Desi’s updates

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Desi’s updates This page is for any and all medical updates on my brain surgery. Surgery is scheduled for Wednesday May 2nd at 7:15 at Harris Downtown.

15/08/2019

I hate feeling sick without being sick. I’m trying hard to push my next MRI till the beginning of the new year but I’m not sure I’ll make it that long.

A possible leak it’s called a pseudomeningocele, I go to the Dr on Thursday for his opinion.  I’ll update then
14/09/2018

A possible leak it’s called a pseudomeningocele, I go to the Dr on Thursday for his opinion. I’ll update then

11/09/2018

MRI is scheduled for Thursday at 3

10/09/2018

Dr has ordered an MRI and an appointment with him on the 20th. Hopefully we’ll learn something

05/09/2018

Ok, I broke down and reached out to the dr today. Still having headaches. This morning I woke up to my neck “grinding” when I moved it. I think it’s scar tissue on my metal plate. Will update later

30/08/2018

I’ve had a headache now for almost three weeks. Some are worse than others. Same headache as before surgery. I was really hoping it was allergies or the weather but I’m starting to think that’s the case. I may call the Dr soon.

Be as bold as the scars you earned!
16/07/2018

Be as bold as the scars you earned!

12/07/2018

Went for my last follow up yesterday! Got a clean bill of health! I will never be able to pick up anything heavy or I can push my brain back down where it doesn’t belong. Dr said a few more months and the itching and soreness should be completely gone. Dr did say that he removed my c1 because my brain was smothering it causing the nerves to be compressed. Myself and the Dr are very pleased with the outcome. 😍 🧠

13/06/2018

6 weeks post op today! For the most part I feel great! Much better than before surgery for sure. By the end of the day my neck is super tired. I’m Tylenol free (my liver thanks me). My scalp is still is little sore to the touch. My energy level is so much better!!!

01/06/2018

Found out today from reading my CT scans that the surgeon also removed my C1 during surgery. Guess he forgot to tell me...

Getting these bad boys out today!!!!
17/05/2018

Getting these bad boys out today!!!!

08/05/2018

I’m feeling pretty good today. Still sleeping a lot. Hospital gave me different meds and rehydrated me. Made a good difference. I’m still super weak and a little stiff. I have a throbbing head death only when I stand up or sit down.

06/05/2018

CAT scan and blood work just to make sure everything is good. Other then that she is feeling a lot better. Hydrocodone and zofran perscription.

06/05/2018

Been throwing up all night. 🤮. Hope its too much meds and not enough food.

04/05/2018

Home!!!

04/05/2018

Going home today!!

I am now a zipper head.
04/05/2018

I am now a zipper head.

03/05/2018

Feel free to visit if you would like.

03/05/2018

Desi is in her own room! Room 583
Richardson tower

03/05/2018

Still in ICU and waiting for a regular room to open up. Pain is ok. Super stiff

03/05/2018

About to go for a CAT scan. It’s routine

03/05/2018

The pain is real 😭🤕

02/05/2018

Desire is still doing great! She is eating crackers and drinking water. Also cutting jokes and conversing well.

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