Cystic Fibrosis News Today

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Cystic Fibrosis News Today Cystic Fibrosis News is a digital news publication dedicated to offering comprehensive daily news coverage of CF.

Cystic Fibrosis (CF) is a relatively rare disease, and certainly not a household term that many people are familiar with. And yet, the research community is highly active in pursuing CF research and developing novel treatments for the disease. Cystic Fibrosis News is a digital news publication dedicated to offering comprehensive daily news coverage of the science, medicine, and human interest stor

ies surrounding the effects of the disease, as well as the effort underway to treat and eventually cure it. The editors at Cystic Fibrosis News are committed to sourcing and covering CF stories on a daily basis, creating the first and only 24-hour news cycle for the disease. Between groundbreaking research in the lab, critical findings in clinical trials for novel CF therapies, game-changing funding announcements for furthering CF R&D, and heartwarming human interest stories that highlight the powerful Cystic Fibrosis support community, there is enough news each day to keep CF patients, their families, and other researchers informed on the progress being made in treating and curing the disease.

Columnist Kristin Entler, making a familiar trip in a hurricane's wake, is reminded that — as with cystic fibrosis — rec...
22/11/2024

Columnist Kristin Entler, making a familiar trip in a hurricane's wake, is reminded that — as with cystic fibrosis — recovery takes time. https://bit.ly/4hXCwrx

In a first-of-its kind report, scientists describe the case of a young man with cystic fibrosis who underwent a successf...
21/11/2024

In a first-of-its kind report, scientists describe the case of a young man with cystic fibrosis who underwent a successful heart transplant. https://bit.ly/4fYztNX

Columnist Bailey Anne Vincent reflects on the numerous medical operations she's endured in recent years, in addition to ...
20/11/2024

Columnist Bailey Anne Vincent reflects on the numerous medical operations she's endured in recent years, in addition to other challenges. https://bit.ly/3YZ9JKl

Recode Therapeutics is working with Intellia Therapeutics to develop a treatment strategy that would alter CF patients' ...
19/11/2024

Recode Therapeutics is working with Intellia Therapeutics to develop a treatment strategy that would alter CF patients' cells' genetic code. https://bit.ly/3ADtH5z

Columnist Jennifer Bleecher shares how she practices the act of giving with whatever means she has available. Positivity...
19/11/2024

Columnist Jennifer Bleecher shares how she practices the act of giving with whatever means she has available. Positivity can be contagious. https://bit.ly/4fCF1hy

A Phase 1/2 clinical trial testing the inhaled gene therapy SP-101 in cystic fibrosis (CF) has begun dosing patients and...
18/11/2024

A Phase 1/2 clinical trial testing the inhaled gene therapy SP-101 in cystic fibrosis (CF) has begun dosing patients and is still recruiting. https://bit.ly/4fUCkr1

After years of searching for the root cause of her breathlessness, columnist Lara Govendo has finally found answers and ...
15/11/2024

After years of searching for the root cause of her breathlessness, columnist Lara Govendo has finally found answers and a path forward. https://bit.ly/4fwmjYS

Rostra Therapeutics has received funding to develop new, effective antifungal therapies for lung infections in people wi...
15/11/2024

Rostra Therapeutics has received funding to develop new, effective antifungal therapies for lung infections in people with cystic fibrosis. https://bit.ly/3YMPe3K

Returning to her column after a long break, Bailey Anne Vincent shares an update: It's been a tough few years, but she's...
13/11/2024

Returning to her column after a long break, Bailey Anne Vincent shares an update: It's been a tough few years, but she's alive. https://bit.ly/4euKm9h

Researchers have created a new technology to measure the thickness of mucus in the airway, which could aid in monitoring...
12/11/2024

Researchers have created a new technology to measure the thickness of mucus in the airway, which could aid in monitoring cystic fibrosis. https://bit.ly/4hInAxo

Columnist Kristin Entler looks back on life before and after the CF medication Trikafta, and imagines living in a body t...
11/11/2024

Columnist Kristin Entler looks back on life before and after the CF medication Trikafta, and imagines living in a body that can fly. https://bit.ly/3O3JkGd

High levels of Pf bacteriophage, a virus that infects the bacteria P. aeruginosa, are linked to faster lung function dec...
07/11/2024

High levels of Pf bacteriophage, a virus that infects the bacteria P. aeruginosa, are linked to faster lung function decline in CF patients. https://bit.ly/3YZgEoo

High sugar and insulin seen in CF-related diabetes may weaken the barrier that normally protects the airway tract, per a...
05/11/2024

High sugar and insulin seen in CF-related diabetes may weaken the barrier that normally protects the airway tract, per a new laboratory study. https://bit.ly/3NUxsX5

CF researcher Bonnie Ramsey, MD, has been selected as the recipient of the 2025 American Pediatric Society (APS) John Ho...
04/11/2024

CF researcher Bonnie Ramsey, MD, has been selected as the recipient of the 2025 American Pediatric Society (APS) John Howland Award. https://bit.ly/4hMC0wD

KIT2014 is being developed by Kither Biotech to improve lung function and reduce inflammation in people with cystic fibr...
31/10/2024

KIT2014 is being developed by Kither Biotech to improve lung function and reduce inflammation in people with cystic fibrosis. https://bit.ly/40KpveX

The combo therapy was seen to change gene activity in airway cells that could help fend off bacterial infections and red...
30/10/2024

The combo therapy was seen to change gene activity in airway cells that could help fend off bacterial infections and reduce lung damage. https://bit.ly/4foyupZ

Four cystic fibrosis (CF) patients experienced complete resolution of CF-related diabetes after starting on Trikafta. ht...
29/10/2024

Four cystic fibrosis (CF) patients experienced complete resolution of CF-related diabetes after starting on Trikafta. https://bit.ly/3AqscXZ

A young man with cystic fibrosis no longer had gallbladder complications after a year on the medication Trikafta, accord...
29/10/2024

A young man with cystic fibrosis no longer had gallbladder complications after a year on the medication Trikafta, according to a case report. https://bit.ly/3C3cNgP

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CF News Today Celebrates Pride Month with Wes Hawkins!
CF News Today Celebrates Pride Month with Wes Hawkins!

Meet Some of the Folks Behind the 31 Days of CF Campaign!
Meet Some of the Folks Behind the 31 Days of CF Campaign!

AWIR% Learning From Each Other
AWIR% Learning From Each Other

Patient advocate Liza Bernstein explains how #AWindowIntoRare will highlight what we can learn from each other as members of the #raredisease community. Join #BioNews in an online panel discussion + Q&A on #RareDiseaseDay at 3 p.m. EST Feb 28. Register: https://bit.ly/Bionews_RegisterNow

Rare Disease Day - A Window Into Rare
Rare Disease Day - A Window Into Rare

Patient advocate Liza Bernstein gives some insight into what will be discussed during "A Window Into Rare," our #RareDiseaseDay online panel discussion on Feb. 28. Register for this live event here: https://bit.ly/Bionews_RegisterNow #AWindowIntoRare #BioNews

A Window Into Rare - Rare Disease Day
A Window Into Rare - Rare Disease Day

"I have an understanding of what it feels like to feel isolated and erased": Patient advocate Liza Bernstein is hosting "A Window Into Rare," our #RareDiseaseDay panel discussion on Feb. 28. Register for this live event here: https://bit.ly/Bionews_RegisterNow #AWindowIntoRare #BioNews

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