This is a video from yesterday! Ariel was fitted for another wheelchair and loves the freedom. 💕 If she has to go home with one her request of pink has been made 😊
I am struggling physically, mentally, and emotionally this week. We have lots of new consults this week. Hopefully I will have some fun pics later since Ariel has animal assisted therapy again 🐾💕
I forgot to mention yesterday that Ariel did get her PEG tube out 🙌🏼 She had some purulent drainage and we are thinking she had a small abscess which is why it was hurting her so much. She is heading for an ultrasound in a few minutes. I am truly in awe at how she has managed her pain. Her biggest pain issue is the neuropathy in her left foot. Everything else is managed well with pain meds.
Side note… I use a business suite app for this page because it was initially a small business so I am limited on posts with pics and videos. It’s not a big deal but that is the reason I had to do multiple posts with pics yesterday.
📣I also did not realize I had messages turned off. If you sent me a message I probably did not get it or it’s still sitting in the inbox. I did read a couple and responded but just to let you know I wasn’t intentionally ignoring the messages.. 🥴 I didn’t know
It’s snowing here and pretty 💕
Venmo reveal 🎉
Thank you to everyone that made this happen 💕
Here is the video of her rolling around 🦽
She is ready to go 🦽💨
Ignore the EEG hair. She had just gotten the stickers and electrodes removed.
I always forget that I can’t post the videos and pics at the same time.
I’m not sure why this did not load earlier. Super proud moment of pushing through the pain💪🏼
I ordered some bags and decorations for Ariel’s birthday next week. If anyone knows of a bakery that will deliver nearby please let me know. We ordered Mexican food tonight and it left much to be desired 😩
I started a registry to see if it was more user friendly. It only has a couple items on it.
Ariel - Amazon Gift List - https://www.amazon.com/registries/gl/guest-view/17ABI66PRKD3P
We will see if I did it correctly 🤦🏻♀️
Everyone has been so generous and we are so thankful. Many have still asked about needs/wants etc so I can add to the registry as things come up. Also, I will leave Ariel’s Venmo again in case anyone missed it before. Venmo is Ariel-Terhune
She turns 18 next Friday 😱
Late update. It’s been a busy day. Ariel has been awake since around 3am. She finally fell asleep around 1:30. She did well overnight without the ventilator. This morning they did give her 2 liters of supplemental O2 for a couple of hours due to her blood gas.
She had physical therapy and occupational therapy and was worn out💗
This video is from yesterday. 💕
She has been tentatively accepted to Craig Hospital pending all of the final sign offs. 🙌🏼 We may be leaving the 2nd or possibly the 6th. I anticipate moving out of the ICU tonight or tomorrow sometime. I do have things that I need to get in order before we leave. I know many of you have offered to sit with Ariel for me to step away but with the holidays I figured it was easier to reach out this way. Anyone that can sit with Ariel for a couple of hours tomorrow afternoon or Sunday please private message me. If I can get several to sit back to back then no one has to be here for too long.
Thank you 😊
The winner is in 🎉🎉🎉
We are waiting to find out what gift she chooses❤️