VITFriends Vitiligo Support Group

VITFriends Vitiligo Support Group A Support Community of FRIENDS most with Vitiligo. We are a forward-thinking-focused community. WVD-

Serving the Vitiligo community where ever Vitiligo people are found globally.

Kristin Tissera our Lead Medical Student Intern and Podcast Co-Host shares her recent interview with Dr John Harris, who...
01/29/2025

Kristin Tissera our Lead Medical Student Intern and Podcast Co-Host shares her recent interview with Dr John Harris, who is a world renown Dermatologist focusing on Vitiligo.

Dr John talks about the VIGOR Research Study that he is responsible for at the UMass Chan Medical Center. This is ground-breaking work, that is funded by the National Institute of Health, DC. The goal is to share this information to the world and there are some rewards that are being offered for your participation as well.
Here is his interview:
https://www.spreaker.com/episode/an-interview-with-dr-john-harris--64003561

01/22/2025

🎉 Save the Date: Early Registration for WVD-USA 2025 Opens January 24th! 🌟

Join us in beautiful Tampa, Florida, for an unforgettable World Vitiligo Day-USA celebration! This year’s event is packed with inspiration, education, and community connection—you won’t want to miss it!

Hosted By: Beautifully Unblemished Vitiligo Support Group

🌴 What to Expect:
✨ Exciting sessions and activities (full agenda coming soon!)
✨ Opportunities to connect with advocates, experts, and the vitiligo community
✨ A gorgeous location to make unforgettable memories

📅 Mark your calendar: Registration opens January 24th. Don’t wait—

💜 Tag your friends and spread the word. We’ll see you in Tampa!

Do you want to learn more about Opzelura, the FDA approved treatment for Vitiligo. Visit for details:
01/14/2025

Do you want to learn more about Opzelura, the FDA approved treatment for Vitiligo.

Visit for details:

Learn more about OPZELURA (ruxolitinib) as a potential treatment option for vitiligo in people aged 12 years and older by signing up for a free webinar.

Happy New Year from VITFriends!During COVID in 2020, we decided that a NEWSLETTER would be another way of sharing inform...
01/11/2025

Happy New Year from VITFriends!

During COVID in 2020, we decided that a NEWSLETTER would be another way of sharing information, not just within our National Vitiligo Community but to the Global Vitiligo Community.

Thanks to the work of our talented Marketing Director, Mrs Alicia Roufs and with the assistance of our Lead Medical Student Intern, Kristin Tissera we got to work and we are delighted about this our 5th edition.

We trust that you enjoy and ask that you SUBSCRIBE to our Newsletter to get it automatically sent to you every January. https://www.vitfriends.org/news-updates

UNITY has and will continue to be our Mantra... Unity in our CommUNITY!

Thank you!

We are excited for our Vitiligo brother Julius Rembert from Sumter SC. He and 40 others from Sumter SC and their Leader ...
01/08/2025

We are excited for our Vitiligo brother Julius Rembert from Sumter SC.

He and 40 others from Sumter SC and their Leader Devon Devon joined us in 2016 on the
U S Capitol Steps to RALLY for Vitiligo and bring Awareness to our condition.

Congratulations Julius on the success of using Opzelura. This is the treatment that we testified before the FDA to let them know that our community needed this.

Thank you to Dr David Rosmarin...Thank you to John Harris and Thank you to Erica Cech

For VITFriends - our work for the GOOD of our beloved community continues.

READ Julius own words.... https://www.facebook.com/share/1GVsV59eLs/

KINEMA is a social cinema platform for filmmakers and community builders.Beginning January 1, 2025 - More Than Our Skin ...
01/01/2025

KINEMA is a social cinema platform for filmmakers and community builders.

Beginning January 1, 2025 - More Than Our Skin will be made available to watch in the comfort of your home on Kinema for just $7.50! This is our way of thanking all of you for your support this past year!

Thank you Hull Bay Production, Tonia Magrass and Gregory Magras

Host a screening of More Than Our Skin

Thank you to our WALMART shoppers who have listed VITFriends VITILIGO Support Group as your charity of choice to support...
12/21/2024

Thank you to our WALMART shoppers who have listed VITFriends VITILIGO Support Group as your charity of choice to support in 2024.

Every $1.00 goes a long way to making a difference.

It is VERY simple...See link below:
If at checkout your total bill is $20.13 cents, you can sign-up -to- round-up to the nearest dollar.
This means that your BILL would be - $21.00 instead of $20.13.
Round-up will send VITFriends your .87cent as a donation.

Thanks for your support!

As part of your local communities, we’re connected to the causes you care about – and invested in supporting the collective impact we can make together. Walmart offers customers the opportunity to give to the organizations they care about by rounding up their totals to the nearest dollar and don...

12/19/2024

Our Holiday GREETING!

To Jean-Marie Meurant who has been a VITFriend since September 2017. To IamGaone Matewa and the entire VIPOC - Vitiligo ...
12/16/2024

To Jean-Marie Meurant who has been a VITFriend since September 2017.

To IamGaone Matewa and the entire VIPOC - Vitiligo International Patient Organizations Committee of Paris, France, CONGRATULATIONS on what appears to be a Successful Conference 2024!

Merry Christmas - Happy Holidays and a Bright and Prosperous 2025!

12/12/2024
12/11/2024

VR Foundation, in partnership with Sanguine Biosciences, is reaching out to raise awareness about an at-home research opportunity for US-based patients diagnosed with vitiligo.

What is the goal of the at-home research?

The goal of this research is to allow researchers to enhance our understanding of vitiligo, in support of developing new diagnostic and treatment options for patients living with the condition.

Who can participate?

You may qualify to participate if you:

Are 18 to 85 years of age

Are diagnosed with vitiligo

Have not taken medical treatment or investigational drugs within the following interval:

< 12 weeks or 5 half-lives (if known), whichever is longer, for any investigational or experimental treatments

Have ever taken an immunomodulating biologic drug or antibody-based therapy

< 4 weeks for systemic immunosuppressive or immunomodulating medications

< 4 weeks for any topical or systemic JAK inhibitor.

< 1 week for any oral or topical PDE4 inhibitor

Live in the United States

What would I have to do to participate?

Patients who qualify can support research by providing a one-time blood donation from the comfort of their own homes.

As a thank you for participating, you will receive up to a $100 prepaid gift card after the collection is complete.

To learn more or sign up, visit this page or call (814) 204-2747 to speak with a research coordinator and see if you qualify.

Our 2024 work for our Vitiligo Community was sometimes tiring and time consuming, but rewarding and worth every moment. ...
12/02/2024

Our 2024 work for our Vitiligo Community was sometimes tiring and time consuming, but rewarding and worth every moment.

With several visits to the MA State House, BP Libraries, YMCA'S, BP Schools and more, we welcomed every opportunity to Educate, Advocate and Spread Awareness of our Cause.

We are immensely grateful for our Supporters and Partners. Thank you Rep Rob Consalvo, Thank you Boston City Council President Ruthzee Louijeune and so many others, who have seen and appreciated our efforts.

So, after a State House Rally and Visit in June, where we celebrated World VITILIGO Day. Then in July 2024 this is about some of our work that you may be interested in hearing more about:
https://youtu.be/Ui4lKR8GlJA?si=FPeGd1d40sHFKpwc

Wishing you the best of Holidays and a Bright and Prosperous 2025!

On July 25th 2024, Representative from Massachusetts Rob Consalvo, voted for a game changing healthcare bill that increases access and the affordability of p...

Happy Thanksgiving 🍁🍽 🦃
11/28/2024

Happy Thanksgiving 🍁🍽 🦃

Our PODCAST Journey:We are grateful for 14years of success with BlogTalkRadio and we look ahead to what 2025 has in stor...
11/19/2024

Our PODCAST Journey:

We are grateful for 14years of success with BlogTalkRadio and we look ahead to what 2025 has in store for us!

www.blogtalkradio.com/vitfriends

VITFriends Thanksgiving BOOK Sales!Our BOOK SALE...Stop by our office at: - 912 River St, Hyde Park, MA - on Wednesday, ...
11/19/2024

VITFriends Thanksgiving BOOK Sales!

Our BOOK SALE...

Stop by our office at: - 912 River St, Hyde Park, MA - on Wednesday, November 20, from 11am - 4pm and purchase a BOOK for a Donation of $5.00... more -per book- to support our Purple Patch Teen/Youth Vitiligo Group.

We have - Children, Health, Spiritual BOOKS and more...

FYI - 90% are NEW Books!!!!

CONGRATULATIONS to our - 3 - VITFriends Scholarship Award recipients for 2024. We are proud to report that this years aw...
11/18/2024

CONGRATULATIONS to our - 3 - VITFriends Scholarship Award recipients for 2024. We are proud to report that this years awards total over $6,000.

Congratulation to our NEW 2025 Scholarship Advisor Sneha Rangu. Sneha is also a Medical Student, one of our Peer Leaders and a Vitiligo person working with our NY Group.

Our End-of-Year PPT meeting was a success, thanks to our special guest Miss Lucinda Mills - Boston Public School LCSW, whose topic was "What is a VISION Board"

To parents with young people with VITILIGO ages 13-20 we encourage you to LIKE - SHARE - Follow. Your young people can FIND peers at Purple Patch Teen Group https://www.facebook.com/groups/271326274411564 We can also be found on Instagram and TikTok.

Address

P. O. Box 366073/912 River St-Rear
Boston, MA
02136

Alerts

Be the first to know and let us send you an email when VITFriends Vitiligo Support Group posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Business

Send a message to VITFriends Vitiligo Support Group:

Videos

Share