Hips Lips and a Bag of Chips

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The lumps, walnuts and rice grains of lipedema fat may be hidden, but they are there. They hurt. They ache. I always th...
19/04/2024

The lumps, walnuts and rice grains of lipedema fat may be hidden, but they are there. They hurt. They ache. I always thought feeling this way was normal, until I learned about my disease. I am so thankful to KNOW why my legs, arms and stomach look deformed, and why they hurt. Now to fight for treatment for this very real, unstoppable medical condition.

Can you explain why BCBC would only approve lipo on my calves? I mean my poor knees!!! Side note, can you see the line ...
19/04/2024

Can you explain why BCBC would only approve lipo on my calves? I mean my poor knees!!!
Side note, can you see the line mid shin? Lipedema is moving down my leg. I already feel like each leg is 100lbs of concrete. I need surgery to alleviate the pain and pressure, to save my mobility.

My reason for fighting this lippy battle. I want to be free to play. I want to climb stadium steps and see you run to vi...
18/04/2024

My reason for fighting this lippy battle. I want to be free to play. I want to climb stadium steps and see you run to victory. I want to be beside you, cheering you on. I want to walk to find my seat at your High School graduation. I want to take you on adventures. I want to dance with you at your wedding. I want my arms to hold you as long as I can. This disease will not get the best of me. It will not stop me. I will fight against my insurance denials and I will get my surgeries covered. I will not lose my mobility over this. Just wait and see!
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Pre/post MLD with pneumatic compression. My ankles are noticeably different!
09/04/2024

Pre/post MLD with pneumatic compression. My ankles are noticeably different!

Tried a different brand today. I like the other better! Now to get the Flexitouch ordered.
05/04/2024

Tried a different brand today. I like the other better! Now to get the Flexitouch ordered.

My pre auth packet in real life, ready to submit to insurance. Praying it all gets approved 1st time around. 🙏🏻🤞🏻🙌🏻 ...
30/03/2024

My pre auth packet in real life, ready to submit to insurance. Praying it all gets approved 1st time around. 🙏🏻🤞🏻🙌🏻

It's moved into my forearms and the unexplained bruising has begun. This is lipedema life.
28/03/2024

It's moved into my forearms and the unexplained bruising has begun. This is lipedema life.

Tried these compression pumps at PT today. Wow they felt good!
06/03/2024

Tried these compression pumps at PT today. Wow they felt good!

Maybe cute cups will help me to drink more water. It's justified shopping, right?! 😂
24/02/2024

Maybe cute cups will help me to drink more water. It's justified shopping, right?! 😂

Unexplained bruising is a symptom of Lipedema. I've had this symptom as long as I can remember on my legs, hips, lower...
03/02/2024

Unexplained bruising is a symptom of Lipedema. I've had this symptom as long as I can remember on my legs, hips, lower stomach and arms.

My 15 year old self. My legs definitely had visible lipedema at this point. My arms were starting to have swelling but d...
04/12/2023

My 15 year old self. My legs definitely had visible lipedema at this point. My arms were starting to have swelling but didn't have pain yet.

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