11/10/2024
This is sooo true !!!
I can’t count na kung ilang beses ako sumalungat or nakipagdebate ( in a respectful way ) sa mga different American doctors just to protect my son !!!💙
My degree in college major in math 😅 pero since last year I niyakap ko na and science 😅 … google , tiktok experiences , fb different groups and non stop questions sa mga doctors for 10 months … pati different ventilation machine , pag read ng graph, dosage ng mga meds ni Matthew … everything about him since I got pregnant to delivery to nicu lahat pinas aralan ko…
Everything about lungs talagang non stop questions ko sa doctors 😅💙
I always tell doctors I wanna be involved in different decision making and update everyday ( they do it, they’re nice ☺️ ) about Matthew.
A lot of things that I’m not posting na nagaganap kay Matthew.
I’m a kind of mama na overprotective … kahit America pa to or American doctors , hindi ako relax lang at ipaubaya lahat …
Hindi ko na mabilang ilang doctors na nastress ko dahil sa kulit ko … ask here , ask there , why this , why why why
All of these because I love Matthew !
I believe kc na I cannot protect him or advocate for him if I won’t educate myself !
For example …
1.
16 weeks preggy - they wanted me to terminate him kc he stopped growing na daw in my tummy ! They pressured us … but I refused !!! I said “ I’ll let my baby decide “
I asked for 2nd opinion sa other hospital and it appeared na may chance na makasurvive siya unlike sa 1st hospital result.
If I let myself be pressured by those doctors … wala akong baby Matthew !
2.
23 weeks - during my monthly check up 380g si baby Matthew sa tummy ko ! Sabi ni doctor hindi daw ako pwede maconfine bec they cannot intervene dahil maliit pa si Matthew.
I told them “ Your paper said 400g lang pwede maadmit to intervene, but I know you can do 350 actually 300g. My baby needs to be confined now and needs steroids for his lungs.
- After I showed to doctor how knowledgeable I am, she suddenly called the hospital para maconfine ako.
- it means , if I didn’t educate myself , agree nalang ako and wala akong baby Matthew now.
3.
Before delivery, 3 doctors said I have nothing to worry and no signs daw that I should give birth. But I insisted … so they sent me to ultrasound and within an hour I need to give birth because Matthew is not receiving o2 sa brain that time.
4.
May times na sobrang baba ng heart rate ni Matthew , I told the nurse na there’s something wrong … Sabi niya normal lang daw … I said no !!!
I told her to check yung current medicine , and upon checking yung sedation med ni Matthew that day was 10x higher of what he should be getting !!! That’s why bumagsak heart rate Niya …
Nag apologize agad sila and they thank me for questioning them that day !!!
5.
May times Matthew keeps puking/vomiting non stop, sabi nag adjust lang daw tummy niya sa formula … I doubt it !!! Then pinacheck ko … upon checking 1st day trial ng formula from breast milk eh 100 % agad … Hindi man lang nagstart sa 20% … excited si doc … kaloka !!
I talk to them and I said we need to do it slowly ! And Matthew did well when we did it slowly …
6.
May times Matthew’s oxygen keeps dropping non stop to a point we needed to bag him 2x a day … bagging means max out na ventilation machine niya…
I told doctors na I think what caused it ay because the settings sa machine is not right and that made him uncomfortable.
They said it is normal because he has chronic lung disease. I doubt it !!! Mama feels something is wrong …
Then we transferred hospital … when we transferred hospital no more bagging na !!! He became very stable sa new hospital !!!
And more more stories ….
Many time na I saved Matthew’s life ….
Kaya for those who keep telling na … kc America magagaling … advance etc …
Yes that’s true … very true … but I want you to know kahit America pa eh tao din sila … nagkakamali …
As parents, America man yan o Hindi … best hospital man yan or hindi … your obligation is to always watch your loved ones sa hospital
You cannot protect them if hindi mo eeducate ang self mo at oo ka lang ng oo sa mga doctors…
You need to always observe, educate yourself, don’t be afraid to ask questions … of course always be calm and respectful sa kanila …
It’s very hard … pero until now lahat memorize ni mommy … 😅 I’m blessed to have my new care team because most of the time I don’t need to ask anymore … they call me everyday or visit in the room to update me because they know that ako yung mom na wants to be involved always … kilalang kilala na ko ng team ko 😅 I question everything ( in a respectful way ) and I always want answer sa lahat lahat … they’re listening to my suggestion din like
“ what if doc ganito muna gawin natin kc si Matthew maselan, and if it works let’s do that
Or
“ doc pwede ba postpone muna that plan kc kagabi Matthew was uncomfortable “
I trust doctors … my son is alive because of them … but as parents , mas kilala natin baby natin ☺️💙
Minsan feeling ko ako na ang nurse ni Matthew ako pa doctor niya 😅 Feeling ko I’m working mom 😅
Everyday may morning meeting with them about daily plans and update …
Almost every week conference to different top doctors …
Then everyday care kay Matthew 💙💙💙
Yung utak ko gamit na gamit everyday dahil they’re all smart … I enjoy talking sa mga smart people 💙
I think after all of this … health care na career ko … I can’t count how many doctors na kachikahan ko at tinuturuan ako about graph etc … 😅 feeling ko easy na to kapag pinili ko mag NICU nurse or what 😅
For Matthew , I studied and still studying a lot … everyday … about babies … about preemie … about lungs… heart … brain etc 😅💙
