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Guilbault Girls Giving Value to Families Through Education, Resources and Experiences One Story At A Time! well you can do that by simply sharing our show to the masses.
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“It takes a village to raise a child” ~African Proverb ~

Welcome to the Guilbault Girls Show where you will have the opportunity to hear from mothers, fathers, siblings, and individuals themselves about their journey of living with a disability. We also have special guests on to share the many resources that are available to those living with a disability and their families. So, get ready to lau

gh, smile, cry, maybe even get a little angry when you hear some of these stories of their day-to-day struggles, but let’s not forget their many triumphs. I know when I was a new mom, and my child was diagnosed with a disability I felt lost and alone and wondered what comes next. I learned from the ones that came before me and I want to be able to continue to share that knowledge and support to others. As they say it takes a village, and if it weren’t for our village we wouldn’t be where we are today. So, will you help be that village, help us spread awareness, help us change mindsets, help us teach other's to be kind to one another…. If you would like to support the Guilbault Girls on another level, consider becoming a Supporter of the Show! Your Funds will allow us to keep sharing valuable, heartfelt stories and resources! https://www.buzzsprout.com/1827471/supporters/new

If you would like to be on our show, be sure to contact us today and don’t forget to subscribe to our Guilbault Girls Podcast and YouTube show, and make sure to follow us on Facebook and Instagram at Guilbault Girls! Facebook: Girls, Instagram: , YouTube: Girls, Email: [email protected], and www.GuilbaultGirls.com. We’d also like share our story on a deeper level with you. Our daughter, Faith Guilbault directed a documentary with BYkids, about her journey of living with a disability. You can view "Faith's World", which aired on PBS April of 2020 on the following link: https://www.pbs.org/video/faiths-world-ozblht/

19/08/2024
18/08/2024

In our new FaQ series, I will be posting frequently asked questions and the answers over the next couple weeks. for the full list of FaQs, go to PandasNetwork.org

Day 3

13/08/2024

School refusal is a form of chronic absenteeism often misunderstood by public school systems, whose staff typically don’t have the training or capacity to meet kids’ mental health needs.

11/08/2024

Hi everyone, Shane here. This one hurts to write, but it needs to be done.

We currently have a silly video going viral, which should be cause for celebration. Instead, it’s forcing me to confront the painful fact that literally hundreds of thousands of people hate me and think I’m worthless because of my disability. I’ll explain…

The video is quite simple: there’s a trend going around of people posting funny clips of themselves failing miserably at sports, with an ironic caption that “announces” that they did not qualify for the Olympics this year. This kind of self-deprecating humor is right up our alley, so we joined the trend and posted a quick video of me “diving” into a pool, except my dive is obviously just Hannah gently lowering me into the water. My caption announces that I “sadly did not make the 2024 Olympic diving team.” Mildly silly at best, kind of dumb at worst, but it fits the trend perfectly.

As of right now, the video has almost 20 million views. In our work, that’s a major success. I should be ecstatic. I should be proud. I should be celebrating.

But do you know what makes it tough to feel those things? The comments pouring into the video. Let me share some of the brutally ignorant and aggressively hateful things people felt compelled to say on this lighthearted and fun video I created.

The very top comment says, “It’s always important to wash your vegetables,” referring to me as the vegetable. It has 97,000+ likes. That means almost one hundred thousand real humans on this earth agree with this humiliating insult!

The next one, with 79,000 likes: “I still struggle to see that they are in a relationship.”

10,000 likes: “One day she’s not going to pull him back up.”

And another: “Dating him is like doing charity work.”

“You should just drown him.”

There are thousands more just like these. Thousands.

I’m tired, guys. Tired of spending my entire life trying to get the world to accept me. Tired of dedicating my career to educating people about the true disabled experience, only to be reminded—DAILY, by hundreds of thousands of people—that I’m still widely regarded as a “vegetable” that would be better off dead in their opinions. Tired of being denigrated and dismissed. The sheer volume of these horrific comments is staggering, so please, I beg you, don’t tell me to simply ignore them. These are real, actual people, with families and jobs, with influence and votes, who are out there in the world every day harboring these absolutely disgusting ideas about disabled people. It’s sickening.

It’s moments like these when I just want to throw in the towel. Hannah and I have given the world thousands of hours of authentic and personal content about our lives. We’ve worked passionately and tirelessly to show people that a disabled life is just as valid, worthy, meaningful, and joyous as any other, and yet, hatred fills every comment section we create.

I won’t give up, though. It’s too important to me and the stakes are too high. Until disabled people are embraced by our world as equals, I’ll be here, sharing my disabled life that I so deeply enjoy and cherish, and hoping (maybe against reason) that it’s making a difference.

I do believe people can change their opinions. I believe people can grow.

If you believe that too, and if you believe there’s no place in this world for the kind of hatred we receive, it would mean everything to me if you’d share this post. Let’s fight hate with love. Thank you, from the bottom of my heart, for all the support you give us. You truly keep me going when I’m facing what feels like an overwhelming monster.

Love, Shane

Note: FB removed my post!! Really!!After digging deeper and with the help  Diane Grover it came to our attention that Fa...
09/08/2024

Note: FB removed my post!! Really!!

After digging deeper and with the help Diane Grover it came to our attention that Faith's case was reviewed INCORRECTLY!! Our infusion pharmacy faxed it over to UnitedHealthcare yesterday and when she called to follow up she was told it was denied due to No Appeal Rights. This is INSANE and shouldn't be especially since it was REVIEWED INCORRECTLY. It is in U.S. Office of Personnel Managementt hands now. I called Tuesday to follow up and have not heard anything. The packet was delivered on Monday and I will be mailing this new data today!! I also attached the bill that was signed into LAW that ALL insurance companies are bound to it. If UnitedHealthcare DOES NOT follow the Maryland Law then legally they shouldn't be able to offer plans in this state!!! I have several State Representatives working on the Maryland Department of Health Medicaid Medicaid side as well!!

PLEASE PLEASE PLEASE HELP US SAVE FAITH!! Help us get our little girl back to baseline!!!

I spoke with The Maryland Attorney General office today and unfortunately they can not intervene to help us fight for Fa...
06/08/2024

I spoke with The Maryland Attorney General office today and unfortunately they can not intervene to help us fight for Faith's life-saving treatment of IVIG because it is in external review with The U.S. Office of Personnel Management , healthcare and insurance, FEHB 3, 1900 E Street, NW, Washington, DC 20415-3630. They told me if it was still internal with UnitedHealthcare then they could have.

I am still waiting to hear back from a few of our state reps and Jesse plans to reach out to Congressman Rep. Andy Harris, M.D.

While Maryland passed a law (SENATE BILL 475) that went into Effect on January 1, 2021 stating insurance companies must cover IVIG for kids like Faith with PANDAS/PANS UnitedHealthcare can hide behind "federal laws" for any self-funded plans. What does this mean? It means that my daughter’s insurance company continues to deny IVIG treatment for her because they don't have to follow state laws!

Crazy thing is yes it's a federal plan but it is a State Specific Plan. We have UHC Choice Open Access HMO.

Another one was passed with an Effective Date of January 1, 2023 to cover rituximab, which would be the next step if the IVIG doesn't work. Legislation - HB0820 (maryland.gov)

Please feel free to share this post! I need more people to understand what is happening to make a change!!!

/PANS

Please share this post if you can and tag UnitedHealthcare, along with Maryland Department of Health Medicaid!We shouldn...
06/08/2024

Please share this post if you can and tag UnitedHealthcare, along with Maryland Department of Health Medicaid!

We shouldn’t have to fight for our kids to get the life-saving treatments that they need! Faith’s prior authorizations got submitted for IVIG treatments and UnitedHealthcare has denied our appeals, claiming the treatment is "experimental," and we have requested an external appeal.

We also filed a complaint with the Maryland Attorney General, Health Education and Advocacy Unit so they can step in and help on behalf of Faith.

I then took it a step further and emailed all our State Representatives last week. Delegate Susan McComas emailed me back and then called me Saturday morning and talked to me for 35 minutes. She is reaching out to the other Representatives that worked on HB447 and SB475 which passed in January 2021 stating insurance companies must cover IVIG for individuals with PANDAS/PANS.

Faith is also in the Rare and Expensive Management Program (REM) and has Maryland State Medicaid. After many phone calls and emails to Medicaid our provider found out that they were given the wrong information on how to submit the prior authorization from one of the Medicaid Representatives. Soooo they resubmitted and then was told more misinformation. We have a three-way call today with them.

Both United Healthcare and Maryland Medicaid are bound to cover IVIG by law they are denying and giving us the runaround. Meanwhile Faith deteriorates.

The treatment Faith needs is not experimental. Here is a link to more information about IVIG treatment.

https://www.pandasppn.org/ivig/

Please help us fight to get this treatment covered for Faith and advocate for other kiddos out there needing this treatment!

/PANS

Intravenous Immunoglobulin therapy information for PANS/PANDAS patients

31/05/2024

Whether they are family members, nurses, hospice workers, therapists, home health aides, or in another helping profession, caregivers are compassionate, purpose-driven individuals who feel a deep connection to what they do and who they serve.

30/05/2024

Part 2 Elizabeth Chaillou Shares Their Journey of Fostering and Adopting Glory Into Their Family

Welcome to the Guilbault Girls Show where you will have the opportunity to hear from mothers, fathers, siblings, and individuals themselves about their journey of living with a disability.

In this episode I had the pleasure of interviewing Elizabeth Chaillou. Liz and her husband Justin of almost 20 years, both grew up attending Mt. Zion Church right here in Bel Air, Maryland. When Liz was 19, she went to serve at Mt. Zion’s Children of Zion Village in Namibia for 6 months, when she returned, the two started dating, 4 months later they were engaged and married shortly thereafter!

Both Liz and Justin had the desire early on in their marriage to foster and shares her testimony about their journey and where they are today.

Be sure to tune in to both Part 1 where she shares their journey of fostering and adopting their daughter Faith and Part 2 about fostering and adopting their other daughter Glory who has autism.

As they say it takes a village, and you can help be a part of that village, simply sharing our show to the masses to spread awareness, change mindsets, and help teach other's to be kind to one another.

You can become a Supporter of the Show by clicking on the link below. Your Funds will allow us to keep sharing these valuable, heartfelt stories and resources!

https://www.buzzsprout.com/1827471/support

If you would like to order a token with your word hand stamped and inked email me at [email protected]

Bracelets are $15 and Keychains are $10. That includes tax & shipping in the US.

Want to be a guest on the show?! Then be sure to contact us today and don’t forget to subscribe to our Guilbault Girls Podcast and YouTube show, and make sure to follow us on Facebook and Instagram at Guilbault Girls.

Facebook: Girls, Instagram: , YouTube: Girls, Email: [email protected], and Website: www.GuilbaultGirls.com.

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What’s Your Word?

MyIntent FAQ

What is a MyIntent Workshop with MyIntent Maker Karen Guilbault? It’s a fun and interactive workshop, where you will find your WORD of Intent. Perhaps it's a virtue you want more of or a challenge you want to overcome. You'll also have the opportunity to have your WORD stamped into a bracelet as a daily reminder and conversation starter.

Where do MyIntent Workshops take place? Your desired location