27/09/2021
Day 27:
Moral of the story, do what’s best for you!! Focus on health and wellness!!
"I know it may be hard for people to believe, but I've never taken pain medication ever. In dealing with sickle cell, lifestyle matters and through it I believe that I can heal myself.
Living with sickle cell disease (hb SS), I do fairly well healthwise. I've been vegan since third grade and wrote a book on nutrition and sickle cell disease and in reality, I’m actually “beyond vegan”. When I say “beyond” it goes beyond food. I live a natural and positive lifestyle. I wear natural fabrics, only linen and cotton. I love music, I think everybody when they see me, I'm the person that loves to dance and move my body. I like nature. I like going to the beach or taking a hike and I’m the type of person that ends my emails with the word “peace”, because that's so important to me to be able to walk in peace, no matter what it is. This is my lifestyle.
A lot of that has to do with how I manage stress. I believe in breathing and I think a large part is my diet. Also, I am not an anxious person and I pray through everything. I make boundaries and in terms of negativity, I don't allow that. I don't want to hear about the blues. Don't get me wrong, I'm a good listener and I'm a good friend, but when it comes to drama, I don't engage.
Growing up I was a happy child, but when pain set in I wouldn't be so happy. I was depressed and felt lonely. I constantly went in and out, in and out of polar opposite emotions because of sickle cell and I remember not liking that feeling.
So I distinctly remember telling God, “If I have another pain episode, take me out. But if you don't take me out, I need to have joy.” I’m here today and I wasn't taken out and I have a very fulfilled life because I became determined to have joy in spite of having pain. It's been like that ever since that day and while I am not pleased when I have pain episodes, they don't have the same effect as they once did. Life is no longer a roller coaster. I’m living my best life.
When I’m in sickle cell pain, I don't take pain medications. I..."
Read more about Dr. Carolyn Rowley's experience with a healthy lifestyle to manage SCD: https://www.sc101.org/carolynrowley/