04/07/2022
I am Nora Amath, born in Vietnam and am part of the persecuted Cham Muslim minority group native to the country. I was only 3 years old when my family was forced to flee the country after the Vietnam war, trekking through the jungles of Cambodia and arriving in Thailand where we were processed as refugees. We were eventually granted asylum in US and finally found some stability. Experiencing life as a refugee, I went through all the emotions of displacement, vulnerability and isolation, and it’s not the nicest space to be in.
Having gone through that experience at a very young age, I became very determined to envisage a world where communities are empowered and people respond as one to the suffering of others, regardless of one’s race, political affiliation, gender or religious belief.
My education journey after high school took me to Malaysia where I met my life partner, Halim Rane, who is a 4th generation Australian. We decided to settle in Australia after we completed our university studies and now have 3 amazing children together. Life was good; we became busy with our duties, family and work. I especially love my time volunteering my services and feel incredibly honoured in my role as Islamic Relief Australia’s first female Chairperson. As a result of my services to community, I was awarded Australian Muslim Woman of the Year; and in 2013, received an Australia Day Community Award. I was also honoured as a Finalist for Australian of the year 2017. Life could not have been any better.
In 2017, I received a message from my younger sister in the US, telling me that she had been diagnosed with breast cancer. That news came as a shock to all of us as there was no history of cancer in our my family. Seeing her go through chemotherapy and the subsequent side effects was heart breaking. As a witness to it, you feel so helpless, to see the debilitating impact on the body, mind and soul.
3 years later, in 2020, in the midst of COVID, my youngest son started having upper back and shoulder pain. After a number of visits to specialists, scans indicated that he had a tumour growing under his shoulder blade. This period would have to be one of the most difficult periods in my life. In between taking him to and from the doctors and hospital appointments, I discovered some abnormalities in my breast skin. I didn’t think much about it at first, but a nagging feeling made me visit my GP. After the examination, ultrasound, mammogram and biopsy, the doctors confirmed that I have aggressive breast cancer.
For some reason, at that time, I took that news calmly. I didn’t flinch nor cry. I accepted it. My focus was still on my son, who was going through surgery, and I needed to have my act together to take care of him, to help him in his healing. However, once my husband and I announced my diagnosis to family and some close friends, it hit home that I now needed to consider what my next steps were going to be in my own cancer journey. Visits to the specialists and conversations with family and friends who were doctors all pointed to the fact that I really needed to undergo chemotherapy to have the greatest chance of survival.
And that is when I broke down. My husband and I live a pretty healthy lifestyle, as natural as possible, no drinking, smoking, with plenty of vegetables, fish and lean protein. I don’t like fried, sugary or processed food. We exercise regularly and rarely take medication (even Panadol). For me to now have to consider chemotherapy, a poison, as part of my healing was very difficult for me to digest. And so I fought and fought the need to have to make this choice. I didn’t cry when I received the news of my cancer diagnosis, but the thought of undergoing chemotherapy devastated me. I guess the memories of my sister’s experience and what she had to endure during chemotherapy still haunted me. My colleague, came to me after hearing my diagnosis, held my hand and told me, “You have been praying to God to give you Shifa (strength, cure and healing), God has answered your prayers in the form of this treatment (chemotherapy). Don’t run away from it – embrace it. God is carrying you through it all”
The pin dropped, goose bumps formed and I accepted. Once I made that decision, I embraced all of it, the beautiful and the ugly. I never asked “Why Me?” when I have been blessed with health, wealth and happiness, so when adversity hits, why should my first thought or any thought at all be “Why Me?” Though I struggled to relinquish control at times, eventually I surrendered to it, accepted that this was now part of my life’s journey and I was going to make the best of this situation.
And so, every minute of my life, became even more precious. Every morning, I breathe in and out, and tell myself that today is going to be a great day. And yes, some days were horrible and the fatigue would really set in, and on those days I cried a bit and honoured my body and rested. But on other days, I took that long walk on the beach or hike in the hinterland, forever chasing waterfalls.
One thing I told myself at the beginning of this journey was that I didn’t want to survive this and feel like I have wasted a year or two.
After rounds of chemotherapy, mastectomy, a few other surgeries and endless visits to my amazing team of doctors, surgeons and nurses, praise be to God, I am on the path to recovery. My support network of family and friends, who sent me thoughts and prayers, dropped food off, called, messaged or visited, and sent wonderful care package lit my days and carried me through some very tough moments. My husband, in particular, was my rock, through it all.
To all my dear sisters out there, having a conversation about breast cancer should never be taboo or something one needs to be ashamed of. Familiarise yourself with how to self-examine and trust your instincts. Get checked out if you’re unsure and don’t be afraid to ask for a second or third opinion. Every cancer person’s journey is unique and different; however, the more we are willing to share our story, the more we realise that we don’t have to do this alone.
Islamic Relief Australia
Nora Amath