25/02/2021
Happy Thursday United Artz family!!
We are very pleased to announce we’re taking part in DJ Defile’s Online Charity Festival For The Marfan Trust this weekend!!
Taking over the Friday from 11am till 2am with the full United Artz DnB Crew and a few of our favourite guests this is not one to be missed!!
With one of our co-founders having inherited this condition, albeit thankfully a fairly mild case, this is literally a cause very close to our hearts ♥️
We hope you can all donate as much as you can for the cause and above all, enjoy the show!!
More info including full set times to follow!!
https://gofund.me/f9815551
This month is Marfan Syndrome awareness month , if you know me or even if you’ve seen me on a live stream you’ll know I’m rather tall and slim - that’s all thanks to this genetic condition that affects roughly 1 in 10,000 people around the world. Although it’s got some pretty nice perks (everyone wants to be taller and slimmer 🤣)it does have its downsides - due to it affecting connective tissue it can cause problems with your eyes , heart and all your joints.
Me personally this condition puts me through a lot of pain on a day to day basis from my ankles and toes to literally the top of my head this isn’t a sympathy post I’m just trying to give perspective on what it’s like to have the condition. I was diagnosed at 12 and by 15 I’d had two operations on my toes and a major operation on my chest as I had a concave chest for most of my life. It does also affect my heart but I’ve been lucky enough to avoid having problems with my eyes thus far.
As a genetic condition there’s no cure and it’s progressive in most circumstances meaning symptoms worsen with time. This means you have to be under fairly close observation from health services to ensure everything’s still running smoothly which can be draining in itself. Due to its rarity there aren’t a huge number of cases of the condition in the UK so our health services aren’t quite as well informed as somewhere like the US where they have much better knowledge of how the condition works and preventative measures that can be taken.
So to raise awareness and to try and raise money for the research of Marfan syndrome at the end of this month I’ll be doing a charity livestream to raise money for the Marfan trust - more info to come on this soon.
