Alopecia Connection

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Alopecia Connection An interview-based podcast, highlighting inspirational people with alopecia and their stories.

18/09/2024

ALOPECIA AWARENESS MONTH 2024 - EPISODE 42!

On this special episode for Alopecia Awareness Month, Tommy and Frank welcome Reuben Lane, goalkeeper for Norwich United FC! ⚽🎉

Alopecia Connection is proud to announce that we’re sponsoring Reuben for the 24’-25’ season at Norwich United FC! 🙌💙

Listen in as Reuben shares his journey with alopecia, which began at 15.

Now 22, he talks about embracing alopecia through charity runs and sports, staying confident while raising awareness every step of the way! 🏃‍♂️⚡

Here’s to a fantastic season for Reuben and Norwich United FC! 🔥👏

Podcast links in the comments below!


Excited to announce that this season Alopecia Connection is sponsoring goalkeeper Reuben Lane of the Norwich United FC!S...
11/08/2024

Excited to announce that this season Alopecia Connection is sponsoring goalkeeper Reuben Lane of the Norwich United FC!

Stay tuned for exciting updates on Reuben, his team, as well as an interview on the podcast!

03/08/2024

HAPPY INTERNATIONAL ALOPECIA DAY!! What a year it’s been for us, our community, and for You! A lot of positive change has come from the FDA and NICE organisations for JAK Inhibitor approvals… but further more, there has been so many inspiring stories from all ages on Alopecia Connection! We will continue to raise awareness, encourage people to share their stories, and connect our community. Enjoy the day everyone!

18/07/2024

EPISODE 40 OF ALOPECIA CONNECTION IS NOW LIVE!!!

On this episode of Alopecia Connection, we sit down with Sue Schilling, the incredible CEO of Alopecia UK. Sue shares her powerful and emotional journey of living with alopecia since childhood and how this visible difference has shaped her into a passionate advocate and leader for the community and this impactful charity.

Her dedication to leading a team of devoted staff and volunteers has created a supportive network that transforms lives every day and truly doesn’t stop. This heartfelt conversation highlights the incredible impact of community on both Sue’s life and the lives of those affected by alopecia.

This episode was particularly challenging to edit because the conversation was so enriching and insightful!

Episode links in comments or wherever you find your favorite podcasts!



06/06/2024

EPISODE 37 OF ALOPECIA CONNECTION IS NOW LIVE!!

On this episode of Alopecia Connection, Frank & Tommy welcome Dan Newman! Dan is helping others heal by using his pain as his purpose.

BALDILOCKS is a movement where people suffering from hair loss can feel like they belong in the spaces they used to enjoy, such as barbers, spas and salons. Dan wants to keep shiny people happy in his BALDIVERSE where he humorously and compassionately gets people to a place of self-acceptance and inclusivity.

BALDILOCKS is a symbol of how we can all find our glow again.

Listen now for the full story. Remember… connection is everything!


15/05/2024

EPISODE 36 OF ALOPECIA CONNECTION IS NOW LIVE!!!

On this episode we reconnect with volleyball coach Nick, (IG: ), who two years ago tomorrow, was our very first contributor!!

Two years after he appeared on the premier episode of Alopecia Connection, Nick returns to give us an update on what he's been up to, and how his alopecia journey has progressed.

Now coaching volleyball in both New Jersey and Florida, Nick chats about his passion for the sport and developing players. Nick also talks about seeing fellow alopecian Alison Mann, IG: (Alopecia Connection Ep. 22), around campus while they attended the same college, and the impact that had on his outlook!

Subscribe, download and listen to Nick’s story now!

01/05/2024

EPISODE 35 OF ALOPECIA CONNECTION IS NOW LIVE!!

On this episode of Alopecia Connection, Frank and Tommy are pleased to welcome Gary Sherwood, Communication Director of the National Alopecia Areata Foundation (NAAF)! Gary shares the history of NAAF, the organization’s legislative advocacy, and answers questions on the upcoming 39th annual NAAF Conference, which will be held in Washington DC, June 27-30th! Between this meeting, informational webinars, local support groups, and fundraising walks, there’s so many different ways YOU can get involved with NAAF!

Listen now!

15/04/2024

EPISODE 34 OF ALOPECIA CONNECTION IS NOW LIVE!!

On this episode of Alopecia Connection, Frank and Tommy welcome 15 year old Mackenzie and her mother Lisa. As you’ll hear, Mackenzie is one of the most inspirational young people in the alopecia community. Right from the beginning of her journey, Mackenzie and Lisa have promoted positivity and awareness of this condition by making and distributing over 3,000 silicone “Mackenzie Strong” alopecia awareness bracelets. Despite having alopecia for a relatively short time, Mackenzie has already become an active role model for younger people with alopecia in her area.

FUN FACT: Mackenzie is great friends with Austin, who appeared on Alopecia Connection Episode 26.

During this interview, Lisa discusses several organizations and groups that helped her as a parent of a child with alopecia, and what it means to have such an incredibly fearless daughter.

Thank you for joining us Mackenzie and Lisa

Listen now!

01/04/2024

EPISODE 33 OF ALOPECIA CONNECTION IS NOW LIVE!!

CHILDREN’S ALOPECIA PROJECT - JEFF WOYTOVICH

On this episode of Alopecia Connection, Frank & Tommy are honored to have the founder of the (CAP), Jeff Woytovich, on to discuss all things CAP! From the non-profit organization's beginnings, to the nationwide CAP Kid camps, ALOPECIAPALOOZA, school speaking tours, and a recent foray into podcasting, CAP's significant impact on the alopecia community is highlighted.

Enjoy our chat with Jeff!



23/03/2024

EPISODE 32 OF ALOPECIA CONNECTION IS NOW LIVE!!

CAROLINE WARD - PART II

On this episode of Alopecia Connection, Frank and Tommy continue our discussion with “Whatever Trevor” children’s author, .

In the second part, we hear more about the book, but we dive deeper into the emotional toll alopecia can bring and the crucial element of talking about your feelings with friends, family… even seeking support where need be such as or even therapy.

We all have a voice that deserve to be heard!

Enjoy our Part II with Caroline and OH! Whilst we’re here… WE HAVE A GIVEAWAY!

Alopecia Connection has purchased several copies of “Whatever Trevor” and would love to send them to our listeners! Simply message the show and we’ll send you a copy today (while supplies last)!


⁠

15/03/2024

EPISODE 31 OF ALOPECIA CONNECTION IS NOW LIVE!

Today, Frank and Tommy speak with author Caroline Ward about her alopecia journey and how it led to the creation of “Whatever Trevor,” a children’s book about living with alopecia.

We have to say, it was such a treat to speak with Caroline, a very caring, bubbly, and ambitious soul who was so great to talk to we have a Part II coming shortly!

In Part I we hear her alopecia experience, how the book came to be, and we introduce the importance of talking about your feelings.

The book (we must say) is fantastic and allows an understanding for all children (and adults) on how to help process any autoimmune or illness.

Enjoy Episode 31, Part I with Caroline 📖

And remember, connection is everything!

Don’t forget to rate, review, and subscribe wherever you listen to your podcasts.


⁠

27/02/2024

EPISODE 30 OF ALOPECIA CONNECTION IS NOW LIVE!

In this episode, we welcome back Lisa Taylor () to discuss GUT HEALTH and her new masterclass:

The 4 Step Secret To Reversing Your Alopecia Naturally.

She’s a modern marvel on educating and preaching a healthy gut to REVERSE YOUR ALOPECIA and take charge of your body!

Listen now to hear about Lisa’s exciting FREE masterclass and register on her website today!

Thanks Lisa for joining us! Remember, ❤️

We sat down with the fantastic LISA () to discuss all things GUT HEALTH and healing your mind, body, and alopecia. Say w...
21/02/2024

We sat down with the fantastic LISA () to discuss all things GUT HEALTH and healing your mind, body, and alopecia.

Say what now? That’s right!! We said HEALING YOUR ALOPECIA!

Lisa took us on a nutrition journey by introducing a new course launching soon!

Stay tuned for next week’s episode!! 🎧


15/02/2024

Episode 29 OF ALOPECIA CONNECTION IS NOW LIVE.

**This episode contains significant mental health discussion**

On this episode of Alopecia Connection, meet James Morrell, ( ) a content creator and actor from England. Prior to being diagnosed with alopecia, James developed Crohn’s disease which dramatically impacted his life. He became very ill, losing a significant amount of weight before adjusting to living with the disease.

Since developing alopecia and Crohn’s disease, James has become an advocate for those with these conditions, raising both money and awareness. Mental health awareness has also been a focus for James, choosing to focus on the purpose we all have in our lives.

Enjoy our conversation with James!

Remember,


POSITIVE VIBES ONLY 💪🏼 Tell us one positive thing that came from your alopecia journey? Tommy here - for me it was reali...
13/02/2024

POSITIVE VIBES ONLY 💪🏼

Tell us one positive thing that came from your alopecia journey?

Tommy here - for me it was realisation that my looks didn’t matter 😊

I took the girls to the local bookstore and found both Shad Hadid novels by the great !! We’ve already got both books,...
07/02/2024

I took the girls to the local bookstore and found both Shad Hadid novels by the great !! We’ve already got both books, but it was cool to see them out in “the wild!” My daughter highly recommends them!

Author George Jreije joined us on Alopecia Connection, Episode 23, to discuss his alopecia journey, writing, and many other topics! Check out our conversation wherever you listen to your favorite podcasts, or use the link in our BIO!

Connection is everything!

Last week we had an incredible conversation that was a whirlwind of emotions. and her mom Lisa chatted all things accep...
05/02/2024

Last week we had an incredible conversation that was a whirlwind of emotions. and her mom Lisa chatted all things acceptance, community, and building support around you from the minute you start losing hair.

We are so impressed with the positive attitude and can’t wait to see what comes next for you guys!

Episode out soon! 🎧

01/02/2024

Episode 28 OF ALOPECIA CONNECTION IS NOW LIVE.

On this episode of Alopecia Connection, meet author, singer and songwriter Samuel Picou. Samuel developed alopecia at the age of 2, and eventually gained national notoriety as a 15-year-old contestant on the NBC’s The Voice, Season 5.

More recently Samuel has dedicated his energies to pastoral work in the Los Angeles area, becoming a beacon of inspiration and positivity. Between mission trips, Samuel has also released his book “Beyond the Cover,” which further details his journey of personal growth.

Enjoy our conversation with Samuel and check out “Beyond the Cover!”

Remember,


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ALOPECIA AWARENESS MONTH 2024 - EPISODE 42! On this special episode for Alopecia Awareness Month, Tommy and Frank welcome Reuben Lane, goalkeeper for Norwich United FC! ⚽🎉 Alopecia Connection is proud to announce that we’re sponsoring Reuben for the 24’-25’ season at Norwich United FC! 🙌💙 Listen in as Reuben shares his journey with alopecia, which began at 15. Now 22, he talks about embracing alopecia through charity runs and sports, staying confident while raising awareness every step of the way! 🏃‍♂️⚡ Here’s to a fantastic season for Reuben and Norwich United FC! 🔥👏 Podcast links in the comments below! #AlopeciaAwarenessMonth #AlopeciaConnection #ReubenLane #NorwichUnitedFC #Confidence #RaisingAwareness #alopeciaawareness #alopeciasupport #AlopeciaJourney #AlopeciaPodcast #alopeciacommunity #AlopeciaWarrior #BaldAndBeautiful #AlopeciaTalks #AlopeciaSupportNetwork #LivingWithAlopecia

HAPPY INTERNATIONAL ALOPECIA DAY!!
HAPPY INTERNATIONAL ALOPECIA DAY!!

HAPPY INTERNATIONAL ALOPECIA DAY!! What a year it’s been for us, our community, and for You! A lot of positive change has come from the FDA and NICE organisations for JAK Inhibitor approvals… but further more, there has been so many inspiring stories from all ages on Alopecia Connection! We will continue to raise awareness, encourage people to share their stories, and connect our community. Enjoy the day everyone! #connectioniseverything #alopeciacommunity #community #adversity #visibledifference #alopeciaawareness #internationalalopeciaday #alopecia #ConnectionisEverything #alopeciaconnection #alopeciasupport #shareyourstory

EPISODE 40 OF ALOPECIA CONNECTION IS NOW LIVE!!! On this episode of Alopecia Connection, we sit down with Sue Schilling, the incredible CEO of Alopecia UK. Sue shares her powerful and emotional journey of living with alopecia since childhood and how this visible difference has shaped her into a passionate advocate and leader for the community and this impactful charity. Her dedication to leading a team of devoted staff and volunteers has created a supportive network that transforms lives every day and truly doesn’t stop. This heartfelt conversation highlights the incredible impact of community on both Sue’s life and the lives of those affected by alopecia. This episode was particularly challenging to edit because the conversation was so enriching and insightful! Episode links in comments or wherever you find your favorite podcasts! #connectioniseverything #alopecia #alopeciasupportandlove #alopeciaareata #alopeciaawareness #alopeciauk #alopeciasupport #podcast #alopeciaukgroup #alopeciauksupport #volunteersforalopecia #listennow #charity #alopeciacharity #supportourcommunity

Alopecia Connection Episode 36 is now LIVE!
Alopecia Connection Episode 36 is now LIVE!

EPISODE 36 OF ALOPECIA CONNECTION IS NOW LIVE!!! On this episode we reconnect with volleyball coach Nick, (IG: @nikesp0), who two years ago tomorrow, was our very first contributor!! Two years after he appeared on the premier episode of Alopecia Connection, Nick returns to give us an update on what he's been up to, and how his alopecia journey has progressed. Now coaching volleyball in both New Jersey and Florida, Nick chats about his passion for the sport and developing players. Nick also talks about seeing fellow alopecian Alison Mann, IG: @alison_mann (Alopecia Connection Ep. 22), around campus while they attended the same college, and the impact that had on his outlook! Subscribe, download and listen to Nick’s story now! #connectioniseverything #podcast #alopecia #alopeciapodcast #alopeciacommunity #listennow #selflove #alopeciauniversalis #mentalhealth #mentalhealthawareness #mentalhealthtalks #alopeciaawareness #connectioniseverything #listentothis #hairloss #hairlossjourney #volleyball #malementalhealth #autoimmunepodcast #sports

ALOPECIA CONNECTION EPISODE 35 IS NOW LIVE!!
ALOPECIA CONNECTION EPISODE 35 IS NOW LIVE!!

EPISODE 35 OF ALOPECIA CONNECTION IS NOW LIVE!! On this episode of Alopecia Connection, Frank and Tommy are pleased to welcome Gary Sherwood, Communication Director of the National Alopecia Areata Foundation (NAAF)! Gary shares the history of NAAF, the organization’s legislative advocacy, and answers questions on the upcoming 39th annual NAAF Conference, which will be held in Washington DC, June 27-30th! Between this meeting, informational webinars, local support groups, and fundraising walks, there’s so many different ways YOU can get involved with NAAF! Listen now! #connectioniseverything #alopecia #naaf #alopeciaawareness #hairlosspodcast #hairloss #alopeciastrong #alopeciaadvocate #alopeciapodcast #parentssupportingchildren #embraceyourself #alopeciatreatment #alopeciasupport #podcast #listennow #baldandbeautiful

ALOPECIA CONNECTION EPISODE 34 IS NOW LIVE!
ALOPECIA CONNECTION EPISODE 34 IS NOW LIVE!

EPISODE 34 OF ALOPECIA CONNECTION IS NOW LIVE!! On this episode of Alopecia Connection, Frank and Tommy welcome 15 year old Mackenzie and her mother Lisa. As you’ll hear, Mackenzie is one of the most inspirational young people in the alopecia community. Right from the beginning of her journey, Mackenzie and Lisa have promoted positivity and awareness of this condition by making and distributing over 3,000 silicone “Mackenzie Strong” alopecia awareness bracelets. Despite having alopecia for a relatively short time, Mackenzie has already become an active role model for younger people with alopecia in her area. FUN FACT: Mackenzie is great friends with Austin, who appeared on Alopecia Connection Episode 26. During this interview, Lisa discusses several organizations and groups that helped her as a parent of a child with alopecia, and what it means to have such an incredibly fearless daughter. Thank you for joining us Mackenzie and Lisa Listen now! #connectioniseverything #alopecia #alopecianbeauty #alopeciaawareness #hairlosspodcast #hairloss #alopeciastrong #childrenwithalopecia #alopeciapodcast #parentssupportingchildren #embraceyourself #alopeciatreatment #alopeciasupport #mackenziestrong #podcast #listennow #baldandbeautiful

Embracing uniqueness today and every day! Happy Children With Alopecia Day! Grateful for every inspiring teen we’ve met on this journey – your resilience and empowerment shine bright! And here’s to our incredible community for always being awesome. #AlopeciaAwareness #CelebratingUniqueness #Empowerment #Resilience #alopecia #childrensalopeciaproject #childrenwithalopecia #alopeciaareata #autoimmunedisorderschildren #autoimmune #immunedisorder #alopeciaappreciation #alopeciapodcast #alopeciaconnection

Alopecia Connection Episode 33
Alopecia Connection Episode 33

EPISODE 33 OF ALOPECIA CONNECTION IS NOW LIVE!! CHILDREN’S ALOPECIA PROJECT - JEFF WOYTOVICH On this episode of Alopecia Connection, Frank & Tommy are honored to have the founder of the @childrensalopeciaproject (CAP), Jeff Woytovich, on to discuss all things CAP! From the non-profit organization's beginnings, to the nationwide CAP Kid camps, ALOPECIAPALOOZA, school speaking tours, and a recent foray into podcasting, CAP's significant impact on the alopecia community is highlighted. Enjoy our chat with Jeff! #ConnectionisEverything #alopecia #cap #childrensalopeciaproject #childrenwithalopecia #alopeciaawareness #alopeciaareata #autoimmunedisorderschildren #alopeciaeducation #autoimmune #immunedisorder #alopeciaappreciation #alopeciapodcast #alopeciaconnection #fotd #themoreyouknow #alopeciapalooza #alopeciaconnection

EPISODE 32 OF ALOPECIA CONNECTION IS NOW LIVE!! CAROLINE WARD - PART II On this episode of Alopecia Connection, Frank and Tommy continue our discussion with “Whatever Trevor” children’s author, @caroline__ward . In the second part, we hear more about the book, but we dive deeper into the emotional toll alopecia can bring and the crucial element of talking about your feelings with friends, family… even seeking support where need be such as @alopeciauk or even therapy. We all have a voice that deserve to be heard! Enjoy our Part II with Caroline and OH! Whilst we’re here… WE HAVE A GIVEAWAY! Alopecia Connection has purchased several copies of “Whatever Trevor” and would love to send them to our listeners! Simply message the show and we’ll send you a copy today (while supplies last)! #ConnectionisEverything ⁠ #alopecia #alopeciaawareness #podcast #factoftheday #alopeciaareata #alopeciaauthor #alopeciabook #childrensbook #childrensauthor #whatevertrevor #alopeciachildren #autoimmunedisorderschildren #whatevertrevor #carolineward #alopeciaeducation #autoimmune #immunedisorder #alopeciaappreciation #alopeciapodcast #alopeciaconnection #fotd #themoreyouknow #womenwithalopecia

Alopecia Connection Episode 31 is Now Live!
Alopecia Connection Episode 31 is Now Live!

EPISODE 31 OF ALOPECIA CONNECTION IS NOW LIVE! Today, Frank and Tommy speak with author Caroline Ward about her alopecia journey and how it led to the creation of “Whatever Trevor,” a children’s book about living with alopecia. We have to say, it was such a treat to speak with Caroline, a very caring, bubbly, and ambitious soul who was so great to talk to we have a Part II coming shortly! In Part I we hear her alopecia experience, how the book came to be, and we introduce the importance of talking about your feelings. The book (we must say) is fantastic and allows an understanding for all children (and adults) on how to help process any autoimmune or illness. Enjoy Episode 31, Part I with Caroline 📖 And remember, connection is everything! Don’t forget to rate, review, and subscribe wherever you listen to your podcasts. #ConnectionisEverything ⁠ #alopecia #alopeciaawareness #podcast #factoftheday #alopeciaareata #alopeciaauthor #alopeciabook #childrensbook #childrensauthor #whatevertrevor #alopeciachildren #autoimmunedisorderschildren #alopeciaeducation #autoimmune #immunedisorder #alopeciaappreciation #alopeciapodcast #alopeciaconnection #fotd #themoreyouknow #womenwithalopecia

Alopecia Connection Episode 30 is Now LIVE!
Alopecia Connection Episode 30 is Now LIVE!

EPISODE 30 OF ALOPECIA CONNECTION IS NOW LIVE! In this episode, we welcome back Lisa Taylor (@yourbestlifewithlisa) to discuss GUT HEALTH and her new masterclass: The 4 Step Secret To Reversing Your Alopecia Naturally. She’s a modern marvel on educating and preaching a healthy gut to REVERSE YOUR ALOPECIA and take charge of your body! Listen now to hear about Lisa’s exciting FREE masterclass and register on her website today! Thanks Lisa for joining us! Remember, #connectioniseverything❤️ #podcast #alopecia #alopeciapodcast #alopeciacommunity #listennow #selflove #guthealth #autoimmuneguthealth #alopeciauniversalis #mentalhealth #mentalhealthawareness #alopeciaawareness #connectioniseverything #listentothis #hairloss #hairlossjourney #mentalhealthmatters #diet #reversealopecia #masterclass #alopeciawarrior #autoimmunepodcast

🌟 Exciting News Alert! This week, NICE in the UK recommended the JAK Inhibitor Ritlecitinib for severe alopecia patients aged 12 and above, marking a monumental stride for our community! Affordable access to this treatment is now within reach on the NHS, thanks to this groundbreaking decision. Huge congratulations to Sue Schilling and @alopeciauk for their tireless efforts! 🎉 Don’t miss our in-depth 10-minute update on this significant breakthrough – tune in now! Remember, #connectioniseverything #AlopeciaAwareness #MedicalAdvancements #NICErecommendation #Ritlecitinib #AlopeciaUK #HairLossTreatment #alopecia #podcast #alopeciapodcast #hairloss #JAKInhibitor #cosmeticdisease #autoimmunedisease #nhs #newmedication

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