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lapin_studios Artist, creator, survivor. AE/PANS/PANDAS warrior šŸ’ššŸ§ šŸ”„

This. This right here is why I keep going. The joy and sheer pride I get from watching performers like  light up the sta...
15/06/2024

This. This right here is why I keep going.

The joy and sheer pride I get from watching performers like light up the stage in my art is like no other. Even with all of the sleepless nights, the worrying, the day to day stress that comes with being a small business owner and having a full time job - this makes it all worth it.

Yesterday I was talking to a friend very much in the PANS/PANDAS space, and she said that for me to be doing what Iā€™m doing, as well as Iā€™m doing it, is nothing short of a miracle. That patients with untreated AE oftentimes donā€™t make it past 25, and if they do, are hardly functional at all. And if thatā€™s you, just know that I see you. I donā€™t say any of this to disparage anyone who has my disease who is confined to their home, being cared for, or taking time away from work in order to heal themselves. If I could do that, I would, and if Iā€™m being honest, Iā€™m always one bad infection or relapse away from it. So this isnā€™t to shame anyone in that position - itā€™s just to take a moment to reflect on the fact that itā€™s a miracle Iā€™m alive at all, let alone able to even make one sparkly outfit for such a cool person. And work full time in social media. And be engaged to an amazing man. And have so many amazing friends.

I truly want that for every single person struggling with AE, but know that even though I look ā€œfunctionalā€ on paper, itā€™s only due to massive amounts of medical and pharmaceutical intervention while I wait for my infusions.

As I push through my illness and get steadily closer to my first IV treatment, these little moments where I get to see someone enjoying the spot of sparkle my enflamed brain made for them means everything šŸ’ššŸ«¶šŸ»šŸ§ 

To say that this weekendā€™s Taylorville performance was a smash hit is an understatement šŸ„¹Sinead absolutely rocked the so...
10/06/2024

To say that this weekendā€™s Taylorville performance was a smash hit is an understatement šŸ„¹

Sinead absolutely rocked the sold out stage in her new custom Lover bodysuit and I couldnā€™t be prouder of this upgrade!

Swipe to see her original suit which was reflective of my old work, compared to her new one which are the first two photos! My work has come such a long way in such a short amount of time, and Iā€™m so excited to be upgrading my clients to the newest reflection of my art so that theirs can shine even brighter šŸ«¶šŸ»

Did you hear me? PlAy ThE fU***nG bEaT šŸ˜ŒāœØPhoto:  Model/styling:
30/05/2024

Did you hear me? PlAy ThE fU***nG bEaT šŸ˜ŒāœØ

Photo:
Model/styling:

To say that Iā€™m beyond proud of my best friend is a complete understatement. When she started this Swiftie journey,  was...
10/05/2024

To say that Iā€™m beyond proud of my best friend is a complete understatement. When she started this Swiftie journey, was just starting to learn about Eras, secret sessions, Taylor Nation, and all things Swifttok.

Now, sheā€™s gotten her first repost as a costume designer šŸ„¹

Sheā€™s been sewing for most of her life and is the most talented seamstress I know, and the reason why a lot of my own designs have been upgraded so seamlessly in the last 6 months. She brings passion, persistence, and an artistic eye for design that is unmatched by anyone I know.

Enjoy your big win Sally, youā€™ve more than earned this moment šŸ«¶šŸ»

Lover bodysuit by the one and only šŸ„¹

Itā€™s Mental Health Awareness Month, so itā€™s the perfect time to remind you all that you never know what storms someone i...
06/05/2024

Itā€™s Mental Health Awareness Month, so itā€™s the perfect time to remind you all that you never know what storms someone is facing inside their own mind.

This May is looking a bit different for me as I reflect on my mental health journey for the last 30 years of my life. After decades of illness and neglect from the medical community, my new neurologist finally figured out the reason for my life altering symptoms: autoimmune encephalitis.

In the first photo you see me in a storm, in the second photo you see the raging storm inside my mind and body.

As a society we are so fast to separate mental and physical health, to the extent that diseases of the ā€œmindā€ seem completely separate from diseases of the brain. But I have PANS/PANDAS, an autoimmune disease that results in my immune system attacking healthy brain cells in my Basal Ganglia. The physical encephalitis lead to the mental anguish which caused:

Severe depression
Anxiety
OCD
Sydenhamā€™s Chorea (motor and vocal tics)
Bladder disease
ADHD
Insomnia
Suicidal ideations

All of these symptoms are constant, but when I get an infection that my immune system has to fight, it results in a drastic change in behavior, mood, and deadly suicidal ideations. Once the fever breaks, I start to stabilize.

This Mental Health Awareness Month I challenge you to check out (aka the group who got me to the doctor who is saving my life) and read about how 1 in 200 kids have this life altering neuropsychiatric disease šŸ’ššŸ¼

Photo:

ā€œIt felt like the time she fell through the ice, and came out aliveā€ ā„ļøI didnā€™t realize how much Iā€™d relate to The Bolte...
02/05/2024

ā€œIt felt like the time she fell through the ice, and came out aliveā€ ā„ļø

I didnā€™t realize how much Iā€™d relate to The Bolter until giving it a second, third, and fourth listen. There are days with a brain disease where I feel like each segment of my life happened to a completely different person, and each rescue from death felt like a rebirth into something new, which would inevitably change again and again with the waves of chemicals in my head.

When you spend your entire life running from your own mind you realize you canā€™t outrun the very thing thatā€™s urging you to run in the first place.

So you stay with the ones you love and trust that theyā€™ll weather out the frigid storm with you ā›ˆļø

Photo:
Styling/modeling: me

Itā€™s Doctor Day and for those of you who know me you know just how daunting this is. 30 years of illness, 30 years of se...
09/04/2024

Itā€™s Doctor Day and for those of you who know me you know just how daunting this is. 30 years of illness, 30 years of searching, and on the 30th year science has caught up to those of us who were born with PANS/PANDAS in the 90ā€™s with no hope of being heard.

Today I truly do feel like a monster on the hill - Capitol Hill. While people walk around me in every day life I wonder what theyā€™re hiding, what pain theyā€™re feeling, what deep secret thoughts they think and taps they want to tap that they try to hide because theyā€™re afraid of being ā€œtoo much.ā€ Maybe a few, maybe hundred - maybe none.

For me theyā€™re no longer able to be hidden and Iā€™m a walking ticking time bomb of blinking, finger tapping, arm jerking, and sudden vocal tics as we walk to the one doctor who will probably change our lives forever.

Thank you to everyone who has reached out to wish us luck. Iā€™m not ā€œexcited,ā€ thatā€™s the wrong word - but Iā€™m hopeful for real for the first time in my life. Money comes and goes, but your brain is your brain. You only get one.

Photo:
MUA: .photo
Studio:
Outfit and modeling by yours truly šŸ«¶šŸ»

02/01/2024

Finally finished this customerā€™s Lover inspired body suit šŸ„¹šŸ„¹šŸ„¹šŸ«¶šŸ»

This is my beautiful friend Ashley in the suit I made her and may I just say she wears it like a Queen šŸ«¶šŸ»Her resilience,...
13/11/2023

This is my beautiful friend Ashley in the suit I made her and may I just say she wears it like a Queen šŸ«¶šŸ»

Her resilience, perseverance, and kindness are insane. Hereā€™s to watching you on the up and up Ash ā¤ļø

Working on a classic Lover bodysuit and a blue/gold version as a little pick me up this weekend šŸ˜Œ
13/11/2023

Working on a classic Lover bodysuit and a blue/gold version as a little pick me up this weekend šŸ˜Œ

New material alert: look at this INCREDIBLE beaded fringe I got in the garment district in NYC this weekend!I immediatly...
20/07/2023

New material alert: look at this INCREDIBLE beaded fringe I got in the garment district in NYC this weekend!

I immediatly knew I had to use it for my Karma suits. I call this one the, ā€œBlurple Di**le Dangle Bad Ass Karma Suit.ā€

Peep this work in progress suit based off of Taylorā€™s Murad in the Eras finale šŸ’Ž

THE SCREAM I SCRUMPT
16/05/2023

THE SCREAM I SCRUMPT

ONLY LOVE CAN SAVE US NOW. MAY 17.

And it CONTINUES. My suit was standing next to THE Bejeweled Dance Tik Tok cretaor who recieved Taylorā€™s signed 22 hat a...
15/05/2023

And it CONTINUES. My suit was standing next to THE Bejeweled Dance Tik Tok cretaor who recieved Taylorā€™s signed 22 hat and held her hand at the Saturday show in Philly! Heā€™s such a precious bean and that acknowledgement was SO well deserved.

He DMed me. Weā€™re friends now. Bye.

A fun little update on the custom Swiftie Couture orders Iā€™m currently working on! Each design is so special - Iā€™m in lo...
10/04/2023

A fun little update on the custom Swiftie Couture orders Iā€™m currently working on! Each design is so special - Iā€™m in love. My selling rule? If Iā€™m not tearing up as I put it in the box and ship it off, then itā€™s not good enough for my customer yet šŸ„°

Drop me a DM if you want your own for the eras tour!

https://www.etsy.com/shop/LapinStudiosShop

Taylor Swift

Cause baby I could build a castle out of all the bricks you threw at me āœØPhoto:  Model and styling:  Retouch:  Magazine:...
22/12/2020

Cause baby I could build a castle out of all the bricks you threw at me āœØ
Photo:
Model and styling:
Retouch:
Magazine:

What a dream. I donā€™t even know how this keeps happening honestly - but this pandemic has brought an onslaught of opport...
19/11/2020

What a dream. I donā€™t even know how this keeps happening honestly - but this pandemic has brought an onslaught of opportunities in addition to its grievances. Writing the cover story for Dafne Keen of HBOā€™s His Dark Materials is definitly a 2020 highlight - check out the MOD Magazine Eternal issue and peak my name on the cover šŸ„°

16/11/2020

We all have that one friend šŸ˜‚

ā€œThe Matrix is everywhere...ā€ šŸ’ŠNat and I go hard on Halloween eve every year and this year was no different! Stay tuned ...
31/10/2020

ā€œThe Matrix is everywhere...ā€ šŸ’Š
Nat and I go hard on Halloween eve every year and this year was no different! Stay tuned for tomorrowā€™s release of our big Matrix-themed Halloween shoot šŸŽƒ
Photo:
Model:
Styling:
Edit and retouch: and

30/10/2020

Every year Natalie Harrison and I go hard on Halloween - hereā€™s a little preview šŸ˜‰

Canā€™t say enough about this team, this issue, and this shoot. One day Iā€™ll have to take a vacation to LA and be onsight ...
11/10/2020

Canā€™t say enough about this team, this issue, and this shoot. One day Iā€™ll have to take a vacation to LA and be onsight and able to help with all the ins and outs of the Rival process, but until then enjoy my lovely teammatesā€™ work from online ā¤ļø
Magazine:
Photographer/EIC: .rival
Cover star:
Writer:
Hair:
MUA:
Stylist:
@ Los Angeles, California

For the rest of 2020 my freelance service fees are ā€œpay what you can!ā€Iā€™m completely serious - if you see any services o...
27/09/2020

For the rest of 2020 my freelance service fees are ā€œpay what you can!ā€

Iā€™m completely serious - if you see any services on these lists, or anything you think I can help you with, name your price and I will complete the project šŸ„°

#2020

Forget Cottage Core aesthetic - itā€™s Pirate Core aesthetic season šŸ Photo:  Model:  Retouch:  Magazine:                 ...
24/09/2020

Forget Cottage Core aesthetic - itā€™s Pirate Core aesthetic season šŸ
Photo:
Model:
Retouch:
Magazine:
@ Spooky Season

02/09/2020

I sat down with the Real Spoonies to talk all things OCD, autoimmunity, and chronic illness.

New interview with the talented  out now for ! Photos: .rival Interview:  Stylist:  Hair:  MUA:  Magazine:              ...
12/08/2020

New interview with the talented out now for !
Photos: .rival
Interview:
Stylist:
Hair:
MUA:
Magazine:
@ Los Angeles, California

Iā€™m so obsessed with these shots that my friend Heather Koepp at Rival Mag La took for our third and jam packed issue! T...
25/07/2020

Iā€™m so obsessed with these shots that my friend Heather Koepp at Rival Mag La took for our third and jam packed issue! This shoot can be seen paired with my interview with Madison and Iā€™m so stoked to get my hands on a print copy āœØ

Also - Outer Banks fans, whoā€™s excited for season two?! šŸ˜

Some amazing shots from the new  issue featuring my interview with  and  star ! Not only is Madison an amazing actress, ...
25/07/2020

Some amazing shots from the new issue featuring my interview with and star ! Not only is Madison an amazing actress, Iā€™m in awe of her dead ass modeling skills šŸ”„
Photos: .rival
Model:
Story:
Graphics:
Hair:
MUA: Anthony Merante
Styling: Courtney Welch
@ RagDoll Pink Palace

On the same day that issue three of  releases Outer Banks announced its second season on Netflix! It was so incredible t...
24/07/2020

On the same day that issue three of releases Outer Banks announced its second season on Netflix! It was so incredible to write this story for cover star Madison Bailey, and Iā€™m thrilled to continue releasing snippets from this incredible issue that weā€™re all so proud of!
Photos: .rival
Model:
Story:
Hair: Juel Bergholm
MUA: Anthony Merante
Styling: Courtney Welch

Looking to book a published model but donā€™t know where to start? With over 20 publications under my belt, I just may be ...
14/02/2020

Looking to book a published model but donā€™t know where to start? With over 20 publications under my belt, I just may be the model for you!

Email me at [email protected] to inquire about booking for shoots šŸŒŸ

Love it when another happy Magazine client rebooks my writing services! See below for a short list of the writing servic...
13/02/2020

Love it when another happy Magazine client rebooks my writing services! See below for a short list of the writing services I provide, and DM or email me to book!

13/02/2020

Having trouble knowing where to start to book a model for your next project? I can help with that šŸ„°

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