Hear the Rare Podcast

19/10/2021

Told you we are back!! ;)
Episode 12 is now out featuring Dr. Nick Vitanza!! Many of you know Dr. Vitanza from my family's time at Stanford during my brother's treatment or from the board of the Mithil Prasad Foundation. He was also a part of the first interview I did with Jace Ward which served as the inspiration behind Hear the Rare. Dr. Nick Vitanza is such a phenomenal doctor, and it is my pleasure to bring you this podcast.
I hope you enjoy!
www.heartherare.org/podcasts/episode-12

04/10/2021

It has been a while since I have posted a podcast, but I am back with recording and publishing podcasts every other Monday!

To re- start the series, I wanted to talk about Jace Ward - and the special friendship we shared. I also wanted to address the topic of grief which is unfortunately a common ending for many families DIPG journey. I hope one day the ending will be different, but until then I hope to continue using this platform in order raise awareness of the many different aspects and journeys of the DIPG community.

Thank you for taking the time to listen and I hope you enjoy :)

Episode 11 serves as a tribute to Jace Ward, the inspiration behind this podcast series, a dear friend, courageous DIPG warrior, and outstanding human being, who passed on July 3rd, 2021. This podcast cherishes the unique friendship I had while having an open and honest conversation about grief
https://www.heartherare.org/episode-11

14/09/2021

29/03/2021

We are back with Episode 10 which features some very special guests!! This week, I talk to Yury and Nethan who were Mithil's best friends. They so candidly share their memories of Mithil and also about what it meant to lose a best friend at such a young age.
This was one of my favorite podcasts to record so far and I hope you enjoy it as much as I did!!

https://www.heartherare.com/podcasts/episode-10

Thank you for your support!

17/03/2021

Hear Jace and Lisa talk about DIPG. Our foundation, through your support have funded PNOC clinical trials, so thank you !

Pediatric brain cancer is the deadliest cancer for children and young adults. But there is hope, the Pacific Pediatric Neuro-Oncology Consortium (PNOC) is st...

01/03/2021

Episode 9 of Hear the Rare is with Dr. Jessica Foster from Children's Hospital of Philadelphia. I was introduced to Dr. Foster through Dr. Cassie Kline (who is featured in episode 8). Even though I was recently just introduced to Dr. Foster, our conversation left me inspired, educated on the topic of CAR- T cells, and filled with hope for the future of DIPG research. Listen to her talk about CAR- T cells, upcoming research, and her path to becoming a doctor!

www.heartherare.com/podcasts/episode-9

Thank you for listening

15/02/2021

Episode 8 of Hear the Rare with Dr. Cassie Kline is now available! Dr. Kline is an attending physician at Children's Hospital of Philadelphia.
I met Dr. Kline in Zurich during an immunotherapy conference in the summer of 2019. She is such a passionate doctor whose care and dedication shined through from the minute I met her. I was so honored when she joined me on Hear the Rare!

Get to know Dr. Kline more through Episode 8 at: www.heartherare.com/podcasts/episode-8!

Thank you for listening :)

01/02/2021

After a short hiatus, we are BACK with Episode 7 which features Shannon Raber, a nurse practitioner at UCSF.

You can find the podcast at https://www.heartherare.com/podcasts/episode-7!!
Listen to her talk about her experiences as a nurse practitioner working with DIPG/ DMG patients!

Please like, subscribe, and share! Thank you so much for your support.

09/11/2020

Episode 6 with Jill Morin is now available!!

You can find the podcast at www.heartherare.com/episode-6 and on all podcast platforms 🙂

Jill Morin, mother of DIPG warrior Luke Morin, is the founder of Luke’s Posse: DIPG Ends Now which raises funds for DIPG research at Children’s Hospital Colorado. In this episode, listen to Jill talk about Luke’s story, the beginning of Luke’s Posse, and hear her share some advice for families dealing with a new DIPG diagnosis.

Thank you so much Jill!!

27/10/2020

Episode 5 features Amanda Haddock, President of Dragon Master Foundation! It's always such a pleasure talking to Amanda and this discussion in particular was so informative, engaging, and as always very fun!

Check out Episode 5 at https://www.heartherare.com/podcasts/episode-5 !!

As always, please reach out if you have any questions or comments. Thank you for watching and listening!

12/10/2020

Episode 4 which features Lisa M Ward is available now! Listen to Lisa’s story about dealing with Jace’s diagnosis, being an advocate, and the ONC 201 extended access program they are huge advocates for!

Thank you so much Lisa for taking the time to speak with me. It's always such a pleasure talking to you!
Check out the podcast at www.heartherare.com/subscribe
Video available at www.heartherare.com/podcasts/episode-4

If you or someone you know would like to be featured on one of our episodes, please reach out through [email protected] or www.heartherare.com/contactus!!

28/09/2020

So excited to say that Episode 3 with Dr. Nalin Gupta from UCSF is now available!!!
A huge thank you to Dr. Gupta for taking the time out of his day to talk to me and supporting this project of mine :) Check it out below!!

Check out the podcast at www.heartherare.com/subscribe
Video available at www.heartherare.com/podcasts/episode-3

16/09/2020

Hi everyone!!

We are so happy to announce that our podcast Hear the Rare is officially live! This podcast is dedicated to finding and listening to the various voices of DIPG. We hope to bring you all more information about DIPG- whether you are just hearing about this pediatric brain tumor or know a lot about it- on different platforms. You can find video recordings of our interviews on our website: www.heartherare.com as well as links to the audio podcast which is uploaded on several podcast sites including Spotify, iTunes Podcast, SoundCloud, Google Podcast, and Stitcher! https://www.heartherare.com/subscribe

Our first set of episodes released today includes Episode 0 about my story with DIPG, Episode 1 which a brief overview about what DIPG is, and Episode 2 which is our first official interview with Jace Ward!

Remember to like our FB page at www.facebook.com/heartherare and follow us on Instagram

We hope you join us on this journey to learn more about DIPG and the various members of this community. Also please email or reach out if you or someone you know would like to be a guest!

Sincerely,
Rachna Prasad

16/09/2020