So I’m a bit late but it’s #WorldFrogDay, so I figured I’d post a bit about toads after getting back from another patrol earlier this evening. I’ll be posting some high res photos to my feed in the next couple of days, so keep an eye out!… So technically, all toads are frogs but not all frogs are toads… reason being is they both belong to the order Anura, commonly referred to as “frogs”.
Unfortunately, just like many frog species around the world, the Common Toad in the UK faces many threats. They have been impacted by habitat loss, particularly loss of breeding ponds and drainage of wet woodland. Roads pose a serious threat by cutting through migration routes. It’s estimated that 20 tonnes of toads are killed by traffic during the spring migration to their breeding ponds. This spurred on the formation of “Toad Patrols” where volunteers head out in hi-vis, bucket and torch in hand, to migration hot spots, shuttling as many toads as they can to the nearby breeding pond. Hundreds (sometimes thousands) of toads are counted trying to cross roads to their breeding sites in a single night! Every year these amazing creatures (usually) return to ancestral breeding ponds along the same routes, triggered by environmental cues but programmed innately at a genetic level
Quick update: Newly Diagnosed Weekend done(a pleasure as always) and I’m off to Vienna for a bit 👍🏼
#haemophilia #hemoontheroad
#akickforhaemophilia World Cup 2018
The #WorldCup has officially started and Haemophilia Foundation of Nigeria have launched their #akickforhaemophilia campaign. Their fantastic executive director and haemophilia mother, Exquisite Megan Buckie has uploaded her video and challenged the community to get involved! I've accepted the challenge. Here's my #akickforhaemophilia for all those boys with haemophilia out there in Nigeria that can't play football. You are all so strong, brave and resilient.
75% of people living with haemophilia and bleeding disorders in the world don't have access to adequate treatment, sometimes no treatment at all. Myself and others in the UK are fortunate enough to have access to care that allows us to lead a normal life and get out there playing football and other sports.
I challenge my fellow bleeders to get involved. Upload a video showing having #akickforhaemophilia to help us raise awareness for those boys and girls in Nigeria and other developing countries who can't play football.
You "normal" friends thought you'd escape?...
Joe Spicer - I know you've still got it.
Dane Pembroke - show us those skills and save our family's footballing reputation
Pathetico United - (Jack, Adam, Kieran, Lee etc. you lot can challenge the others...I expect big things. Especially from Brinaldihno)
Jack Howard aka The Big Mitt - forgot you in the video (soz) but get involved and challenge your "soccer" mates ;)
Finally, Alex Iwobi, if you happen to end up seeing this, I challenge you to have #akickforhaemophilia!
#haemophilia #hemophilia #bleedingdisorders #Nigeria #NGA #SoarSuperEagles #ENG #ThreeLions #FootballsComingHome
Deadpool ziplining for haemophilia! | WFH2018
If you haven't caught the full video of Deadpool zipling the River Clyde for The Haemophilia Society UK to kick off day one of #WFH2018 then get yourself over to The Clot Thickens channel! And consider donating a few quid using the link in the description (https://www.youtube.com/c/TheClotThickens)
Also, sorry Ryan Reynolds, but I definitely wore it better 😐
#haemophilia #hemophilia #bleedingdisorders #awareness #Glasgow #Deadpool #Deadpool2
So #WFH2018 is over ☹️ this week absolutely flew by. I’m currently editing the vlogs on the way home but just want to post a quick video to close out the week.
Congratulations to The Haemophilia Society UK for being fabulous congress hosts. I had several people at the gala dinner tell me this was at the top of the list for their best congress.
A huge well done to the nurse and physio volunteers from the UK who worked tirelessly treating an extraordinary amount of patients throughout the event. You’re all absolute troopers and we are lucky to have you!
All the very best to my international bleeders who I met or reconnected with this week. Thank your for your stories, your friendship and your dance moves!
Finally, to anyone who approached me about my videos...thank you so much for the kind words. It really means a lot to hear people enjoy what I’m trying to do with this whole YouTube “thing”.
#haemophilia #hemophilia #bleedingdisorders #Glasgow
World Haemophilia Day Q&A Livestream
Yo yo yo #WorldHaemophiliaDay livestream is a go! Get involved in the comments with your questions or share what you've been up to today...and be in with a chance to win some "fire merch"
I've got a few questions ready sent in by various friends earlier, so I will work through those if this turns out to be a pointless venture!
P.S. Fortnite is happening here: mixer.com/fedduke1994
World Haemophilia Day 2018!
Happy World Haemophilia Day people! Sorry this video is arriving a little later in the day...but give it a watch! I'd love to here from you in the comments...what are you up to this year for WHD2018?
Stay until the end of the video to find out how you can get hold of some gnarly new merch by tuning in to my facebook livestream later this evening. (7:30pm UK time) You can also share this video and leave a comment to be entered in to the competition too! Peace out!
#haemophilia #worldhaemophiliaday #hemophilia #worldhemophiliaday #WHD2018 #bleedingdisorders #vonwillebrands #raredisease #sharingknowledge
Why you do this blood!?
You're just minding your own business, getting ready for the weekend aaaaaand...BAM. Bleed.
#haemophilia #hemophilia #vWD #vonwillebrands #vonwillebranddisease #bleedingdisorders #freshmemes #memesthatjustwontclot
Learning to give treatment | Haemophilia Heroes interview
"You never expect to have to do that to your kid...I want to make sure I can provide for my family, and that was a new thing I had to provide".
As a parent, learning to inject your child with a #bleedingdisorder is a huge emotional challenge. #haemophilia Dad, Tom brilliantly expressed his feelings about this during our interview at the The Haemophilia Society UK Newly Diagnosed Weekend. I am sure many haemophilia parents can empathise with this!
Check out the full interview with Haemophilia Heroes here: https://youtu.be/NFO9lPdikcw
Caught Red Handed for International Women's Day
I've been #CaughtRedHanded for International Women's Day! You can help raise awareness on women and bleeding disorders by painting a fingernail red, uploading a photo and sharing the #CaughtRedHanded hashtag. Women within the bleeding disorder community face a number of challenges and, it's fair to say, have been underserved when compared to the strong focus there has always been towards men with "classic" haemophilia.
However, with increased advocacy and research we now know many women are significantly affected, from those with other rare bleeding disorders, such as Von Willebrand's Disease, to symptomatic haemophilia carriers, women are a significant and important part of our community. Even the amazing haemophilia mums out there, that may not be directly affected, sacrifice so much to raise a child with haemophilia. I for one can't ever thank my mum enough. Despite all the challenges she faced raising me with haemophilia, here I am today, happy, healthy...and discovering that red really isn't my colour!
Oh and remember...one must always raise a pinky when drinking tea...
#InternationalWomensDay #IWD2018 #bleedingdisorders #vonwillebrands #vwd #haemophilia #hemophilia
We hit 200 likes on the page recently and I just wanted to take a quick moment to thank all of you for the support you’ve shown!
It really does mean a lot and it’s encouraging to see members of the bleeding disorder community engaging with the random array of content I put out. I’ll be posting more details about an upcoming giveaway soon so stay tuned...and if you’re new around here why not leave a like to keep up with my ramblings, goofs, gaffs and the freshest of hemo memes! 🤙🏼💉
paper cuts = death...right?
I've got your haemophilia memes sorted. Starting off with a classic...the ol' paper cut question.
Small YouTubers in trouble? | New 2018 YouTube Partners Programme eligibility
I made a video throwing in my two cents on the whole YouTube Partners Program changes announced this week. Here's the very overly dramatic intro...stop by my channel to hear my thoughts on this. I can see where the frustration from small channels is coming from, but overall I don't think these changes are the end of the world.
https://youtu.be/sCV7zPN4Q_I
#youtube #youtuber #youtubepartnersprogramme
I have immature friends | Haemophilia Q&A
Evening people! So...I did have a new video in the works... but after dropping an entire mug of tea over my laptop (#veryBritishproblems) I am unable to edit it. So in the meantime I thought I'd repost this Q&A video from my youtube channel, which was one of my first uploads, where I (foolishly) invited my closest friends to ask anything they wanted about my haemophilia.
If you enjoyed this, please consider liking and sharing. It really helps the page out. If you didn't enjoy this...well, that's ok too. I am planning to do another Q&A video at some point this month, so if you have a burning desire to ask a question then fire away in the comments.
#haemophilia #hemophilia #bleedingdisorders #raredisease
Here's to 2018!
Happy new year people! 2017 was a quite a crazy one. Since starting this whole "making videos of me rambling about haemophilia stuff" I have spoken with some awesome people and I hope this continues in to the new year. I have a lot of ideas for the year ahead, hopefully connecting with other people out there in the bleeding disorder community, making a lot more videos, and building a bigger audience to continue raising awareness about bleeding disorders.
Thank you to all of those out there who have shown your support; friends, family, my hemo homies, complete internet strangers...it means a lot!
I hope you all had a great 2017, but if you didn't, it's over now and you made it through, so go you! I wish you all a happy and healthy 2018. Peace out!
Boxing Day. Woo.
I hope you’ve all had a great Christmas with your loved ones. I treated myself today, and treated a bit later in the day... it is Christmas after all. Infusing whilst trying to fight off an imminent food coma is not easy 🎄🎁💉
#haemophilia #hemophilia #bleedingdisorders #raredisease #christmas
Haemophilia cure?...Gene therapy trial results published
I might be on the news tonight...might... so tune in this evening. Exciting news in the world of haemophilia and I was given the opportunity to share my thoughts and experiences with Sky and ITV. If it doesn't air it may end up online. Either way, a cringetacular spectacle no doubt!
Anyway, let me know what your thoughts are about this new gene therapy data. Even if it doesn't get much mainstream uptake it certainly is exciting for the haemophilia community and I'd love to chat to people about it.
#haemophilia #hemophilia #genetherapy #bleedingdisorders
