12/06/2025
Alice Wong's 2014 partnership with Story Corp, the Disability Visibility Project (DVP), grew into a presence on social media that created comfort for many of us. More than just trending hashtags and , we owe to her magic mind. Whole communities sprung from these social hours held online, these were modern day salons, where she cultivated and curated disabled voices, centering us, bringing the multiply marginalized unwaveringly to the front. For many of us this was our first experience with Disability Justice, which changed how we approached not only others, but our own selves.
As artist, philosopher, activist, cultural leader, and editor, she said of her groundbreaking book Disability Visibility, in which she gathered narratives of disability justice from other writers, “this book is a Valentine.” It was a valentine to the everyday passions of her fellow disabled people, whom she felt were every bit as interesting as her own. This is how she felt we would best achieve justice – elevating one another – she was achingly humble. She also spoke openly about how she used its introduction to challenge both journalism and publishing fields as a whole, with “rage as comedy”.*
Many of us saw ourselves in her emotional appeals, the ruthless truths she spoke, and the advocacy strings she held together, naming the medical racism, eugenics, and ableism that disabled people were facing before, during, and after the pandemic. In losing her, we have lost a policy advocate, beacon, and a fierce dreamer. The stunning agony and beauty of her legacy is that she believed we can change the landscape of justice with our collective rage, joy, and creativity, in just pushing our stories out, together.
Alice Wong’s love letter to us was her belief in the comedy of it all, except for when it wasn’t funny, when our collective stories were the deepest well of our power. We can probably believe that with her passing, she would invite us to still listen, very closely, to the water.
*both in her 2020 interview with W Kamau Bell "