Scleroderma Living

05/10/2021

Are you overwhelmed by Scleroderma? The diagnosis alone is enough to do that, but we are all also trying to juggle jobs, spouses, kids, parents, medical appointments, household chores, even just keeping track of and ordering prescriptions takes up so much time! Add COVID-19 to all of this! Do you need HELP!!!!!?

Michael Benjamin, a 13-year Scleroderma and Cancer survivor, has put together a set of Workshops that can help you juggle all of these challenges to help improve your quality of life. Check out his website for more information on Workshops and his speaking engagements.

Workshops: https://www.michaelfbenjamin.com/group-workshops/

Workshops Scleroderma is a complex disease and affects peoples’ lives in many different ways. It affects work, relationships, family dynamics, can cause disability and depression. The medical aspect can be overwhelming, finding the right doctors, understanding the technical details, treatments, ke...

29/09/2021

https://www.medgadget.com/2021/09/microneedle-patch-delivers-oxygen-to-chronic-wounds.html

Microneedle Patch Delivers Oxygen to Chronic Wounds September 28th, 2021 Conn Hastings Materials, Medicine, Surgery A team of scientists at Purdue University created a microneedle patch that can deliver oxygen and bactericidal agents to chronic wounds. The bacterial biofilms that form over non-heali...

02/05/2021

Patients were selected to participate in the study on the day they received their first vaccine shot and they were invited to come back between two to four weeks after the second doseThe coronavirus …

08/04/2021

The rare autoimmune disease systemic sclerosis could be diagnosed more quickly with a new deep neural network operating on a standard laptop. This is the claim of the chair of the Biomedical Engineering Department at the University of Houston, whose proposed network can immediately differentiate b....

11/03/2021

For the millions of us plagued by hypersensitive, overactive, or downright abusive immune systems, it can feel like you're constantly fighting your own physical self.From incessant allergies to …

01/01/2021

25/12/2020

Happy Holidays to everyone around the world from Scleroderma Living!

15/12/2020

Yoga Burn is a 12 week, follow along from home fitness system for Women. In addition to physical system itself, Yoga Burn members are also granted full digital access to the entire program so that it is immediately available at your fingertips through any mobile device, desktop or laptop.

15/12/2020

Queen Latifah

Actor and musician Queen Latifah and retired All-Star baseball player Bernie Williams have both lost parents to interstitial lung disease and both already serve as Boehringer Ingelheim spokespeople. And now, the two are helping the company premiere a new documentary about the condition.

13/12/2020

C2W has grown into a leading distributor of Personal Protection Equipment, wireless Accessories, mobile phones, wearables, baby monitors, and other components.

13/12/2020

Learn more about COVID-19 vaccine safety and effectiveness specifically for people with autoimmune and inflammatory conditions.

30/11/2020

In a major scientific advance, the latest version of our AI system AlphaFold has been recognised as a solution to this grand challenge by the organisers of the biennial Critical Assessment of protein Structure Prediction (CASP) assessment. This breakthrough demonstrates the impact AI can have on sci...

17/11/2020

Amazon is making its biggest leap into the multi-billion-dollar health care industry with the launch of Amazon Pharmacy, a new digital drugstore.

12/11/2020

Come attend a workshop on problem solving for those of us with Scleroderma. The workshop is designed to help those of us living with Scleroderma solve problems that occur in our everyday lives, be they Scleroderma related or not. I take you through a process of understanding and/or clarifying the roots of problems and guide you through a process of finding solutions that fit your circumstances.

Workshop - Solving Problems While Living With Scleroderma. Workshops Scheduled for November 21 & 22.

11/11/2020

Speaking of Scleroderma - Michael Benjamin
Fesca - Federation of European Scleroderma Associations EULAR - European League Against Rheumatism

I have been a Scleroderma patient since 2009 and a cancer survivor since 2008. I am a physicist, engineer, technologist and public speaker.

08/10/2020

In the earliest days of the pandemic, many immunologists, including me, assumed that patients who produced high quantities of antibodies early in infection would be free from disease. We were wrong.Several months into studying COVID-19, like other scientists, I’ve come to realize the picture is fa...

27/09/2020

Michael Benjamin - Speaking of Scleroderma - Talks and Workshops

Scleroderma is a complex disease and affects peoples’ lives in many different ways. It affects work, relationships, family dynamics, can cause disability and depression. The medical aspect can be overwhelming, finding the right doctors, understanding the technical details, treatments, keeping up with appointments and medications. I have experienced this full range of issues.

My goal is to talk to people to share my experiences, provide information on important Scleroderma topics, and help them solve problems by finding solutions that best fit their situations. Everyone’s situation is different.

Talks I give can be on specific topics like disability, whether it is SSDI or dealing with Group disability insurance, going back to work after disability and not having to worry about losing Medicare right away if you do go back to work. They can also be on the latest in treatments, research and technological advancements in medicine like 3D printing organs.

Workshops are activities designed to help people solve problems and make decisions about complex issues. I take participants through a series of steps on the path to making informed decisions. Writing out the problem(s) is the first step. Problems can be complex and mapping out all aspects of the problems leads to a clearer understanding of them, providing more information to help make better decisions, be it on healthcare or other issues.

If you have a topic you would like me to talk to your group about or a problem or problems you would like work through in a workshop setting, send me a message here or go to my website and select "Contact". https://www.michaelfbenjamin.com/

I have been a Scleroderma patient since 2009 and a cancer survivor since 2008. I am a physicist, engineer, technologist and public speaker.

27/09/2020

Guess what??? Sunday Sitdowns with Lucille Miller is back! This Sunday, be here on our page for a LIVE video at 1 PM Eastern with Lucille and her co-host for this month, Michael Benjamin. This is something you should definitely plan to do, after all, 9/27 is National No Excuses Day, which was created to encourage us to spend time socializing with friends and family! :) We look forward to seeing your comments tomorrow!

02/09/2020

« All Events Scleroderma Young Adults Needing Connection September 25 @ 7:00 pm - 9:00 pm EDT « Scleroderma Young Adults Needing Connection 60 SHARES Share on Facebook Tweet Follow us Share Share Share Share Share + Google Calendar+ iCal Export Details Date: September 25 Time: 7:00 pm - 9:00 pm ED...

23/08/2020

https://www.michaelfbenjamin.com

I have been a Scleroderma patient since 2009 and a cancer survivor since 2008. I am a physicist, engineer, technologist and public speaker.

19/08/2020

« All Events Scleroderma Young Adults Needing Connection August 21 @ 7:00 pm - 9:00 pm EDT « Therapeutic Dance for Rehabilitation in Heart, Lung, Muscle and Autoimmune Health!🌿🌷 Scleroderma Young Adults Needing Connection SYNC ZOOM MEET UP- Friday August 21st 7PM EST Join Zoom Meeting https:...

10/08/2020

Hi Everyone. as many of you know, I was planning to start speaking to groups about Scleroderma at the beginning of this year, then COVID-19 hit. Most organizations have had to adjust to a new online world of events instead of in person, especially our high risk Scleroderma community. I had also put my plans on hold, but am back and ready to move forward online. In addition to speaking to groups, I am also offering workshops on problem solving and decision making for patients and organizations dealing with the complex problems that go along with Scleroderma and other chronic conditions. Visit my speaking and Workshop website for more information. Have a good week everyone!

I have been a Scleroderma patient since 2009 and a cancer survivor since 2008. I am a physicist, engineer, technologist and public speaker.

08/08/2020

Audio Interview from the New England Journal of Medicine — The Impact of Covid-19 on Patients with Other Diseases, with Arnold Epstein

03/07/2020

Hello everyone! Therapeutic Dance for Rehabilitation in Heart, Lung, Muscle and Autoimmune Health!🌿🌷 Celebrate this ✨4th of July at 1pm New Orleans time✨ with cultivating freedom of the body (and mind)✨ Dancers are the greatest athletes and targeting elements of dance training is relevan...

03/07/2020

Results from a Phase 2 trial show that CellCept and cyclophosphamide are both able to improve health-related quality of life in SSc-ILD patients.

03/07/2020

People with lower limb paralysis generally don't get to enjoy the great outdoors nearly as easily as other nature lovers. Wheelchairs aren't designed to

03/07/2020

« All Events Online YOGA CLASS for Heart, Lung, Muscle & Autoimmune Health 🌷 July 3 @ 12:00 pm - 1:15 pm CDT « Global Genes Presents “Uncertainty and You” – A Lesson in Financial Literacy 🌿THIS FRIDAY , July 3rd at 12noon- 1:15 PM New Orleans Time (10am PDT – 11am MDT – 1 pm EDT .....

29/06/2020

Our own Michael Benjamin is featured by the Hospital for Special Surgery (HSS) for World Scleroderma Day. Global Scleroderma Initiative Scleroderma Research Foundation Scleroderma Foundation, Tri-State Chapter NVLE Fesca - Federation of European Scleroderma Associations Scleroderma Australia Scleroderma Victoria

Did you know today is World Scleroderma Day? For those like Michael living with scleroderma, the immune system is impaired, causing tightening and hardening of the skin and connective tissues. Since 2012, Michael has been treated for scleroderma at HSS. He stays motivated to keep going in the world thanks to his HSS medical team. “The doctors at HSS really work as a team and when you have a disease as complicated as scleroderma, you need a good team that works together seamlessly.” http://ow.ly/pBm850Aj0M0

29/06/2020

Scleroderma Foundation Scleroderma Research Foundation Fesca - Federation of European Scleroderma Associations EULAR - European League Against Rheumatism NVLE Scleroderma Foundation Ohio Chapter Scleroderma Foundation, Tri-State Chapter Yayasan Scleroderma Indonesia Scleroderma Australia Scleroderma Victoria Scleroderma India Global Scleroderma Initiative https://www.globalscleroderma.org https://www.sclerodermaliving.com

28/06/2020

June 29 is World Scleroderma Day.

The gifted swiss artist, Paul Klee, made painting his life’s work, but was strongly influenced by his illness, systemic scleroderma. In his painting "Death and Fire", you can see the actual words of ‘Tod’ (Death) spelled in the figures face. The red (Feuer) also suggest the inflammation and burning pain of scleroderma. There is also a slight representation of a scleroderma face, a very tight mouth, a thin (pinched) nose, with a pale hue almost representing shininess.

In 1935 Klee started to suffer from scleroderma, which manifested itself with fatigue, skin rashes, difficulty in swallowing, shortness of breath and pain in the joints of his hands. Paintings during this period tended to be simpler and representative of the suffering he was going through.

The purpose of World Scleroderma Day is to create awareness of the everyday impacts of living with scleroderma. June 29 is a day to recognise people with scleroderma and empower others to support us in our campaign for equity and improved quality of life.

https://www.sclerodermaaustralia.com.au/donate-today/