The Meniere's Puzzle Podcast

17/07/2022

Kudos to Julieann Wallace on capturing Meniere's in art; wanted to share her post! - "I have an art exhibition coming up with 3 pieces of art, two of them Meniere's related. This one is called 'Symphony in Blue' and depicts how Meniere's disease stole my hearing in my left ear, and hence my love of music. The music swirls of vertigo notes are obliterated by the blob of deafness, scattering my hearing. When I finished the artwork, I showed my husband and he pointed to the 3rd part and said, 'I can see an ear!', to which I said, 'Oh yeah, I didn't notice that'. I had originally mucked up the big blue blob and tried to fix it with new blobs, using a hair dryer to try and dry the paint. Later on I photographed my artwork, enlarged the ear to look at it closely and discovered a monster skull with sharp teeth! Apt. I've always called my MD the Meniere's Monster. Now I have proof! 🤣"

15/07/2022

I know this can be tough for those of us with Meniere's...grateful for the good days & keep on doing what works!! Hang in there!

21/06/2022

Exciting! https://myshadowmenieres.wordpress.com/2022/06/18/turn-off-the-vertigo/?fbclid=IwAR3ypKtBaE_3dkFdXC3ZaKQ79s0Hv1urzbiwdKZzm1v8YUlbpdaOxTKOI_g

13/05/2022

What do we think of this? Curious....
https://www.futurespacetech.com/2022/05/elon-musk-claims-his-neuralink-brain.html?fbclid=IwAR0512JL9aMNzew1gII_SGl3GDua4ozVHfIWs0bzau3uik6dUAsPvJXw19Y

Latest Space Technologies, topics related to the Future of humanity

02/05/2022

She is such a champion! https://www.cltampa.com/music/broadway-sweetheart-kristin-chenoweth-heads-to-clearwater-this-weekend-13197454?fbclid=IwAR2USO3ZB9ls9be1q7Myv8F7fmXDqp4GLFbMc5CWTV30jX9uGCrv63VtK3s

The Clearwater Festival Orchestra acts as Chenoweth’s backing band, which will play songs from her most recent album, 'For the Girls.'

20/02/2022

TMJ....it goes hand in hand with my Meniere's journey...But MANY things you can do to help! Check out episode #18 of the podcast - I talk with Dr. Patricia Fernandes-she's a wealth of information & has really helped me!

10/02/2022

So brave....Ugh...Vertigo sucks...

that_monster_menieres • Original Audio

08/02/2022

I am ashamed I did NOT know yesterday was "World Meniere's Awareness Day"! But I know now!!

The symptoms include ringing, buzzing, clicking, roaring, hissing, or humming in the ear.

25/01/2022

My people...those "magic" days can be far and few between with Meniere's Disease...but we must hang in there! And embrace those good days.

19/01/2022

SO refreshing to hear Menieres in any sort of public conversation! Education is needed!
https://www.futureofpersonalhealth.com/rare-diseases/kristin-chenoweth-talks-life-with-menieres-disease/amp/?fbclid=IwAR0DCyRc5VT7bqP3E-xteJJLWLnZkps2rv-M5tro7y6ZkTb9m8rz8e-aEFk

Kristin Chenoweth, the Tony-winning actress and singer, has fought with Meniere’s Disease her entire career, but she hasn’t let it stop her success.

02/12/2021

I've been horrendous this year keeping up w/my podcast and social! (getting ready to move now...so that's not helping the symptoms any, either!) I find that doing my stretches for TMJ: meditation (short versions) & getting sleep are the best thing to help when life is crazy! I'm still here...and still thinking of you all! I will get back on track in 2022!

01/09/2021

How many of you take and/or like Meclizine? With work being extra stressful this past two weeks-I have had to take a few meclizine at night...Curious if it worked well for everyone! https://www.drugs.com/tips/meclizine-patient-tips

Quick easy-to-read overview of meclizine. Includes: how it works, upsides, downsides, bottom line, tips, response and effectiveness.

17/08/2021

Interesting...what do you all think? https://www.aarp.org/health/conditions-treatments/info-2018/menieres-inner-ear-hearing-loss.html?fbclid=IwAR3CuPIrqhU3tpg-N-HTpGrhji5oyQR3UjP_bjI-cF3i34Ac-yWKI00FDAc

Meniere’s disease is an inner ear condition that can cause hearing loss and balance issues. There is no known cure, but it's treatable. Here’s what to know.

10/08/2021

Stay cool during this heat, my Meniere's people! Heat is tough for me & my symptoms...& as luck would have it..for my work..I'm outdoors a lot this month. SO...loaded up on water, ice, neck coolers, the whole works!

30/07/2021

Friday check in! How is everyone feeling? I am sending dizzy-free vibes to EVERYONE!!

02/07/2021

Happy Friday! I hope it's "silent" (aka: 0 or low tinnitus day!)

01/07/2021

Happy July 1st my Meniere's peeps! Dropped a self-check in podcast this morning! Message me on topic ideas-I love ALL topic ideas!! https://anchor.fm/kelly-jo-mcdonnell/episodes/Episode-19--Self-check-in-e13oooe

Taking some time to do a self check in, inform everyone how I’m doing, how you’re doing, and how everyone is handling the challenge of Ménière’s right now!

01/07/2021

Hello, my Meniere's people! Doing a check in with everyone (drop me messages on how you're is doing...I know every day can be a battle).

Going to drop a "self check in" podcast tomorrow-and get back on schedule. My son graduated a few weeks ago...things crazy...& balance is sketchy. 😀

HANG in there everyone w/the heat that's everywhere right now - NOT helping our Meniere's symptoms.

21/06/2021

Ugh...we all feel her pain. :( https://metro.co.uk/2021/06/18/jessie-j-sobs-as-she-updates-fans-on-struggle-with-menieres-disease-14795746/

Jessie was diagnosed with the condition last December.

18/05/2021

05/05/2021

Hands down Awesome....

EXCITING NEWS!!!! VeDA and movie producer Kimberly Warner are teaming up to create a docu-series about vestibular disorders called ' Life Rebalanced'. I was invited into the cast to represent meniere's disease. This is a snap shot from my latest interview. The documentary will follow 10 people through the summer as we struggle and learn to live or best lives. This will start airing in August. I will be giving updates on 'on the vertigo'.

16/04/2021

I found this article fascinating...was always a Ryan Adams fan...but when he announced he had Meniere's Disease, respect him even more.
https://exclaim.ca/music/article/ryan_adams_blasts_journalist_for_portrayal_of_menieres_disease_as_high_drama_and_crises?fbclid=IwAR38sfZEm2YtDGXEBEeXPjO-wCXL-kH2Al30xIY-VtBctGm4iBkXAmr53AY

Ryan Adams has taken to social media to speak out against the way he was portrayed in a new interview with Q Magazine. The magazine hit stan...

16/04/2021

I liked this re: struggle...made me think of Meniere's Disease, too...quite literally...our worlds turned upside down. BUT there is always light at the end of the tunnel! Just keep swimming.

11/04/2021

We Meniere's folks get it....we get the same darn thing....

07/04/2021

Hang in there everyone...weather changes in the Midwest...I know how tricky that can be with Meniere's. We will get through this!

01/04/2021

This holds true for Meniere's, too! Certain things work for certain cases/people...keep moving forward and trying!

27/03/2021

I wanted to share Dr. Fernandes Boettner's wisdom with all my podcast listeners! She's my TMJ/TMD Dr., and has really helped me along my Meniere's journey! https://anchor.fm/kelly-jo-mcdonnell/episodes/Episode-18--A-discussion-with-Dr--Patricia-Fernandes-Boettner--A-TMD-specialist-etl0o2

TMJ, and TMD are closely related to Meniere’s Disease, and often have the exact same symptoms. Sufferers from Ménière’s disease commonly have TMD issues. Learn the signs, the symptoms, and most importantly, what you can do to alleviate symptoms!

12/03/2021

Some days are really tough for Meniere's sufferers....sometimes it's EVERY day...all we can do is plow forward and find the magic in what we can!!

10/03/2021

Episode #17, talking with Author, Researcher and Meniere's Warrior Mark Knoblauch. His books and new bookbook are a WEALTH of information for all of us!
https://anchor.fm/kelly-jo-mcdonnell/episodes/Episode-17--with-Mark-Knoblauch--author--researcher--and-Mnires-warrior-es6n59