31/10/2024
I really feel called to write this. A duty of care if you like, as I post videos of my prancing around. A note on survivorship.
We get to choose what we share with the world. I think that can make life look a little different than it feels to live it.
I choose not to share the days I’m navigating physical pain/health issues nor the days I’m consumed with grief. The tears that are shed because I want a body that functions normally or I can’t handle another day of chronic pain. The tears I shed because I watched my dad die and I miss him. The heartache of then losing a best friend.
Body wise, after a surgery like mine we don’t just get up and ease into the day, it takes effort from the moment you open your eyes… self catheterising, changing bags, meds, exercises. I can’t eat normally due to pain because my insides are a mess from the surgery, so have had to find a diet my insides can manage, sometimes that means days on liquids only. My body is unrealiable which means I often have to cancel plans.
I’m not going to sit here and share the times I’m writhing in pain nor will I film myself crying. I want to show making the most of each day, because I’m grateful for every one, the easy and the hard days and everything in between. I have done consistent work on my body for the past 4 years to gain strength to be able to do things, one of those things being getting back to dance. Part of my spine and pelvic bone was removed, to this day I can’t feel much of my left leg. But I can dance, how clever of my body to find a way!
I want to show that there is a life to be lived, despite the challenges and that we can find so much joy.
But also, I want to acknowledge for everyone that is finding it difficult, yes this is hard. It takes hard work. Survivorship is a blessing but it’s also hard. It will hurt your heart. It takes effort. You will lose parts of you but you will find new things about yourself. You will find happiness in things you didn’t think twice about before. You will feel deep gratitude when you realise how far your body and your soul have come.
And you will learn that you are capable of more than you ever gave yourself credit for. ♥️