Josie's Journey

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Josie's Journey April 2014, at two months, Josie was diagnosed with intractable epilepsy. Follow along her journey!!

A year after Josie's initial diagnosis she is still battling seizures daily. Multiple medications, horrible side effects, and poor development have made this year difficult to say the least. She is one tough little fighter and she's waiting to break free. We have been on an emotional roller coaster, battled to bring CBD legally into Tennessee and prayed our sweet girl wouldn't become a victim of a

life threatening seizure. Tomorrow isn't promised and we still continue to fight the seizures. Josie now has CBD oil and is showing small improvements daily, she has come a long way but has an even longer road ahead. Our ultimate goal is seizure freedom and someday she will get it. Until then we work to eliminate harmful and dangerous pharmaceuticals from her system and allow her body to be healed from the damage the medications have done over time. Please continue to pray for Josie and share her journey with others. We can't go it alone and need the strength and support from so many. We are happy to speak about Josie's Journey, epilepsy or CBD oil. You can contact us here or by email at: [email protected]

Josie Mae is e.l.e.v.e.n today! Sweet, sassy, beautiful and loves your attention. She’s had a great day! Her friends sin...
23/01/2025

Josie Mae is e.l.e.v.e.n today! Sweet, sassy, beautiful and loves your attention. She’s had a great day! Her friends singing happy birthday over the morning announcements, matching her friends, birthday cupcakes with her classmates, precious gifts from her friends and visits from family after school. We are blessed and so thankful for our girl and ready to see all she does this year. Happy Birthday Josie girl, we love you!! 🎉🥳

In my eyes, there is no one that can equal your beauty, no word that can describe how much you mean to me. Nothing that ...
26/09/2024

In my eyes, there is no one that can equal your beauty, no word that can describe how much you mean to me.
Nothing that could lessen my love for you, as you have it now and for all eternity.
No matter how old you might be, you will always be my little girl to me.
-Unknown

Yesterday we delivered 104 EEG care bags to Monroe Carell Jr. Children's Hospital at Vanderbilt in honor of Josie’s 10th...
06/06/2024

Yesterday we delivered 104 EEG care bags to Monroe Carell Jr. Children's Hospital at Vanderbilt in honor of Josie’s 10th birthday. They were extremely appreciative and grateful…we got the biggest hugs! I’m most excited for the recipients and the blessing it may be to them!

Thank you to each and EVERY person who helped contribute to this venture. Know that what you have done is going to make someone else’s day a little better and helpful!!

Today was her neurology appointment, we increased her VNS run time to see if that will help alleviate some the intense focal seizures she’s been having the last several months. We also discussed new medications if we chose to add one and doing some research on other medical procedures. Josie’s neurologist is great and always willing to help do what’s best for our girl!

Yesterday, Josie was student of the day! ✏️💜
09/02/2024

Yesterday, Josie was student of the day! ✏️💜

sweet girl ON THIS DAY AND EVERY DAY AHEAD, REMEMBER YOU ARE SPECIAL. REMEMBER THAT THE THINGS THAT MAKE YOU DIFFERENT F...
23/01/2024

sweet girl
ON THIS DAY AND EVERY DAY AHEAD, REMEMBER YOU ARE SPECIAL. REMEMBER THAT THE THINGS THAT MAKE YOU DIFFERENT FROM OTHERS IS WHAT MAKES YOU STAND OUT FROM THE CROWD, DON'T BLEND IN WHEN YOU WERE MEANT TO SHINE.
YOUR VOICE, YOUR MIND, YOUR HEART, YOUR
STORY, AND OH, YOUR DEAR DEAR SOUL . . . CREATED IN ONE.
PERFECT.
PACKAGE.
EVERYDAY YOU WILL FIND SOMETHING TO BE
GRATEFUL FOR, EVERYDAY WE ARE
grateful for you 💜

Happy 10th Birthday Josie Mae!! 🎉💜

January 20th is International Day of Acceptance. International Day of Acceptance is a day dedicated to the social accept...
21/01/2024

January 20th is International Day of Acceptance.

International Day of Acceptance is a day dedicated to the social acceptance of disability and to honor the late Annie Hopkins, founder of 3E Love and creator of the International Symbol of Acceptance.

Helping others is not only a duty, but a privilege. Next week we celebrate Josie turning 10! 💜🎉We have been blessed many...
14/01/2024

Helping others is not only a duty, but a privilege.

Next week we celebrate Josie turning 10! 💜🎉

We have been blessed many times the last ten years and it’s our desire, for Josie’s 10th Birthday, to give back to others in a place where we have spent SO much time. At this time, Josie has one BIG need, but we desire to extend our love to other families first. One doesn’t always know when they will end up in the Epilepsy Monitoring Unit at Monroe Carell Jr. Children's Hospital at Vanderbilt, some times it’s planned, but come June they will be welcomed by preparedness, kindness and love. This last emergency trip landed Josie there and we too were very much unprepared.

And this is where we need your help. No goal has been set but in my mind I was hoping to get 100 bags sent but I truly believe that we as a community can do even better than that. I would love to see that number x 10!

You can purchase items directly from the Amazon Wish List posted below, and the items will get mailed directly to Josie. You can also shop your local stores (find the best deals!!), you can contact me to pickup your items. Or if any business from Bulls Gap to Limestone would like to be a drop of location please reach out! Also…we are not limited to Greene County, so if you want to participate let me know!

*If you purchase snack items I do ask the following:
- they do NOT contain nuts
- they are individually wrapped snack size
-that they will be in date through the end of 2024
- think of items both adults and children would like (we will pack some for both, parent meals are no longer free)
- I only listed a few on the WishList as reference and we are not limited to just those.

*Some of the items listed are not on the Amazon Wishlist because we can purchase them elsewhere for better price and quality. Any monetary donations will go to purchasing the Shampoo, Conditioner and Coconut oils.

*Notepads: the ones specifically listed will be personalized as well.

All bags will include a letter from our family and why and why we are honoring Josie. I would also love if any teachers wanted to include positive affirmations on note cards from their students. We want each bag to be filled with encouragement!

Collections will end May 15th so we can prep and prepare all bags for delivery at her June 5th appointment.

I will update weekly as we go along. 💜

https://www.amazon.com/hz/wishlist/ls/36CTY9QPDJEP0?ref_=wl_share

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