Love and Lipedema Awareness / LALA

12/06/2024

Lipedema Article 💜

Lipedema is characterized by an abnormal and uneven buildup of fibrous, fatty tissue, typically in the buttocks and legs. The condition's prevalence is not precisely known, since lipedema is often ...

09/16/2024

We need you!

🚨 Help Us Make a Change! 🚨

We need your help sending a message of support for ICD-10 codes for Lipedema to the CDC!

🎇 Before October 11, 2024, email [email protected] with this statement: "I support implementing ICD-10 codes for Lipedema now."

Tell whether you're a patient, provider or caregiver. You can then feel free to share your challenges as a patient or provider caused by not having diagnosis codes in place if you'd like. Please keep it short.

❗ Why is this a big deal? ❗

💜 With codes on every doctor's system, diagnosis can be tracked which means we will be able to know the true prevalence of lipedema soon.
💜With codes in place, doctors will have a consistent way to report that a person has lipedema.
💜With codes in place, the disease is legitimized. A medical provider cannot deny its existence if the codes are right there in the system.
💜With codes in place, it reduces the chaos that it is in the medical system for patients and providers. Diagnosis will surely come more quickly.
💜Research and grants will be easier to fund with a recognized separate code for lipedema.
💜Patients can point to the codes when working with insurance for coverage of treatments, supplies, and surgeries related to managing their condition.

Getting ICD-10 codes in place now is foundational to all of the work we collectively (members of the ALA or not, right!) are trying to accomplish.

Please email the CDC at [email protected] with your support of ICD-10 codes for lipedema today. Thank you so much for your personal advocacy!

09/13/2024

08/26/2024

Have you heard of bioflect and bioflect pro?? I'm a huge fan!

🧘‍♀️ Experience unparalleled comfort with Bioflect Medical Garments. Our FIR technology delivers micro-massage compression to reduce the impact of cellulite, lymphedema, and lipedema.

Comfort you can trust! https://www.therapygarments.com

💙

08/13/2024

Save the date 💜

Mark your calendars!
FDRS 2025
March 21-23, 2025
Atlanta, GA
In person and Virtual

More details in the weeks to come!

07/26/2024

So excited to share this new resource. Check out Lipedema Warrior Clinic! A lipedema educated doctor with a holistic approach to taking care of bodies like ours. Appts available in nearly every state.

07/04/2024

Updates 💜

Understanding lipedema has just become clearer.

Discover the Lipedema Project’s proposed framework for research case definitions in our newly published paper.

This detailed document is essential for enhancing the validity of research findings and improving diagnosis.

Whether you're a researcher, clinician, or patient, this guide is a must-read.

Click the link to access and download the paper now!
>> https://www.liebertpub.com/doi/10.1089/lrb.2023.0062

06/21/2024

Helpful lymphedema treatment act information💜

06/14/2024

Our fearless leading spreading lipedema awareness!
💜💜💜💜💜
Karen Louise Herbst

June is National Lipedema Month, and we want to raise awareness about this often misdiagnosed genetic disease, which affects an estimated 1 in 9 women. Joining us are Dr. Karen Herbst, head of research at The Roxbury Institute and an endocrinologist, and Kasey Potts, a lifestyle expert who was diagn...

06/14/2024

Frequently asked lipedema questions 💜