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25/12/2025

If you needed a little extra love today, this is it. 🖤

Merry Christmas—from my stoma and from my family to yours. Whether today feels joyful, heavy, lonely, chaotic, peaceful, or all of the above… I’m sending you gentleness and a reminder that you’re doing your best, and that’s enough.

If you’re celebrating with a bag, healing body, or a heart that’s been through a lot this year—you’re not alone.

Drop a 🎄 if you’re here, and tell me one word for how you’re feeling today.

24/12/2025

Part 2! POV: your first bag change with a new end ileostomy does not go as planned… so you do it twice in a matter of minutes. 😅

My first pouching attempt didn’t work, so I had to take it all off and start over. This new ileostomy is definitely throwing me a curve ball. I almost feel like an ostomy newbie again!

But this is real life. I’ve gotta roll with the punches (even when they’re painful) and keep figuring out what works for this new setup. One change at a time. 🫶

If you’ve ever had a “redo the whole bag change” moment, tell me I’m not alone 🙃👇

23/12/2025

FIRST bag change with my new end ileostomy… and it went downhill real quick. 😅

This new stoma is definitely a learning curve. My incision site has a bandage and my abdomen was still swollen. Surgery left a little divot on the right side of my stoma, so I have to fill it in with paste now—brand new for me. I thought I had a good seal, but trying to fill that divot with a barrier ring didn’t work… so I had to take EVERYTHING off and start over.

And yes, I was frustrated. Like “are you kidding me right now?” frustrated. 🙃
But this is real life with an ostomy: you troubleshoot, you redo, you breathe, and you keep it moving.

If you’ve dealt with a divot/uneven skin, drop your best tips (paste tricks, ring combos, anything). I’m learning as I go and I know I’m not the only one. 🫶

20/12/2025

I got a loop ileostomy in 2021 because I was undiagnosed and sick. A loop ileostomy is where the small intestine is split open and turned inside out and stuck through an incision in the abdomen outside the skin (looks like a figure 8). It’s sewn to the skin around it. The large intestine and re**um are left in the body not used. Stool comes out of the hole in the small intestine (a stoma) into a bag which is emptied into the toilet. This type of ostomy is reversible via surgery.

The ileostomy has helped me tremendously, and in 2025 I made it an end ileostomy. An end ileostomy is where the small intestine and large intestine are split completely from each other. The small intestine is stuck through an incision in the abdomen outside the skin and sewn to the skin around it. My large intestine and re**um are left in the body not used. Stool comes out of the hole in the small intestine (a stoma) into a bag which is emptied into the toilet. This type of ostomy is not reversible.

I lost my 20’s to fatigue, brain fog, muscle spasms, weakness, severe pain, extreme bloating, migraine, seizures, severe GI issues, heart palpitations, swelling throughout my entire body, immobilization, extreme weight loss, hair loss, brittle nails, stomach ulcers, cysts, blood coming out of my re**um, cracks around my a**s, loss of appetite, inability to eat solid foods, extreme constipation, diarrhea…and more.

Am I 100% healed now? No. But, my ostomy lets me live my life the way I want to!

The goal for my page is to provide encouragement, empowerment, honesty, and real life ostomy content. Life after an ostomy is possible and worth it! Share with someone in need. My DMs are open 🫶🏽

19/12/2025

Stepping into a whole new era. ✨

My ostomy revision + hernia repair are officially done, and I feel like I just crossed a bridge from “before” to “after.” This isn’t just a procedure—it’s a fresh chapter, a reset, and a reminder that healing can look like growth.

I’m so excited to share this journey in real time: the wins, the hard days, the lessons, and the little moments that matter. And I’m even more fired up to keep Ostomy and Stuff’s mission going—making ostomy life feel less lonely, more honest, and way more empowered.

New era. Same mission. Let’s do this. 💪🏽🫶🏽

11/12/2025

Do you pay attention to your output color? Output color can sometimes give clues about what’s going on inside. Tan/yellow usually lines up with typical ileostomy output. Red or very dark shades can occasionally signal blood, but can also be from foods or drinks. Greens often come from what you ate or from faster transit time. Color alone doesn’t replace medical advice, but it can help you know when to pay closer attention. Monitoring color changes is one of the reasons I like wearing clear bags.

10/12/2025

Parastomal hernias are common and not a sign that you “failed” at having an ostomy. A parastomal hernia is a type of incisional hernia that happens next to an ostomy (a surgically created opening for stool or urine). It forms when part of the intestine or other abdominal contents push through the weakened abdominal muscle around the stoma opening.
This can occur gradually over time. Symptoms include: pain, discomfort, and leakage around the stoma, difficulty in attaching or fitting the stoma bag properly, and a bulge or swelling that can be visible (not an exhaustive list).
Management and treatment options include supportive care, a hernia support belt or garment, gentle exercise, proper stoma care, and surgical repair. Surgery is often the most effective treatment to restore the abdominal wall. Knowing the risk factors and signs to watch for helps you decide when it’s okay to monitor and when it’s time to call your surgeon. I currently have a moderate hernia and will be undergoing surgery soon. My hernia causes pain, discomfort, muscle spasms, and a noticeable bulge.

10/12/2025

Are you afraid to travel? Traveling with an ileostomy is absolutely possible — it just takes extra planning. Keeping supplies in your carry-on, packing more than you think you’ll need, having a backup outfit, and staying on top of hydration can turn a stressful trip into a manageable one. I also recommend putting some ostomy supplies in your checked luggage as well. The other thing I recommend is checking if the airport you’re flying out from has a program like TSA Cares where you email the TSA ahead of time, tell them you have an ostomy and ostomy supplies and that your ostomy may be visible through the machines. They will have a dedicated TSA person es**rt you through security. Use this checklist as a starting point and adjust it to match your routine and your medical team’s advice. What tips do you have?

08/12/2025

Are you team bag on or bag off? You can shower with an ostomy — with or without your pouch. It really comes down to comfort, skin needs, and how your products behave with water. These tips are meant to make shower time less stressful: protecting your skin, being gentle with the stoma, and choosing products that don’t leave residue that can interfere with adhesion. I shower with my bag on, I don’t like the feeling of water on my stoma and my stoma is so active that I end up feeling dirtier than before because I’m outputting in the shower. Are you team bag on or bag off?

07/12/2025

If your pouch isn’t fitting well, your skin and your wear time will usually let you know. More frequent leaks, itchy or burning skin, edges lifting early, or changes in your stoma or belly shape are all signs that something about your setup might need to change. You or a WOC nurse can re-measure your stoma and help you explore different sizes, shapes, and products so your appliance feels more secure and your skin stays protected. Don’t be afraid to try different manufacturers bags and mix and matching ostomy supplies from different manufacturers. Sometimes there’s a lot of trial and error with having an ostomy and the remedy to a problem isn’t always clear. Try not to get too frustrated when you’re trying to figure out why your pouch isn’t sticking. It’s easier said than done but it’s a mindset you can work towards. What are your troubleshooting tips?

28/11/2025

Hope you all had a nice Thanksgiving 🤎 I made baked Mac and 🧀 and it was delicious. Grateful for my small but mighty family.

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