NETs Get Real

15/05/2024

NCAN 2024 NOLA NET Patient Conference – Metairie, LA

May 18th, 2024.
Join us for the not-to-be-missed, in-person NCAN 2024 NOLA NET Patient Conference in Metairie, LA on Saturday, May 18th.
Why Attend an In-Person Event?
In today’s digital age, where virtual meetings have become the norm, there’s something uniquely valuable about coming together face-to-face. The power of human connection, shared experiences, and personal interactions cannot be understated.

Here’s what you can expect:

• INSIGHT FROM EXPERT NET DOCTORS

• INFORMATION TAILORED FOR PATIENTS, CAREGIVERS, FAMILY MEMBERS, AND ADVOCATES

• COVID-19 SAFETY PROTOCOLS IN PLACE

• UPDATES ON THE LATEST RESEARCH AND TREATMENTS

• EMPOWERING INFORMATION TO ENHANCE YOUR NETS KNOWLEDGE

• GUIDANCE ON BECOMING YOUR OWN BEST ADVOCATE

• OPPORTUNITIES FOR NETWORKING AND CONNECTION WITH OTHER ZEBRAS

Don’t miss out on this chance to connect and support one another in our journey with NETs. Together, we can learn, grow, and advocate for better care and awareness.

REGISTER TODAY to secure your spot!

20/12/2023

NCAN NET's Patient Conference Saturday Feb 17th in San Diego, CA! Registration is now opened!

Please join us Saturday February 17th, 2024, for the not-to-be-missed Neuroendocrine Cancer Patient Conference in San Diego, CA. Several experts will be there to give you the information you need to make sure you get the best treatment possible in your fight against neuroendocrine cancer.

20/12/2023

San Diego NCAN NET Patient conference Saturday February 17th, 2024 registration is now opened!

Please join us Saturday February 17th, 2024, for the not-to-be-missed Neuroendocrine Cancer Patient Conference in San Diego, CA. Several experts will be there to give you the information you need to make sure you get the best treatment possible in your fight against neuroendocrine cancer.

18/12/2023

https://crinetics.com/crinetics-announces-positive-initial-findings-from-ongoing-open-label-phase-2-study-of-paltusotine-for-the-treatment-of-carcinoid-syndrome/

Crinetics announces positive initial findings from its ongoing open-label Phase 2 carcinoid syndrome (CS) study of paltusotine, an oral, once-daily investigational compound being developed for the treatment of acromegaly and CS.

15/12/2023

NCAN newest blog!

As young children, my brothers and I were entertained by our father’s Mississippi Tales.

22/11/2023

Bob Wahmann and I would like to wish everyone a Happy Thanksgiving!
We are forever grateful for our family, friends, our Zebra family, our NCAN board, for our partners and supporters. Whether you have made a donation large or small to NCAN thank you. If you have attended an event during the last 20 years thank you. If you have helped spread awareness of Carcinoid/ Neuroendocrine thank you. If you have help run a support group in person or online for Neuroendocrine thank you. To our amazing medical community that treats the patients thank you. Each and everyone of you have made a difference in our life and the NET community!
We are truly blessed!
Together we do make a difference!!! XOXOXO

11/10/2023

Last Chance for Shirts for the Virtual Walk TODAY! We placed another arriving next week. Again limited quantities!

Sign up for virtual and the November 4 @ Park Rd Park Charlotte

https://www.wizathon.com/ncan-zebra-walks/?id=6341

28/12/2021

Check out the 2021YEAR in Review Neuroendocrine Cancer Awareness Network Newsletter!

NCAN News - View NCAN posts - past & present.

28/12/2020

I make lists. I am really good at making lists. I delight in crossing items off of my lists. I make lists so that I can make plans. I had made big plans and then Neuroendocrine Cancer happened.

18/10/2020

Three hours left to register to get one of our 2020 walk shirts. You must be registered by 11:59 pm est Saturday Oct 17th. Don't miss out!
ALL DONATIONS AND REGISTRATION MADE TILL MIDNIGHT TODAY WILL BE MATCH UPTO $10,000!
Please join us on November 8th for the 2020 Strides for Stripes Virtual Zebra Walk Across America
https://www.wizathon.com/virtual-zebra-walk/?id=5041
The Neuroendocrine Cancer Awareness Network (NCAN) is a non-profit organization dedicated to raising awareness of Neuroendocrine Cancer, providing support for caregivers and people with NETs, and funding for NET cancer research. Since 2003, it has been our mission, or as we like to say, our passion, to educate and support the NET community as a whole. That’s our thing.
Since 2003 NCAN has had a toll free hotline has been answered 7 days a week from 9 am to 9 pm EST and have mailed out free information packets to tens of thousands of patients. It has been our honor to help those who have reached out to us during their darkest times. It always helps people to know that we can totally understand and guide them since we have been through this journey ourselves.
NCAN has produced over 75 conferences worldwide virtual, national and regional. These events have been beneficial for thousands of patients and their families, keeping them up-to-date on information impacting the decisions made regarding their care, including new diagnostics and treatments available and upcoming.

Money raised from the Strides for Stripes event goes directly to programs that assist Neuroendocrine and Carcinoid Cancer (NET) patients, such as our NET Cancer Hotline, Patient Conferences, and educational webinars.

22/09/2020

Join NCANs 2020 Strides for Stripes Virtual Zebra Walk Across America! Being held Sunday November 8th.
Register early to get your choice of one of our new design T shirts. Only available for pre order by October 17th!

Join us November 8th for the 2020 Strides For Stripes VIRTUAL Walk Across America! JOIN US! Dear Zebras and Friends of Zebras, 2020! What can we say about this year that you don’t already know? I wi

09/05/2020

Now available on , Part 2 of A Candid Talk with Dr. Aman Chauhan https://anchor.fm/ncan
send us a Voice Message right from the NETs Get Real website with questions and comments!

NCAN has produced conferences for NET patients for over 15 years - conferences that help keep you up to date on issues impacting your care like new diagnostics and treatments. Now you can tune in to a monthly podcast featuring interesting insights and stories from thought leaders and personalities i...

08/05/2020

Have you listened to NETs Get Real? There have been 3 episodes so far and another one will be available tomorrow! Episode 1- Let's Talk NETs with Expert Dr. Joseph Dillon Episode 2- A Candid Talk with Dr. Eric Liu Episode 3- Talking about NETs with Dr. Aman Chauhan TOMORROW Episode 4- Dr. Chauhan continues answering questions for NET patients. MAY 16 Episode 5- Nutrition for NETs with Dietitian Leigh-Anne Burns

https://open.spotify.com/show/1ywz6x6U3fq67re3rU5rdi

29/04/2020

Sad to see we the lost of a fellow NET patient.
Just goes to show Neuroendocrine Cancer doesn't discriminate. Look at the famous people that have died of it Audrey Hepburn, Dave Thomas, Steve Jobs, Aretha Franklin just to name a few.
It doesn't care if you are rich or poor, your age, race, or s*x. We have patients DX as young as under the age of 1 through 90 years old.
To learn more about the disease go to netcancerawareness.org
RIP Irrfan Khan

Bollywood star Irrfan Khan, known internationally for his roles in "Life Of Pi" and "Slumdog Millionaire," died Wednesday, his representatives confirmed. He was 53.

25/04/2020

This letter is to you: The you that’s had a rough week. The you that seems to be under constant storm clouds. The you that feels invisible. The you that doesn’t know how much longer you can hold o. the you that has lost falith. The you that always blames yourself for everything that goes wrong. ...

22/04/2020

24 things to remember in life!

TODAY'S QUOTE: 24 Things to Remember in Life When you or a loved one are diagnosed with neuroendocrine cancer some days it's hard to be motivated. Maryann knows what you're going through so why not listen in!

20/04/2020

QUOTE #1: "Sometimes the most productive thing you can do is relax." QUOTE #2: “You will just never know what someone is dealing with behind closed doors. No matter how happy someone looks or how big their smile is there can still be a level of hurt that is indescribable. So be kind. Even when oth...

08/04/2020

08/04/2020

08/04/2020

Episode 2 is now posted! Please share! We would love for you to send messages, ideas, stories, and quotes! Email [email protected]. Leave a message on the podcast. Or leave it on the FB page Netspiratation with Maryann! Or feel free to call me at the NCAN office 8668509555!

Enjoy a daily 5 minute talk with Maryann providing insight into how to face the day with a positive outlook while living with neuroendocrine cancer.