MakingMillie Stones Fan's

MakingMillie Stones Fan's 👧🏼👧🏼👶🏼🐶mama to three girls (Georgi, Millie, Cozi) and a pup named Dude!
💙💛sharing our Down Syndrome journey and what we learn along the way
🏡Wisconsin

02/01/2025

Her wolf though 🐺










Millie needs open heart surgery. Whew… writing that out made my own heart stop for a second 💔I feel like I’ve felt 100 d...
02/01/2025

Millie needs open heart surgery.

Whew… writing that out made my own heart stop for a second 💔

I feel like I’ve felt 100 different emotions over the past 24 hours. Part of me is grateful we made it this far without needing surgery and that Millie is strong and will recover well! I’m also grateful her doctors now have very clear answers that she does in fact need the surgery after reviewing her MRI. I didn’t want to live in a grey area. The other part of me is terrified, angry and having a hard time catching my breath. I’m not sure how I’m going to do this.

I think of all of you and find comfort knowing she has an army of supporters from all over the world that will be praying for her! And that there have been many parents that have gone before us that may have advice or words of encouragement.

I know she’s going to do amazing, and I know I’ll get thru it. I just can’t wait until this is behind us❤️‍🩹. Surgery is being scheduled for this Summer.

02/01/2025

I am so proud of everything Millie has learned and accomplished this year but I’ve especially enjoyed watching her speech development; babbling to her reflection, exploring her sounds, intently watching our mouth movements and now starting to say some words. The thing about slower development is there is excitement in every tiny milestone, the accomplishments are so much more rewarding and each stage can be cherished just a little longer than most (like that sweet baby babble 😊)

Just experienced the hardest “see you soon” of my life. Millie’s been taken off to surgery. I am so incredibly touched ...
02/01/2025

Just experienced the hardest “see you soon” of my life. Millie’s been taken off to surgery.

I am so incredibly touched by all of your messages and prayers. I can feel all of the love for Millie and it’s providing me comfort right now. Thank you 🥹

I’ll try to update in stories once she’s out of surgery.

❤️

01/31/2025

“LELLO” 🙃

That was some story. But the end is my favorite 🥰🥰 🐶
01/31/2025

That was some story. But the end is my favorite 🥰🥰

🐶

01/31/2025

And a Happy Birthday too for all you Jan 1 birthdays! 🎉

This is Millie! I love her beyond words ❤️ DO YOU KNOW/LOVE SOMEONE WITH DOWN SYNDROME TOO? If so, tell us one thing y...
01/31/2025

This is Millie! I love her beyond words ❤️

DO YOU KNOW/LOVE SOMEONE WITH DOWN SYNDROME TOO? If so, tell us one thing you love about them!

I did this on stories and loved all of the reasons you guys shared but I wanted all of the love to have a permanent spot.

(I took full advantage of the new 20 picture carousel with some of my favorites of Millie over the past few years)

01/30/2025

Hi!! This is Millie… I started the “makingmilliestones” page around the time she was born 2.5 years ago. I had just been through an emotional terrifying pregnancy of numerous appts/scans (in the midst of a pandemic) being told my daughter would most likely be born with Down Syndrome, a multi cystic kidney and and a heart defect. But for some reason, it was the Down Syndrome diagnosis that scared me the most. Not knowing much about Down Syndrome and having a false idea of what that meant, I was under the impression having a child with Down Syndrome meant our family’s life would never be the same (emotionally difficult, a financial struggle, a burden on our other child, a marriage strainer and a life devoted to caring for our “disabled” daughter). Well, it was true, our life would never be the same… but NOT in any of the ways I imagined! Millie brings us unbelievable happiness, so much love, gratefulness, laughter, pride, and a perspective of life I never knew existed. I wanted to share our story so the scared mama (or dad) who just received a diagnosis for their baby, can see all the light that’s ahead. But I also want them to know they don’t need to feel alone when times feel hard or uncertain. It’s an emotional wild ride, but one I would buy a ticket for over and over again. I want to thank all of our followers who have been right there with us on the ride and who continue to support and cheer for us on all of our adventures ahead. We appreciate you all so so much!

Uh oh, she learned “No”! 😂
01/30/2025

Uh oh, she learned “No”! 😂

01/30/2025

Millie’s morning affirmations

Hi friends! 👋🏼If you’re new to this page, this is my second daughter Millie (we have three girls). When Millie was in my...
01/30/2025

Hi friends! 👋🏼

If you’re new to this page, this is my second daughter Millie (we have three girls). When Millie was in my tummy, I was scared out of my mind, praying the test results we had taken at 12 weeks pregnant were wrong and she would come out “normal”. Well, they were right, and Millie was born with Trisomy 21, one kidney, and an AV Canal heart defect. We were absolutely devastated and thought our dreams of a “normal happy life” had gone out the window. Little did we know, we actually were given the biggest blessing we could have ever imagined.

During my pregnancy, we didn’t share what was going on with very many people (only family and a few friends). There was a chance the results were wrong (we didn’t move forward with amniocentesis) so we figured we didn’t need to tell anyone since there was a possibility our baby would be born perfectly healthy. Because I didn’t share the Down Syndrome possibility, I didn’t have anyone to talk to that had been in my shoes and I felt so incredibly alone. I was so scared.

When Millie was born, and her diagnosis was confirmed, I started to share my thoughts/feelings on Instagram. It became almost like a therapeutic outlet for me to share everything I had felt during those 9mo of pregnancy and everything I felt once she was here. Through sharing, I soon realized it was not only helping me, but it was also helping other moms going thru similar experiences, validating those dark scary feelings and helping them to feel less alone. So I kept sharing and sharing, virtually meeting moms (and some dads) from all over the world and becoming apart of a beautiful community.

As I continue to share, I hope I can continue to help those scared moms with a new diagnosis for their baby, show the beauty of Down Syndrome to those who don’t have it in their lives, share a true experience, the ups and the downs, of what it’s like raising a child with Down Syndrome (Google is wrong and only scary), and more then anything, I hope we can give you a smile, maybe a little laugh an

01/25/2025

The grimacing laugh 😂

It was asked I post this as Reel, so here you go!

Learn a Mothers Day song with us! ❤️ 🎶
01/25/2025

Learn a Mothers Day song with us! ❤️ 🎶

01/25/2025

Introducing the *Mickey* Mouse King from the Nutcracker 😆

Since it’s Down Syndrome Awareness month, I jotted down a few of the things I’ve learned since having Millie:1. Down Syn...
01/25/2025

Since it’s Down Syndrome Awareness month, I jotted down a few of the things I’ve learned since having Millie:
1. Down Syndrome is not scary and it didn’t ruin my life. Yes, having a baby with Down Syndrome changed my life and it does look a little different than what I imagined, but it definitely didn’t ruin it. It made it better. I gained a perspective, a patience and a love I never knew existed.
2. I have a love/hate relationship with low muscle tone (something almost all people with DS have). From what I understand, low tone happens because the brain’s signals to the muscles to contract aren’t optimal. This causes the muscles and body to use up much more energy, which is why people like Millie tire more easily and have delays in development. I found that Neurodevleopment and endurance are key to combating it. But I will tell you, low muscle tone results in the best “melt into you” hugs and cuddles I’ve ever experienced.
3. I have a better appreciation, awareness and respect for all disabilities and differences. I understand peoples perspectives better and view everyone as being perfect, unique creations of God.
4. I have gained a much deeper appreciation for my own health, abilities and uniqueness.
5. Down Syndrome does not indicate someone is incapable! They might just need a little more time to learn. Give them a chance, patience and some guidance and then watch them thrive!
6. The Down Syndrome community (people with DS and those who have a loved one with DS) are some of the most wonderful, caring and helpful people I’ve ever met.
7. There will be ups and downs, highs and lows, patience and frustration, happiness and anger, peace and chaos…. But I’ve learned that going with the flow, being present in the moment, and leading with love makes each and every day with Millie a beautiful gift. I feel so blessed to have her in my life 🥰

What’s something you’ve learned about Down Syndrome either from following our page, your own experiences or learning from someone else in the community?

01/24/2025

To celebrate her birthday, DUUUDE merch is here! 🙃

You might remember, Millie’s first word was our pups name, Dude, and the way she says will most likely put a smile on your face. A few months back, I connected with Jessica at and knew I wanted to partner with her to bring Millie’s “Duuude” to life through a fun design. Jessica has a daughter with Williams Syndrome and disabilities herself and is dedicated to bringing awareness (and funds*!) to the disability community. My hope is that “DUUUDE” will get people talking about Down Syndrome and promote inclusion because “Duuude, it’s just an extra chromosome” 😊 Click the link in my bio or comment “Duuude” and I’ll DM you a direct link to the store (clothing, mugs, blankets, totes, stickers and more!).

Thank you to everyone who have been supporting Millie and my family over the past few years. It means so much to me ❤️

*Each month we will be giving a portion of sales to an organization that supports Down Syndrome and other disabilities.

She might be over sharing 😆
01/24/2025

She might be over sharing 😆

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“LELLO” 🙃 #downsyndrome #proudsister

“I’ve been wanting you for 100 years”. It was in the plans for a long time that these two would be sisters 🥰 #downsyndrome #trisomy21 #downsyndromeawareness #sisterbond

“Dude” is the dog… #downsyndrome #dsawareness #trisomy21 #besilly

“Color, yep” ❤️#downsyndromeawereness #Milliekisses #downsyndrome #downsyndromeawareness #inclusion #babykisses #theluckyfew #prenataldiagnosis #extrachromosomeextralov #reels #reels2024 #video2024 #foryou

“Buh bye” #downsyndrome #trisomy21 #speechdevelopment

#Milliekisses #downsyndrome #downsyndromeawareness #inclusion #babykisses #theluckyfew #prenataldiagnosis #extrachromosomeextralov #reels #reels2024 #video2024 #foryou

🦋#Milliekisses #downsyndrome #downsyndromeawareness #inclusion #babykisses #theluckyfew #prenataldiagnosis #extrachromosomeextralov #reels #reels2024 #video2024 #foryou

🦋#Milliekisses #downsyndrome #downsyndromeawareness #inclusion #babykisses #theluckyfew #prenataldiagnosis #extrachromosomeextralov #reels #reels2024 #video2024 #foryou

🦋#Milliekisses #downsyndrome #downsyndromeawareness #inclusion #babykisses #theluckyfew #prenataldiagnosis #extrachromosomeextralov #reels #reels2024 #video2024 #foryou

Yes, a Down Syndrome diagnosis is a shock, it’s unexpected, it’s not what you “hoped” for your child. You may grieve, be angry, confused. I get it, I was there. But I also, thoug #Milliekisses #downsyndrome #downsyndromeawareness #inclusion #babykisses #theluckyfew #prenataldiagnosis #extrachromosomeextralov #reels #reels2024 #video2024 #foryou

Kindness is a huge part of @JonnyPops mission, which is a big reason why we love them! Not to mention, they’re organic, have no artificial dyes and are delicious! Their new flavor #Milliekisses #downsyndrome #downsyndromeawareness #inclusion #babykisses #theluckyfew #prenataldiagnosis #extrachromosomeextralov #reels #reels2024 #video2024 #foryou

Im melting 🥹🥰 #Milliekisses #downsyndrome #downsyndromeawareness #inclusion #babykisses #theluckyfew #prenataldiagnosis #extrachromosomeextralov #reels #reels2024 #video2024 #foryou

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