In the morning! I’ll be on from 10am PST / 1pm EST talking about the value of health coaching for patients — especially if you have a complex medical history. Always love spending time with the @looms4lupus ladies, and looking forward to meeting more of you in the AM! @lupusla LINK IN STORIES!
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#support #SupportGroup #lupus #fibro #fibromyalgia #ChronicPain #pain #community #crafts #craft #talk #love #advocacy #advocate #health #healthcare #sisters
Lauren & Summer Live
Lauren & her friend and fellow Health Coach Summer Delaine of Mindful Whole Health discuss the power of health coaching for those who identify as female and those living with invisible chronic illness and disability, as well as the importance of sorting through the “wellness” snake oil out there to get the most authentic care experience — one that is client-directed, unconditionally affirming, and supportive.
@tinydotz was born in the small southern African country of #Lesotho. At the age of 12, she began to experience chronic pain and subluxation of her joints, in addition to extreme skin elasticity, GI and lung issues, and anapyhlaxis. These symptoms persisted through her admittance to university, where test after test came back inconclusive. So, she began her own research…and stumbled upon Ehlers-Danlos syndrome (EDS). While her diagnosis was eventually confirmed, none of the practitioners in her region knew what #EDS was — or how to treat it. She found herself arguing with doctors every time she had contact with the medical system, as most couldn’t admit the limit of their own skills and knowledge. In 2014, she was in an accident in which she sustained over 10 broken bones down her spine, among other injuries. A spinal specialist informed her that EDS had saved her life: her joints were so #hypermobile, the impact hadn’t shattered her spinal cord…and while she spent close to a year in rehabilitation, she can walk again today. In 2017, she founded @rare_diseases_lesotho (RDLA) in order to serve others living with rare disease in her corner of the world — by raising #awareness, providing care and education services, and bringing those who feel alone into #community. In 2020, this led to the creation of the Rare Diseases African Alliance, which also includes the Rare Diseases Namibian Alliance. As an activist and advocate for EDS and other rare diseases, Nthabeleng has found ways to cope with her diagnosis despite the hardships she faces — and is fueled by helping others live as comfortably and fully as possible with rare disease.
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Listen here: https://uninvisiblepod.com/episodes/episode-140-nthabeleng-ramoeli-rdla/
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#RareDisease #EhlersDanlos #EhlersDanlosSyndrome #drive #appreciation #experience #support #education #medicine #healthcare #EDSawareness #advocacy #advocate #NGO #founder #FemaleFounder #community #spoonie #zebra #ZebraStrong
When I first met this week's guest, I was bowled over by her bubbly, happy outlook on life. It's something I definitely experience my own ups and downs over...and without getting into #ToxicPositivity territory (no thank you, #wellness world!), I was curious to learn how Morgan Greene found herself with such joy and abundance as someone who has faced a neuro-autoimmune condition like #MyastheniaGravis (#MG). As she shares in this week's #episode, when Morgan was diagnosed, it became clear to her how much she was holding back on her own #SelfLove practice: so she took the diagnosis as a #WakeUpCall. She began #writing to process her experience -- "serving as both therapy and accountability" for her, as she so aptly puts it. And @iswaswillbeblog was born. As her journey progressed, she found solace in putting into words what many of her fellow #Spoonies were experiencing. What started as a hobby has turned into a passion, as Morgan continues to spread awareness about living with chronic illness and inspiring
women to live their illest lives. As she details on her blog, “I challenge you not only to share the journey with me, but also to start one of your own. It is my hope that through my words, you will find the fuel to ignite your own personal #revolution. That you will finally start living according to your own…#happiness. There’s no easy button. It’s not going to happen tomorrow, next week, or even next month. But if you just start, one day you will be able to wake up to a life you made happen.” I don't know about you, but I was definitely #inspired by Morgan's take on the Spoonie life. Tune in now wherever you subscribe to podcasts!
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Listen here: https://uninvisiblepod.com/episodes/episode-138-iswaswillbe-morgan-greene-mg/
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#blog #blogger #writer #advocate #advocacy #patient #joy #happy #love #SelfCare #spoonie #SpoonieLife #SpoonieSupport #MentalHealth #awareness #illest #live #life #lifestyle #holistic #podcast #listen
Dr. Karin Hehenberger (@karinlyfebulb) has close to 20 years of experience in the life sciences sector. She served as an executive at Eyetech Pharmaceuticals and Coronado BioSciences, and had strategic management roles at Johnson & Johnson (Vice President, Metabolic Strategy), @jdrfhq (Senior Vice President, Strategic Alliances), and McKinsey; as well as senior partnership roles at public (Brummer & Partners) and private (Scandinavian Life Science Ventures) multibillion- dollar investment funds. She received her MD and PhD degrees from the Karolinska institute, and did her post-doctoral fellowship as a JDRF stipend recipient at @joslindiabetes, @harvardmed. Inspired by her background and diagnosis of type 1 diabetes, she is the founder and CEO of @lyfebulb. Tune in TODAY wherever you subscribe to podcasts!
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This episode is sponsored by @moonlight_musings_. Get 10% off Executive & Life Coaching using code INVISIBLE! With a background in psychology and law, Gena inspires clients to step into their best lives by helping them access their inner strengths, clear the cobwebs holding them back, and cultivate a dream-big, growth mindset. #sponsored
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#podcast #listen #OutNow #T1D #Type1Diabetes #diabetes #insulin #pancreas #kidneys #PancreasTransplant #KidneyTransplant #OrganDonation #transplant #TransplantRecipient #OrganDonationSavesLives #DonateLife #teaser #IGTV #autoimune #AutoimmuneDisease #doctor #CEO #founder
* * * Episode TW/CW: Discussion of multiple of suicide attempts as a response to chronic pain and gaslighting. * * *
@jemma_rosewater is a 17-year-old writer, passionate patient advocate, and founder of @hyperacusis_awareness. Having grown up with severe hyperacusis (a rare and poorly-understood disorder that causes her to experience physical pain from everyday sounds) has motivated her to raise awareness of others with similar conditions. Through her various efforts, Jemma has gained experience in patient advocacy and legislative change campaigning, and has been able to participate in numerous awareness-raising events. The goal of her work is to create a world in which those with hyperacusis, chronic pain, and rare disease are believed — and are offered all the unique environmental modifications and services they need to live pain-free, comfortable lives. Her current advocacy projects include: adding a title 6 (Telepresence and High-Level Sensory Modifications) to the ADA; collaborating with research scientists and the American Academy of Audiology to establish clinical practice guidelines to protect those with hyperacusis; establishing a national awareness week for the condition; and a recent Hyperacusis Awareness Conference; as well as a campaign to extend distance-based learning (implemented during the COVID-19 pandemic) for disabled students in need. Jemma-Tiffany has been featured and published by Migraine Magic, PatientDX, the Hearing Health Foundation, the American Chronic Pain Association, Rare Youth Revolution, and The Third Estate, among others.
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Listen here: https://uninvisiblepod.com/episodes/episode-136-jemma-tiffany-hyperacusis/
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#hyperacusis #hearing #episode #podcast #teaser #video #IGTV #reels #reel #awareness #ChronicIllness #caption #captions #CC #hear #audio #advocacy #advocate #trailer
Sara Naveed is a Canadian #writer, #ChronicIllness #advocate, and founder of the #blog @fabulous.and.fatigued. 14 years ago, she was diagnosed with #fibromyalgia following a hit-and-run. Inspired by her experience, she started the blog with the aim of creating #awareness and ending the #stigma of life with chronic illnesses. Her work has been published in various media outlets and platforms including Yahoo, MSN, The Mighty, The Tired Girl Society and DPC Education Center. AND she’s taking over our IG stories today — so stay tuned and head on over for a day in the life!
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Listen here: https://uninvisiblepod.com/episodes/episode-134-sara-naveed-fabulous-fatigued/
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#FibromyalgiaAwareness #FibromyalgiaWarrior #FibromyalgiaSupport #FibromyalgiaFighter #FibromyalgiaIsReal #FibromyalgiaCommunity #anxiety #depression #ChronicPain #ChronicFatigue #pain #fatigue #InvisibleChronicIllness #InvisibleIllness #advocacy #takeover #stories #IGStories #IGStory #DayInTheLife #invisible #Uninvisible #oversharing
@thisthingtheycallrecovery is a disabled graphic designer from Scotland, predominantly living with #MECFS. She was born with a birth defect known as #gastroschisis, and as a result she also lives with short bowel syndrome, chronic internal bleeding, and iron deficiency anemia. At the age of 16, she found herself in and out of hospital almost weekly — something that would continue on for some years. She couldn't relate to her peers anymore, and felt alienated in the new medical space she suddenly found herself occupying. Often the youngest person in the waiting room (by several decades), it became abundantly clear that none of the marketing, pamphlets, posters, or websites she was directed to were aimed at her demographic — or acknowledging her unique experience. So she took to the Internet to share her story. With a blog read in over 90 different countries, translated into over 50 languages, and a social media following of over 25k, Jenny is trying to get the word out: chronic illness can look like anything, happen to anyone, and everyone deserves to feel supported. Now in her mid-20s, Jenny is determined to help make sure no young person feels like they're dealing with health issues alone, and is committed to challenging the public perceptions of disability, sparking complex conversations and uniting Spoonies and their loved ones together.
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#Listen here: uninvisiblepod.com/episodes/episode-133-this-thing-they-call-recovery
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This episode is sponsored by @moonlight_musings_ (Gena Chieco Coaching). Get 10% off Executive & Life Coaching using code INVISIBLE! With a background in psychology and law, Gena inspires clients to step into their best lives by helping them access their inner strengths, clear the cobwebs holding them back, and cultivate a dream-big, growth mindset. #sponsored #ad
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#ME #CFS #ChronicIllness #ChronicPain #ChronicFatigue #ChronicFatigueSyndrome #ChronicFatigueAwareness #MyalgicEncephalomyelitis #MyalgicEncephalomyelitisAwareness
Cassandra Rush (@pheauxtogenic) is a lupus advocate born and raised in Los Angeles, CA. In 2012, after a two-year battle with an undiagnosed illness due to being uninsured, she was finally diagnosed with Systemic Lupus Erythematosus (lupus SLE). Two years later she was diagnosed with lupus nephritis. An “accidental advocate”, she speaks out about the broken US healthcare system, with a particularly detailed lens on medical racism and systemic bias. She was recently selected as a subject in the documentary series @trustmeimsick (now streaming on @soulpancake), wherein she shares about her life with lupus. And she’s on the pod to tell us even more.
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Listen here: https://uninvisiblepod.com/episodes/episode-132-cass-rush-lupus/
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#lupus #representation #LupusAwareness #LupusFlare #LupusWarrior #LupusNephritis #systemic #racism #hospital #healthcare #health #care #MentalHealth #MentalHealthAwareness #MentalHealthMatters #WOC #POC #sick #ChronicIllness #InvisibleIllness #Spoonie #support #community #SpoonieLife #SpoonieSupport #advice #podcast #invisible #uninvisible #oversharing
*** TW/CW: Addiction. ***
Faith Ashenden is the founder and CEO of @thathealingfeeling. She is a global patient empowerment mentor, master mindset coach, and biohacking expert who helps women hack the system and get their health back holistically, using 1-1 coaching, online courses, a podcast, and social media accounts with over 40k+ followers. Faith empowers people to ask the right questions, bust through limiting beliefs, detox their environments and bodies, and start using food as medicine. She’s also overcome Graves’ disease and Adderall addiction…and she’s on the show to share her story!
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Listen here: uninvisiblepod.com/episodes/episode-131-that-healing-feeling-faith-ashenden
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This episode is sponsored by @moonlight_musings_ (Gena Chieco Coaching). Get 10% off Executive & Life Coaching using code INVISIBLE! With a background in psychology and law, Gena inspires clients to step into their best lives by helping them access their inner strengths, clear the cobwebs holding them back, and cultivate a dream-big, growth mindset. #sponsored #ad
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#GravesDisease #Graves #autoimmune #AutoimmuneDisease #AutoimmuneDiseaseAwareness #hyperthyroid #hyperthyroidism #addiction #ADHD #Adderall #pregnancy #baby #mom #holistic #healing #heal #mindset #NonToxic #detox #ToxinFree #LowTox #health #healthcare #advocate #empowerment #invisible #uninvisible #oversharing
@damianwashington is an actor who’s done 30+ commercials for brands like Fruit of the Loom, Realtor.com, and the NFL. Originally hailing from NYC, he attended the prestigious LaGuardia High School for the Performing Arts (Fame, anyone?!). A few years ago, he was diagnosed with multiple sclerosis (MS)…and soon discovered that developing an MS community is the best way to share his light with the world. Damian’s weekly @youtube channel has several thousand engaged subscribers; he sits on @genentech’s Patient Advisory Board and the MS Focus Patient Advisory Group; and he makes content for @msviewsandnews. He’s also been featured by the @mssociety and @shiftdotms. Damian was the winner of the @wegohealth Award for Best in Show: YouTube in 2020. Some say they find the silver lining in the dark MS cloud, but Damian says he’s turning poop into flowers…and that the engaged community that's developed out of his shares is one of the best things to come from this horrible disease.
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Listen here: https://uninvisiblepod.com/episodes/episode-130-damian-washington-ms/
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Sponsor: @livingfrominspiration is a Holistic and Well-Being Coach, Yoga teacher, and a best-selling co-author. After healing from severe ME/CFS that kept her housebound and bedbound for over 8 years, Lorrie began coaching others in recovery from post-viral symptoms…and from July 5-12, she is hosting The Long COVID and ME/CFS Holistic Healing Summit, a FREE virtual event featuring over 25 expert speakers, including Sarah Ramey, Drs. Jacob Teitelbaum, Sarah Myhill, Charles Lapp, and more. Mark your calendars and head over to longcovidsummit.com to register for free and get all the details. #ad #sponsored
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#MS #MSawareness #MultipleSclerosis #MultipleSclerosisAwareness #MultipleSclerosisFighter #MultipleSclerosisWarrior #autoimmune #AutoimmuneDisease #AutoimmuneDisorder #AutoimmuneWarrior #meditation #meditate #mindfulness #YouTube #award #AwardWinning #AwardWinner #ContentCreator #actor
@danidonovan is a purpose-driven #designer who creates cathartic #ADHD (attention-deficit/hyperactivity disorder) illustrations and a community of validation and solidarity for adults living with ADHD. Her first infographic, “ADHD Storytelling,” went viral within hours and amassed over 100 million views. Her work has been reposted by celebrities like @mindykaling and featured in publications like the @bbcnews. In a few short months, Dani’s relatable comics and her #NeurodiverseSquad hashtag helped her quickly become a prominent voice in the online #MentalHealth community. Her comics, jokes, Twitter threads, and TikTok (cc: @tiktokcreators!) videos aim to help those with ADHD understand themselves, feel a sense of belonging, and better explain their invisible struggle to loved ones. Dani’s influence has helped hundreds of people seek diagnosis and treatment for ADHD. Tune in now to learn more about her story — including how she navigates life with three diagnoses (ADHD, #Bipolar2, and #EDS), and why her work means so much to her and the larger community. It’s live now!
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Listen here: https://uninvisiblepod.com/episodes/episode-129-dani-donovan-adhd/
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This episode is sponsored by @moonlight_musings_. Get 10% off Executive & Life Coaching using code INVISIBLE! With a background in psychology and law, Gena inspires clients to step into their best lives by helping them access their inner strengths, clear the cobwebs holding them back, and cultivate a dream-big, growth mindset. #ad #sponsored
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#MentalHealthAwareness #ADHDmemes #ADHDawareness #ADHDproblems #ADHDtips #BipolarAwareness #BipolarDisorder #EhlersDanlos #EhlersDanlosAwareness #EhlersDanlosSyndrome #EDSawareness #art #artist #illustration #illustrator #design #support #community #YouAreNotAlone #invisible #uninvisible #oversharing
We are finally back with episode 126, featuring the Mata sisters, founders of @looms4lupus, as we celebrate #LupusAwarenessMonth! Join us in this lively and inspiring conversation as we hear Juana and Estela’s stories of diagnosis, and how Looms for Lupus came to be (hint: it started as a family loom weaving circle, and now these ladies are out there changing health policy to better serve and support patients!). These women remind us of the importance of community, the need for change, and that none of us — not a single one — is ever alone. We are thrilled to be back from hiatus with this touching episode. Listen now wherever you subscribe to podcasts...and while you’re at it, please rate and review on your favorite platform. Every bit helps this little podcast that could...keep going!
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This episode is sponsored by @moonlight_musings_. Get 10% off Executive & Life Coaching using code INVISIBLE! With a background in psychology and law, Gena inspires clients to step into their best lives by helping them access their inner strengths, clear the cobwebs holding them back, and cultivate a dream-big, growth mindset. #ad #sponsored
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#lupus #LupusAwareness #LupusWarrior #LupusFlare #fibromyalgia #family #craft #crafts #community #support #care #policy #change #sisters #sister #love #healthcare #HealthPolicy #ChronicPain #InvisibleIllness #ChronicIllness #spoonie #SpoonieLife #SpoonieSupport #invisible #uninvisible #oversharing
Join us as we wrap up a LOT of #Lyme talk with the lovely and inspiring @negraconlyme. Rhisa was ill from an early age, and waited a decade for diagnosis. We discuss everything from #gaslighting and medical #bias to access to #treatment and #support. I learned so much from Rhisa...and I know you will, too! Tune in NOW for a dose of #strength and #resilience...with a side of #RealTalk. Thank you, Rhisa, for sharing your story with us!
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Open #IGTV for link and #listen here: https://uninvisiblepod.com/episodes/episode-122-negra-con-lyme-rhisa-parera/
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#LymeDisease #LymeDiseaseAwareness #LymeWarrior #LymeLife #ChronicLyme #ChronicLymeDisease #ChronicIllness #InvisibleIllness #InvisibleChronicIllness #TickBorneDiseases #racism #prejudice #medicine #doctor #IntegrativeMedicine #IntegrativeHealth #spoonie #invisible #uninvisible #oversharing