Lucas is always feeling so much better around friends! 😭I love it! I’m so glad his friend, Clifford came to spend the night with him tonight. He hasn’t moved out of the recliner all day. He’s finally up and laughing and having a good time! I’ll add the shirts to the comments. It won’t let me add photos and videos for some reason. 💛🎗️💛🎗️
Here’s the video 😭
As bad as he feels he just had to show his gratitude to all of Team Lucas family & friends! He’s literally the best kid ever. 😭
He’s not feeling the greatest. 😢
Mommas doing laundry and cleaning the room. So we can just strip the beds in morning and load up and head back home. 🏠
He’s finally awake 😍He said Happy Thanksgiving 🦃 Team Lucas family and friends!
We finally got him awake & his 8:30 morning meds in him. Nurse practitioner is very worried about his intake and outtake yesterday. If we can’t get him drinking by noon we will need an I.V. Bag of fluids. main campus, They can’t even get his labs here, I’m almost certain an I.V. Is out of the question. Which will probably lead to an all weekender at main campus, which none of us want. 🙏🏼He’s trying his best to drink an orange juice right now, I just put him 2 Gatorade’s in the fridge to get cold. 🙏🏼They’re really worried about him becoming dehydrated.
Not much to update. About the same. Daddy and Lucas had to get haircuts yesterday there was no other way around it, he’s not ready for photos and that’s ok. Although he looks so handsome with or without his long beautiful curls.🥹OT has had sitting up in bed for about an hour. Our goal with PT is sitting on the side of his bed today. 🙏🏼A lot of pain throughout the night. I heard him screaming out multiple times but he doesn’t like bothering the nurses for anything. So I let them know, now they will just have him on a scheduled oral pain med regimen instead of as needed because he doesn’t like to ask for anything. His oncologist wants to start his chemo tomorrow. His Cdiff seems to be getting a bit better. We just saw a nutrient specialist. He has to eat, he’s had a few small bites of things over the last 4 days. 🙏🏼🙏🏼🙏🏼oh yeah! They said they’re working on getting him a hospital bed approved through insurance and they found pediatric physical therapy that could come to home and work with him. He likes the sounds of that much better than inpatient rehab. We’re just taking it day by day. 🙏🏼💛🎗️Continued prayers are much appreciated & needed! He made this Tik tok the night before last. He’s the absolute best. My best friend, my ride or die for life!
We just spiked a fever. Anything over 100.4 is automatic admission during treatment. At least we’re already here I guess 😭She’s starting IV antibiotics now. Just got his lovenox shot(something to keep blood from clotting, I think ?) each time they been trying to do them in his belly. He definitely has a voice of his own because he said ‘ I’ve been on & off of SubQ injections since 2022” I take them in my arm. Nobody coming close to this boys tummy with a shot. lol The team will be here shortly to talk about our plans for the day. 🙏🏼🙏🏼🙏🏼🙏🏼🙏🏼
Happy birthday 🎂
He just wasn’t feeling it. Wasn’t feeling well. We made the best of it. He kept saying it’s just another day. 😭His leg is growing. I’ll post in comments. I’m scared it’s going to keep growing like his arm did. 😢
We made a page to do updates for Lucas.He is a 12 yr old boy that was diagnosed with Ewing’s Sarcoma.
