My Liver is Doing My Head In

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My Liver is Doing My Head In Living with Liver disease. A place where everyone is welcome to join the discussion. This can leave many of us feeling alone on a sometimes dark day.

Hi All and Welcome,

As some of you are aware, I have Cirrhosis of the Liver and I am currently on the waiting list for a new one. If trying to deal with this chronic illness isn’t confusing and demanding enough, we know that it is not only those that are directly impacted, but also family, friends, and acquaintances who find it difficult to understand and cope with this illness. So, this is why I

have decided to start a PODCAST. A place where everyone is welcome to join the discussion, share stories, and when needed, vent! This page is where we will share information surrounding the PODCAST, it is also a way for us to converse and come together as a community. We won’t be sharing medical advice, but I do have a Medical Advisor from the Austin Hospital who is interested in joining us on this journey. The PODCAST is for all of us, as such, we are seeking expressions of interest from those that would like to take part, would be happy to share their story, or join a group discussion! Please send me a message through this page if you would like to express your interest or know more. No bullying will be tolerated, so please expect to be removed from this page if this happens. Look forward to talking with you all soon and please don’t forget to share with friends and family. Take care
Gaylene

Happy 11th birthday Bubbles x
06/04/2023

Happy 11th birthday Bubbles x

06/01/2023

I've received 200 reactions to my posts in the past 30 days. Thanks for your support. 🙏🤗🎉

31/12/2022

Happy 2023 everyone, it's gonna be a good one! Let's rock it!!

28/12/2022

How was everybody's Christmas?? Still the New Year to enjoy. Has anyone made any new resolutions yet?

True
25/12/2022

True

25/12/2022

Merry Christmas Everyone, 🎅 Stay safe x

25/12/2022

I've received 100 reactions to my posts in the past 30 days. Thanks for your support. 🙏🤗🎉

Oh and had my hair dyed on Wednesday. Thank you Jen x
15/12/2022

Oh and had my hair dyed on Wednesday. Thank you Jen x

15/12/2022

7.5 litres of fluid drained today! Feel so gooood

11/12/2022

💙

11/12/2022

Another food lesson today! Who doesn't love Cherry Tomatoes? I love eating them just on their lonesome with a tiny sprinkle of salt. But beware...cutting of said Tomatoes with scissors is not advised! And if you do choose to experiment, you will be finding pieces for days!! You've been warned.

Love it!
11/12/2022

Love it!

Check out this post, so true in many ways! It was posted by Andrew from another group. I never wanted kids. Still don’t....
06/12/2022

Check out this post, so true in many ways! It was posted by Andrew from another group.

I never wanted kids. Still don’t. I figure, though, l have a platform of about 1,700, or so, Facebook friends. Maybe this post will serve as a reminder or wake-up call for you or someone in your life during the holidays. Pick up the damn phone!

I’m going to go on a rant because quite honestly, due to my job, I keep my mouth shut in public about anything controversial. Something, though, has been really bothering me a lot lately and I think it fits an unspoken narrative amongst some families, and I’m at my wits end.

For three years, or so, I’ve been the caregiver for my mom who almost died while waiting on the liver transplant list. Her son (me), single, unmarried, no kids, fantastic job, makes decent money, lives in well-desired warm vacation-type climates, takes on the task of caring for said family member: day after day, month after month. Utility bills, inflation, insurance costs, lost personal privacy, lost friends because they don’t want to come to the house, lost freedom of deciding to hop in the car last-minute to run up to Orlando, Tampa, or the Keys for the weekend. Nope. Too much guilt. I don’t want to play the martyr, but it’s my turn to do so. And, quite frankly, I deserve it.

You know what I’ve been waiting for at the very least? A phone call from a sibling or extended family member. A phone call that says thank you. Thank you for taking care of this business with mom so I can go back to my kids, husband, etc. .. so I can go to the hockey game, have a holiday party, take a trip to the cabin, or anything else. You know what? My mom has four siblings. I can’t remember the last time I spoke to any of them. I don’t know when she has either. One of them has a dual six-figure income and a house a home in St. Augustine, Florida up the coast. That’s right. Didn’t even hear from her during the hurricanes. The last time we talked she was angry because I made the last-minute decision to take mom to San Francisco, to pull the plug in Detroit, hire a nurse and put her on a plane to get on the transplant list. You see, she had just bought a $200 plane ticket to see mom that weekend in Detroit and I corrupted the plans. Mom’s other siblings… have no clue what they’re up to. My siblings.. they don’t want to talk about the Mom Thing. Andy has that covered! It’s true. My life is like an episode from the Golden Girls. I’m the outcast in my own South Florida house: a 68-year-old mom and two elderly golden retrievers live here. The most exciting news of the day is when the mailman comes.

It’s true. I’m a little pi**ed. I can’t remember the last time I was truly invited to a Thanksgiving or Christmas dinner, or the last time someone called to tell me thank you, or at least acknowledge the sacrifices I make daily in my life because… I never wanted any kids.

There’s an awesome thing these days called air travel. Flight time is roughly three hours to Ft. Lauderdale from just about anywhere in the country. Drop in. Say hello. At the very least, acknowledge the caregiver in your family. They are likely saving you a lot of time, money, and lessening your stress load in your own home. Again, not posting this for sympathy. Learn from it. Happy holidays! Oh, and feel free to share!

03/12/2022
Say to yourself every day!"You know what?I know it's going to be hard, but I know I can do it"
30/11/2022

Say to yourself every day!
"You know what?
I know it's going to be hard, but I know I can do it"

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