12/12/2023
Researchers generated a human phlegm-like substance where multiple types of microbes were able to grow into three-dimensional biofilms.
https://bit.ly/48974Ro
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Cystic Fibrosis News is a digital news publication dedicated to offering comprehensive daily news co
Cystic Fibrosis (CF) is a relatively rare disease, and certainly not a household term that many people are familiar with. And yet, the research community is highly active in pursuing CF research and developing novel treatments for the disease. Cystic Fibrosis News is a digital news publication dedicated to offering comprehensive daily news coverage of the science, medicine, and human interest stor
ies surrounding the effects of the disease, as well as the effort underway to treat and eventually cure it. The editors at Cystic Fibrosis News are committed to sourcing and covering CF stories on a daily basis, creating the first and only 24-hour news cycle for the disease. Between groundbreaking research in the lab, critical findings in clinical trials for novel CF therapies, game-changing funding announcements for furthering CF R&D, and heartwarming human interest stories that highlight the powerful Cystic Fibrosis support community, there is enough news each day to keep CF patients, their families, and other researchers informed on the progress being made in treating and curing the disease.
11/12/2023
Columnist Jennifer Bleecher says goodbye to her 11-year-old German shepherd, Blaze, and remembers Bella, who passed away last year. https://bit.ly/47RC8oS
09/12/2023
Here is this week's most-read article featured on our website! Are you caught up?
European regulators have expanded Kaftrio's approval, with Kalydeco, to include patients ages 2-5 and at least one F508del mutation.
https://bit.ly/47LSCis
08/12/2023
Restless legs syndrome, characterized by the urge to move the legs, especially during sleep, was found highly prevalent among adults with CF. https://bit.ly/3TeMlHy
08/12/2023
Columnist William Ryan feels he's growing into an advocate who'll be ready to speak up for loved ones in his life, as they have helped him. https://bit.ly/47NA0yu
07/12/2023
Scientists reviewed data for 89 CF patients, all with chronic rhinosinusitis, to see if taking Kaftrio lowered the need for sinus surgeries. https://bit.ly/3RaXnek
07/12/2023
As she parents a child with cystic fibrosis, columnist Jennifer Chamberlain has begun to confront her history of health anxiety.
https://bit.ly/3RahNnJ
06/12/2023
Changes in the levels of some inflammatory molecules collected on filter paper placed in a nostril may detect airway inflammation in infants. https://bit.ly/46R1fqx
06/12/2023
CF patients infected with the fungus Aspergillus and who develop an allergic reaction to it have worse outcomes after getting COVID-19, a study finds.
https://bit.ly/41aPmL4
05/12/2023
Structural improvements in the airways and sinuses were seen on CT scans of adults with CF after one year of treatment with Kaftrio. https://bit.ly/3NAGDMP
04/12/2023
Researchers generated a human phlegm-like substance where multiple types of microbes were able to grow into three-dimensional biofilms. https://bit.ly/3RpPjYA
02/12/2023
Health Canada has extended its approval of Kalydeco (ivacaftor) to treat children as young as 2 months. https://bit.ly/3Rs99CE
02/12/2023
Here is this week's most-read article featured on our website! Are you caught up?
A real-world study of 92 patients in Italy found broad benefits with treatment but insomnia or other side effects across its six months.
https://bit.ly/411OiJs
01/12/2023
A burst appendix reminds columnist Lara Govendo that there are times she shouldn't ignore her normal symptoms, like pain and nausea. https://bit.ly/46BTAMN
01/12/2023
Columnist William Ryan recalls his maternal grandmother and what she could teach caregivers about showing up for their loved ones.
https://bit.ly/3N3mHBK
30/11/2023
Cell culture models of upper and lower airway epithelial cells may help explain the mechanisms underlying cystic fibrosis lung disease. https://bit.ly/49WDYqb
29/11/2023
Phage therapy BX004 was found to improve lung function in CF patients with lung impairments in a Phase 1/2 trial, top-line data show. https://bit.ly/3N4DKUb
28/11/2023
The U.S. Food and Drug Administration has granted orphan drug status to Arcturus' ARCT-032, an inhaled treatment for cystic fibrosis. https://bit.ly/3uwVT6x
27/11/2023
European regulators have expanded Kaftrio's approval, with Kalydeco, to include patients ages 2-5 and at least one F508del mutation. https://bit.ly/3N0LQNB
24/11/2023
Here is this week's most-read article featured on our website! Are you caught up?
Sionna Therapeutics' SION-719 and SION-451 restored the function of the CFTR protein with the most common CF-causing mutation, preclinical data show.
https://bit.ly/3QQ5GME
23/11/2023
As she parents a child with cystic fibrosis, columnist Jennifer Chamberlainhas begun to confront her history of health anxiety.
https://bit.ly/49N8RNw
22/11/2023
CF patients infected with the fungus Aspergillus and who develop an allergic reaction to it have worse outcomes after getting COVID-19, a study finds. https://bit.ly/46m3KkE
21/11/2023
A real-world study of 92 patients in Italy found broad benefits with treatment but insomnia or other side effects across its six months. https://bit.ly/40OoC2G
21/11/2023
A real-world study found CF patients on CFTR modulators were dispensed fewer opioids and other painkillers, and stable psychotropic use. https://bit.ly/3G8KQ67
20/11/2023
A sensitive MRI tool was able to show signs of reversible bronchiectasis in
more than one in three CF patients on Kaftrio, a study finds: https://bit.ly/47bxKAS
18/11/2023
Here is this week's most-read article featured on our website! Are you caught up?
The gene therapy also led to high expression of the CFTR protein in lung cells, at levels higher than what was expected by the developer.
https://bit.ly/49uieBP
17/11/2023
The benefits of adding azithromycin to another antibiotic called tobramycin in children with CF and early Pseudomonas aeruginosa infections are not due to effects on the airway microbiome, a study showed. https://bit.ly/49yKKCa
17/11/2023
Loss of bladder or bowel control is common among adults with CF and may impair their quality of life and respiratory care, a study found. https://bit.ly/40IQG7R
16/11/2023
Columnist William Ryan recalls his maternal grandmother and what she could teach caregivers about showing up for their loved ones. https://bit.ly/47gdiim
16/11/2023
Columnist Brad Dell turns to the long tradition of personifying an enemy as a way of coping with his chronic illness.
https://bit.ly/3ucpMsG
15/11/2023
ViaNautis raised $25 million in financing to support work with polyNaut, a system aiming for precise delivery of disease treatments. https://bit.ly/3QFsIWr
15/11/2023
New Jersey's CF newborn screening program failed to identify the disease in five children, all of whom went on to have severe lung disease. https://bit.ly/3QDnDh9
15/11/2023
Sionna Therapeutics' SION-719 and SION-451 restored the function of the CFTR protein with the most common CF-causing mutation, preclinical data show.
https://bit.ly/3G3euJK
14/11/2023
As she parents a child with cystic fibrosis, columnist Jennifer Chamberlain has begun to confront her history of health anxiety. https://bit.ly/3sAQNph
14/11/2023
A sensitive MRI tool was able to show signs of reversible bronchiectasis in more than one in three CF patients on Kaftrio, a study finds. https://bit.ly/3SxMA0a
13/11/2023
Columnist Jennifer Bleecher is back to finding her purpose, now that a lung transplant has changed her life with cystic fibrosis. https://bit.ly/3QWAWdY
11/11/2023
Kaftrio (elexacaftor/tezacaftor/ivacaftor) leads to increases in body mass index and fat mass in people with cystic fibrosis, a study shows. https://bit.ly/46buMLg
11/11/2023
Here is this week's most-read article featured on our website! Are you caught up?
CM001 contains a small molecule that can form ion channels in cells, making it a molecular prosthetic that replaces the faulty CFTR protein.
https://bit.ly/3uaxSln
10/11/2023
For National Hospice and Palliative Care Month, columnist Lara Govendo shares her perspective as a cystic fibrosis patient. https://bit.ly/40EMtC4
09/11/2023
Take on Transplant is designed to provide disease-specific education and resources about lung transplants for people with cystic fibrosis. https://bit.ly/3SBdlRu
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