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24/04/2024

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Have you tried these hacks?

“Sharing one's story not only aids others but also serves as a form of personal catharsis.”Meet Craig Fuchs, a former ba...
23/04/2024

“Sharing one's story not only aids others but also serves as a form of personal catharsis.”

Meet Craig Fuchs, a former band and orchestra director, whose love for music took him around the world. Now living with ALS, Craig finds solace in the power of his community. Read his story of hope and love.

by Mitsubishi Tanabe Pharma America

Have you tried these hacks?

20/12/2023

How did you finally discover your rare disease after a misdiagnosis?

Living with a rare disease can mean being your own advocate. Did doctors ever overlook your symptoms?

Sound off in the comments, and tell us how you finally got the correct diagnosis!

✏️ P.S. We’re creating a story with one of our partners, Catalyst, to raise awareness around late-onset rare disease. We may use your answer in an upcoming story on The Mighty.

When you live with (or suspect) a rare disease, you may know more about your condition than your doctor. Maybe you’ve fe...
06/07/2023

When you live with (or suspect) a rare disease, you may know more about your condition than your doctor. Maybe you’ve felt like a doctor doesn’t believe you, or they explain it away as a more “common” health condition.

If you are living with a rare disease and were misdiagnosed by a healthcare provider, what led to your correct diagnosis?

✏️ P.S. We’re creating a story with to raise awareness around late-onset rare disease. Your answer may be used in an upcoming editorial story on The Mighty.

If you’re looking for more resources on navigating life with a rare disease, check out our partner’s new program, , at https://www.lemsaware.com/many-faces-of-lems. is committed to raising awareness of rare conditions and providing resources to the people who live with them.

03/04/2023

“You really have to find what you love in life and utilize that passion to really push through the really hard times.”

While living with a blood cancer called chronic lymphocytic leukemia (CLL), Lisa has found ways to embrace all the changes that accompany her diagnosis and treatment through her yearning for knowledge and following her passions.

For Important Safety Information, please click here: bit.ly/3BExGvo

For Full Prescribing Information, please click here: bit.ly/3Oi9mXK

by The Janssen Pharmaceutical Companies of Johnson & Johnson

03/12/2021

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15/07/2021

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