Tiffany Mohar

15/10/2022

I will be going live in our group tomorrow at 4pm PST. Let’s reconnect!
https://www.facebook.com/groups/732653953890006/?ref=share_group_link

04/05/2022

Information on cSLE.

https://www.lupus.org/news/people-with-childhoodonset-lupus-benefit-from-complementary-treatment-beyond-medication

Research finds complementary approaches to treatment, in addition to drug therapy, can help improve health outcomes and quality of life in people with cSLE.

02/05/2022

An interesting article about chiropractor care with lupus. How many of our warriors on this page see a chiropractor?

https://kaleidoscopefightinglupus.org/lupus-and-chiropractic-care/

In many parts of the world, chiropractic medicine is a popular complementary care option for those with autoimmune conditions like lupus. It is especially helpful in the treatment of the muscle weakness and joint pain commonly associated with SLE, but that is only the beginning. Read on to find out....

02/05/2022

Throwback to the “Lupus Pain Be Like” video!

02/05/2022

In honor of Lupus Awareness Month… let’s raise some awareness by taking a closer look at symptoms. What were some of your first symptoms?

https://youtu.be/1_ceYqxhIqs

Because lupus can affect so many different organs, a wide range of signs and symptoms can occur. The symptoms may come and go, and different symptoms may app...

22/04/2022

Hey warriors! Let’s do a check in. How is everyone feeling?

30/01/2022

02.11.22 - In two weeks my second book will be published. It will be available on Amazon, Barnes & Noble, and at local bookstores. All of those details will be revealed over the next two weeks. I spent the final year in university researching the impact of adverse childhood experiences on adolescent development. More specifically, focusing on the correlation with student disengagement and dropout rates. During some of my student interviews I remember asking them, "What do you want to be when you grow up?" They would look back at me with the same eyes that I once had. Eyes that were too old to belong to them. Eyes that have seen enough that they no longer entertained this question. They no longer jumped at it in the same way their peers did. The answers they provided focused on only two options: escaping or acceptance, because they had already exchanged childhood for survival.
This book is a collection of poetry and prose about the impact of childhood trauma on growing adolescents. It is dedicated to everyone that I have lost in the tidal wave of trauma, to those still fighting courageously against its undertow, and to everyone that can still feel the weight of the water when the world is quiet. While this book does tell a story of healing through trauma, it also raises awareness that many people are lost during this process. This book aims to humanize those that struggle with processing their own trauma when they see no other options.

27/01/2022

Hi dear friends. I hope you are all well. I’m sure there has been a lot going on in your worlds. Let’s use this post to check in with one another.

09/09/2021

Hey, let’s do a check in. If you are seeing this let us know how you are doing.

24/08/2021

Great idea Warriors!

01/08/2021

Relevant

21/07/2021

Interesting read!

https://kaleidoscopefightinglupus.org/doctor-diaries-physicians-wish-patients-knew/

Joan Jarrett, M.D., polled dozens of doctors to find out what they would tell you, if only they could. Here are the top twelve.   01. WE ARE WORKING ON YOUR CASE, EVEN IF IT LOOKS LIKE WE HAVE DISAPPEARED. Physicians often forget how scary being in the hospital can be. Rest assured that when…

08/06/2021

Ladies & Gents, if you get a butterfly rash, you need this in your stash! I store it in the refrigerator for additional soothing benefits.

28/05/2021

15/05/2021

Lupus and the lymphatic system 🦋



https://kaleidoscopefightinglupus.org/lupus-and-the-lymphatic-system/

The human body has over 600 lymph nodes, and during a lupus flare, every single one of those 600 lymph nodes can react and become swollen. And if that isn’t enough, lymph nodes are only one part of a vast network of tissues and pathways that make up the lymphatic system – a key player…

12/05/2021

Sorry y’all. I’ve been experiencing technical difficulties with myself. Lol, isn’t that how this works? I will be going live later today.

12/05/2021

Great information on lupus and headaches 🦋
month

https://kaleidoscopefightinglupus.org/lupus-and-headaches/

It is estimated that over 70% of those with SLE experience some kind of headaches at one time or another throughout the course of the disease. Do you suffer and wonder why your head pounds, making you feel miserable? Read on to find out why. Introduction What are the most common types of headaches f...

11/05/2021

The Important of Sleep by Kaleidoscope Fighting Lupus 🦋

https://kaleidoscopefightinglupus.org/elusive-mr-sandman-lupus-importance-sleep/

Hitting the hay, getting forty winks, waiting for a visit from Mr. Sandman – however you may coyly try to catch up or sneak up on sleep, it may still evade you if you are an individual with lupus. Why is the ability to fall into a deep slumber so difficult when you feel so…

10/05/2021

LUOUS AWARENESS DAY!!

09/05/2021

Happy Mother’s Day!

08/05/2021

Listen to your body 🦋

08/05/2021

The effect of vitamin D and metabolism for lupus patients. 🦋



https://www.lupusresearch.org/vitamin-d-deficiency-linked-to-metabolic-changes-in-patients-with-lupus-shows-new-study/

Patients with lupus are at risk for metabolic syndrome and insulin resistance if they have lower vitamin D levels, a new study shows.

08/05/2021

Words of Wisdom 🦋

07/05/2021

Look at this amazing idea another warrior had! She made this chart and then puts where she is at daily to help family have a better understanding. How cool!

06/05/2021

A great post about Lupus Fatigue 🦋

https://kaleidoscopefightinglupus.org/managing-expectations-coping-lupus-fatigue/

The unrelenting exhaustion of lupus fatigue affects up to 80% of those living with SLE. Read on to learn what the medical community has to say about its causes, symptoms and some of the best ways to cope with this extremely common and sometimes debilitating condition. Introduction What are the cause...

05/05/2021

A new study on safer steroid use in lupus by the Lupus Research Alliance



https://www.lupusresearch.org/groundbreaking-new-study-in-lancet-rheumatology-shows-potential-strategy-for-safer-steroid-use-in-lupus/

Published esults of LRA-funded work funded by LRA suggests a path to making steroids effective at lower doses, lessening side effects.

04/05/2021

Daily check in

04/05/2021

I will be going live to get ready for the day in ten minutes over at The Lupus Chat. Link in Comments!

04/05/2021

“Sharing the Journey: Explaining Lupus to Others” by the Lupus Foundation of America.
https://www.lupus.org/blog/sharing-the-journey-explaining-lupus-to-others

03/05/2021

When speaking to someone who has a chronic illness, it is important to avoid toxic positivity. This can invalidate someone’s experience. There are ways to be positive while still validating and meeting them where they are. 🦋

03/05/2021

What are some of the ways you lower your stress levels?

03/05/2021

Lupus Encyclopedia 📖 let’s chat!

02/05/2021

Going live at 5:30 PST (one hour). Topics will include those from the Lupus Encyclopedia.

02/05/2021

Skincare and Friendships. Come chat with me!
Products:
YTTP- Superfood Cleanser
Mario Badescu - Witch Hazel + Rose water Toner
Skinfood - Peach Sake Toner
It Cosmetics - Confidence in an eye cream
Tatcha - The water cream
Additional:
OLEHENRIKSEN banana bright vitamin C serum
Tony Moly Face Masks

02/05/2021

I will be going live in the lupus chat at 7pm PST today. Link will be in comments!
Topic will be ✨ friendships ✨

01/05/2021

It is the first day of lupus awareness month! Here is the first blog of the month:
https://www.thechronicallyunited.com/post/maintaining-friendships-and-making-it-work

Hey everyone! We are over a year into a pandemic that has caused massive upheaval in social lives across the globe. I know, I am sure there is a small amount of people who probably have had zero changes to their social lives during the pandemic, but that is not what we are discussing today. I always...