"no more sorrow and pain...."
We did a thing today; we took Beau to church for the first time in a long time. Vacation Bible School was this (last) week and today was a little presentation and songs. Brinna helped lead praise & worship at VBS (the days she wasn't sick 😔) so she had practiced her songs a lot at home leading up to it. Beau learned right alongside her and would often get out his play guitar. After the beginning part of the video, you can still see him mouthing many of the words 🥰.
He lasted about 55 minutes in church, I call that a win!
Beau can swing now! He has swung on his stomach for a couple of years, and just kind of sat on a swing moving his hips a little. So exciting 🤗. Makes us happy to see him to this with his sister.
Since the fall, he has gained the ability to put on his own pull -up, he started drawing "smiley faces" suddenly, became able to dress himself, put on his own shoes, pedal a bike/tricycle, ride a scooter, and swing. I'm sure I'm missing some other motor skills type skills. I attribute the rapid changes to discovering and addressing mycotoxins (mold toxicity).
Shortly after this video, he turned around and noticed the sky and said "rainbow!". We explained that it was a sunset 😄❤️
Beau doesn't participate in Bible lessons and Children's Church, VBS, etc. with his peers, but as his Mom I can meet him where he is at - and it's a blessing to do so. He loves to pray, he loves children's praise and worship music, and he likes the "Baby's First Bible" storybooks.
I love how interested he was here, hearing about how Jesus is the good shepherd. I know Jesus loves this little sheep (Beau) even more, much more than I could; and I can trust in that. ❤️
"I am the good shepherd; I know my sheep and my sheep know me - just as the Father knows me and I know the Father - and I lay down my life for the sheep." - John 10:14-15
I'm assuming they talk about sitting "criss-cross applesauce" at Beau's new school; he was saying it to himself this morning as he sat down to watch some cartoons. I repeated it and sat down and showed him my legs sitting that way. He looked at me, amazed and surprised, like 'how does she know about this?!' 😆😅
His voice is the sweetest, and I will never tire of hearing it. 😭❤️
I have to share another video with y'all. I cannot believe I actually captured this, because I rarely take the time to take a video. I'm so glad I did!
Beau does this thing where he will say he is something, for example in the bath, a jellyfish. He likes me to say very incredulously "you're not a ____, you're a boy!"
This week he was saying in a high pitched voice "I'm an angel!" I tried to get a video of him saying it, and even though he didn't say it the same way, he was saying it. I tried to do the game he likes, but then he went and said this and shocked me. 😭
He is so smart, and like my mom said "he knew exactly what he was saying. He was giving you a compliment and he knew it."
My new favorite word Beau says: hippopotamus 🦛😄
WE HAVE AMAZING NEWS!!!
Beau was awarded one of the 2024 TACA National Medical Scholarships in the amount of $1,500! Praise God and thank you to TACA ( The Autism Community in Action ) and their donors! Beau was a recipient last year as well, and we couldn't be more thankful.
These funds help us as we treat Beau from a holistic/functional medical approach. Tragically, our mainstream medical model does next to nothing for children diagnosed with autism and co-occuring conditions... and parents pursuing true medical care for their children pay for these things out of pocket. This is why organizations like TACA are so important.
More amazing news-
In the last couple of weeks, Beau has learned to pedal his tricycle! He has been doing the "Flintstone feet" approach for a very long time. It just "clicked" one day. He is really riding now! So proud!
Today was originally Beau's Kindergarten registration appointment, and although he wouldn't be having the typical Kindergarten experience next year, he would officially be in that grade and receiving full time services at the local school district.
However, after speaking with his team and administration at school, we've recently had a big change in plans. Next year, he will still receive a 'full' day as we planned, but instead he will be attending the Special Learning Center, located an hour away, for their morning classes; and in the afternoon he will have another year in the pre-school room at our actual school. He has been in this room since the day after he turned three, for three hours a day. For those not familiar with our very rural area, the hour commute (one way - two hours total drive time) is probably pretty jarring. Of course it is not ideal, but things look different for us in rural areas in regards to services...and sometimes it's our best option.
The Special Learning Center has a wonderful reputation, and I've never ever heard a single negative word about them. Before I had Beau, I worked for the Missouri Schools for the Severely Disabled. I would help give tours to parents of incoming students and sometimes this was a young child coming over from SLC, and a staff member from there would come with them on the tour, to help in the transition. I went and toured SLC in regards to my own child a couple weeks ago. A strange feeling, to say the least.
There are still some specifics to work out, but this is the plan. It is a big change, and certainly scary, but we are praying it will be a great experience for him and the added year will give him more time to progress. No matter the official "grade" level, etc., that's all we want for him! ❤️
I snuck this video of him reading a book to himself. I could listen to him all day. 🤗