Ostomy and Stuff

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Ostomy and Stuff

Loop To End ileostomy|
Unfiltered Ostomy Life And Education: The Good, The Bad, And The Ugly | Invisible Illness Problems🥴 | Mama&Wife🫶🏽Collabs👉🏽DM Me

29/05/2026

Body image and confidence with an ostomy can be tough!

Wear that dress. Wear that skirt. Wear that outfit.
Not because you’re feeling extra confident today.
Not because your body looks a certain way.
Not because you’re sure no one will notice your ostomy bag.

Just because you want to.

I think people sometimes assume confidence is something you either have or you don’t. For me, it changes from day to day.

Some days I throw on the skirt, take the photo, and head out the door without a second thought.

Other days I change outfits three times, stare in the mirror, and wonder if I should just wear something “safer.”

Living with an ostomy has taught me that confidence isn’t about never having doubts. It’s about not letting those doubts make every decision for you.

So if there’s an outfit you’ve been saving for “someday,” consider this your sign.

Someday is today. 🫶🏽

What’s one thing that’s helped you feel more confident in your clothes lately? Share it below—you never know who might need to hear it.

26/05/2026

We officially live in Texas now 🐄🤠

25/05/2026

“what kind of disease is this?” 😅

An ostomy isn’t a disease — it’s a surgically created opening that helps people live after diseases or medical conditions completely wreck our digestive systems. The bag isn’t the illness. The bag is the survival tool.

The disease/condition etc came BEFORE the ostomy. For a lot of us it’s Crohn’s disease, ulcerative colitis, cancer, gastroparesis, diverticulitis, bowel injury, or other medical conditions. The ostomy is what helps us survive and function after all of that.

Honestly, calling the ostomy itself the disease is kind of like pointing at someone’s cast and asking what kind of broken arm the cast is 😭

The good news? Asking respectful questions is totally okay. We learn through conversation. Just maybe skip the “what kind of disease is THIS?” like I just crawled out of a science lab 😂

25/05/2026

53K?!? Sometimes I sit back and think about how “Ostomy and Stuff” started as just me sharing pieces of my real life… and now there are thousands of you here. 🥹

Thank you for following along through the bag changes, leaks, laughs, gas, advocacy, vulnerable moments, chronic illness chaos, and everyday life in between. Thank you for making this space feel safe, encouraging, honest, and human.

I never expected so many people to connect with my story, but I’m incredibly grateful this platform has grown into a community where ostomates and chronically ill people can feel seen, understood, represented, and less alone.

Every comment, share, DM, conversation, and follow genuinely means so much to me. Thank you for helping me grow this little corner of the internet into something bigger than I ever imagined. 🖤

19/05/2026

I normally lay out all my ostomy supplies before a bag change like a responsible adult 😂 But today? Brain fog said “absolutely not.”

I kept forgetting stuff, had to stop mid-change to go grab things, then come back and try to remember what I was even doing. At one point it felt less like a bag change and more like a chaotic scavenger hunt. Truly one step away from becoming a full hot mess situation 🤦🏽‍♀️😂

Please tell me I’m not the only one whose brain just clocks out sometimes.

CTA: Does brain fog ever interrupt your bag changes? Do you forget supplies, space out, or have to pause mid-change too?

14/05/2026

Bag change time 👏🏽🖤

This bag change took me 6 minutes. I go slow and do what I need to do — and that’s the thing about ostomies: there are no rules for how long a bag change “should” take.

If you do yours super fast, great! If yours takes more time, cool! If you use less products, nice! If you use more products, that’s okay too. What matters is finding what works for your body, your stoma, and your lifestyle. 🫶🏽

Showing the REAL side of life with an ostomy because these moments deserve to be normalized, talked about, and seen.

If ostomy content like this helps you feel less alone, more confident, or more informed, drop a 🖤 in the comments and share this reel with someone who needs it. Tell a friend to tell a friend to tell another friend ✨

10/05/2026

“WEAR GLOVES.” 😩
Ah yes—my favorite safety briefing from the comments section.

Here’s the thing: if you’re changing your own ostomy bag, gloves are optional. It’s a personal choice, not a commandment. If you’re changing someone else’s bag? Absolutely—wear gloves. You can possibly transfer your germs to someone else.

But for me? The real headline is: WASH. YOUR. HANDS. BEFORE AND AFTER.

And yes, the risk of infecting yourself is very low with proper handwashing. Also, technically… unless you’re in a sterile environment, gloves have germs on them too.

Also, quick reality check:
Do you wear gloves changing your own kid’s diaper? No.
Do you glove up to lift the toilet lid, close it, and flush? No.
Do you put on gloves before wiping your own ge****ls? No.

So before you type “wear gloves” like it’s a mic drop… maybe consider the rest of your daily life choices.

Not medical advice. Always follow your surgeon/ostomy nurse’s recommendations and consult your medical team about what’s best for you.

Anyway, thanks for coming to my TED Talk. My soul is irritated to the core. 🫠🧼✨

10/05/2026

Two questions I get all the time 👇🏽
1. Can I control when my output comes out?
2. What does ostomy output actually look like?

Short answer: no—and it varies more than people think.

This is what mine looked like after eating a higher-fiber day 👀 Thicker than usual! Normally, my output is much more liquid since I have an ileostomy.

Our intestines don’t work on a strict schedule, and output consistency can change based on what we eat, hydration, and our individual bodies.

Were you surprised by this? Or did you already know?

👇🏽 Tell me in the comments:
Did this change your understanding of how ostomies (and digestion) work?

Anything else you want to know?

ostomylife

30/04/2026

The 3rd most irritating comment I get:
“you’re going to have a leak doing that…”

Respectfully… no. I’m not.

What I’m doing works for me. 🙃

With my end ileostomy, I haven’t had a leak in the last 5 months.
With my loop ileostomy, yes—I had leaks—but that was due to a peristomal hernia + the size and shape of my stoma… not because I didn’t know what I was doing.

I consider myself a “tryer” like Judy Hopps 😂
I test things. I adjust. I figure out what works for my body.

Because let’s be real…
Why would I keep doing something that doesn’t work for me?
That makes zero sense. Like… be serious. 😅

Also—important reminder:
Leaks can happen no matter what you do sometimes.
It’s part of this life. And guess what?
We’ll survive. 💪🏽

Not every method works for every ostomate—and that’s okay.
What matters is finding what works for you.

👉🏽 If you’re an ostomate: what’s ONE thing people always question you on that actually works perfectly for you?

Let’s normalize different approaches 👇🏽🫶🏽

Stay tuned for my “Most Irritating Comments” series! Have you seen my first 2? Check my stories!

ostomysupport

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