Rowdy Family

26/07/2024

Engaging your child in activities he enjoys and finds stimulating can help manage his DMDD symptoms and keep him positively occupied.

25/07/2024

Tips for Success

1. Visual Schedule: Use a visual schedule with pictures or symbols to help understand the day’s plan.

2. Involvement: have a say in choosing some activities to give him a sense of control.

3. Transitions: Provide warnings before transitioning between activities to prepare him for changes.

4. Flexibility: While maintaining structure, be flexible enough to adjust based on child’s mood and needs.

5. Positive Reinforcement: Use positive reinforcement to encourage adherence to the routine and reward good behavior.

How have these routines worked for so far with your kiddo?

24/07/2024

Creating a routine and structure during the summer for your DMDDr , given his DMDD, can be beneficial in maintaining stability and reducing mood dysregulation. Here are some strategies:

Daily Schedule

❤️ Morning Routine:
✅Consistent Wake-Up Time: Start the day at the same time each morning.

✅Breakfast: A nutritious breakfast to kick-start the day.

✅Personal Care: Time for hygiene, getting dressed, and any morning medications.

❤️Morning Activities:

✅Physical Activity: Bike rides, walks, or playtime in the yard.

✅Educational Activities: Reading, puzzles, or educational games to keep his mind engaged.


❤️Midday Routine:

✅Lunch: A consistent lunchtime with healthy options.

✅Quiet Time: Post-lunch downtime, which could include reading, napping, or quiet play.


❤️Afternoon Activities:

✅Structured Play: Planned activities like water play with siblings or crafting.

✅Social Interaction: Playdates with friends or family time.

❤️Evening Routine:

✅Dinner: A family meal around the same time each evening.

✅Wind-Down Activities: Calm activities such as storytelling, light games, or watching a favorite show.

❤️Night Routine:

✅Personal Care: Bath, brushing teeth, and bedtime routine.

✅Consistent Bedtime: A fixed bedtime to ensure enough sleep.

23/07/2024

Managing summer activities for a child with Disruptive Mood Dysregulation Disorder (DMDD) can be challenging, but with some planning, it can be a fun and fulfilling time. Here are some tips:

1. Routine and Structure: While summer is often less structured, maintaining a predictable routine can help manage mood dysregulation. Try to keep regular wake-up, meal, and bedtime schedules.
2. Engaging Activities: Engage in activities enjoys, such as biking, water play, or spending time with supportive family members. These can provide positive outlets for energy and emotion.
3. Downtime: Balance active times with periods of rest to prevent overstimulation. Create quiet spaces where Nic can retreat if he feels overwhelmed.
4. Social Connections: Encourage child to interact with friends and family, ( if applicable) which can provide emotional support and positive social experiences.
5. Communication: Keep open lines of communication with child about how he’s feeling. Validate his emotions and work together to find coping strategies that help him manage his moods.
6. Professional Support: Continue following the Matthews Protocol and maintain regular check-ins with his healthcare providers to monitor his progress and make any necessary adjustments.
7. Flexibility: Be prepared to adapt plans as needed. Flexibility can help manage expectations and reduce stress for both your child and the family.

How has your child been enjoying his summer so far?

01/07/2024

"Feels like our first summer on the Matthews Protocol! Nic is doing amazing—went to camp, having sleepovers, regulating his emotions, helping with the twins, and advocating for himself. So proud of his progress! 🌟💙 "

20/05/2024

Hey super caregivers ! 🌞 Summer is here, and for those of us with kids diagnosed with Disruptive Mood Dysregulation Disorder (DMDD), it’s a mix of fun and careful planning. Here’s how to navigate the sunny days with a side of DMDD:

1. Routine is Your BFF: Just because school’s out doesn’t mean structure goes out the window. Keep a consistent daily schedule to help your child feel secure and balanced.

2. Cool Down Zones: Create a special cool-down space at home where your child can retreat when they need a break. Think cozy, quiet, and calm—pillows, books, and their favorite calming toys.

3. Outdoor Adventures, Carefully Planned: Plan outdoor activities during times when your child is most comfortable and least likely to be overwhelmed. Early mornings or late afternoons are great to avoid the heat and crowds.

4. Hydrate and Snack Attack: Keep water and healthy snacks on hand at all times. Low blood sugar and dehydration can lead to mood swings, so frequent, small meals can help stabilize their mood.

5. Sun Protection: Sensory sensitivities can make sun exposure tricky. Use sunscreen, hats, and sunglasses to keep your child comfortable and prevent meltdowns triggered by discomfort.

6. Mindful Playdates: When arranging playdates, choose familiar environments and friends who understand your child’s needs. Keep them short and sweet to prevent overstimulation.

7. Activity Variety: Rotate between physical activities and quiet time. This helps manage energy levels and reduces the chances of emotional outbursts. Indoor crafts, puzzles, and storytime are great quiet-time options.

8. Calm Communication: Use clear, calm communication and give plenty of warnings before transitions. Visual schedules and timers can be super helpful in managing expectations and reducing anxiety.

9. Professional Support: Don’t hesitate to reach out to your child’s therapist for summer strategies and support. Regular check-ins can help you adapt to your child’s evolving needs.

10. Self-Care for Mom: Remember to take care of yourself too! Sneak in some me-time when you can, whether it’s a quick coffee break, a walk, or a relaxing bath.

06/05/2024

Rowdy Dad talking here:

I want to talk about behaviors that are controllable and uncontrollable. There are behaviors that our DMDD’rs have that are controllable and there are behaviors that are uncontrollable.

We know that our DMDDr can fake a rage. It is documented with Dr. Larry Fishers video series that DMDD patients will fake a rage seizure. There have been documented cases of those diagnosed with Epilepsy also faking seizures to suit their own needs.

Our own DMDDr once stood up from a full on melt down in our living room floor and queried “Aren’t you going to do something to calm me down?”.

However, those behaviors are still based on the brain based diagnosis of Disruptive Mood Dysregulation Disorder. The constant attitude, the “chip on the shoulder”, the lack of mood regulation, the constant bickering and negative response to all stimuli - all from an over active amygdala and an under-stimulated right frontal lobe.

The over-active amygdala causes your DMDDr to constantly be in fight or flight mode- and DMDD is ALWAYS going to choose fight. There is no other option for the DMDD brain. The under-stimulated right frontal lobe means they can’t make decisions and can’t weigh consequences for their words or actions.

In a rage seizure the body is in a full on seizure state and expressing it all in rage. Your DMDDR may become super strong with an adrenaline rush. They may become destructive: Tearing up their own belongings, flipping their own bed, saying the most vile hateful words addressed to you and other loved ones. Do not take this personally- and yes it is a lot to control your own temper.

Do not involve yourself in the rage. You are the THREAT to that primal part of the brain that has seized control. If you or others are not in immediate danger or harm-Immediately your reaction should be
#1. Face to the ground
#2. shoulders slumped forward
#3. Palms forwards with open hands
#4. Back away slowly

Face to the ground- DMDDrs are documented to not be able to process facial expressions well. Even neutral faces are seen as threatening faces amongst those diagnosed with DMDD. They can’t see your face so they can’t perceive a threat.

Shoulders slumped forward- reduces your height making you less threatening

Palms forward, open hands - reduces the perceived threat

Back Away slowly- you remove yourself from their threat area. Do not enter their space. You keep backing away until you are completely out of their space.

Entering a DMDDrs space is DANGEROUS for you and them and anyone within reach. I’ve seen as many as 4 nurses and 3 security guards work to subdue a child in a rage.

Of course we’ve been lucky enough in our household that Rowdy Mom is a certified Paraprofessional and was trained in therapeutic holds in cases of emergency.

If I. Immediate danger or harm remove yourself and others from harms way.

Your whole purpose upon recognition of a rage seizure is to reduce the threat. No yelling,no screaming, no threats of punishment. Follow these four steps above.

We were lucky enough to be able to sit with our child and get his perspective after rages. Time after time he would not remember any of what he did. Why- because it was a seizure and he had no control over his body his mind his words his actions his decisions. None of it.

It is so very easy to get stuck in the reactionary cycle with our children with DMDD. We forget that their very nature is affected by the diagnosis. We can slip and react. If you react in anger it ramps up the threat, be aware of that. But sometimes you are human and you may react to the words or other behaviors. Forgive yourself, even the best of us have been drug into the cycle. Remember those words come from a brain-based diagnosis, not a behavioral diagnosis. The treatment is brain based.

Can the uncontrollable become controllable? Yes it can be managed through medications and therapies- seek guidance from a medical professional and ask about the Matthew’s Protocol.

04/05/2024

Rowdy Family wants to give a shout out to one of our favorite followers Russell Nichols.

Russ’s grandson received his BMSE (Summa Cum Laude) from The Citadel yesterday! We know that Russ is so proud of his grandson and hope that all of our followers will show their support by saying Congrats!!

Russ has been a supporter and a prayer warrior for our family since we’ve been public! Thank you Russ and congrats for your grandson!

28/04/2024

DMDD, or Disruptive Mood Dysregulation Disorder, is a childhood condition characterized by severe temper outbursts that are disproportionate to the situation and inconsistent with developmental level. Children with DMDD often have difficulty maintaining friendships due to their emotional dysregulation, which can lead to conflicts and misunderstandings with peers. It’s important for friends to be understanding and patient, and to offer support and encouragement to children with DMDD as they navigate their emotions and social interactions.

25/04/2024

Join Our Incredible Nonprofit and Win a Complimentary Dinner for Two!

Are you passionate about making a difference in the lives of children on the autism spectrum? Join our wonderful nonprofit, Jacob’s Bridge to Learning, Inc., and become a part of our mission to spread joy and support to these incredible kids.

As a special incentive for new members, we’re offering a chance to win a complimentary dinner for two, excluding gratuity and alcohol, courtesy of Chuys Post. By joining our nonprofit, you not only become a vital part of our community but also have the opportunity to win this fantastic prize!

Imagine the impact you could make by contributing your time and energy to a cause that truly matters. Plus, you’ll have the chance to enjoy a delicious meal with a loved one, all while supporting our mission to uplift and celebrate autistic children and teens.

Don’t miss out on this opportunity to make a difference and potentially win a fantastic prize. Join us today and be a part of something truly meaningful!

Thank you for considering joining Jacob’s Bridge to Learning, Inc. We can’t wait to welcome you to our team.

Warm regards

22/04/2024

Parenting teenagers going through puberty with DMDD: A journey of understanding and support. 🌟 Adolescence can be tough, and having DMDD adds an extra layer of complexity. But with patience, empathy, and professional guidance, we can help our teens navigate this challenging time with grace. Together, we'll weather the storms and celebrate the victories.

18/04/2024

I absolutely love how encouraging Nicolas’s aunties are!!

Nic gets baked goods and fishing stuff for major milestones.. and he loves it!

He kept looking back to make sure I was looking.

After his induction into his new C**t ( Cult) he asked me if I showed this to the squad?!

I love how encouraging his teachers are, Nic will not put his best effort forward. Once he “pretended” he could read on grade level so he could “easy” .

Didn’t want to join NJHS because they aren’t his “crowd” . I encouraged him to give them a chance.

I’m a freaking honor student parent 💕☺️

There is in fact light at the end of the tunnel and this time it’s not a train 😮‍💨

17/04/2024

Last Night Nicolas was induced into the NJHS. Acknowledging the challenges of DMDD while highlighting the achievement of being inducted into the National Junior Honor Society is a powerful message of resilience and success. It's great to see such recognition and support!
We are definitely proud parents!!

Patience and faith are crucial when supporting children with DMDD. It can be challenging, but maintaining a positive and understanding attitude can make a significant difference in their well-being and progress.

31/03/2024

On this Easter Sunday, let’s take a moment to honor the incredible journey of special needs parents. Amidst the Easter egg hunts and family gatherings, they navigate unique challenges with unwavering love and resilience. 💖 Today, we celebrate their strength, their sacrifices, and the boundless joy they bring to their families. Happy Easter to all the special needs parents out there! 🐣 🌟

29/03/2024

In the realm of caregiving, especially for special needs children, there’s a common myth that moms must do everything themselves. This belief can stem from a sense of responsibility, guilt, or simply feeling like no one else can handle the tasks as well. However, it’s crucial to challenge this mindset and recognize the importance of accepting help.

Here are some reasons why special needs moms should embrace support around the house:

1. It Takes a Village: Caring for a child with special needs is a team effort. Accepting help from family, friends, or support services creates a strong support network that benefits both you and your child.
2. Prevent Burnout: Trying to do everything alone can lead to burnout and exhaustion. By delegating tasks or accepting assistance, you can conserve your energy and be more present for your child’s needs.
3. Promote Family Bonding: Involving others in caregiving tasks can strengthen family bonds and create a sense of unity. It allows everyone to contribute and share responsibilities.
4. Boost Your Mental Well-Being: Letting go of the need to do everything can reduce stress and anxiety levels. It’s okay to prioritize self-care and ask for help when needed.
5. Quality Time: When you’re not overwhelmed with household chores, you can enjoy quality time with your child, engaging in activities that bring joy and connection.

Breaking the myth of doing it all doesn’t diminish your love or dedication as a mom. It’s a recognition that accepting help is a sign of strength and resilience. Start small by delegating tasks or accepting offers of assistance. You deserve support, and by embracing it, you create a healthier and happier environment for yourself and your family.

29/03/2024

Being a special needs mom is a role filled with immense love, dedication, and challenges. It’s a journey that requires strength, patience, and endless compassion. Amidst the responsibilities and daily demands, it’s crucial for special needs moms to prioritize self-care and recharge their own batteries.

Here are a few reasons why self-care is so vital for special needs moms:

1. You Can’t Pour from an Empty Cup: Just like the oxygen mask rule on airplanes, you must take care of yourself first before assisting others. When you’re physically, emotionally, and mentally well, you can better support your child and family.
2. Reduce Stress and Burnout: Constant caregiving without breaks can lead to burnout and increased stress levels. Taking time for yourself allows you to decompress, relax, and recharge, making you more resilient in handling daily challenges.
3. Renew Your Energy: Self-care activities like exercise, hobbies, or simply taking quiet moments can rejuvenate your energy levels. This renewed energy can positively impact your mood and outlook on life.
4. Enhance Mental Well-Being: Prioritizing self-care can improve your mental health by reducing anxiety, depression, and feelings of overwhelm. It’s okay to ask for help and seek support from professionals when needed.
5. Set a Positive Example: By practicing self-care, you teach your child valuable lessons about self-love, boundaries, and the importance of taking care of oneself.

Remember, self-care is not selfish—it’s essential. Whether it’s scheduling regular breaks, seeking support from loved ones, or engaging in activities that bring you joy, finding time for self-care can make a world of difference in your well-being and your ability to be there for your child.

28/03/2024

As a special needs mom, I face challenges that can be overwhelming at times. Grant me the strength and patience to navigate each day with love and grace.

Help me to see the beauty and uniqueness in my child, just as you see it. Give me wisdom to make the best decisions for their well-being and growth. Provide me with resilience in the face of difficulties and moments of doubt.

Surround me with understanding and supportive people who can walk this journey alongside me. Grant me moments of joy and laughter amidst the challenges, and remind me of your presence in every step.

22/03/2024

Disruptive Mood Dysregulation Disorder (DMDD) is a condition that primarily affects children and adolescents. It is characterized by severe and recurrent temper outbursts that are disproportionate to the situation and inconsistent with the child's developmental level. These outbursts can include verbal or physical aggression, tantrums, and emotional meltdowns.

Puberty is a significant developmental stage during which children undergo physical, hormonal, and emotional changes as they transition into adolescence. These changes can have a notable impact on mood and behavior, and when combined with a condition like DMDD, it can further complicate emotional regulation.

Here are some points regarding DMDD, puberty, and their impact on mood:

1. **Interaction of Hormonal Changes:** During puberty, there is a surge in hormone levels, including testosterone and estrogen. These hormonal changes can influence mood, leading to mood swings, irritability, and emotional sensitivity. In individuals with DMDD, these mood changes may exacerbate existing symptoms of irritability and emotional dysregulation.

2. **Increased Stress and Pressure:** Puberty is a time of increased stress due to physical changes, peer relationships, academic demands, and self-identity exploration. Children with DMDD may find it challenging to cope with these stressors, leading to more frequent and intense temper outbursts or mood disturbances.

3. **Social and Peer Interactions:** Adolescents often navigate complex social dynamics and peer interactions during puberty. Difficulties in social relationships or feeling misunderstood by peers can contribute to feelings of frustration and anger in individuals with DMDD, further impacting their mood and behavior.

4. **Therapeutic Interventions:** Managing DMDD and mood changes during puberty often requires a comprehensive approach involving therapy, medication (if necessary), and support from caregivers and mental health professionals. Cognitive-behavioral therapy (CBT) and other behavioral interventions can help teach coping skills, emotional regulation techniques, and problem-solving strategies.

5. **Family Support and Environment:** A supportive and understanding family environment is crucial in managing DMDD and navigating the challenges of puberty. Open communication, empathy, and consistent routines can provide stability and help in managing mood-related symptoms.

It's important for parents, caregivers, and educators to be aware of these interactions between DMDD, puberty, and mood changes. Early recognition, intervention, and support can significantly improve the well-being and quality of life for children and adolescents dealing with DMDD and related mood difficulties during puberty. Consulting with mental health professionals is recommended for personalized assessment and treatment planning.

17/03/2024

Happy 13th birthday to the amazing guy who made me a mama‼️ From those overdue days to navigating 👩🏽‍⚕️medical diagnoses, and now watching you crush your goals📚🏋🏽‍♀️, your dad and I are incredibly proud 🥹 of the person you've become. Here's to celebrating you and all your accomplishments. Cheers to many more years of happiness and success!

15/03/2024

you can follow us on IG as well in case you aren’t much of a FB person 🤌🏽

15/03/2024

The last few years have been a struggle from school, to life, to behaviors and moods . Rowdy dad and I are thrilled to share that our Bubba, despite facing challenges with DMDD, has been selected for the National Junior Honor Society! 🌟 His resilience and hard work shine through, inspiring us all. Way to go, champ! Your dad and I are beyond proud of you! We’ve fought so hard for you and will keep doing it, but slowly learning how to advocate for himself and idk how my mama heart is gonna deal.

12/03/2024

Taking a moment to appreciate and acknowledge the often unsung heroes: special needs dads! Advocating tirelessly and researching endlessly to provide the best support and care for their children. Your dedication and love do not go unnoticed. Thank you to my husband for being amazing Daddy Jarred Johnson
This hits so much more because my husband is step dad, he started researching DMDD and the Matthew’s Protocol and fought for Nic to get the proper treatment, the proper education in the least restrictive settings, helped start our Family DMDD page to help educate parents like us.

Celebrating two years of stability on the Matthews Protocol! Grateful for the progress, resilience, and support that have made this journey possible. Here's to continued health and well-being! 💪

12/03/2024

05/03/2024

This year marks 3years since the passing of our mama/nana

Navigating grief with children who have DMDD (Disruptive Mood Dysregulation Disorder) can present unique challenges, but there are ways to support them through this difficult time:

1. **Create a Safe Space:** Provide a safe and supportive environment where your child feels comfortable expressing their emotions. Let them know it's okay to feel sad, angry, or confused, and assure them that you're there to listen and support them.

2. **Encourage Expression:** Encourage your child to express their feelings through age-appropriate outlets such as drawing, writing, or talking. Validate their emotions and reassure them that it's normal to feel a range of emotions during the grieving process.

3. **Maintain Routine:** While it's important to allow space for grieving, maintaining a consistent routine can provide stability and a sense of security for children with DMDD. Stick to regular meal times, bedtime routines, and other familiar activities as much as possible.

4. **Provide Structure:** Offer clear and consistent boundaries to help your child feel safe and secure. Set realistic expectations for behavior while also being flexible and understanding of their emotional needs during this time.

5. **Seek Professional Support:** Consider seeking support from a therapist or counselor who specializes in working with children with DMDD and grief. A professional can provide guidance, coping strategies, and additional resources to support both your child and your family through the grieving process.

6. **Model Healthy Coping:** Be a positive role model for your child by demonstrating healthy coping mechanisms such as talking about your own feelings, practicing self-care, and seeking support from friends and family.

7. **Encourage Connections:** Encourage your child to maintain connections with supportive friends, family members, or support groups who can provide additional comfort and understanding during this challenging time.

By providing love, understanding, and support, you can help your child navigate the grieving process and build resilience in the face of loss.

05/03/2024

🌟 Advocating for Understanding and Support for DMDD Families 🌟

👋 Hey there! We're Jameka & Jarred Johnson proud parents on a mission to raise awareness and provide support for families affected by Disruptive Mood Dysregulation Disorder (DMDD).

🧒 Our journey with DMDD began when our oldest son was diagnosed, and we've since been navigating the highs and lows alongside our amazing child. Through countless ups and downs, we've learned, grown, and persevered as a family.

💡 Why do we share our story? Simple. We believe in the power of connection, empathy, and community. By opening up about our experiences, we hope to break down the stigma surrounding DMDD and offer a beacon of hope for others walking a similar path.

📚 From sharing coping strategies and resources to celebrating victories big and small, our goal is to create a safe space where DMDD families can feel understood, supported, and empowered.

🌈 Join us as we continue our journey, one step at a time, advocating for greater understanding, acceptance, and inclusivity for all those touched by DMDD. Together, we can make a difference.

Connect with us:

Links to ALL our Social Media Instagram YouTube TikTok FaceBook We Support Saint Francis Hospital click here to.

03/03/2024

This weekend anniversary of mama/nana’s passing, we navigate the bittersweet journey of grief with an added layer of complexity, supporting a child with DMDD. Memories of NANA bring both tears and smiles, as we honor her legacy with love and remembrance. To all families walking this path, may you find comfort in each other's embrace, strength in shared memories, and hope in the enduring bonds that transcend time. 💕

01/03/2024

🌟 Let's Connect & Make a Difference! 🌟

👋 Hey friends! Are you passionate about raising awareness for Disruptive Mood Dysregulation Disorder (DMDD)? So are we! Follow us on our journey as we share stories, resources, and support for DMDD families.

📌 Like, share, follow, and engage with us to help spread the word and create a supportive community for those affected by DMDD. Together, we can make a real difference!

👉 Follow us on https://linktree.rowdyfamily.net/ for empowering content, helpful tips, and heartfelt discussions. Let's and !

Links to ALL our Social Media Instagram YouTube TikTok FaceBook We Support Saint Francis Hospital click here to.

29/02/2024

Don't be afraid to start over💯

This time you're not starting from scratch.

You're starting from experience.

Jmon Johnson💋

27/02/2024

🫂The symptoms of Disruptive Mood Dysregulation Disorder (DMDD), including severe temper outbursts and irritability, can indeed impact a person's ability to navigate social interactions and form healthy relationships.

😮‍💨These symptoms can make it challenging for individuals with DMDD to regulate their emotions effectively, leading to difficulties in communication, conflict resolution, and understanding social cues.

😮‍💨In social situations, the irritability and mood swings associated with DMDD may cause others to perceive the individual as unpredictable or difficult to be around.

😮‍💨This can result in strained relationships and social isolation. Additionally, frequent temper outbursts may lead to misunderstandings and conflicts with peers, friends, and romantic partners, making it harder to maintain stable and fulfilling relationships.

‼️‼️It's important for individuals with DMDD to receive appropriate support and intervention to help them develop coping strategies, improve emotional regulation skills, and foster healthy social interactions.

‼️Therapy, medication, and support from family, friends, and mental health professionals can all play a crucial role in addressing the social challenges associated with DMDD.