibrosisnews #pulmonaryfibrosisflashbriefings #IPF #idiopathicpulmonaryfibrosis #PFwarrior #PFcommunity #livingwithPF

FLASHB RECAP PF
FLASHB RECAP PF

🎉 And just like that… it’s Friday! 🎉 Which means it’s time for our Flash Briefings recap. Our accessible news content is also available as audio recordings. You can listen to these newscasts on our website, on Soundcloud, Alexa (Amazon), and other platforms! 🎧 This is what we covered this week: 1. "Many Wait a Year or Longer for PF Diagnosis, Survey Finds": https://soundcloud.com/pulmonaryfibrosisnews/many-wait-a-year-or-longer-for-pf-diagnosis-survey-finds 2. "Pulmonary Fibrosis Alters the Trajectory of Our Lives": https://soundcloud.com/pulmonaryfibrosisnews/pulmonary-fibrosis-alters-the-trajectory-of-our-lives . . . #pulmonaryfibrosis #idiopathicpulmonaryfibrosis #pulmonaryfibrosispodcast #healthpodcast #flashbriefings #pulmonaryfibrosisnews #pulmonaryfibrosisflashbriefings #ipf #treatingpulmonaryfibrosis

PF FLASHBRIEFING% POST
PF FLASHBRIEFING% POST

🎧 Accessibility and inclusivity are part of our DNA. Our news content is aimed at leaving no one behind, like our Flash Briefings, which are audio readings of some of our news. Find these newscasts on our website, on Soundcloud, Alexa (Amazon), and other platforms!⠀ ⠀ Check out this recap to see we covered this week:⠀ ⠀⠀⠀ "How to Make Your Event Safer for Vulnerable Guests": https://soundcloud.com/pulmonaryfibrosisnews/how-to-make-your-event-safer-for-vulnerable-guests "Controversial Conversations: A Chronically Ill Patient’s Perspective": https://soundcloud.com/pulmonaryfibrosisnews/controversial-conversations-a-chronically-ill-patients-perspective . . . #pulmonaryfibrosis #idiopathicpulmonaryfibrosis #pulmonaryfibrosispodcast #healthpodcast #flashbriefings #pulmonaryfibrosisnews #pulmonaryfibrosisflashbriefings #esbriet #treatingpulmonaryfibrosis

PF FLASHBRIEFING% POST
PF FLASHBRIEFING% POST

In this flash briefing episode 🎧 Charlene Marshall reads a piece from co-columnist Christie Patient as she works hard to plan her wedding, and shares tips on making an event safe for vulnerable guests as such as those with IPF or who are post-lung transplant. Our Flash Briefings and Podcasts are available for free. You can stream from platforms such as Alexa (Amazon), SoundCloud, Spotify, Apple Podcasts, Google Podcasts, iHeart, Deezer, Radio.com, RadioPublic and Stitcher. Who’s listening? 😊 Click here to listen: https://soundcloud.com/pulmonaryfibrosisnews/how-to-make-your-event-safer-for-vulnerable-guests #pulmonaryfibrosis #podcast #healthpodcast #flashbriefings #pulmonaryfibrosisnews #pulmonaryfibrosisflashbriefings #IPF #idiopathicpulmonaryfibrosis

FLASHB RECAP PF
FLASHB RECAP PF

Just when you thought the weekend would never come... 🎉 it’s time for our Flash Briefings recap! 🎉 Our accessible news content is also available as audio recordings. You can listen to these newscasts on our website, on Soundcloud, Alexa (Amazon), and other platforms! 🎧This is what we covered this week:⠀ "Meeting the 3 Requirements for Hospital Discharge After Lung Transplant": https://soundcloud.com/pulmonaryfibrosisnews/meeting-the-3-requirements-for-hospital-discharge-after-lung-transplant "Fine Crackles – Velcro-like Sounds – in Exams May Be IPF Screening Tool": https://soundcloud.com/pulmonaryfibrosisnews/fine-crackles-velcro-like-sounds-in-exams-may-be-ipf-screening-tool .⠀⠀ .⠀⠀ .⠀⠀ #pulmonaryfibrosis #pfnews #livingwithpulmonaryfibrosis #PFpodcast #flashbriefings #pulmonaryfibrosisflashbriefings #lungtransplant #treatingPF

PF FLASHBRIEFING% POST
PF FLASHBRIEFING% POST

In this flash briefing episode 🎧 Charlene Marshall reads a column by co-columnist Kevin Olson regarding the discharge requirements post-transplant. Kevin elaborates on his experience and efforts to accomplish the three requirements, but not without a few setbacks and frustrations. Our Flash Briefings and Podcasts are available for free. You can stream from platforms such as Alexa (Amazon), SoundCloud, Spotify, Apple Podcasts, Google Podcasts, iHeart, Deezer, Radio.com, RadioPublic and Stitcher. Who’s listening? 😊 Listen here: https://soundcloud.com/pulmonaryfibrosisnews/meeting-the-3-requirements-for-hospital-discharge-after-lung-transplant #pulmonaryfibrosis #podcast #healthpodcast #flashbriefings #pulmonaryfibrosisnews #pulmonaryfibrosisflashbriefings #IPF #idiopathicpulmonaryfibrosis #hyperbaricoxygentherapy #oxygentherapy #hyperbaricoxygen #IPFtherapy #treatingpulmonaryfibrosis

PF FLASHBRIEFING% POST
PF FLASHBRIEFING% POST

🎧 In this flash briefing episode, Charlene Marshall reads a column from her co-columnist Christie Patient on an item of hope and connection throughout her Mom’s ICU stay due to idiopathic pulmonary fibrosis (IPF); a wedding dress. Our Flash Briefings and Podcasts are available for free. You can stream from platforms such as Alexa (Amazon), SoundCloud, Spotify, Apple Podcasts, Google Podcasts, iHeart, Deezer, Radio.com, RadioPublic and Stitcher. Who’s listening? Who’s listening? 😄 Click here: https://soundcloud.com/pulmonaryfibrosisnews/in-the-icu-we-said-yes-to-the-hope-of-a-dress #PFnews #PulmonaryFibrosisnews ##PulmonaryFibrosisPodcast #podcast #healthpodcast #flashbriefings #PF #PFflashbriefings #PulmonaryFibrosis

FLASHB RECAP PF
FLASHB RECAP PF

Just when you thought the weekend would never come... 🎉 it’s time for our Flash Briefings recap! 🎉 Our accessible news content is also available as audio recordings. You can listen to these newscasts on our website, on Soundcloud, Alexa (Amazon), and other platforms! 🎧 This is what we covered this week: #PulmonaryFibrosisnews #accessiblenews #audionews #healthpodcast

PF FLASHBRIEFING% POST
PF FLASHBRIEFING% POST

🎧 In this flash briefing episode, Pulmonary Fibrosis News Columnist and Forum Moderator Charlene Marshall reads a column she wrote on the ups and downs that many patients with a chronic illness experience. Our Flash Briefings and Podcasts are available for free. You can stream from platforms such as Alexa (Amazon), SoundCloud, Spotify, Apple Podcasts, Google Podcasts, iHeart, Deezer, Radio.com, RadioPublic and Stitcher. Who’s listening? Who’s listening? 😄 Click here: https://buff.ly/3iFZEgz #PFnews #PulmonaryFibrosisnews ##PulmonaryFibrosisPodcast #podcast #healthpodcast #flashbriefings #PF #PFflashbriefings #PulmonaryFibrosis

FLASHB RECAP PF
FLASHB RECAP PF

🎉 And just like that… it’s Friday! 🎉 Which means it’s time for our Flash Briefings recap. Our accessible news content is also available as audio recordings. You can listen to these newscasts on our website, on Soundcloud, Alexa (Amazon), and other platforms! 🎧 This is what we covered this week: 1. "Planning for Retirement Despite My Anxieties": https://soundcloud.com/pulmonaryfibrosisnews/planning-for-retirement-despite-my-anxieties 2. "PFF Summit Will Focus on Research And Quality of Life": https://soundcloud.com/pulmonaryfibrosisnews/pff-summit-will-focus-on-research-and-quality-of-life #pulmonaryfibrosis #idiopathicpulmonaryfibrosis #pulmonaryfibrosispodcast #healthpodcast #flashbriefings #pulmonaryfibrosisnews #pulmonaryfibrosisflashbriefings #esbriet #treatingpulmonaryfibrosis

PF FLASHBRIEFING% POST
PF FLASHBRIEFING% POST

🎧 In this flash briefing episode, Charlene Marshall reads a piece from co-columnist Ann Reynoso regarding the retirement of her husband and her anxieties surrounding how to care to for her family financially. Our Flash Briefings and Podcasts are available for free. You can stream from platforms such as Alexa (Amazon), SoundCloud, Spotify, Apple Podcasts, Google Podcasts, iHeart, Deezer, Radio.com, RadioPublic and Stitcher. Listen here: https://soundcloud.com/pulmonaryfibrosisnews/planning-for-retirement-despite-my-anxieties #pulmonaryfibrosis #idiopathicpulmonaryfibrosis #healthpodcast #flashbriefings #pulmonaryfibrosisnews #pulmonaryfibrosisflashbriefings #IPF #treatingpulmonaryfibrosis

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