Amy - IBD Warrior Princess

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Amy - IBD Warrior Princess Here to empower, educate, raise awareness & support others. Instagram is my main place for content.

Having an ostomy is an experience that isn’t the same for two people. Today is World Ostomy Day and it’s safe to say tha...
05/10/2024

Having an ostomy is an experience that isn’t the same for two people.

Today is World Ostomy Day and it’s safe to say that I wouldn’t be writing this without mine now 🥰

My ostomy has enabled me to do many things besides living including enjoying my food, going out without planning the day around a toilet, making amazing friends through my surgery who get it, being able to get into the gym and running, enabled me to work, to sing and do shows, to do what I love most being a wife and dog mum, to go to gigs, to wear what I love, it’s taken away constant pain and has given me a life I could only once have dreamed of.

But today is also a reminder of losing my uncle, who had an ostomy bag, losing ostomy friends, needing to dilate my stoma and the battles I face there, the need for iron infusions and trying to battle constant fatigue, dealing with scar tissue pain and partial blockages, gallbladder problems and issues with intimacy and fertility. This is just to name a few things I deal with daily, that I don’t always speak about, because I’m alive & I’m so thankful. This is just my ostomy experience. Everyone is different so I’m not saying any things to scare you because in reality, what I have to deal with now is manageable compared to the agonising existence I had before surgery.

It’s okay and normal to have mixed emotions about your ostomy. It’s YOUR story and it’s specific to you and nobody else. Nobody can take that from you.

I have good days and bad days, but most of all, I embrace my stoma in every way I can. You saved me, Stacey Stoma, and I wouldn’t swap you for the world because you allowed me to keep on breathing to experience this crazy, rollercoaster world 🌍

You saved me 🧡
23/09/2024

You saved me 🧡

Colour me blue, I’m lost in you 🩵🫧🧜‍♀️
21/09/2024

Colour me blue, I’m lost in you 🩵🫧🧜‍♀️

13 YEARS AGO TODAY 🎈Since my life was saved. 13 years living I wouldn’t have had otherwise, without my permanent ileosto...
09/08/2024

13 YEARS AGO TODAY 🎈

Since my life was saved.

13 years living I wouldn’t have had otherwise, without my permanent ileostomy, Stacey Stoma. Crohn’s disease, you tried to take me. But you failed 🙅🏻‍♀️

Today is always such a happy and reflective day, with a twinge of sadness as it is my Uncle’s birthday in heaven too, who also had a stoma.

I will always be proud of my ostomy and carry you in my heart and the things I do to help others, Uncle G. I think of you often and I know you’d do anything to be here 🤍🕊️

I’ll always do what I do with him in mind and for 19-year-old Amy, coming out of life-saving, life-changing and body-changing surgery who needed someone to show her it was going to be okay.

To show her everything their stoma allows them to do, and the good and the bad days. For me, life with a stoma marked my beginning and I’ll never be able to explain just how grateful I am to be here today. Life with an ostomy isn’t always a walk in the park, but it’s one I can do and often enjoy, all because of it.

Here’s to my 13th stomaversary! 💫🥰

Cute lil beach outfit 🏖️👙🐚🌊Ostomy Swim: White Rose Ostomy (previously declared ad)Ostomy Shorts: I Am Denim London 💙 ...
03/08/2024

Cute lil beach outfit 🏖️👙🐚🌊

Ostomy Swim: White Rose Ostomy (previously declared ad)
Ostomy Shorts: I Am Denim London 💙

She wears her scars like armour ⚡️💜
30/07/2024

She wears her scars like armour ⚡️💜

Having an ostomy and wearing what I want? Done ✅ wearing Vanilla Blush ostomy underwear underneath for a confidence boos...
05/07/2024

Having an ostomy and wearing what I want? Done ✅ wearing Vanilla Blush ostomy underwear underneath for a confidence boost 💜

05/07/2024

"Having an ostomy can sometimes feel tiring, especially the things that may seem small such as changing your bag. Simplicity in your changing routine, being kind to yourself and putting things into perspective are things that can really help. However, it’s okay to sometimes feel down about having your ostomy, it’s a big change to your body. Just remember, you’re not alone and you deserve support. For many, including myself, an ostomy isn’t the end, it is just the beginning!" 💚

In our latest blog, Amy opens up about how living with an ostomy is more than just changing a bag 👉https://www.respond.co.uk/News/lifestyle/its-more-than-changing-an-ostomy-bag-by-amy/

IBD looks like me 💜Inflammatory Bowel Disease, you tried to take me. You so very nearly did. You took my Uncle and I mis...
19/05/2024

IBD looks like me 💜

Inflammatory Bowel Disease, you tried to take me. You so very nearly did. You took my Uncle and I miss him so much every day. But I’m doing life with him in mind, doing whatever I can to raise vital awareness of IBD, support others and live life to the full, just as my uncle would have done. IBD is raw, it’s unpredictable, it’s debilitating, it’s hard, it’s painful. IBD is unforgiving. It often leaves devastation and so much agony and misery in its path. But it also taught me so many positive things in life and to live every day, so grateful for even the simplest of things.

I’m proud of my battle scars.

I’m proud of my ostomy bag.

I’m proud of the progress I’ve made since receiving my diagnosis at age 7.

I’ve lived with IBD for 25 years, and I’ll do whatever I can to be the person for others that 7 year old Amy needed. And that person that Amy coming out of life-saving surgery at 19 years old needed.

Here’s to all my IBD family, this and every single day 💜🌍

🩵 Missing this amazing bunch. I talk about the perks of ostomy surgery a lot, but one of the BEST perks is definitely me...
19/04/2024

🩵 Missing this amazing bunch.

I talk about the perks of ostomy surgery a lot, but one of the BEST perks is definitely meeting these guys and them turning into the most amazing friends! I love you so much you crazy bunch and miss you heaps 🩷 I’m so proud of you all.

So proud to be a part of this 🩷 The Bag Life of Beck, you are amazing! As are the people in this community 💜
12/04/2024

So proud to be a part of this 🩷 The Bag Life of Beck, you are amazing! As are the people in this community 💜

Happy Easter to those who celebrate it 🍫🐣🐰🌸We’ve done a four mile walk today with the pupper & are just enjoying the sun...
31/03/2024

Happy Easter to those who celebrate it 🍫🐣🐰🌸

We’ve done a four mile walk today with the pupper & are just enjoying the sunshine with a book. Bikini season is getting closer!

🐣

🏋️‍♀️ After 3 years, I got back in the gym today! • Why did I start back at the gym? - For my mental health - To tone up...
16/03/2024

🏋️‍♀️ After 3 years, I got back in the gym today!

• Why did I start back at the gym?
- For my mental health
- To tone up (my stomach and back mainly)
- To feel fitter generally and hopefully manage my fatigue better as time goes on.
- To work on a more consistent relationship with my body confidence.
- To form a healthy habit (starting at going just once a week for an hour) and taking it from there.

• Can you work out with a stoma?
Absolutely! 100%! It’s vital to wear supportwear, warm up and cool down, maintain hydration and build it up very gradually. I also refrain from any direct core exercises but instead, do indirect abdominal exercises. I’ll post more about the details in future. If you’re unsure or don’t have loads of gym confidence, like myself, take someone with you who is clued up if you can. I took my husband with me as he’s really into his fitness, and I will be doing for the first few times, at least. Also, if you’re worried or unsure, speak to your stoma nurse about any advice they may have.

💪 I’m here to hold myself accountable and take you with me! Who’s with me?!

An ostomy isn’t the end, it’s just the beginning! 💫

PS a massive shoutout to my amazing husband and his support, motivation and guidance and to those in the community like , .crohns, , , & more! You all motivate me more than you’ll ever know!

“There’s glimpses of heaven in every day, in the friends I have, the music I make, with the love I feel.” 🌹 🖤I will fore...
25/01/2024

“There’s glimpses of heaven in every day, in the friends I have, the music I make, with the love I feel.” 🌹 🖤

I will forever be obsessed with this stunning, custom dress from the wonderful Cherrybomb Collective and obsessed with one of the best bands ever BRING ME THE HORIZON.

I couldn’t attend many gigs before my ileostomy at age 19, as I just felt too poorly to go and would fear 💩 ing myself or holding it in to the point of agony for days after. So now I’m able, I sure am going to make up for it. Unapologetically, boldly and wholeheartedly. Music has got me through the darkest days of my life. Many in a hospital bed when I couldn’t see better days. It means so much to me. Roll on 2024 for more of my bucket list artists and more of my faves!

Today’s the day! BRING ME THE HORIZON for the fifth time and also my faves Bad Omens for the first! So thankful to my os...
19/01/2024

Today’s the day! BRING ME THE HORIZON for the fifth time and also my faves Bad Omens for the first! So thankful to my ostomy life for allowing me to do this & enjoy every second. Before 2011, it was a struggle, sometimes impossible ❤️‍🩹

Gorgeous dress from Cherrybomb Collective! 🖤

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