23/07/2024
It’s and before the month ends I wanted to take a minute to talk about what that means for me (long post ahead).
Disability pride is a complex thing, I have a lot of feelings of anger, frustration, and even hatred towards my body and myself because of my disabilities. I have Autism, OCD, PTSD, CVS, and am testing for a few other health conditions. I follow a strict diet to not trigger CVs episodes, I have chronic joint pain and go to my chiropractor weekly to manage the pain and keep my joints properly aligned. My immune system is weak meaning I am sick often. Because of my neurological conditions I am easily overstimulated and have frequent meltdowns, I rarely socialize because of how exhausting masking is, I experience frequent panic attacks, and don’t have a lot of independence. I mourn the things that I have had to give up, dreams that I’ve had to let go because of my disabilities. I get frustrated when I’m not able to get all the things I want to done because of a flare up or a meltdown, when I go for weeks without posting content because I’ve just been too exhausted, or when I have to cancel plans because I feel too crummy to do anything.
But means that I take pride in the things I HAVE been able to accomplish. I started making content to share my passion for Star Wars and fandom! I started teaching dance as my full time job, allowing me to still participate in something I love. I have cosplayed my favorite characters, and I’ve met my heroes! I have traveled across the world, despite all the challenges I face when traveling (4th picture is where I had a meltdown while I was in London). I even got a tattoo! I have done things and had experiences I never imagined I would have.
And I will not let these disabilities keep me from pursuing my goals, even if I have to adjust my timeline, or it takes me longer than I’d like to be able to pursue them. That’s what disability pride is to me, raising awareness for disability, recognizing the struggles of being disabled and validating that experience, and celebrating what I HAVE DONE and WILL DO in the future.