My Invisible Disease Podcast

09/08/2023

Join resilient nurse Jenna Swanson as she battles Vesicoureteral Reflux and Chronic Kidney Disease, advocating for self-care and self-advocacy amidst the trauma and isolation of living with chronic illness.

Advanced Directives and Advocacy: Jenna Swanson's Journey with Chronic IllnessJoin resilient nurse Jenna Swanson as she battles Vesicoureteral Reflux and Chronic Kidney Disease, advocating for self-care and self-advocacy amidst the trauma and isol...

07/06/2023

New Episode Release! Kassy and I catch up! If you're struggling with an invisible disease, you're not alone. In this episode of My Invisible Disease, we discuss the impact of a strong support network and how it can greatly benefit your mental health and overall well-being. Tune in to learn how to cultivate a community that lifts you up and supports you on your health journey. ⠀

Does this sound familiar? You're struggling with an invisible disease, feeling alone and isolated. You've been told to just tough it out or stay positive, but it's not helping. In fact, it's making you feel even more frustrated and misunderstood. ...

19/04/2023

New Episode Released Today! When Sue Jackson was struck with Chronic Fatigue Syndrome in 2002, she never expected her two young sons would be diagnosed with the same debilitating condition. Despite the challenges it posed, Sue found strength in building a community of others affected by CFS and, together, they found ways to cope and manage their symptoms. Little did they know that what started as a quest for relief would turn into a powerful movement of compassion, hope, and resilience.

Suzan Jackson is a freelance writer whose work focuses on topics related to health, family, travel, and media reviews and has appeared in many magazines, websites, and anthologies. She has had ME/CFS, an immune disorder, since 2002, and also has L...

29/03/2023

Heather Russell-Kay is a teacher and actor diagnosed with MS in 2014 at the age of 24. She has been living with chronic illness for the past nine years and is now an entrepreneur running her own business. Heather Russell-Kay

Living with chronic illness can be hard, but finding support and understanding makes all the difference."It is one of those things that when I was first diagnosed, they were like, everyone knows someone with Ms, but I knew absolutely no one. I had...

08/03/2023

After Jenny Jones is wrongly dismissed as a "whiny child" with chronic abdominal pain, she discovers she has two rare diseases, undergoes multiple surgeries, and fights for the rights of children with rare diseases to receive the necessary health care.

After Jenny Jones is wrongly dismissed as a "whiny child" with chronic abdominal pain, she discovers she has two rare diseases, undergoes multiple surgeries, and fights for the rights of children with rare diseases to receive the necessary health ...

21/02/2023

Despite the pain and frustration of living with a variety of medical conditions, Ambre Minty found strength and a newfound appreciation for food when an unexpected treatment - Botox - saved the day and allowed her to eat again, propelling her to advocate for making medical nutrition needs more accessible to everyone.

You don’t want to miss Ambre Minty’s story on My Invisible Disease this week

"Unlock your inner strength and experience the power of resilience with a chronic illness journey that is truly iconic.""My health may be chronic, but this ass is iconic."- Ambre MintyAmbre Minty is a mum and chronic illness warrior, patient leade...

20/02/2023

https://myinvisibledisease.com/empowering-patients-how-medical-nutrition-advocates-can-improve-health-outcomes/

Welcome to My Invisible Disease podcast, where we discuss the struggles and hacks of living with chronic illness. In today’s episode, we are joined by Ambre Minty, a mum and chronic illness warrior, advocate, patient leader, feeding tube advocate and ole ambassador. Hear Ambre’s story and how sh...

18/02/2023

https://myinvisibledisease.com/caregiving-support-and-romance-in-invisible-disease-2/

Are you a mom living with a chronic illness? Do you want to become an advocate for your invisible disease but don’t know where to start? In this podcast, we’ll explore how two moms living with chronic illness are managing the ups and downs of living with invisible diseases, while also sharing st...

08/02/2023

New updates! We are looking forward to sharing our guest's stories with you!

After being diagnosed with an Invisible Disease, two moms battle the physical and emotional roller coaster of chronic illness while also advocating for others and striving to create a community of support.Learn about Advocating for Invisible Disea...

11/01/2023

https://www.buzzsprout.com/2079756/11886319-asking-for-help.mp3?download=true

11/01/2023

Join us on our journey as we navigate the ups and downs of living with Invisible Disease and finding our balance with our partners and caregivers.” This episode was about Caregiving and support, and how I learned that it is important to provide grace to both yourself and your partner when managing...