23/06/2024
Hey everyone this pains me to repost, ROX alumni Melanie Schaffner wanted everyone to know . ☮️❤️😃🥲
Friends, this is a hard post to write, and I apologize to those of you who may be hearing about this for the first time, but things have been such a rollercoaster this year that we haven’t had the opportunities to share this difficult news. (Please also read to the end before trying to contact me.)
There’s no gentle way to say this so I will just get to it - in December of last year I was diagnosed with stage IVA metastatic non-small-cell lung cancer (adenocarcinoma). As someone who never smoked, this was as unexpected, baffling, and overwhelming as you might imagine.
My incredible oncology team at Johns Hopkins was extraordinarily positive about my treatment potential, given their access to the latest cutting-edge targeted oral therapies, and what they saw as very early metastatic activity. I had some very successful responses to my initial therapy (which showed that we had the right drug for my cancer).
My journey with the disease, though, has been very much “one step forward, one step back.” For every success it seems there has been a setback or a roadblock. For me it has been a big lesson in letting go of expectations and control.
In April/May I completed a 7-week consolidated radiation/traditional chemo treatment sequence. This was very debilitating and the associated fatigue and side effects lasted some time. It was though very effective in shrinking all the lymph nodes and original tumor in my lung.
A recent scan after my chemoradiation treatment, though, showed new metastasis in my liver - confounding everyone including my medical team, because it is very unusual to have disease progression while in treatment. Further developments now demonstrate that this new cancer is moving fast and aggressively, and likely to soon cause my liver to fail.
We have one last line of attack, a new oral drug I started yesterday. If it works, and more importantly if it works fast enough, we may drive the cancer back before my liver fails. If not, I could have as little as a few days to a week.
None of us expected things to happen so fast. I am moving into home hospice today, as the alternative was potentially never leaving the hospital and I want to be home with my loved ones however this plays out.
I am entirely at peace with whatever the outcome is. I have experienced an incredibly rich, satisfying life, full of love and adventure. I’m so glad that whenever time/means allowed, I did’t “wait for later” but rather [took the trip/saw the concert/ate the fancy meal/went on the adventure/tried the new hobby/bought the expensive tickets/got the degree/and so on]. And that I had so many wonderful friends and family willing to join me in these experiences. There’s very little left on my “bucket list” - my bucket is overflowing, and I am grateful. I mostly worry about those I leave behind, and their sorrow, pain, and grief.
I welcome texts and pre-recorded video messages. I will not likely have the energy for in-person visits, but if you’d like to arrange a video or voice call, please be in touch with my sister Melissa A. Schaffner. I asked her for help to do this since I may often be resting/have my phone off, and we don’t want to miss anyone. If you don’t have a number for her, you can send her a DM here on Facebook, or ask Marc Rollins.
I could write pages and pages more about the overwhelming support I have received along this journey. Marc has been my rock. My family has shown up in more ways than I could have thought possible, in support of us both. And friends have kept me smiling and reminded me that I was more than just a sick person, but rather still me. Please just know I treasure, value, and love you all.