Cystic Fibrosis News Today

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Cystic Fibrosis News Today Cystic Fibrosis News is a digital news publication dedicated to offering comprehensive daily news coverage of CF.

Cystic Fibrosis (CF) is a relatively rare disease, and certainly not a household term that many people are familiar with. And yet, the research community is highly active in pursuing CF research and developing novel treatments for the disease. Cystic Fibrosis News is a digital news publication dedicated to offering comprehensive daily news coverage of the science, medicine, and human interest stor

ies surrounding the effects of the disease, as well as the effort underway to treat and eventually cure it. The editors at Cystic Fibrosis News are committed to sourcing and covering CF stories on a daily basis, creating the first and only 24-hour news cycle for the disease. Between groundbreaking research in the lab, critical findings in clinical trials for novel CF therapies, game-changing funding announcements for furthering CF R&D, and heartwarming human interest stories that highlight the powerful Cystic Fibrosis support community, there is enough news each day to keep CF patients, their families, and other researchers informed on the progress being made in treating and curing the disease.

Claire's Place Foundation has started a CF Ambassador & Advisory program to amplify the voices of people living with cys...
16/01/2025

Claire's Place Foundation has started a CF Ambassador & Advisory program to amplify the voices of people living with cystic fibrosis. https://buff.ly/42hSCqz

Columnist Bailey Anne Vincent wishes people would be more sensitive and just stop saying the phrase "if you just" when s...
15/01/2025

Columnist Bailey Anne Vincent wishes people would be more sensitive and just stop saying the phrase "if you just" when speaking to patients. https://buff.ly/3Wich5K

A French study in 198 adults given the triple combo CFTR modulator for one year found a drop in harmful lung bacteria, b...
14/01/2025

A French study in 198 adults given the triple combo CFTR modulator for one year found a drop in harmful lung bacteria, better lung health. https://buff.ly/3PBMMsG

A Phase 1b trial assessing the safety of inhaled therapy RCT2100 in cystic fibrosis patients has dosed the first partici...
14/01/2025

A Phase 1b trial assessing the safety of inhaled therapy RCT2100 in cystic fibrosis patients has dosed the first participant in the U.S. https://buff.ly/4gP8x4c

Dosing has begun in a Phase 2 clinical study testing ARCT-032, an inhaled CF treatment that Arcturus is developing. http...
10/01/2025

Dosing has begun in a Phase 2 clinical study testing ARCT-032, an inhaled CF treatment that Arcturus is developing. https://bit.ly/4j7XwMQ

Columnist William Ryan, whose cystic fibrosis is caused by nonsense mutations, is hopeful about the newly approved Alyft...
09/01/2025

Columnist William Ryan, whose cystic fibrosis is caused by nonsense mutations, is hopeful about the newly approved Alyftrek modulator. https://bit.ly/3Wg9VV5

A small study found acceptance and commitment therapy better than psychotherapy at helping adults with CF cope with ment...
07/01/2025

A small study found acceptance and commitment therapy better than psychotherapy at helping adults with CF cope with mental health challenges. https://bit.ly/424OfPx

The FDA extended Trikafta's approval for CF patients ages 2 and older who carry non-F508del CFTR mutations that are resp...
06/01/2025

The FDA extended Trikafta's approval for CF patients ages 2 and older who carry non-F508del CFTR mutations that are responsive to the therapy. https://bit.ly/4iX7K2F

Alyftrek, a new triple-combination therapy, containing vanzacaftor, tezacaftor, and deutivacaftor, has been approved for...
02/01/2025

Alyftrek, a new triple-combination therapy, containing vanzacaftor, tezacaftor, and deutivacaftor, has been approved for CF by the FDA. https://bit.ly/4fFzLsv

Columnist Kristin Entler describes a rough morning with chronic illness as PTSD strikes while managing an insulin contro...
20/12/2024

Columnist Kristin Entler describes a rough morning with chronic illness as PTSD strikes while managing an insulin control system. https://bit.ly/4gBSnuA

CF infants have alterations in the nasal microbiome, the community of microbes that live in the nose, in the first year ...
20/12/2024

CF infants have alterations in the nasal microbiome, the community of microbes that live in the nose, in the first year of life, per a study. https://bit.ly/3ZHE3JT

Living with cystic fibrosis as an adult is physically and mentally challenging for columnist William Ryan, but he looks ...
19/12/2024

Living with cystic fibrosis as an adult is physically and mentally challenging for columnist William Ryan, but he looks to 2025 with hope. https://bit.ly/4fpaFOr

Researchers observed 81 children with CF being treated with Trikafta to know more about the therapy's effects on pediatr...
17/12/2024

Researchers observed 81 children with CF being treated with Trikafta to know more about the therapy's effects on pediatric patients. https://bit.ly/3OYGJhd

Breathing problems during sleep in CF patients a year after a lung transplant included mostly mild sleep apnea and airwa...
17/12/2024

Breathing problems during sleep in CF patients a year after a lung transplant included mostly mild sleep apnea and airway obstruction. https://bit.ly/4gfsyAE

Columnist Jennifer Bleecher explains why several popular New Year's resolutions wouldn't work for many people living wit...
16/12/2024

Columnist Jennifer Bleecher explains why several popular New Year's resolutions wouldn't work for many people living with CF. https://bit.ly/4gh8gGG

After years of living with cystic fibrosis, columnist Lara Govendo sees the value in her having autonomy over her body. ...
13/12/2024

After years of living with cystic fibrosis, columnist Lara Govendo sees the value in her having autonomy over her body. https://bit.ly/4gepe8J

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