CMT 4 ME Podcast

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CMT 4 ME Podcast

CMT 4 Me is the CMTA's Official Podcast with Chris and LizO.
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20/02/2024

Hi Friends,
I wanted to let you know that Chris and I are stepping down from hosting the CMT 4 Me podcast. We've loved getting to know each of you and feel honored that you've shared your stories with us. For the foreseeable future, we will rerun the podcasts of the past. Who knows what the future holds. For now, we say good-bye, but not good riddance. I hope to keep in touch with you, so let's not lose contact!! I'm around, but focusing on my life coaching.
A huge shout out to Ashley Feller and Sarah Kaider for their hard work over the past 2 1/2 years. They've made CMT 4 Me podcast what it is today with their marketing strategies, weekly calls, and sharing of ideas. And, thank you to each one of you for your time and effort in spreading the word and talking about CMT. The inspiration in this group is overflowing. You've touched out hearts and those of out listeners!!

16/02/2024

Let's celebrate the trailblazers within the CMT community this Black History Month! Today, we're inspired by the incredible journey and words of Kenneth Hill Jr., an influential leader whose light continues to shine bright.

Kenneth shared a profound wisdom from his mother through the corridors of our collective memory: "I don't care if there are a hundred people in the room and they're all against you; stand your ground for what you believe in." This powerful advice is a beacon for personal strength and a rallying cry for us all to embrace our worth, forge ahead with conviction, and make our mark on the world.

This month, as we honor and reflect on the monumental impacts of African Americans across all spheres, let's amplify the voices that have championed the fight against CMT. Their stories are a testament to the strength found in standing firm for what we believe in and recognizing the indelible value within each of us.

Let's celebrate these incredible community members! 💪🏾🖤

15/02/2024

🌟 Big thanks to the CMT 4 Me community for the love and support! 🌟

Your kind words have truly touched our hearts. Reading your reviews reminds us why we started the CMT 4 Me podcast - to connect, inspire, and uplift the CMT community.

Each episode is crafted with you in mind, sharing stories that light up our world. If you've found a spark in our episodes, imagine the glow it could bring to someone you care about. 🎧✨

Let's spread the warmth! Share CMT 4 Me with friends and family. Whether it's a story that moved you or an episode that made you smile, passing it on can make a difference in someone's day. And if you still need to leave a review, we'd love to hear from you. Your feedback makes our journey together even more meaningful.

Together, let's continue to create ripples of positivity. 💖
Elizabeth Ouellette
Charcot-Marie-Tooth Association

14/02/2024

💖 This Valentine's Day, we're sending out a massive wave of love to all of you in our CMT 4 Me community! 💖

To our listeners, who tune in with open hearts and minds, you are the heartbeat of this journey. Your engagement and support fuel our passion and purpose. To our incredible guests, who've shared their stories, triumphs, and challenges, you've inspired us and countless others. You've shown us the power of resilience, the beauty of vulnerability, and the strength that lies in our shared experiences.

Today, we celebrate love in all its forms - love for ourselves, love for each other, and passion for the world around us. Let's continue supporting, uplifting, and empowering one another, spreading love far and wide. Because together, we're not just a community but a family.

Happy Valentine's Day! Let's keep lighting up the world with love. 💕🌍

12/02/2024

This February, CMT 4 Me celebrates Black History Month, drawing from Maya Angelou's wisdom: "My mission in life is not merely to survive but to thrive; and to do so with some passion, some compassion, some humor, and some style." We're shining a light on the incredible stories within our community, honoring the diversity and strength of Black individuals with CMT.

Join us in embracing every story and voice, making our community richer and more united.

Charcot-Marie-Tooth Association
Elizabeth Ouellette

10/02/2024

It's Shoutout Saturday, and on this day, we would like to honor the Coldiron family, who were recently featured on CMT 4 Me. They are a true inspiration, and their story exemplifies hope, resilience, and the power of a strong community.

🔹 Hazel Coldiron's positive outlook on life with CMT and her empowering approach to wearing orthotic braces is truly inspirational. Her journey is a testament to her courage and strength to face challenges head-on.

🔹 Every year, the Coldiron family organizes the Annual Coldiron Derby, an event aimed at raising funds for the Charcot-Marie-Tooth Association (CMTA). Their dedication to making a positive impact has touched the lives of countless individuals, providing financial support for research and assistance to those who are affected by CMT.

Let's support the Coldiron family and their mission to help those living with CMT. With our help, we can make a difference and pave the way for a brighter future. 💙

Charcot-Marie-Tooth Association
Elizabeth Ouellette
Christina Valdez Coldiron

07/02/2024

Charcot-Marie-Tooth Association
Elizabeth Ouellette

31/01/2024

🚀 New Blog Alert: "Cutting-Edge Tech for CMT Feet With Dr. Greg Stilwell" 🌟
Attention CMT 4 Me Family! We are excited to announce our latest blog post that explores the future of comfort and support for those living with CMT, particularly regarding foot health.

Join our hosts, Chris and Liz O., as they take a deep dive into the groundbreaking work of Dr. Greg Stilwell and Brandin Irwin. Discover how they use advanced technology to revolutionize the understanding and management of foot health in CMT.

Don't miss out on this fascinating read!
Step into the world of 3D-printed custom arch supports designed to bring balance and ease to every step. Imagine a future where your smartphone becomes a tool for creating personalized, perfect-fit foot supports! But that's not all! Learn how the right footwear choice can make a huge difference in managing symptoms like foot drop. Dr. Stilwell shares insights on finding that sweet spot between cushioning and stability.

Charcot-Marie-Tooth Association
Elizabeth Ouellette

27/01/2024

Let's warmly welcome past guest Kenneth Hill Jr. for Shoutout Saturday! Kenneth is an acclaimed martial artist, sensei, and a symbol of hope for the CMT community.

He shows that determination can turn any battle into a victory. Kenneth's recent recognition by the Golden Dragons is a significant achievement, as it highlights individuals who exhibit exceptional dedication and ethical excellence in martial arts.

This award symbolizes Kenneth's relentless spirit and commitment to uplifting others, even in the face of challenges posed by CMT.

Here's what makes Kenneth a CMT hero:

Resilience: Living with CMT, Kenneth has harnessed the discipline of martial arts to strengthen both body and mind.

Empowerment: Kenneth's journey empowers others, proving that obstacles are stepping stones to greater heights.

Community Inspiration: Kenneth's recognition is not limited to him but to everyone in the CMT community, showcasing the extraordinary feats we are capable of.

Let's celebrate Kenneth's achievements and let his story motivate us to create more good days and even better tomorrows.

Share your cheers for Kenneth! 📣

Don't forget to tune into Kenneth's episode "The Warrior Within" wherever you get your podcasts.

Elizabeth Ouellette
Charcot-Marie-Tooth Association
Kenneth Hill Jr.

26/01/2024

Join the inspiring journey of Dr. Greg Stilwell, a podiatrist making groundbreaking advancements in CMT. Tune in to CMT 4 Me for the latest motivational episode, “Foot Pain Insights With Dr. Greg Stilwell” and be inspired by the innovative "Stand Strong Arch Support" designed to offload the discomfort from painful calluses, a common issue in the CMT community.

Listen to the inspiring journey of Dr. Greg Stilwell and stay updated on the latest advancements in the world of CMT. Follow CMT 4 Me on your favorite podcast platform to never miss an episode and be a part of the conversation. If this episode brought value to you, leave us a review on Apple Podcasts to help spread the word and inspire others. Let's make a positive impact together.

Charcot-Marie-Tooth Association
Stand Strong Arch
Elizabeth Ouellette

25/01/2024

Finding the right shoes when you have CMT can be a major challenge. The CMTA presents CMT 4 Me, its official community podcast. Join hosts Chris and Liz O. as they discuss with podiatrist Dr. Greg Stilwell, who has CMT, and his intern Brandin Irwin about navigating footwear choices with CMT and innovations that could change the game.

When nerve damage in your feet causes weakness and deformities, comfort is elusive, and stability is hard to come by. Dr. Stilwell shares his expertise in managing CMT complications and demonstrates his innovative “Stand Strong Arch Support” designed to redistribute pressure points and provide a custom fit. Stay tuned for personal stories and a look into emerging 3D printing technology that may provide customized orthotics adapted to each person’s CMT progression.

Highlights:

Dr. Stilwell explains how growing up with family members with CMT led him to become a podiatrist. He provides an overview of CMT foot deformities.
He demonstrates his innovative "Stand Strong Arch Support" product, designed to redistribute pressure points on the foot.

The conversation explores using 3D scanning and printing technology to create customized orthotics that adapt as CMT progresses.
They share personal stories about the challenges of finding proper footwear with CMT and other nerve diseases.

Dr. Stilwell expresses his dedication to continuing research and helping bring emerging technology to improve the quality of life for the CMT community.
Stay connected with us! Follow CMT 4 Me to keep up with our monthly episodes spotlighting stories and advancements important to our community.

Join Our Conversation: We want to hear from you! If you want to share your CMT journey on the podcast, please fill out our interest form on the CMTA website. You could be the voice that inspires others.

Explore More: Watch CMT 4 Me Raw and Unedited on YouTube for more in-depth conversations.
For more on CMT and the CMTA, please visit www.cmtausa.org

Stand Strong Arch
Charcot-Marie-Tooth Association
Elizabeth Ouellette

24/01/2024

🔍 We want to make each episode more impactful for you. What type of content would you like to see more of: personal stories, expert interviews, resource spotlights, or something else?

24/01/2024

Your Perfect Shoe Hunt with CMT! Choosing the right shoes when you have CMT is crucial for comfort and mobility. Here are five key tips to guide you, plus a special invitation to our community:

☺️Comfort First: Pick shoes that feel great from the start.

🦶Supportive Structure: Ensure good arch support and stability.

👟Flexibility and Support: Balance is key for comfortable movement.

☁️Go Light: Lighter shoes can reduce strain on your feet.

💡Trust Your Feelings: You know your feet best. If it doesn't feel right, it probably isn't.

📣 Now, we want to hear from YOU! Where have you found your favorite shoes, and what makes them your top choice? Share your go-to places and the reasons you love your footwear. Your insights could be a game-changer for fellow CMT community members!

🗺️Let's create a treasure map of the best shoe finds together. Your recommendation might just be what someone else needs!
Charcot-Marie-Tooth Association
Elizabeth Ouellette
Stand Strong Arch

20/01/2024

Meet the digital dynamo behind CMTA's vibrant online presence, Sarah Kaider!

Sarah's journey to the CMT community is as inspiring as her work. Introduced to CMT through her fiancé David, who lives with CMT1A, Sarah's passion for communication shines bright.

Graduating with a degree in Mass Communications, specializing in Advertising and Public Relations from Towson University, Sarah's talents have soared.

✨ Before her current role, she enhanced the Epilepsy Foundation of America's digital presence, handling everything from social media strategies to Facebook Lives.

At The CMTA, Sarah's magic touch in digital marketing, from social media to website content, illuminates our cause.

🌍💡 Her creativity doesn't stop there! In her free time, she's a science fiction and horror novelist, a crochet and knitting enthusiast, and enjoys supporting David rock the drums. 📚🧶🥁

She also appreciates streaming video game playthroughs and spending quality time with her dog Theo. 🎮🐶
Join us in applauding Sarah's incredible contribution to our community! 👏💖

Sarah Kaider
Charcot-Marie-Tooth Association
Elizabeth Ouellette

18/01/2024

In our upcoming CMT 4 Me podcast episode, we're getting personal about a topic close to our hearts: navigating the world of footwear with CMT. Join us, Chris and Liz O, as we chat with Dr. Greg Stilwell, a podiatrist with a family history of CMT, and his intern, Brandin Irwin.
Dr. Stilwell opens up about his journey into podiatry, driven by his desire to help those facing the same struggles his family did. He introduces us to his innovative, "Stand Strong Arch Support," a tool he's developed to ease the discomfort and improve stability for those with CMT. We also dive into the promising world of 3D-printing for custom orthotics, exploring how this technology could revolutionize care for the CMT community.

Our conversation goes beyond just technical talk. We share stories, experiences, and the everyday challenges of finding shoes that fit, support, and comfort feet affected by CMT. It's about more than just footwear; it's about finding ways to walk through life with confidence and comfort.

We hope you'll tune in and join our conversation. Your experiences, stories, and insights are what make our community strong. Together, let's explore, learn, and support each other on this journey.
🌟💬👣

17/01/2024

🌟 Winners Announced! 🌟
Exciting news, CMT 4 Me community! The moment you've all been eagerly awaiting is here – we are delighted to announce the winners of our TurboMed braces giveaway!

A big round of applause for Chris S. and Jacob R!

🎉 You are the lucky recipients of a pair of TurboMed braces each, valued at $2,000. These top-of-the-line braces are set to make a significant difference, and we couldn't be happier for you.

We'd like to extend a massive thank you to TurboMed Orthotics for making this giveaway possible. Their support and dedication to the CMT community are truly commendable.
And to everyone who participated, your enthusiasm and stories have been incredibly inspiring. Your participation is what makes our CMT 4 Me family so special.

Charcot-Marie-Tooth Association
Elizabeth Ouellette

16/01/2024

Today, as we honor Martin Luther King Jr. and look forward to Black History Month this February, we reflect on his powerful words: 'Injustice anywhere is a threat to justice everywhere.' This resonates deeply within the CMT community.

We understand that the fight against CMT disease isn't just a medical battle; it's a fight for fairness, for accessibility, and for understanding in every corner of society. It reminds us that our efforts to raise awareness and support for CMT are part of a larger effort against all forms of injustice.

As we work towards a future free from the challenges of CMT, let's also dedicate ourselves to the broader cause of equity and inclusion. Just as Dr. King envisioned a world where everyone is judged by the content of their character, we dream of a world where every individual with CMT is fully supported and empowered.
This month, let us draw inspiration from the civil rights movement's courage and persistence, remembering that every step towards equality, no matter how small, contributes to a more just and compassionate world.
Charcot-Marie-Tooth Association
Elizabeth Ouellette

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Videos

Join us we revisit Katerina B.'s empowering story on CMT 4 Me. Katerina shares her coping strategy for chronic pain and Charcot-Marie-Tooth disease (CMT). Her approach was embracing small steps and achievable goals. Despite her strong desire to engage in various activities, Katerina understands the significance of taking things slow to manage her pain and avoid getting overly anxious. She gains courage from her community, finding comfort and empathy from individuals who are going through similar difficulties. Katerina's experience shows her unwavering determination and the impact of having a supportive network. Are you or someone you know navigating life with CMT? Katerina's journey can be a source of hope and inspiration for you. Let's celebrate her strength and learn from her approach to facing life's challenges. Take advantage of more uplifting stories like Katerina's! Follow CMT 4 Me for your regular dose of motivation and community support. #CMT4Me #ChronicPainWarrior #SmallStepsBigWins #CommunitySupport

🚀 Our upcoming CMT 4 Me Podcast episode featuring Dr. Greg Stilwell is a must-listen! 🎧 Dive into the future of CMT care with discussions on groundbreaking 3D-printed orthotics and innovative gait analysis. This episode is a game-changer for anyone interested in the latest advancements in CMT treatment. Don't miss Dr. Stilwell's expert insights and his work on customized arch support for CMT patients. 🙌 Listen, learn, and get inspired! #CMTAwareness #MedicalInnovation #PodcastLife #HealthTech

In our upcoming CMT 4 Me podcast episode, we're getting personal about a topic close to our hearts: navigating the world of footwear with CMT. Join us, Chris and Liz O, as we chat with Dr. Greg Stilwell, a podiatrist with a family history of CMT, and his intern, Brandin Irwin. Dr. Stilwell opens up about his journey into podiatry, driven by his desire to help those facing the same struggles his family did. He introduces us to his innovative, "Stand Strong Arch Support," a tool he's developed to ease the discomfort and improve stability for those with CMT. We also dive into the promising world of 3D-printing for custom orthotics, exploring how this technology could revolutionize care for the CMT community. Our conversation goes beyond just technical talk. We share stories, experiences, and the everyday challenges of finding shoes that fit, support, and comfort feet affected by CMT. It's about more than just footwear; it's about finding ways to walk through life with confidence and comfort. We hope you'll tune in and join our conversation. Your experiences, stories, and insights are what make our community strong. Together, let's explore, learn, and support each other on this journey. #CMT4Me #FootwearChallenges #PodiatryCare #CMTCommunity #TogetherWeWalk 🌟💬👣

Calling all those impacted by CMT! If you’re looking for a podcast that informs, inspires, and brings the CMT community together - look no further than CMT 4 Me. Hosted by dynamic duo Chris and Liz O, CMT 4 Me provides the latest news, research, resources, and interviews to empower those living with CMT. Episodes have explored genetic testing, symptom management, adaptive devices, clinical trials, and heartfelt stories from the CMT community. No matter where you are on your CMT journey, you’ll come away from each episode feeling educated, uplifted, and connected. Be sure to follow and listen to CMT 4 Me on your preferred podcast platform. You’ll join a passionate community eager to share their experiences and insights around life with CMT. Got a question you want answered or an issue you want discussed? Call the CMT 4 Me hotline at 941-231-1352 and leave a message. You could be featured in an upcoming episode! Let’s continue learning and growing together. Subscribe to CMT 4 Me today for information and inspiration around Charcot-Marie-Tooth. This is the podcast for and by the CMT community.

🌟 Check out a hilarious ketchup caper in our latest panel-style CMT 4 Me episode, hosted by the dynamic sibling duo Chris and Liz O.! 🎙️🌟Join us as we “ketchup” with our vibrant CMTA advocates: Gilles Bouchard, Jeana Sweeney, and Laurel Richardson. It's not just about the deep and meaningful; we also relish in the light-hearted! When Jeana Sweeney, our CMTA superhero, is asked about her dream lifetime supply, she boldly declares: ketchup! 🍅Watch as our panel (and Jeana's dreams of ketchup) bring flavor and fun to the conversation. 🤣 We're plotting to send a festive flood of ketchup to Jeana's doorstep – a tangy twist to our usual discussions. And who knows, maybe some glitter to add a bit of sparkle to the mix! ✨Join us for this delightful episode, filled with laughter, camaraderie, and yes, Jeana's dreams of ketchup. Let's show Jeana how our CMT community sticks together – in the most flavorful way possible! 🎉Don't miss out on this and other inspiring stories from our incredible CMT family. Tune in, laugh with us, and maybe even send a ketchup bottle or two! 🌭🎁#CMT4Me #KetchupWithCMT #PanelLaughs #CondimentCapade #CMTCommunityStrong 🌟🎤🍅

Greetings CMT 4 Me fans! We are thrilled to announce an exciting giveaway in partnership with TurboMed. Two lucky winners will receive a pair of TurboMed leg braces valued at $2,000 each. These high-quality braces utilize cutting-edge technology to provide unparalleled support and comfort for those living with CMT. Entering is simple - just complete these two steps by January 15th: 1. Sign up for our email list on the CMT 4 Me website to stay up to date on the latest CMT news and resources. The URL is: https://www.podpage.com/cmt4me/ 2. Call the CMT 4 Me hotline at 941-231-1352, leave your name and a message sharing your favorite episode or a question you'd like explored in a future episode. We will select two entrants at random to receive this life-changing prize. Winners will be announced on our social media on January 15th, so be sure to follow us on Facebook and Instagram! This is an incredible opportunity to receive braces that can significantly improve mobility and independence. We thank TurboMed for their generous donation and for supporting the CMT community. Best of luck to all who enter!

Throwback to a profound conversation with Arda Ozdemir on CMT 4 Me! 🕰️ Arda delved into the universal experience of stress and anxiety, something we all face, CMT or not. 🌟 In a relatable analogy, Arda compared our repressed feelings and fears to sandbags in a hot air balloon. These burdens, shaped by our life experiences, can weigh us down, leading us into a spiral of stress and dark thoughts. It's a reminder that understanding and confronting these feelings is key to rising above them. 🎈 🧘‍♂️ Whether it's 2 AM worries or the uncertainty of the unknown, Arda's insights offer a way to navigate these challenges. His words encourage us to look inward and lighten our emotional load, allowing us to soar higher in our personal journeys. 🔁 Let's revisit this powerful episode and reflect on our paths to emotional wellness. Share this with someone who might find comfort in Arda's words today.

We've got a real treat for you! In one of our recent podcast episodes, Chris and Liz O shared a moment that'll have you chuckling for sure. It's one of those classic mix-ups that's too good not to share. 🎙️😆We hope this brings a smile to your face and a little extra joy to your day!Got your own funny story? Drop it in the comments and spread the laughs! 😄#CMTLaughs #PodcastFun #LightHeartedMoments #ShareASmile #CMTCommunityJoy

Hey CMT family! Victoria Berezovich dropped some real gems in her podcast episode that we just have to talk about. 🎙️✨ Victoria's message is simple yet powerful: Don't ever settle for less than you deserve! Whether you're living with CMT or you love someone who is, remember, you have the power to push for more. 💪 Feeling like something's not quite right? Don't just accept it. Stand up, speak out, and strive for what you truly deserve. It's all about not giving up, even when things get tough. 🚫🛑 Victoria's words are a reminder that our journeys are ours to shape. Let's keep pushing, keep fighting, and most importantly, keep believing in ourselves. What are your stories of not settling and pushing through? Share them below and let's inspire each other! Charcot-Marie-Tooth Association Elizabeth Ouellette Victoria Berezovich

Ashley McLeroy's story is a beautiful reminder that the only limits are the ones we set for ourselves. 🚀 Facing challenges while pursuing her Master's Degree, Ashley battled with self-doubt, constantly questioning her abilities. But guess what? She did it, and she did it with flying colors! 🎓💪 Her journey didn't stop there. When it came to buying a home, those nagging doubts crept back in. But Ashley proved once again that she's unstoppable. 🏠🌈 The real take-away from her experience? It's not our abilities or disabilities that define us, but the power of our beliefs. 💭 Let's take a page from Ashley's book and remember: Our biggest battles are often with our own doubts. You're more capable than you think! 💖 📣 Share your story of overcoming self-doubt or tag someone who needs to hear this today! #BelieveInYourself #OvercomingChallenges #CMTCommunity #InspirationStation #LimitlessPotential Charcot-Marie-Tooth Association Elizabeth Ouellette Ashley Farr McLeroy

We're thrilled to welcome Dr. Suzanne (Sue) Bruhn, PhD, as the new CEO of the Charcot-Marie-Tooth Association (CMTA). With over 25 years of experience in biopharmaceuticals and a passion for developing treatments for rare diseases, Dr. Bruhn is set to bring a wave of innovation and dedication to our mission.As a community dedicated to sharing stories, insights, and progress in the fight against CMT, we at CMT 4 Me are excited about the expertise and vision Dr. Bruhn brings. Her commitment aligns perfectly with our goal of empowering and informing those affected by CMT.Let's give a warm welcome to Dr. Bruhn and look forward to a future filled with advancements and hope for our community!#WelcomeDrBruhn #CMT4Me #CMTA #TogetherForACure 🌍🧬

🌟 This #ThrowbackThursday, we revisit a heartening moment from CMT 4 Me podcast featuring Dr. Glenn Pfeiffer. His profound insight, "CMT patients accept impairment as the new normal," highlights the resilience and courage in the face of CMT's challenges. Dr. Pfeiffer is empathetic to the struggles of those with CMT, facing repeated disappointments. Yet, he also sheds light on the undying spirit of hope, often rekindled by support from the CMTA and loved ones. His commitment goes beyond treatment, aiming to restore hope and belief in progress. Each step, whether it's achieving a flatter foot, less pain, or a smaller brace, is celebrated as a significant victory. 🎧 Want to hear more of Dr. Pfeiffer's inspiring words and insights? Tune into his episode on the CMT 4 Me podcast. Available on your favorite podcast platform and YouTube, this episode is a must listen! @followers Charcot-Marie-Tooth Association Elizabeth Ouellette

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