Lyme Disease on The Mighty

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Lyme Disease on The Mighty The Mighty is a site where people share their personal experiences with disability, disease and mental illness.

On this page, we feature stories from our community of contributors living with lyme disease.

"Every single day is a fight."
17/03/2022

"Every single day is a fight."

"I’ve been told I am exaggerating my symptoms, that my treatments are poisoning me, that I’m too sensitive and need thic...
16/03/2022

"I’ve been told I am exaggerating my symptoms, that my treatments are poisoning me, that I’m too sensitive and need thicker skin."

"PTLD and chronic Lyme disease are a symptom of something much bigger — and more concerning — than a tick bite."
16/03/2022

"PTLD and chronic Lyme disease are a symptom of something much bigger — and more concerning — than a tick bite."

"I've finally arrived at a place where I can be in relationship with my pain."
15/03/2022

"I've finally arrived at a place where I can be in relationship with my pain."

"I know that it's outside of my control and nothing to be ashamed of but I still don't want anyone to see it."
15/03/2022

"I know that it's outside of my control and nothing to be ashamed of but I still don't want anyone to see it."

"When your brain is in a battle, you're not you."
14/03/2022

"When your brain is in a battle, you're not you."

"Many doctors need to be more open-minded."
14/03/2022

"Many doctors need to be more open-minded."

"Fighting this chronic battle isolates you from the world."
13/03/2022

"Fighting this chronic battle isolates you from the world."

"Trust me, nobody willingly gives up New York-style pizza or lobster ravioli or Little Debbie Nutty Bars on a whim or be...
13/03/2022

"Trust me, nobody willingly gives up New York-style pizza or lobster ravioli or Little Debbie Nutty Bars on a whim or because they want to feel special."

"Trust me, nobody willingly gives up New York-style pizza or lobster ravioli or Little Debbie Nutty Bars on a whim or because they want to feel spe...

"There are still people who seem to believe that there must be something I'm doing wrong. I can't possibly be living in ...
12/03/2022

"There are still people who seem to believe that there must be something I'm doing wrong. I can't possibly be living in a body that could cause this much suffering without being a contributor myself to it."

"People assume if you can't 'do it all' then the problem is with you, not the expectations set on individuals."
12/03/2022

"People assume if you can't 'do it all' then the problem is with you, not the expectations set on individuals."

"People assume if you can’t 'do it all' then the problem is with you, not the expectations set on individuals."

"It’s almost like wearing a mask..."
11/03/2022

"It’s almost like wearing a mask..."

"I did not become a saint. I became an as***le."
11/03/2022

"I did not become a saint. I became an as***le."

“I did not become a saint. I became an as***le.”

"Too often we are seen only for the good pictures we take, but what is not seen is the amount of pain we are in at the m...
10/03/2022

"Too often we are seen only for the good pictures we take, but what is not seen is the amount of pain we are in at the moment and the pain we endure after."

"Too often we are seen only for the good pictures we take, but what is not seen is the amount of pain we are in at the moment and the pain we endur...

#11 is too real.
09/03/2022

#11 is too real.

"We are determined to make a change."
08/03/2022

"We are determined to make a change."

"What if this is the rest of my life?"
08/03/2022

"What if this is the rest of my life?"

"This is the part about chronic illness that is very scary and misconstrued."
07/03/2022

"This is the part about chronic illness that is very scary and misconstrued."

"About 53 percent of survey participants had at least one co-infection."
07/03/2022

"About 53 percent of survey participants had at least one co-infection."

"I fight battles every day that people don't see. Battles I never expected to ever have to face."
06/03/2022

"I fight battles every day that people don't see. Battles I never expected to ever have to face."

"I fight battles every day that people don’t see. Battles I never expected to ever have to face."

"These has all been said and done to me during the last two and a half years of treatment, and it has been worse than ch...
06/03/2022

"These has all been said and done to me during the last two and a half years of treatment, and it has been worse than chronic Lyme disease itself."

"It is not as simple as showing up, doing the paperwork and receiving support."
05/03/2022

"It is not as simple as showing up, doing the paperwork and receiving support."

"It has taken me years to talk to doctors and family openly about what I have gone through."
05/03/2022

"It has taken me years to talk to doctors and family openly about what I have gone through."

"My disease is relentless, but it has made me stronger."
04/03/2022

"My disease is relentless, but it has made me stronger."

1. "Remember you aren't the only one who feels pain."
04/03/2022

1. "Remember you aren't the only one who feels pain."

"We need to bring these dark, dark neurological symptoms into the light."
03/03/2022

"We need to bring these dark, dark neurological symptoms into the light."

"Having something to 'prove' I was not OK was easier than being completely invisible."
03/03/2022

"Having something to 'prove' I was not OK was easier than being completely invisible."

"Validation. Beyond a cure, it feels like the thing we want the most."
02/03/2022

"Validation. Beyond a cure, it feels like the thing we want the most."

#4 is a great idea.
02/03/2022

#4 is a great idea.

"S*x is one of those things that comes with a condition that you wouldn't even think would be affected, but it is."
01/03/2022

"S*x is one of those things that comes with a condition that you wouldn't even think would be affected, but it is."

"S*x is one of those things that comes with a condition that you wouldn’t even think would be affected, but it is."

"I believe my Lyme disease is a root-cause of the severe anxiety that plagues me on a daily basis."
28/02/2022

"I believe my Lyme disease is a root-cause of the severe anxiety that plagues me on a daily basis."

"This is not a fatigue that can be soothed by sleep or erased by caffeine."
28/02/2022

"This is not a fatigue that can be soothed by sleep or erased by caffeine."

"But instead, it's a dangerous game of pin the treatment on the patient."
27/02/2022

"But instead, it's a dangerous game of pin the treatment on the patient."

1. "Lyme may be misdiagnosed as a spider bite."
27/02/2022

1. "Lyme may be misdiagnosed as a spider bite."

"My body marches on giving Lyme disease everything it’s got."
26/02/2022

"My body marches on giving Lyme disease everything it’s got."

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When Someone Says, "But You Don't Look Sick!"
When Someone Says, "But You Don't Look Sick!"

When someone says, "But you don't like sick!"

Texts People With Chronic Illness Would Love to Get After Canc...
Texts People With Chronic Illness Would Love to Get After Canc...

"I know you would be here if you could."

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