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Rare Visibility Lexie | Chronic Illness Awareness 🎗️
MCAS | POTS | EDS | GP & more
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Signs of medical burnout you may not realize you have & that are very prevalent in the chronic illness community 🪫 Medic...
20/08/2024

Signs of medical burnout you may not realize you have & that are very prevalent in the chronic illness community 🪫

Medical burnout is real, and if you feel this way, you are not alone.

If I’m going to be transparent with you, a lot of these things I’m experiencing right now. Don’t feel like you’re alone & please reach out to me if you need someone to talk to!🫶🏼

So many people, especially in the chronic illness community, end up feeling overwhelmed and burnt out with how much their lives revolve around their health 🔄

Signs of medical burnout ⤵️
♦️ overwhelmed
with upcoming appointments
and tests
♦️ difficulty finding motivation to go to the doctor
♦️ feeling hopeless instead of optimistic
♦️ you begin canceling or rescheduling appointments
♦️ Finding yourself wanting to give up on treatment plans and meds
♦️ feeling as if appointments are useless
♦️ feeling depleted after doctors appointments
♦️ increased depression, anxiety and isolation
♦️ You begin to stop advocating for yourself as much as you did before

Hey guys it’s Lexie (Rare Visibility)! I just wanted to let you all know that I started a digital marketing business! I ...
20/08/2024

Hey guys it’s Lexie (Rare Visibility)!

I just wanted to let you all know that I started a digital marketing business!

I decided to start this journey because my chronic illnesses make it hard for me to work full time hours.

I decided I wanted to share my journey with you guys and let you know that if you are interested in learning how you can also make money online selling digital products, DM me on here or Instagram (link in bio) and I will walk you through how I got started and teach you everything you need to know!

Thank you guys for supporting my journey & I hope to hear from you.❤️

Invisible illnesses aren’t always completely invisible 🙌🏻When someone has a chronic illness, there will always be little...
15/08/2024

Invisible illnesses aren’t always completely invisible 🙌🏻

When someone has a chronic illness, there will always be little signs here and there to look out for ⬇️

🤍 Using mobility aids and medical devices
🤍 Sitting down more frequently than most
🤍 Taking several different medications
🤍 Needing to take many breaks
🤍 Taking things slower than others
🤍 Going to the doctor frequently
🤍 Blood pooling, shakiness, fainting
🤍 Sweating, flushing, color changes
🤍 Checking vital signs while out frequently
🤍 Staying home most days of the week
🤍 Cancelling plans due to unexpected symptoms
🤍 Struggling to focus and concentrate on things

What are some signs of your invisible illness that may need noticeable to others? 💖

Chronic illness myths & the truth behind them 🙌🏻⬇️🚫 Everyone is affected the same by a certain illness. ✅ Same diagnoses...
12/08/2024

Chronic illness myths & the truth behind them 🙌🏻⬇️

🚫 Everyone is affected the same by a certain illness.
✅ Same diagnoses does not equal same experience.

🚫 You can tell if someone is sick or disabled just by looking at them.
✅ While some illnesses are visible, some are invisible. You can’t always see a disability.

🚫 We get used to our chronic illnesses with time.
✅ Being chronically ill never gets easier with time.

🚫 If someone has a chronic condition, they did it to themselves.
✅ We did not cause our illnesses and we can not do anything to change it.

What are some other myths or misconceptions that you have heard regarding chronic illnesses & disabilities? ⬇️

Chronic Illness Affirmations 🤍🌟 My body is capable of healing🌟 I am greatful for my body🌟 Asking for help is not weaknes...
08/08/2024

Chronic Illness Affirmations 🤍

🌟 My body is capable of healing
🌟 I am greatful for my body
🌟 Asking for help is not weakness
🌟 I am at peace with my illness
🌟 I learn from my pain & illness
🌟 I am more than the pain i feel
🌟 I am not defined by my illness
🌟 This journey makes me stronger
🌟 My life is full of comfort & purpose
🌟 I will handle my emotions with care
🌟 I am a warrior, not a victim
🌟 I choose to focus on what i can control

If you are anything like me, I struggle with being kind to myself, my body, and my mind - especially on the days that are more tough than others.

We need to learn to be kind to not only our bodies, but also our minds 🫶🏼

Being tired is NOT the same thing as being fatigued 🪫Fatigue is absolutely debilitating and impacts all aspects of daily...
07/08/2024

Being tired is NOT the same thing as being fatigued 🪫

Fatigue is absolutely debilitating and impacts all aspects of daily living and comes with more symptoms than just being tired 🗣️

Being tired ⤵️
🙌🏻 Being able to recover after resting your body
🙌🏻 Being able to push through high impact activities
🙌🏻 Feeling rested after a full night of sleep
🙌🏻You can pinpoint a reason why you are tired
🙌🏻 Your body still works & you can still move your body freely - you are just tired

Being Fatigued ⤵️
🙌🏻 Tackling the day feels impossible
🙌🏻 Not feeling recovered after rest or a night of sleep
🙌🏻 Impacts your daily living & sometimes comes without a cause or warning
🙌🏻 Feels like you have bricks weighing you down
🙌🏻 Not able to push through daily activities - body starts to give out

A migraine is not “just a headache” 🙌🏻Unlike headaches, a migraine causes symptoms throughout the entire body, and they ...
06/08/2024

A migraine is not “just a headache” 🙌🏻

Unlike headaches, a migraine causes symptoms throughout the entire body, and they are often unbearable.

Some symptoms that a migraine can cause besides just a headache ⤵️

🧠 Light and sound sensitivity
🧠 Dizziness and vertigo
🧠 Nausea and vomiting
🧠 Blurry and spotted vision
🧠 Numbness throughout body
🧠 Neck and back pain
🧠 Confusion and disorientation
🧠 Slurring of words
🧠 Tingling in limbs and face
🧠 Ringing in ears
🧠 Muscle stiffness and weakness
🧠 Fatigue and irritability

Reasons why my chronic illness is so exhausting ⤵️🩵 my body is constantly battling pain and symptoms🩵 I am in a constant...
05/08/2024

Reasons why my chronic illness is so exhausting ⤵️

🩵 my body is constantly battling pain and symptoms
🩵 I am in a constant state of uncertainty
🩵 Feeling the need to explain myself over and over
🩵 Endless appointments, medications, and tests
🩵 Fighting external and
internal ableism
🩵 Constantly having to
advocate for myself

Things that living with a Chronic Illness has taught me 🤍🌸 It it not selfish to prioritize yourself and your needs🌸 You ...
04/08/2024

Things that living with a Chronic Illness has taught me 🤍

🌸 It it not selfish to prioritize yourself and your needs
🌸 You can’t tell how someone is feeling by how they appear
🌸 Advocating for yourself is so important
🌸 Asking for help does not mean you are weak
🌸 Mental health is just as important as physical health

Sometimes the hardest things you go through in life are the things that teach you the most. 🙌🏻

What’s something that your chronic illness has taught you? ⬇️

The “normal” pain scale does not work for those with a chronic illness or chronic pain, since most of us, at baseline, h...
25/05/2024

The “normal” pain scale does not work for those with a chronic illness or chronic pain, since most of us, at baseline, have some sort of pain or discomfort.

When asked “on a scale of 1-10, what is your pain”, we often get weird looks when we say anything above 5, and when we try to explain what we mean, they are skeptical.

I made this pain scale to help better explain our levels of pain at different numbers ⤵️

1️⃣ pain not super noticeable
2️⃣ a little more noticeable
3️⃣ can mostly push aside
4️⃣ starting to feel it more
5️⃣ can’t do some activities
6️⃣ can’t do most activities
7️⃣ can’t do daily activities
8️⃣ hard to even think
9️⃣ pain is all i can think about
🔟 probably need the ER

Feel free to use this scale next time you need to 🤍🙌🏻

Invisible illnesses are called “invisible” for a reason. 🙌🏻On the outside we may look like any normal person, living lif...
21/05/2024

Invisible illnesses are called “invisible” for a reason. 🙌🏻

On the outside we may look like any normal person, living life without issue, but in reality we are struggling with so many things ⤵️

❤️‍🩹 extreme fatigue

❤️‍🩹 chronic pain

❤️‍🩹 depression

❤️‍🩹 health anxiety

❤️‍🩹 sleep issues

❤️‍🩹 weakness

❤️‍🩹 fatigue

❤️‍🩹 brain fog

❤️‍🩹 grief and fear

❤️‍🩹 medical trauma

❤️‍🩹 stiffness

& that’s just some things.

Please be kind to everyone you run into, you never know what someone is going through 🤍

How to show support to someone with a chronic illness 🫱🏼‍🫲🏽⤵️🩷 Do not minimize how they feel🩷 Research and learn about t...
18/05/2024

How to show support to someone with a chronic illness 🫱🏼‍🫲🏽⤵️

🩷 Do not minimize how they feel

🩷 Research and learn about their illness

🩷 Offer your help when needed

🩷 Check up on them often

🩷 Always believe them even if you don’t understand

🩷 Be patient with them, always

🩷 Don’t engage in toxic positivity

🩷 Help them remain calm and positive

🩷 Always be willing to listen to them

🩷 Keep a close eye on their well being

🩷 Check in on their mental health

🩷 Remind us of the positives we bring to the friendship/relationship

Five common myths about chronic illness & the truths behind them ⤵️1️⃣ Myth: Everyone with a certain diagnosis is affect...
16/05/2024

Five common myths about chronic illness & the truths behind them ⤵️

1️⃣
Myth: Everyone with a certain diagnosis is affected the same way
Fact: Same diagnosis does not equal same experience

2️⃣
Myth: You can tell if someone is sick just by looking at them
Fact: While some illnesses are visible, some are invisible

3️⃣
Myth: If someone is chronically ill, they did it to themselves
Fact: We did not cause our illness and we can not change it

4️⃣
Myth: With time, we get used to living with our illness
Fact: Being chronically ill never gets easier with time

5️⃣
Myth: We will eventually get better and be cured from our illness
Fact: While there may be ways to help symptoms, there is no cure

What are some other common misconceptions and myths you have heard about chronic illnesses? 🙌🏻

Gentle reminders for those with a chronic illness or disability 🩷💭 Your disabled & chronically ill body is not a bad bod...
15/05/2024

Gentle reminders for those with a chronic illness or disability 🩷

💭 Your disabled & chronically ill body is not a bad body

💭 Your illness isn’t your fault & doesn’t make you a failure

💭 The best you can give is always good enough

💭 You do not have to prove yourself to anybody

💭 asking for help is not a sign of weakness

💭 talking about your illness does not make you an attention seeker

This Self Love Definition Mouse Pad is the perfect constant, everyday reminder and affirmation to be kind to yourself.Wh...
14/05/2024

This Self Love Definition Mouse Pad is the perfect constant, everyday reminder and affirmation to be kind to yourself.

Whether you place it on your desk in office, in your at home office, or in your gaming area, you are sure to love this Self Love Mouse Pad as it is comfortable, and does not budge!

Link to ETSY listing 🔗
https://rarevisibilityco.etsy.com/listing/1731460421

This cute and funny "Blame It On The Brain Fog" sticker is perfect for decorating laptops, water bottles, notebooks, jou...
14/05/2024

This cute and funny "Blame It On The Brain Fog" sticker is perfect for decorating laptops, water bottles, notebooks, journals, skateboards, and so much more! 🧠☁️

Link to ETSY listing 🔗
https://rarevisibilityco.etsy.com/listing/1731384295

In honor of Ehlers Danlos Syndrome Awareness Month! 🦓🤍Ehlers Danlos Syndrome is an invisible illness, which means there ...
14/05/2024

In honor of Ehlers Danlos Syndrome Awareness Month! 🦓🤍

Ehlers Danlos Syndrome is an invisible illness, which means there is so much that happens behind the scenes that you can’t see from the outside 🙌🏼💗

Ehlers Danlos Syndrome is so much more than just hypermobility and “party tricks” and is definitely not a fun condition to walk through life with.

Ehlers Danlos Syndrome is a connective tissue disorder and connective tissue is found in many places in your body, more than just your joints, making those with this condition have so many possible symptoms and co-morbidities. 🔗

While from the outside you might see a normal appearing person, there are so many things they could be struggling with at any given moment.

What you don’t see behind those with Ehlers Danlos Syndrome ⤵️

▫️Chronic pain
▫️Chronic debilitation fatigue
▫️Medical burnout
▫️Subluxations
▫️Dizziness and other neurological symptoms
▫️Digestive and eating issues
▫️Mast Cell Activation Syndrome
▫️Built up Medical Trauma
▫️Depression and other mental health struggles
▫️Muscle weakness
▫️Migraines and headaches
▫️Bladder issues
▫️Sensitivities including food, sound, pain, etc
▫️ and so so so much more

In honor of May being Ehlers Danlos Syndrome Awareness Month! 🦓 We are not “too rare to care”, let’s spread awareness th...
13/05/2024

In honor of May being Ehlers Danlos Syndrome Awareness Month! 🦓

We are not “too rare to care”, let’s spread awareness this month! 🤍

Things to not be ashamed of if you have a chronic illness or disability ⤵️🩵 Resting and staying home more than others🩵 U...
13/05/2024

Things to not be ashamed of if you have a chronic illness or disability ⤵️

🩵 Resting and staying home more than others

🩵 Using mobility aids to assist in daily activities

🩵 Asking for help whenever you feel you need it

🩵 Not getting better - you can not control this

🩵 Weight changes due to treatment and medications

🩵 Being on disability and not being able to work

🩵 Frequent hospital admissions and appointments

🩵 Jealousy and grief - this is totally normal

🩵 Taking many medications even in a public setting

🩵 Not being the person people say “you used to be”

A little look into what brain fog can feel like and how it can impact your daily life 🌥️Chronic pain also affects the br...
12/05/2024

A little look into what brain fog can feel like and how it can impact your daily life 🌥️

Chronic pain also affects the brain!
A lot of those who struggle with chronic pain also experience cognitive difficulties, or brain fog 🧠

Symptoms are different for everyone, but some of the most common symptoms are ⤵️

☁️ Inability to focus
☁️ Forgetting things often
☁️ Making frequent mistakes
☁️ Easily overwhelmed
☁️ Being indecisive
☁️ Inability to find words
☁️ Struggling to multitask
☁️ Difficulty following conversations
☁️ Feeling spaced out
☁️ Slow to process thoughts
☁️ Anxiety & Nervousness
☁️ Feeling disoriented

Five things you should never say to someone with a chronic illness or disability 🙅🏼‍♀️⤵️🗣️ “Just Be Positive!”Trust me, ...
11/05/2024

Five things you should never say to someone with a chronic illness or disability 🙅🏼‍♀️⤵️

🗣️ “Just Be Positive!”

Trust me, positivity is one of the only things keeping us going, but sometimes it is hard for us to stay positive when our symptoms are taking over our life and we aren’t getting better

🗣️ “Learn To Live With It”

No matter how long we have been dealing with our illness, it’s never going to be something we will just “learn to live with”. We deserve to keep searching for possible helpful treatments and cures because a lot of us aren’t LIVING, we are SURVIVING.

🗣️ “I Think Your Over Exaggerating”

Never dismiss how someone feels especially if you have never been through it yourself. We are not over exaggerating, we are truly hurting.

🗣️ “But You Don’t Look Sick”

Disability and chronic illness isn’t one size fits all and is not linear. Not everyone appears sick and not everyone appears disabled. Some disabilities are invisible, society just has a toxic habit of thinking you have to look a certain way to be disabled.

🗣️ “It Could Be Worse!”

Things could always be worse than they are, but saying this is equivalent to dismissing how we feel and downplaying our symptoms. Sometimes we don’t know how much worse it could really be.

Some freedoms you lose when you have a chronic illness ⤵️🤍 The freedom to not base whether or not you can do something o...
10/05/2024

Some freedoms you lose when you have a chronic illness ⤵️

🤍 The freedom to not base whether or not you can do something off your energy level

🤍 The freedom of not having to worry about possible flare up triggers when you go new places

🤍 The ability to be active and get through the day without needing to stop and rest

🤍 The ability to be about to over-do yourself and be able to sleep it off and still feel great the next day

🤍 The ability to get through your day and still be about to go out and socialize at night

🤍 The freedom to make future plans and trips without the chance of cancellation

What are some other freedoms you have found you have lost as a result of your illness?

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