22/10/2024
Autism in this day and age is a well-known condition. But many people don't know what PANS/PANDAS is when I tell them Beau has this as well. In fact, these days this affects him and his/our quality of life even more than autism (of course, it all ties together in root causes).
PANS stands for Pediatric Acute-onset Neuropsychiatric Syndrome. PANDAS is Pediatric Autoimmune Neuropsychiatric Disorders associated with Streptococcal Infections.
"PANS / PANDAS is largely an autoimmune disorder, resulting from infections or environmental triggers that cause abnormal activation of the immune system. These infections cause the child to create antibodies which attack the basal ganglia region of the brain causing a whole host of behaviors." - via tacanow.org
Beau has done treatment for PANDAS previously (strep specific) and is/has been long term on treatment for mold (PANS triggered by this pathogen). Today we found out he has not one but two *more* infections triggering his PANS. We will be treating them - Mycoplasma and Epstein–Barr - one at a time with homeopathy and anti-inflammatories. We were successful treating his PANDAS before with this route. There were things he had done for a year to YEARS that changed when we addressed it; including pressing his head into my head very hard multiple times a day, and a tic (that I didn't know was a tic at the time) that he did with his eyes. Immediately these things disappeared with treatment.
His inflammation is through the roof and will be on a heavier anti-inflammatory in addition to the anti-inflammatory he takes daily anyway.
Like the strep before, these two infections could have been in his system for anywhere ranging from days to years. In mid-September, he had a short lived fever and has been even more rage-y and aggressive, (only at home), obsessive. Did one of these infections happen then, and the other months or years ago... not sure.
Today he had a meltdown so severe he wasn't able to go to school, because he didn't calm down in time to meet the driver [to his charter school]. Last month he had a similar episode at the park when trying to get him to leave, that I thought people would probably call the police. And for a minute I wished someone would, and maybe the officer could help me get him in his carseat and restrained.
A life with your brain on 🔥 fire. It's heartbreaking.
And soon after, he will be himself again. He has the best smile and laugh in the world. He is silly and loves to tease. This is not who he is. It's what he has.
This is not who he is. It's what he has.
This picture was taken shortly before a recent episode.
On we go.
![Today, Beau approached a classmate and said "Hi _[child's name]_, how are you?" The classmate answered him, and they pla...](https://img3.medioq.com/626/847/122148536876268472.jpg)
