Lori Heller Autoimmune Advocate

08/03/2024

It’s been estimated that about one-third of people with IBS-D may have bile acid malabsorption (BAM).

Bile is a natural fluid the body makes in the liver that is necessary for proper digestion. The bile duct moves it from the liver to store it in the gallbladder until you eat. When you eat, the gallbladder contracts and releases bile into the stomach. BAM is a condition that occurs when the intestines can’t absorb bile acids properly.

Once the bile is in the stomach and small intestine, the acids in the bile help break down food and nutrients. Bile acids are reabsorbed by the small intestine back into the bloodstream so they can be used again. From time to time, the bile acids aren’t reabsorbed properly, leading to BAM. Too much bile acid in the colon can lead to diarrhea and watery stool.

08/03/2024

You don't have to be in a wheelchair to use a disabled parking space. There are many different disabilities that mean someone may need to use a disabled space 🚘🚗

Imagine this: you've just parked in a disabled parking space, placed your badge in your window and are ready to go into your favourite shop. You get out from your car and look around you, to see the person in the car next to yours staring at you and giving you a dirty look 🤨

Why would someone do that? You might ask. Many people have the misinformed view that only people in wheelchairs and people who use crutches/canes or older people are allowed to park in disabled parking spaces

This is incorrect. You never know why someone needs to use a disabled parking space and you never know what type of disability they may have just by looking at them

Only a couple of reasons (amongst the other hundreds) are: They may have joint problems and need a wider space so that they can exit their car without injuring themselves and/or they may need a closer space to the entrance of the building. They may have debilitating fatigue which means that they need a closer space. They may have excruciating pain which means walking can be very difficult and exhausting

Please remember that you do not know what someone has or is going through and that a dirty look (however small you may feel it is) can be really upsetting 💔

ID: An illustration of a disabled parking space. The markings on the concrete are in rainbow. In front of the parking space are trees and a blue sky with a sentence in it "You don't have to be in a wheelchair to use a disabled parking space. There are many different disabilities that mean someone may need to use a disabled space"

07/31/2024

This article is very interesting. My youngest child (now 35) was born on the spectrum with Aspergers syndrome. There is a link for women who have lupus and children with Autism.

There are several plausible mechanisms that could tie autoimmune disorders to autism.

07/23/2024

Gluten itself does not directly trigger Hashimoto's disease, but there is a connection between gluten consumption and the exacerbation of symptoms in individuals with this autoimmune condition. Here’s an explanation of the relationship:

1. **Autoimmune Response**: Hashimoto's disease is an autoimmune condition where the immune system attacks the thyroid gland. Some research suggests that consuming gluten can exacerbate autoimmune responses in individuals who are genetically predisposed to autoimmune diseases, including Hashimoto's.

2. **Molecular Mimicry**: One theory is that a process called molecular mimicry may play a role. The protein structure of gluten is similar to that of the thyroid tissue. When someone with a predisposition to autoimmune diseases consumes gluten, the immune system might mistakenly attack the thyroid tissue, thinking it's attacking gluten, thus worsening Hashimoto's disease.

3. **Leaky Gut Syndrome**: Another theory involves the gut. Some believe that gluten can contribute to increased intestinal permeability, often referred to as "leaky gut syndrome." This condition allows undigested food particles and toxins to enter the bloodstream, which can trigger or exacerbate autoimmune responses, including those affecting the thyroid.

4. **Co-Occurrence with Celiac Disease**: There is also a higher prevalence of celiac disease (an autoimmune disorder triggered by gluten) among individuals with Hashimoto's disease. Those with both conditions must avoid gluten to manage symptoms and prevent further autoimmune reactions.

While gluten doesn't cause Hashimoto's disease, avoiding it might help some individuals manage their symptoms and reduce autoimmune activity. It’s always best to consult with a healthcare provider before making significant dietary changes.

07/20/2024

Vitamin D plays an essential role in bone health, immune function, and inflammation regulation. For individuals with lupus, an autoimmune disease where the immune system attacks healthy tissues, maintaining adequate vitamin D levels can be particularly important. Here’s how vitamin D relates to lupus:

1. **Immune System Modulation**: Vitamin D has immunomodulatory effects, which means it can help regulate the immune system. For lupus patients, this can potentially reduce disease activity and flares.

2. **Inflammation Reduction**: Vitamin D can help reduce inflammation, a key component of lupus. Proper levels of vitamin D might aid in controlling inflammatory responses, potentially alleviating some lupus symptoms.

3. **Bone Health**: Lupus patients are at higher risk of osteoporosis and bone fractures, partly due to inflammation and the use of corticosteroids. Adequate vitamin D is essential for maintaining bone density and overall bone health.

4. **Deficiency Concerns**: Many lupus patients are found to have low levels of vitamin D. This deficiency can be due to several factors, including limited sun exposure (sunlight helps the body produce vitamin D) and the effects of medications used to treat lupus.

5. **Supplementation**: Vitamin D supplementation is often recommended for lupus patients, especially those with documented deficiencies. However, the dosage and necessity should always be determined by a healthcare provider, considering the potential risks and benefits.

Regular monitoring of vitamin D levels, a balanced diet, appropriate supplementation, and safe sun exposure can help manage lupus symptoms and improve overall health for those with the condition.

07/17/2024

Lupus (Systemic Lupus Erythematosus or SLE) and Multiple Sclerosis (MS) can mimic each other because they both involve the immune system attacking the body, leading to a range of similar symptoms. Here are some reasons for the overlap:

1. **Autoimmune Nature**: Both are autoimmune diseases where the body's immune system mistakenly attacks its own tissues. In lupus, the immune system can target any part of the body, including the nervous system, while in MS, it specifically attacks the central nervous system (CNS).

2. **Neurological Symptoms**: Both diseases can cause neurological symptoms such as fatigue, cognitive impairment, numbness, tingling, and muscle weakness. In lupus, these symptoms arise when the immune system attacks the nervous system, whereas in MS, they result from damage to the myelin sheath protecting nerve fibers.

3. **Overlap in Affected Demographics**: Both diseases primarily affect women, particularly those of childbearing age, which can lead to misdiagnosis or confusion between the two conditions.

4. **Inflammation and Immune System Involvement**: Inflammation is a common feature of both diseases, leading to symptoms such as joint pain and stiffness in lupus and the nerve damage seen in MS.

5. **Relapsing-Remitting Nature**: Both diseases often follow a relapsing-remitting course, where symptoms flare up and then partially or completely subside, adding to the diagnostic complexity.

Differentiating between lupus and MS typically involves a combination of clinical evaluation, imaging studies like MRI, blood tests (such as ANA for lupus), and sometimes spinal fluid analysis.

07/02/2024

Disability Pride Month is celebrated in July to honor the history, achievements, experiences, and struggles of the disability community. It aims to promote visibility and mainstream awareness of the positive pride felt by people with disabilities. The month also commemorates the passing of the Americans with Disabilities Act (ADA) on July 26, 1990, which was a significant milestone in the fight for the rights of individuals with disabilities. Activities during Disability Pride Month often include parades, educational events, and advocacy campaigns to foster inclusivity and challenge societal stigmas around disability.

07/02/2024

Health Update ✴️
Its been a while since I posted an update!

In April I was admitted twice for a stroke . Meaning I had 2 strokes 10days apart. I did follow up with P*P at the time however the office would not submit the correct referral for Neurologist and Rheumatologist. They would not refill my pain medication for the severe migraine I was experiencing with this event . My blood pressure remained very high . I had to file multiple grievances with my health insurance to get some resolution. So my pain medication was finally called into the pharmacy. since it was a severe delay in care I switched to a new doctor office.

Today I had my first appointment with the new doctors office. I was scheduled to see a nurse practitioner but was leary because most RNP ( nurse practitioner) are not well educated with Autoimmune diseases. Well she was amazing. I had written a list of things I need done , referrals , refills and new medications. She listened and agreed with me that these things needed to be done . She had me do an EKG which I was not expecting. But it was normal. She want to send me to a cardiologist too since I have issues in the past and currently having shortness of breath with exertion. I have a history of Lupus Pnemonitis ( inflammation of the lung ) and a blood clot in my lung . (I dont have this now). Lab work was ordered and referred to Neurologist, Rheumatologist, dermatologist, and cardiology. I am impressed. Someone actually listened to me .

What people dont know about me is that I am primarily homebound . I need a cane or walker to walk . My balance is poor . I have not driven a car since 2019 due to the weakness in my legs . I have a paid caregiver through the county to help me with my chores and drive me to appointments, hospital. She picks up groceries for me as well .

06/27/2024

How CBD Oil Can Help with Mouth Sores

Mouth sores, also known as canker sores or aphthous ulcers, can be a painful and persistent problem for many individuals. Traditional treatments often provide temporary relief but don't address the underlying inflammation effectively. Recent studies and anecdotal evidence suggest that CBD oil, derived from the cannabis plant, may offer significant benefits for managing mouth sores.

CBD oil is known for its anti-inflammatory, analgesic, and antibacterial properties, which can be particularly beneficial for treating mouth sores. When applied topically or taken orally, CBD can help reduce the inflammation and pain associated with these sores. Its antibacterial properties may also help prevent secondary infections that can worsen the condition.

Moreover, CBD oil can promote faster healing. By interacting with the body’s endocannabinoid system, CBD helps regulate various physiological processes, including the immune response and cell regeneration. This can accelerate the healing of the affected tissues in the mouth.

For those suffering from recurrent mouth sores, incorporating CBD oil into their daily routine might offer a preventive measure as well. Regular use of CBD oil can help maintain oral health by reducing overall inflammation and boosting the immune system.

In summary, CBD oil presents a promising natural remedy for alleviating the pain and discomfort of mouth sores while promoting faster healing and preventing recurrence. As always, it's advisable to consult with a healthcare professional before starting any new treatment regimen.

06/24/2024

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[ENG] Beast Mode- 02/2023

06/14/2024

06/14/2024

I am a lupus warrior. Every time I post a picture of LUPUS, I do so for awareness about lupus. PLEASE share my pictures. Lupus is an inflammatory diseases of tbe connective tissue in Please one's body. It's very painful for the person who has the illness. Lupus usually strikes women, and of child hearing age, but it can also strike men too, The percentage of men to women is 90% women 10% men. Lupus can strike
any organ in the body and does. Lupus is known as the
"great imitator" Lupus is often misdiagnosed as other illness before the final diagnosis.
Lupus has often in the past tested as false positives for many other illnesses such as mononucleosis and syphilis. Lupus is NOT contagious and is genetic. Those who
suffer from Discoid lupus, are often looked upon as if they are contagious and that couldn't be further from the truth. PLEASE Do not judge a person who has lupus. We have a chronic disease. It's painful, we need a cure. Please just Google lupus.

06/09/2024

https://urls.grow.me/Akyh7NsNN9

Gluten: The Truth About It. Around 60% of voters believe gluten is bad for those with allergies or sensitivities. The rest are split between other opinions. Let's define some terms and separate fact from fiction.

05/30/2024

People with lupus have two times the risk of developing cardiovascular disease than do people without lupus.

05/30/2024

As many as 60% of people with Lupus will experience some type of memory problem such as, recalling dates, names, and appointments

05/28/2024

Sign up now

05/28/2024

I signed up for a clinical trial in my area . Here is the link to sign up in your area . They will pay you to participate

We are always looking for new patients and volunteers to take part in clinical trials near you. Join our Patient Database.

05/25/2024

Raising awareness about lupus is crucial for several reasons:

1. **Early Diagnosis and Treatment**: Lupus is a complex and often misunderstood autoimmune disease that can be challenging to diagnose. Increased awareness helps people recognize symptoms early, leading to timely diagnosis and treatment, which can significantly improve outcomes and quality of life for patients.

2. **Education and Understanding**: Many people, including patients and healthcare providers, lack a comprehensive understanding of lupus. Awareness campaigns educate the public and medical community about the disease, its symptoms, and its impact, reducing stigma and misconceptions.

3. **Research and Funding**: Greater awareness can lead to increased funding for lupus research. This can accelerate the development of new treatments and potentially lead to a cure. Public support can influence policymakers to allocate more resources towards lupus research.

4. **Support and Advocacy**: Awareness initiatives help build support networks for those affected by lupus. They can connect patients with resources, support groups, and advocacy organizations, providing emotional and practical assistance.

5. **Reducing Health Disparities**: Lupus disproportionately affects certain populations, including women, particularly women of color. Raising awareness can highlight these disparities and drive efforts to address them, promoting equitable healthcare access and treatment for all affected individuals.

6. **Policy and Legal Changes**: Advocacy driven by increased awareness can lead to policy changes that benefit lupus patients, such as better insurance coverage for treatments, workplace accommodations, and disability benefits.

Overall, raising lupus awareness plays a critical role in improving the lives of those affected by the disease through education, research, support, and policy changes.

05/23/2024

Lupus, or systemic lupus erythematosus (SLE), is an autoimmune disease that can cause widespread inflammation and tissue damage in affected organs. It can impact various parts of the body, including the skin, joints, kidneys, brain, and other organs. Depression is a common comorbidity in individuals with lupus, with several factors contributing to this relationship:

1. **Biological Factors**: The chronic inflammation associated with lupus can affect brain function and contribute to mood disorders. The disease itself can alter the immune system and the central nervous system, potentially leading to depressive symptoms.

2. **Psychological Stress**: Living with a chronic illness like lupus can be stressful and overwhelming. The uncertainty of flare-ups, the impact on daily functioning, and the potential physical disfigurement can lead to significant emotional distress and depression.

3. **Medication Side Effects**: Some medications used to treat lupus, such as corticosteroids, can have side effects that include mood swings, anxiety, and depression.

4. **Fatigue and Pain**: Persistent fatigue and chronic pain are common symptoms of lupus that can severely impact quality of life, leading to feelings of helplessness and depression.

5. **Social and Lifestyle Impacts**: The physical limitations imposed by lupus can lead to social isolation, loss of employment, and financial stress, all of which can contribute to depression.

Effective management of lupus-related depression often requires a comprehensive approach that includes:
- **Medical Treatment**: Adjusting lupus medications and treating any underlying inflammation can help improve mood. Antidepressants may also be prescribed.
- **Psychotherapy**: Cognitive-behavioral therapy (CBT) and other forms of counseling can help patients cope with the emotional burden of chronic illness.
- **Support Groups**: Connecting with others who have lupus can provide emotional support and reduce feelings of isolation.
- **Lifestyle Modifications**: Regular exercise, a healthy diet, and adequate sleep can improve both physical and mental health.
- **Stress Management**: Techniques such as mindfulness, meditation, and relaxation exercises can help manage stress levels.

If you or someone you know is struggling with lupus and depression, it is crucial to seek help from healthcare professionals who can provide tailored treatment and support.

05/22/2024

Medical gaslighting is a term used to describe a situation where healthcare professionals dismiss or trivialize a patient's symptoms, concerns, or experiences, leading the patient to doubt their own perception of their health. This can occur when a doctor attributes a patient’s symptoms to psychological factors without adequate investigation, minimizes the severity of the symptoms, or suggests the patient is exaggerating or imagining their condition.

Key characteristics of medical gaslighting include:
- **Dismissal of Symptoms**: Healthcare providers may disregard or downplay the patient’s reported symptoms.
- **Misattribution**: Symptoms may be incorrectly attributed to psychological issues or stress without proper evaluation.
- **Lack of Validation**: Patients may feel their experiences are not taken seriously or validated by their healthcare provider.
- **Minimization**: Providers may suggest that the patient’s symptoms are not as severe as they report or are normal variations.
- **Undermining Confidence**: The patient may be led to question their own understanding of their health and symptoms.

This phenomenon can lead to delayed diagnosis, inadequate treatment, and increased suffering for patients. It is particularly prevalent among women, people of color, and individuals with chronic illnesses, whose symptoms are often not given the same consideration as those of other patients. Addressing medical gaslighting involves increasing awareness among healthcare providers, fostering better communication, and ensuring thorough and respectful patient evaluations.

05/21/2024

Lupus, also known as systemic lupus erythematosus (SLE), is a chronic autoimmune disease that can affect various parts of the body, including the skin, joints, kidneys, heart, lungs, and brain. The relationship between lupus and mental health is multifaceted and significant, encompassing direct and indirect impacts.

# # # Direct Effects of Lupus on Mental Health

1. **Neuropsychiatric Lupus (NPSLE)**: Lupus can directly affect the brain and nervous system, leading to neuropsychiatric symptoms. These symptoms may include cognitive dysfunction, mood disorders, psychosis, seizures, and headaches. Cognitive dysfunction, often referred to as "lupus fog," includes problems with memory, concentration, and executive function.

2. **Inflammation**: The chronic inflammation characteristic of lupus can contribute to depression and anxiety. Cytokines, which are inflammatory molecules, can affect brain function and mood.

# # # Indirect Effects of Lupus on Mental Health

1. **Chronic Pain and Fatigue**: Persistent pain and fatigue, common in lupus, can lead to feelings of frustration, helplessness, and depression. Managing ongoing pain and fatigue is challenging and can significantly impact daily functioning and quality of life.

2. **Stress and Anxiety**: The unpredictability of lupus flares, coupled with the stress of managing a chronic illness, can lead to heightened anxiety and stress. Patients may worry about disease progression, medication side effects, and the impact on their personal and professional lives.

3. **Social Isolation**: Individuals with lupus may experience social isolation due to the need to avoid triggers, such as sunlight, or due to physical limitations. This isolation can exacerbate feelings of loneliness and depression.

4. **Medication Side Effects**: Treatments for lupus, such as corticosteroids and immunosuppressants, can have side effects that impact mental health. For instance, corticosteroids are known to cause mood swings, anxiety, and depression in some individuals.

# # # Managing Mental Health in Lupus

1. **Medical Treatment**: Addressing neuropsychiatric symptoms directly through medical interventions, including medications like antidepressants or antipsychotics when appropriate, is essential.

2. **Therapeutic Interventions**: Psychological therapies, such as cognitive-behavioral therapy (CBT), can help manage depression and anxiety. Therapy can provide coping strategies and support.

3. **Support Groups**: Joining support groups, either in person or online, can help individuals connect with others who understand their experiences, reducing feelings of isolation.

4. **Lifestyle Modifications**: Regular physical activity, a balanced diet, and adequate sleep can help manage overall health and improve mental well-being. Mindfulness practices and stress-reduction techniques, such as yoga and meditation, may also be beneficial.

5. **Regular Monitoring**: Regular check-ups with healthcare providers, including mental health professionals, are crucial for early identification and management of neuropsychiatric symptoms.

In summary, lupus significantly impacts mental health through both direct effects on the brain and indirect effects related to the challenges of living with a chronic illness. Comprehensive care that addresses both physical and mental health aspects is vital for improving the quality of life for individuals with lupus.

05/21/2024

Today is Lupus Virtual Advocacy Day !

I sent a message to congress for more research and education. Please sign up . It is important to send the message to congress.

💜

World Virtual Advocacy Day is an event dedicated to promoting and raising awareness about a particular cause through online platforms. Participants engage in various activities such as virtual meetings, social media campaigns, webinars, and digital content sharing to advocate for policy changes, raise public awareness, and gather support. This approach leverages the power of the internet to reach a global audience, allowing for broader participation and engagement without the need for physical presence. The specific focus of the day can vary depending on the organizing groups and the issues they aim to highlight.