July was another slow month for doctor’s visits. Just one this past month. Worked on a lot of big caregiving related tasks. It’s nice and I enjoy these moments of stillness when it comes to be in offices. Two months back to back with only one.
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Season 3- Episode 10
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Connecting with the heaviness without eating away at you.
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I share about how I allowed the heaviness of caregiving to eat away at me and deciding to become aware of when that happens and how to not allow it to take a hold of me. The heaviness is real and I get to honor that and I always get to allow myself to be in a space of optimistic realism and how that has greatly supported me through this seven year journey.
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When we had the consultation with the urologist who would be preforming my dad’s bladder removal surgery. He listed a long list of complications and side effects that could happen after one no longer has a bladder. Also addressing the concerns of what could happen in surgery so on so on.
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From each tube a bag is attached which collects and holds the urine, emptied out multiple times a day. I have also had to flush out this tubes once or twice. And we keep an eye on them to make sure they don’t come out too much. Because a tube has fallen out completely twice before
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One of the things was kidneys not functioning properly and that the testing might not be able to carry the load alone.
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Sure enough three months we learned of this normal Nephrostomy tubes place in each of his kidneys and that he was in Stage 4 Kidney Disease
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As its bladder cancer awareness month I wanted to share that even though my dad has been free from bladder cancer since the surgery September 2017 the effects from that cancer diagnosis still affect his health and life today.
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He of course has become very use to this process and it’s a part of him he will carry till he dies. The regeneration he has gone through since this journey began seven years ago still amazes today
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I went deeper on another level in the latest episode. Speaking into the expectations I put on myself, others have put on me and the expectations I have put on others.
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In this episode I share about a couple stories of when moments got really intense in my home and words were said out of anger, frustration from a space of operating in defense from my point of view.
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This episode also shows how I connect with the unknown expectations I was putting on my parents and how it was effecting our relationship.
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This episode was extremely important and was very emotional for me to record.
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Caregiving comes with unexpected moments that are like WTF
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Like what happened this morning. Thank goodness for having certain medical supplies to keep it covered and safe till I was able to convince him to go along with a medical professional from his vascular surgeons office.
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Luckily it did not go all the way down to the graft and the doctor did three horizontal mattress stitch’s.
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Get to keep it dry and safe for the next couple weeks with daily bandage changes. Always learning something knew and apparently I did a good job of packing the wound as well as securing it. Go me thanks for all the medical shows I have watched and years of experience in caregiving.
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This was the first time I had to pack a wound though.
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S3.EP8 of the @radicalcarepodcast out now. In this episode I share about how I lost myself in the process and tools I am utilizing to not let that happen again.
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S3.EP7, speaking about making tough decisions. So many choices have been made in this journey and a lot of them are tough in navigating what I can say yes to and what I want to say yes to and what gets to be pushed back or saying no to many things for various reasons.
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Listen now where ever you get your podcasts
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S3.EP6 of the podcast is all about Relationship Changes. I speak in to why I think people leave without speaking or expressing. Of course it’s my interpretation and opinion of why people have left since the deep dive into my caregiving journey started in June 2020.
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Here I am sharing about the death of relationships and how it’s hard. I go deeper in the episode and this is only a 56 second taste. If you personally know me I would love for you to listen to this episode. If you are a fellow caregiver or a mother please listen to this episode. If you are a friend/family member of a mother or someone who is a caregiver listen to this episode.
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My dad has been cooking again and it’s been such a blessing to see him do something he loves so much..
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I also love how while he is pushing him self to get out of his stage of depression he does not push him self physically and allows himself to take the breaks and time he needs in the process.
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He has such a glow about him in enhanced ways when he is cooking. I loved recording him prep the sausage rolls and then having a taste once they were finished.
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Also showing him this video, he picked out the song and gave final approval.
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In 2017 before my caregiving journey began a friend made me my first ever bubble baths with roses. She told me to relax, enjoy and wow was it absolute magic. I remember how that first one made me feel. I felt so present, so seen and so at ease within my body. It was healing.
@thechapelofroses showed me the magic of roses and all they have to offer in ways I never knew flowers could. It has been quite a while since I have felt the petals with my hands and on my body.
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Yet the memories of pure therapeutic bliss remain forever implanted in my mind, heart and soul. So here is to another rose bath in my future this week. I am calling it in.
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Episode five of the podcast is me sharing about what it is like caregiving for multiple people at once. This little taste is me expressing about how sometimes I have to give more attention and support to one of them over the other.
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Being the solo caregiver to both of my parents at the same time is a lot of work, navigating through changes different personalities and care duties as well as the constant change that revolves in this journey that is full of unexpected ups downs and in between moments.
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Season 3, Episode 4 is all about Feeling your Feelings. Easier said than done am I right. So in this episode I dive into how I have allowed over the majority course of my life prior to my caregiving journey and through out stages of my caregiving journey putting my feelings aside. Letting them go deep down inside and burying them under the rug. Letting them marinate till the point of a major breakdown/meltdown. That the boiled over so intensely I got to look within in and connect with how truly important it is to feel my feelings and what that looks like and how it can support in healing, releasing, growing, experiencing.
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Does feeling your feelings scare you, make you uncomfortable or liberate you? Would love to hear your thoughts. Let me know in the comments below.
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