Ehlers-Danlos News

17/11/2023

Surgery to lift or reduce breasts can be successful and without complications for patients with hypermobile EDS, a case study says. https://buff.ly/3MKN6UM

14/11/2023

As someone with Ehlers-Danlos syndrome, columnist Karen Del Vecchio is tired of hearing that she's not "old enough" to understand pain. https://buff.ly/46dwyeT

07/11/2023

Columnist Karen Del Vecchio tells the story of her EDS diagnosis, when a doctor was skeptical about her hip pain. https://buff.ly/472SWJf

03/11/2023

People with hypermobile Ehlers-Danlos syndrome (hEDS) often face uncertainty and feelings of dismissal from healthcare providers. https://buff.ly/47ekife

31/10/2023

Columnist Karen Del Vecchio has learned when what's bothering her is one of her EDS symptoms and when it's something else. https://buff.ly/3FLkIhf

27/10/2023

Through a genetic analysis of more than 170 patients, researchers have identified new genetic mutations that may cause EDS. https://buff.ly/3Sd2qx5

24/10/2023

Nagging pain along her ribs gets traced during a massage to tension in her hips, marking a moment of relief for columnist Karen Del Vecchio. https://buff.ly/3QcvW3v

20/10/2023

Elongated and twisted arteries in the neck are linked to a greater risk of cardiovascular events in vascular Ehlers-Danlos syndrome patients. https://buff.ly/3Q3PJlA

17/10/2023

After tripping over a chair on her front porch, columnist Karen Del Vecchio waited for one of those EDS-style bruises to show up. It didn't. https://buff.ly/49acop9

13/10/2023

Jaw muscle disorders and chronic pain are common in classical and hypermobile Ehlers-Danlos syndrome, and may lead to anxiety, a study found. https://buff.ly/3LXSFyE

10/10/2023

When columnist Karen Del Vecchio's left side started acting up because of EDS, she realized it wasn't as tolerant to pain as her right side. https://buff.ly/3PRU7no

06/10/2023

Adolescents with hypermobile joints, like those in hEDS, are more than twice as likely to have irritable bowel syndrome, a study suggests. https://buff.ly/3F4bbSg

03/10/2023

When columnist Karen Del Vecchio gets home after traveling, her too-stressed body tells her that she needs to slow down and recover. https://buff.ly/3F2XWRI

29/09/2023

Many people with Ehlers-Danlos syndrome report experiencing throat problems, including acid reflux, dysphagia and dysphonia. https://buff.ly/3LLxQXd

22/09/2023

A case report describes recurrent bowel tears as being the first manifestations of vascular Ehlers-Danlos syndrome (EDS) for a man in Greece. https://buff.ly/3EPE8kP

19/09/2023

As usual with EDS, columnist Karen Del Vecchio has no idea what caused her sudden shoulder tightness, which soon resulted in a headache. https://buff.ly/44Y9xvV

15/09/2023

Zevra Therapeutics acquires Acer Therapeutics, adding Edsivo for the treatment of vascular EDS to its clinical pipeline in rare diseases. https://buff.ly/45TgfEL

12/09/2023

With better control over alpha-gal syndrome triggers, columnist Karen Del Vecchio says she is less fatigued these days. https://buff.ly/45Z1Y9k

08/09/2023

A woman presented with spontaneous papillary muscle rupture, potentially fatal, likely caused by vascular EDS, days after giving birth. https://buff.ly/465R5Cr

05/09/2023

Columnist Karen Del Vecchio has discovered that a new bruise on her face can be an opening to spread EDS awareness with the curious. https://buff.ly/3qS7prT

01/09/2023

Patients with hypermobile Ehlers-Danlos syndrome (hEDS) report more laryngeal dysfunction than the general population, a study indicates. https://buff.ly/3QZoWsF

29/08/2023

What columnist Karen Del Vecchio has learned about compensatory pain has helped her assist her horse in its recovery from surgery. https://buff.ly/3qItqJD

25/08/2023

A study found that stress in the endoplasmic reticulum could be a factor underlying the serious symptoms of vascular Ehlers-Danlos syndrome. https://buff.ly/3qEiAnX

22/08/2023

School's back in session, which means it's time to be proactive about avoiding muscle stiffness and pain, writes columnist Karen Del Vecchio. https://buff.ly/45uAAQi

18/08/2023

A man with vEDS underwent lifesaving emergency surgery to repair a tear in the bowel caused by segmental absence of intestinal musculature. https://buff.ly/3s8zlHZ

15/08/2023

In seeking answers to her latest bout of EDS muscle pain, columnist Karen Del Vecchio comes to an unexpected realization. https://buff.ly/457CIxH

11/08/2023

Ehlers-Danlos syndrome may affect the larynx (voice box) in some patients and potentially their careers, according to a U.S. case report. https://buff.ly/3KyDCec

08/08/2023

Things make more sense for columnist Karen Del Vecchio when she views them through the lens of an EDS diagnosis. https://buff.ly/3YqBRp4

04/08/2023

Two new mutations in the COL3A1 gene, the underlying cause of vascular EDS, were discovered after being missed by standard genetic testing. https://buff.ly/3OnK1tP

01/08/2023

Columnist Karen Del Vecchio learns about an easier way to read labels, which should help her avoid pain from her food sensitivities. https://buff.ly/3qcqiW0

28/07/2023

A woman with kyphoscoliotic EDS went misdiagnosed with Larsen syndrome for more than 40 years, a case study reports. https://buff.ly/3O8VGwB

25/07/2023

Anti-inflammatories can make a big difference in columnist Karen Del Vecchio's pain levels. She just needs to remember to take them. https://buff.ly/477NdSP

21/07/2023

A multidisciplinary rehabilitation program led to several sustained benefits for people with hypermobile Ehlers-Danlos syndrome in a study. https://buff.ly/3rKU9Fa

18/07/2023

After meeting another person with EDS, columnist Karen Del Vecchio realizes there's validation and comfort in connecting with other patients. https://buff.ly/3Dk2uCw

14/07/2023

Classical Ehlers-Danlos syndrome patients exhibited chronic pain and altered sensory responses compared with healthy people, a study shows. https://buff.ly/3JZsOpk

11/07/2023

Columnist Karen Del Vecchio describes what living with undiagnosed Ehlers-Danlos syndrome was like as a teenager. https://buff.ly/43plQ3E

07/07/2023

Surgeons were able to successfully repair abdominal aortic aneurysms, a common complication in people with vascular Ehlers-Danlos syndrome. https://buff.ly/46Chc5e

04/07/2023

Among the symptoms of EDS columnist Karen Del Vecchio experiences are breathing problems while exercising. Massage therapy seems to help. https://buff.ly/3rilMFq

20/12/2022

A Stumble in the Dark Leads to the Worst EDS Bruising in Years

Columnist Karen Del Vecchio smashed her shin on a frozen water trough, which is particularly bad given her EDS bruising.

19/12/2022

Voice Therapy Eased Hoarseness in 4 EDS Patients: Case Report

Four people with EDS developed dysphonia, or a hoarse voice, but saw their symptoms improve within a few sessions of voice therapy.