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Rett Syndrome News is a digital platform providing daily updates on research, science and advice new
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20/11/2024

A girl who received a high dose of Rett treatment NGN-401 in a clinical trial experienced a serious immune reaction. https://buff.ly/4fWrTmV

14/11/2024

Columnist Jacquelyn Babiarz senses that her daughter's angel wings helped a supporter fly across the finish line in record time. https://buff.ly/3YMygm2

13/11/2024

The first four Rett syndrome patients treated with the gene therapy candidate NGN-401 have seen meaningful gains in skills, data show. https://buff.ly/3Awjbgm

06/11/2024

Into-the-nose delivery of human nerve growth factor was found to improve cognitive and motor function in a mouse model of Rett syndrome. https://buff.ly/40BArvk

30/10/2024

Comparing mice to samples from females with Rett, 14 of the 20 genes with increased activity in patients were upregulated in female mice. https://buff.ly/4f1eGJJ

24/10/2024

Columnist Jacqueline Babiarz leans on her loved ones to get through triggering times. She calls these angels her "web of support." https://buff.ly/40n4YNj

23/10/2024

Health Canada favored the daily solution therapy for patients age 2 and older, based on trial findings of behavioral and communication gains. https://buff.ly/3NzfzwO

16/10/2024

Blocking CB1Rs in the brain, where such receptors help regulate learning and memory, improved energy production in Rett mice in a new study. https://buff.ly/4eKMRVO

10/10/2024

Columnist Jackie Babiarz reflects on her late daughter Cammy's Make-A-Wish trip to a "Sesame Street"-themed resort in Turks and Caicos. https://buff.ly/483Bnds

09/10/2024

Brain transplant of neural precursor cells was able to restore memory and motor functions in a recent mouse study of Rett syndrome. https://buff.ly/4dDSTGm

02/10/2024

For Rett Syndrome Awareness Month, the International Rett Syndrome Foundation offers many ways for supporters to raise awareness and funds. https://buff.ly/4gLEL0x

25/09/2024

A brain surgery called corpus callosotomy reduced seizure burden in a young girl with Rett syndrome and hard-to-treat seizures, per a report. https://buff.ly/3XWbp88

18/09/2024

Women and girls with Rett syndrome see disease progression and burden over time despite supportive therapies, a study shows. https://buff.ly/4d6wuBn

12/09/2024

Columnist Jacqueline Babiarz reflects on her late daughter's favorite show, "Sesame Street," and the life lessons it offered her family. https://buff.ly/3XmI6u3

11/09/2024

Mutations that cause Rett syndrome affect mitochondrial function in human astrocytes, a cell type that supports nerve cell function, a study finds. https://buff.ly/3ziSGdx

04/09/2024

Digestive issues and growth deficits are common and persistent symptoms among classical Rett syndrome patients, per a long-term study. https://buff.ly/3ZblUW7

29/08/2024

Columnist Jacqueline Babiarz summarizes all that she and her family learned from her late daughter, Cammy, who had Rett syndrome. https://buff.ly/3AMaQ7V

28/08/2024

MeCP2, the protein missing or defective in most patients with Rett syndrome, is far more dynamic than previously known, a new study revealed. https://buff.ly/3MoYsgH

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