Fibromyalgia & Chronic Pain Support with Purple Butterfly Transformations

15/02/2025

🌿 Dream Wellness Retreat 🌿

Imagine you have the power to design your ultimate wellness retreat… ✨

📍 Where would it be?
A secluded beach?
A cosy mountain cabin? A peaceful forest?

💆‍♀️ What activities would it include?
Yoga at sunrise, meditation by a waterfall, energy healing, sound baths, journaling under the stars?

Drop your dream retreat ideas in the comments!

Let’s inspire each other.

Mine would be:
Warm secluded beach in Australia or waterfall picturesque location.
Reiki Meditation at sunrise.
Massage.
Lunch/picnic on the beach.
Yoga or pilates stretching.
Light dinner watching the sun come down.
A challenge "Fire Walk"
Followed by a spiritual connection circle by the sea.

💜✨

15/02/2025

ME Connect (helpline & message service) is available via our new freephone number to offer support and information.

** Freephone number - 0808 801 0484 - Lines open now**

Opening times:

Monday to Friday 10 a.m. - 6 p.m (Late night opening on Thursday until 9 p.m.)

Weekends (Saturday & Sunday) 10 a.m. - 12 noon.

14/02/2025

What's something you love about yourself ❤️

Self love can sometimes be difficult as we are very critical of ourselves. Or we put others before ourselves.

When I was on my healing journey 5 years ago I discovered that a lot of my healing came down to changing my mindset and loving who I was. To do that I had to release the guilt, childhood Traumas and the loss of my grandfather which made me really struggle.

Since I got Silent Counselling I "hand on heart" have had no mental health issues, I have too much confidence now and ...

I LOVE MYSELF❗

Go look in the mirror and love the person you see. If not give me a message on WhatsApp and let's have a no obligation chat 💬

12/02/2025

Do You Track Your Moods?

Have you ever noticed patterns in your moods but weren’t sure why? Tracking your emotions can reveal fascinating insights about what influences your well-being.

Women’s moods can be affected by many things, including:
✨ Hormonal changes (menstrual cycle, perimenopause, menopause)
🌕 Lunar cycles (ever feel extra emotional or fiery during a full moon?)
💤 Sleep quality (too little rest can make everything feel overwhelming)
🥗 Diet (certain foods can lift or lower your mood)
🌿 Stress levels (daily pressures can build up without us realizing)
💙 Emotional energy from others (some people drain us, while others uplift us)

I started tracking my moods and discovered that during a full moon, I’d become more argumentative and temperamental. It was eye-opening!

Have you ever noticed a pattern in your moods? Let me know in the comments! 💬

04/02/2025

💛 A Message of Strength & Hope 💛
To everyone facing cancer today—you are stronger than you know, braver than you feel, and more loved than you can imagine. 💪💖
Every day you rise, you are showing courage. Every challenge you face, you are proving resilience. You are not alone—there is a whole world sending you love, hope, and healing energy. 🌿✨
Drop a 💛 in the comments to show support for those fighting, surviving, and remembering. 💛
My own families journey with cancer has been just awful. So many of my relatives have been affected both in the past year or so and currently I have a close family member going through their journey with Chemo. Anyone out there I send love and healing.

03/02/2025

☀️ Morning Rituals Matter! ☀️
How do you love to start your day? 🌅✨
Is it a cuppa tea to wake you up? 🍵
A meditation session to set the tone? 🧘‍♀️
A Reiki shower to cleanse your energy? 🚿✨
Or something else that makes your mornings magical?
Share your favourite morning ritual in the comments!
Let’s inspire each other. 💛

02/02/2025

🌟 Kindness Spotlight! 🌟
What’s one act of kindness you experienced this week? 💖
Maybe a stranger held the door open, a friend sent you a thoughtful message, or someone made your day just a little brighter.
Let’s spread positivity and gratitude—share your moment in the comments! ⬇️✨

01/02/2025

I may be quiet over the next week or so, we think my little dog is near the end, a really sad time.

Daisy was with me when I was first diagnosed with fibro she has been my friend and my rock.

I can't go to bed without her and she tells me when it's bed time. She washes my hand when I am sore.

Even today as she was struggling to breathe, she was washing my hands and worried about me. She acts like I am her pup. I will be up all night tonight sitting with her.

She has had a heart condition for the last 1yr and a half and been on medication. She has had two bouts of fluid on her lungs but this just feels different.

I have been giving her Reiki today which has settled her a little. I feel pain with people and animals I am not sure she is going to get through it this time.

Please stay in group whilst I support my wee dog Daisy.

Share your pet pics in the comments. 🐾🐕 💜

01/02/2025

What a colourful month this is going to be.
Each year there is a new theme, this year is activism and social change.
Enjoy this colourful month, each posts has its own daily theme to do with the LGBT+ Community. +

31/01/2025

26/01/2025

If you could master one skill — any skill in the world — what would it be? 🎯 And why?

Would it be learning a new language, playing an instrument, or something completely unique?

Share your dream skill in the comments! ⬇️

24/01/2025

To help raise awareness: By a show of hands in the comments, please answer the following question relating to your ME/CFS diagnosis and your family?

Hands up if you and a person in your family has ME/CFS or Fibromyalgia - and also has Long Covid?

N.B. If you'd prefer not to state publicly - a CARE emoji for YES or LIKE for NO - would be appreciated, thank you!

23/01/2025

🌿 Chronic Illness: A Journey of Loss and Rediscovery 🌿
Living with a chronic illness is like mourning the loss of who you once were. It’s not just about managing symptoms—it’s the heartbreak of realising life may never look the same again.

The energetic, carefree version of you feels like a distant memory, replaced by limitations, frustrations, and moments of deep grief.

This isn’t just about a change in health; it’s the loss of dreams, plans, and even relationships that no longer fit the new version of your life.

But here’s the truth: while chronic illness takes away, it also invites you to rediscover yourself. It challenges you to embrace your strength, find new rhythms, and redefine your identity.

Healing isn’t always about "getting better"—it’s about learning to live fully in this new reality, honoring what you’ve lost while creating space for what’s possible.

23/01/2025

Education is a basic human right and an essential building block for every person to reach their full potential. For those with Fibromyalgia, chronic pain, fatigue, and cognitive challenges can can be a barrier.

However, with the right support, accommodations, and understanding, people with Fibro can still pursue their academic goals and achieve success.📚

23/01/2025

Pacing

Pacing in the context of chronic pain and illness is a strategy used to balance activity and rest to prevent overexertion and minimise flare-ups. It's about managing energy and symptoms by maintaining a sustainable rhythm.

Here are the basics:

1. Understand Baselines

Identify what level of activity you can comfortably manage without worsening symptoms. This is your baseline.

Avoid pushing beyond your limits, even on “good” days.

2. Break Tasks into Smaller Steps

Divide larger tasks into manageable chunks.

Focus on one step at a time to conserve energy and reduce stress.

3. Use the "50% Rule"

When planning activities, aim to do only 50% of what you think you can handle. This ensures you save energy for other parts of your day.

4. Schedule Regular Breaks

Alternate periods of activity with rest, even before you feel tired.

Use timers to remind yourself to take breaks every 20–30 minutes during tasks.

5. Prioritise Activities

Focus on essential tasks first (e.g., cooking, hygiene) and let less critical ones wait.

Use tools like a planner to organise activities based on your energy levels.

6. Adopt the "Three Ps" Approach

Prioritise: Focus on what truly matters.

Plan: Organise tasks to reduce effort (e.g., combining errands).

Pace: Balance activity and rest to avoid overdoing it.

7. Listen to Your Body

Pay attention to warning signs of fatigue, pain, or discomfort.

Adjust your activity level immediately to prevent worsening symptoms.

8. Practice Gentle Movement

Incorporate gentle, low-impact activities like stretching, yoga, or walking to maintain mobility without overexertion.

9. Use Assistive Tools

Utilise tools like mobility aids or ergonomic devices to reduce strain during activities.

10. Track Patterns

Keep a journal to track what activities trigger pain or fatigue. This helps refine pacing strategies over time.