13/01/2024
tortured by New Zealands health system. for months with no end in site.
The emergency department has the full ability to treat my friend as an inpatient but she doesn't score high enough.....
Weekly doctor visits.
Every week we go to her doctor.
last week we had to get a blood test.
Have to wait a week to act on that blood test
To my understanding the bloods are normal.
Next week possibly one more blood test as we wait weekly
So she needs to find a way to sit at home comfortably for days on end. Day after day after day.
With tremors and twitches in all parts of her body.
At multiple times in multiple places nonstop.
She is Soo tired and fatigued and have lost over 6kg in less than a weeks.
Applying steroid cream to her face to keep her facial rash from flaring up and eye drops for her eyes
she has lost her appetite not for the fact of eating food. for the fact she just gets worse if she eats the wrong foods
and is now just drinking Ensure drinks as that's her only safe option
We have spent hundreds on other forms of treatments
The doctor's referral for neurology is possibly seven to nine months away (possibly) in hopes of getting diagnosed with something.
Meanwhile, rheumatology and dermatology have declined.
From my knowledge, Ed has the ability to class her as an inpatient to get treatment this week?? But because her symptoms are not life-threatening she does not qualify ......
Even though She can't drive nor do anything other than use her mobile phone when her hands aren't twitching or cramping. Sleeping is next to impossible she nods off and 10 seconds to 1 Minute she's twitches awake all throughout the hours
her toes, feet, calves, thigh, buttocks, hips, shoulders, upper arms, lower arms, hands, fingers, neck, back of head, chin lips nose eyebrows, twitch, flutter, cramp
24/7. Flutter and twitches and jolt. but is just dismissed and told to go home try this new medication and go to ED if you react to it
because she is able to walk, shower, talk, and is not in pain she's fine and told to get help in other ways. dismissed and sent home with meds she now reacts to and increases the problems
She just has to go home. Stay home and wait for a new thing every week only Falling asleep to fatigue just to wake up by twitches whenever a strong one comes.
This is torture this is neglect feeling dismissed and downplayed.
she just wants to know whats going on with her body.
This is not about the staff or people who have helped this post is about the paperwork the awesome staff have to go on who are underpaid and overworked and under-resourced and the look on the ED doctor's face when they cant help her because she just does not fit the paperwork needed and telling her to just go home...
we only want to know whats going on??? and no one can tell us anything but just to go home and wait for your next doctor's appointment
Shane Reti
Matt Doocey MP
Penny Simmonds MP
David Seymour
Jules Radich
Christopher Luxon
please help share and tag to people she needs help this month not 7-9 months away