Grace Nova live piano performance! 🎵🎹🎵
I'm 17 and have had 33 surgeries and? I have many more upcoming. My next and biggest one is a jaw surgery that would help me open my mouth wider. As it is now, its hard for me to eat and it takes forever due to my jaw not being able to open very wide. It also hurts my speech.I dont really want to get this surgery because the recovery is very long and painful and actually they aren't sure if it will get the results we want. But I do have to try at least. I am not sure on the best time to have this surgery either and that is something I'm talking with my parents about a lot. My senior year is coming Up sooo.……💭🤔 #disabilityawareness #disabilityinclusion #disability
Practicing piano always more fun with friends listening in 👶🏻🎹.
I have so much Fun exploring new places!
Thankful to be able to hear Nick Vujicic speak in person & meet him! So inspiring 🙌🏼🙌🏼
Here’s the 3 worst things about having a disability for me. Thanks for watching & sharing my story :)
Here’s my suggestion on how to talk to somebody with a disability!
One of the worst things about having a disability is…
What’s your favorite thing about yourself?
Shocking what simply saying something positive about yourself can do to boost your self
Esteem 💕-what’s your favorite thing about YOURSELF?
Me totally surprised to receive this award from The State or Texas! Wow, was totally honored for the recognition 🥰🇺🇸
I’m half Native American & half “pilgrim” Happy Thanksgiving 🦃
#nativeamerican #thanksgiving2023 #nativepride
17yo, 33 surgeries, practicing piano
Had a blast at UNT music camp! One of the best weeks of my life meeting & learning alongside so many talented musicians 🎹🎻
🗣💙JUNE 30TH IS 💙🦋#AMCAwarenessDay
Arthrogryposis Multiplex Congenita (AMC) is a term used to describe a group of congenital conditions characterized by joint contractures in two or more body areas, and is derived from Greek, translating to the “curving of joints”.
💙Arthrogryposis occurs in 1 in 3,000 live births
💙There is no cure for Arthrogryposis.
💙There are more than 400 types of arthrogryposis including the type I have which is called Escobar’s Syndrome.
#gracenova #AMCAwareness
#AMCAwarenessDay
Had fun collaborating with my musician friend Felix 🎹🎤 and trying to play a different style than I normally do!
Happy Memorial Day! Yay summer is here ☀️🌞🍉👙
I get a lot of compliments on my hair, which I have a LOT of!
Here’s my routine 🙂
#Wetbrush #detangle #garnierfructis #olaplex #olaplexhair #hairroutine
Someone once told me “It gets worse before it gets better”-
Do you think this is true?
