Life With Severe Autism

30/05/2024

Gunner has never been interested in imaginative play, so when I see him pretending to feed the bunny, I get so happy. It’s the little things that mean so much! ❤️

23/05/2024

Yes!! ❤️

20/05/2024

24/04/2024

Very true! 😂

16/04/2024

😂💙

09/04/2024

❤️

05/04/2024

❤️❤️❤️

04/04/2024

You want autism awareness? Here you go. Kreed died partly because of his medical issues but 100% because he had autism. Kreed could not communicate that his legs hurt until it was too late. He could not communicate that he couldn’t breathe. He could not communicate that he felt dizzy and unwell. He could not communicate any of his medical issues to the people that could do something about it.
It took me months to figure out he had low blood sugar. Months to years that he wasn’t breathing properly. Months to years that his legs and hands were in so much pain.
Going to this doctor who says they aren’t sure, he looks fine. To that doctor who says, well if we can’t get another sleep study because he won’t sleep then there is nothing else to do. And I say but here is your data on our machine, he doesn’t have enough oxygen!!!! Help him please! To this doctor that says, I won’t put a kid like THAT onto the cardiac ward. To that doctor who waited to order tests and three days later I asked them if they were a doctor and could just order the god damn test.
To this casket. Where Kreed laid. After failure after failure of the medical community. Because he simply had autism and how he communicated looked a little different. And because of fu***ng autism, he could not speak out of his mouth with words the doctors understood. And they found out far too late what was wrong and he died gasping for air with a body that no longer wanted to breathe.
So yes, this is mother fu***ng awareness for autism. That no, the disorder doesn’t kill someone outright but it can make it so they are unable to get help, be safe and communicate what is wrong even if their life depended on it.
There is so much we could do better. There is so much the doctors and hospitals could do better. But they don’t listen. They don’t hear Kreed’s story and maybe how we can improve the medical system for those with autism.
My screams ring hollow for change. But I will continue to share. I miss him every day of my life. And I want to do better and I want other humans to be better. And do better. This will be forever my plea.

02/04/2024

It’s World Autism Awareness Day! My son Gunner is 12 years old. He has severe, non-verbal autism. He is affectionate, sensitive, sweet, and he makes me laugh every day. I dream of a world where he is treated with kindness and respect. 💙💙💙

01/04/2024

It’s Autism Awareness Month!

31/03/2024

Happy Easter! It’s always hit or miss with Easter basket goodies I get for Gunner. He doesn’t like candy so I try to find little things he might like. We have a winner with this musical toy! Hope you all have a wonderful day.

26/03/2024

🐰🩷🩵💛💜

24/03/2024

Yep!

17/03/2024

😜🍀

06/03/2024

🥴

03/03/2024

I’m at the third one. My son is very close to surpassing me in height. Where are you at?

21/02/2024

Sorry if this offends you, but it’s a reality in our home. Severe autism can be debilitating. It is HARD. I see what my son has to endure and it’s heartbreaking, but I will say this…he is a superhero in my eyes for his resilience through it all.

19/02/2024

💯

17/02/2024

We have those days.

14/02/2024

Happy Valentine’s Day! ❤️

13/02/2024

❤️

05/02/2024

02/02/2024

31/01/2024

Autism candy hearts. 😂🩷

30/01/2024

Wouldn’t that be something? Not holding my breath.

29/01/2024

They just want to be loved and accepted like all of us do.