Micah-Samuel Journey With CP

Home
Micah-Samuel Journey With CP

documenting the life challenges of my son ��

28/02/2024

I wanna talk about aftershocks

The small moments of grief that hit so hard that they take my breath away.

The moments that shake my foundations on a random day .

They are brief blips of time where the full weight of the the life I’ll never lead land on me all at once.

Now I have been in the special needs parenting game a few year's now

I have come to terms with what is, and what will never be.

I make the MOST of what I’ve been given.

But….

The grief I went through mourning the life I thought I would lead is very real.

The fight to overcome that was very real.

Much like all other forms of grief, it is not linear.

There are still aftershocks of that grief..
They come out of nowhere..
They hit hard..

*When he wakes up and just laying there on his back crying

*When I see a little boy conversating.

*When I see kids running freely through an open field.

*When I take my son out in public and he's overstimulated

*seeing the challenges and knowing I can't fix it for him

You see, that’s one of the things about having a special needs child that not many people talk about.

The grief and the fact that It never actually leaves you.

You learn to live life around it.

Look past it.

But we always carry the broken pieces of a life we’ll never get to live in the darkest corners of our hearts.

We learned how to take those broken pieces and put them back together into something that is different then we pictured, but still so deeply beautiful.

It’s ok that we still feel the aftershocks of the day that our imagined future was blown away, like dust in the wind.

Its ok if we still have broken dreams that we carry around like a secret.

Its ok if we covet that dream and all its broken parts.

Even if it that version of our life will never be lived out loud… It still belongs to us.

I think we feel the aftershocks in the face of moments that would have been ours… if only things had been different.

And it is is HARD sometimes.
Thats ok to admit.

These moments may shake us.
But they will NEVER break us.

27/02/2024

Sometimes it's the memories that keeps me going❤️
Nobody like papa Boris 👌

25/02/2024

Some days, I messed up as your mother.

Some days, I didn’t have enough energy.

Some days, I didn’t show you enough grace.

Some days I'm too depressed and mentally fatigued to be the driving force behind you.

Some days, I simply let you down.

But, every day, sweet child? Every single day, I loved you💖🥹💖

21/02/2024

This is also a journey of pain.
Gut wrenching pain 🥹

This is also a journey of depression and it never goes away...

It stays with you like a second skin....

20/02/2024

I noticed a an empty space in papa Boris mouth yesterday,where I'm sure a tooth used to be
Now since night I noticed that there's now two empty spaces

I'm pretty sure he swallowed them 🤨

19/02/2024

“Don’t let your child’s diagnosis become your personality”

It is something that is said often, given as advice.

That advice is unrealistic.

Hearing your child’s diagnosis is life altering, it changes everything you thought you knew before you heard those words.

It changes how you view the world and what you once thought was important.

It changes how you carry yourself through unimaginable obstacles.

And it causes you to live in fight mode because flight mode isn’t an option.

That diagnosis,

It made you feel such an indescribable pain that you don’t allow anything less than to break you.

That diagnosis,

It is a part of you.

You couldn’t stop it from changing your personality if you tried.

And you shouldn’t.

That diagnosis made you unstoppable,

It made you love harder than you knew possible,

And it made you strong.

The type of strong you envied in others,

the type of strong you never could have imagined yourself capable of.

That diagnosis,

It made you everything that you needed to be for your child.

So, let it.

Let that diagnosis become a part of your personality.

Because that personality is the one that keeps you going every single day.

19/02/2024

I love ppl that love my son🥺 they got a special place in my heart forever 🫶🏽

13/02/2024

To my son:

You are my biggest blessing ever. I will always have your back. I will protect and love you forever. Whatever you go through, I'll be right beside you. You never have to face anything alone. I've got your back until the end of time. I love you so much.🥲💙

13/02/2024

LORD,
enlighten what is dark in me, strengthen what is weak, mend what is broken in me, heal what’s sick in me, and lastly revive whatever peace and love has died in me.

My soul clings to the dust; Revive me according to Your word. (Psalm 119:25) Amen.

12/02/2024

Moms are expected to keep everything and everybody together and oftentimes they’re neglecting themselves in the process.

This can only go on for so long before we just…shatter.

If you’re in the verge of breaking, just know you aren’t alone.

I am too, I am with you. And we’ll get through this somehow. 🩷

12/02/2024

I’m a toddler mom. Of course I flinch when my son raises an object in the air 😭

11/02/2024

I'm going to be a grumpy mommy all day 🥹🥹🥹🥹🥹🥹
Micah Samuel will play from sun up until sun down 🤨

11/02/2024

Y'all better WATCH those people, that BOUNCE BACK from EVERYTHING that was meant to DESTROY them. Those are GOD'S people, & they're NOT to be PLAYED WITH!

11/02/2024

Been waiting on Micah Samuel all day to do this again but it seems like a only nights him plan fi dweet

He's at it again ❤️

This video also illustrate how weak his core muscles are,his physiotherapist said that he's not using the stomach muscles but the back muscles.

I'm trying to be consistent with his physiotherapy,we need to build and strengthen those core muscles and have them working.

Sometimes after he fall he's able to get up, sometimes he's not able to....

When he's not able to my heart hurts because it's difficult to watch.

I can't always be quick to assist,there are times when I just have to watch and observe, hoping he'd figure it out.

Sometimes he does, sometimes he don't
Both times I'm present ready to save the day with him👌

Because in short his physiotherapist said that he should have been showing more progress but I'm babying him,so basically I'm enabling his disability.
I really don't want to do that ,well keep doing it 🥹
🥹🥹🥹🥹🥹

10/02/2024

I remember a time I used to be so worried

Wondering if Micah Samuel can walk without the AFO

Tonight he showed me he can
Super happy in bed with my Papa Boris

Mighty God of Israel, thank you for all that you've done for my son and all that you're about to do
Take full control over his life and continue the good work you have started in him 🙏🙏🙏

10/02/2024

So this is Micah Samuel play area
It is made using a 3 sofa,a mattress,and a sponge as the gate.....

I rearranged my whole living room to do this,so that Micah Samuel can have a safe place to play

The floor was no longer ideal as he had once fell and broke off a piece of his front tooth

Now I saw him trying to walk in the play area and he could only manage maybe 6 steps before falling

My son is so determine,I can't express how much I love him

Inna di night ya look pon mi baby 🥹🥹🥹

10/02/2024

Lord correct my son, direct my son, & protect my son🙏🙏🙏🙏

08/02/2024

So I remember my first introduction to Early Stimulation,I think it was at orientation where I heard an Occupational Therapist talking about how manipulative special needs children can be and we the parent ought not to spoil them.

I remember looking at Micah Samuel and thought to myself he's brain damaged,he can't manipulate nobody.🤨

However I am here now to say that Micah_ Samuel is very spoiled and manipulative.

He manipulate with crying to get his own way.

If you are not pushing him in his stroller he's going to cry until you start pushing it with him.

(Sometimes mi see him a rock the stroller back and forth in an effort to push himself)

If he's on timeout in his play pen he's going to cry,when I go to get him he'll start to laugh and scream.

Sometimes he'll fake cry 🤨

He'll cry when you're forcing him to do something he does not want to do.

Eg teaching him how to color
* Doing physiotherapy
*Taking a break from walking
*Eat
*Drink water
*Go to bed
*Change his diaper
*Bathe
*Brushing his teeth

I guess he learnt that if he start crying I will do exactly what he wants

Now I will always listen to the experts 🤨

07/02/2024

Goodmorning happy Wednesday,it's a blessing to be alive this morning 💯❤️I am grateful for the gift of life 👏👏

Throw back Wednesday y'all

Can anyone why Micah Samuel all up in his feelings here ?👀👀

07/02/2024

This is the highlight of the day for me❤️
All my days actually

We're either watching Netflix or cartoons
(He seems to like the Korean series too )😂

I especially love nighttime because it's the only time I can get him like this......... provided that he's not sick..

This is such a beautiful feeling words can't even describe it, having him in my arms like this got me feeling love and me loving him more.

My heart is just beating with love
Love for him.
No matter how bad the day was,I fall asleep each night with love my in heart.

I even fall asleep happy because he's in my arm's
Sometimes this is the only happiness I'll feel 💕
I think he falls asleep happy too because he's not going to sleep unless I'm holding him like this.

07/02/2024

Memory lane ❤️

Micah Samuel was just over a year old here and had just started rolling over on his own

I used to roll him daily until he could roll himself

The books were stacked on each other and the laptop placed on top, playing baby shark

This was done to get him to start lifting his head up💯

06/02/2024

I dreamt last night that Micah Samuel was talking 🥹🥹🥹

05/02/2024

I had this vision three weeks before Micah Samuel was born and in that vision a nurse came to tell me that the baby didn't make it.

I can remember the panic attacks after that vision and how much I prayed that it would not come

My first vision became a reality,my uncle died so I was very much fearful.

So after the Epistomy and the Kristeller Maneuver was used to expell him from my body and I saw the midwife running away with him, I thought for sure that the vision has once again found its place in my reality.

And as I laid on that bed in the labor room in the cubicle waiting to be told that he did not make it.

I was told instead that he was resuscitated and admitted on the neonatal ward.

I was cleaned and stitched up and wheeled down to see him..

When I first saw him he had on an oxygen mask strapped to his face, multiple wire/ probes attached to different machines.

His hands and feet were blue
His head was elongated and he looked untamed.

There was just this wild look to him, the look of a fighter I suppose

He was moving and breathing and in that moment in time that made me happy because I had then though

All is well now.
But all was not well then and all is not well now.

I am of the opinion that we cannot rule our destiny,what is meant to be will be ,because even thou death couldn't claim him fully
Some parts of him lived and some parts did died.

The part of him that died is the reason for this journey,the reason for this page.

The reason why CP was birthed.
The reason why this pain won't leave.
The reason why this grief won't leave.
The reason why this depression won't leave.
The reason why endurance have become my friend.

The reason why this bitterness won't leave fully
The reason I took Marah and made her me

Our lives has already been written,we can twist but we can never make a full turn.

Destiny will not be denied.
I do not have to accept it nor do I have to make my peace with it
There's no clear path to peace.

Peace is rather elusive
All that I have to do is love and care for my son,
Pushing him to reach his full potential.

I will never leave him
I will always love and protect him
I will be here even when he don't need me to be anymore

He's heart of my heart and flesh of my flesh.

I'm grateful to be his caretaker
I'm grateful to have him to love and to hold in my arms.

He's the sweetest.

Micah_Samuel Elijah forever and always
Always and forever ❤️

05/02/2024

Just got my son ready for bed
He's dry,he's powdered,creamed and all lotion up

He's clean 🙏

He has eaten and he has drank and I got more juice beside me

And most importantly he will fall asleep in my arms tonight.

Like this is the happiness time for me❤️❤️❤️

04/02/2024

|| I REJOICE OVER YOUR BABY STEPS ||

I see the Lord in the company of a little child. A child who is only now learning how to walk, taking his first baby steps.

I see the LORD bending low to the child's level, holding the child's hand to give him confidence and courage and keep him from falling. I see Him cheering the little child on.

The little child is YOU.

He says to you, "I am your greatest cheerleader. I rejoice over you. I sing over you. I do not despise you because you are still learning how to walk.

I do not ignore you to focus on those who are sprinting in the fast races because they are bigger and stronger than you.

You have all My attention. You have all My affection. You have all My audience. I bend low to commune with you where you are at.

I know you will grow because it is I who causes growth to happen. So be confident in My love for you.

I have begun good work in you, and I will complete and perfect it. I am the Author and Finisher of your faith.

I chose you. I drew you to Myself. I will be with you to the place of perfection.

Do not compare yourself to others and despise yourself.

I know you are yet to understand many things. I know you have grown up to do this in the area of knowledge.

Nevertheless, be confident in this: I will not leave you. I will not abandon you. I will walk with you and help you to perfection. I started your faith story. I will complete it."

Galatians 6:4-5

Each of you must examine your actions. Then you can be proud of your accomplishments without comparing yourself to others. Assume your responsibility.

Psalm 138:8

The LORD will work out his plans for my life–for Your faithful love, O LORD, endures forever. Don’t abandon me, for You made me.

04/02/2024

Micah Samuel is happy to be on the wake up list this morning

Goodmorning God's most beautiful creation,have a great day 👏💯💥

01/02/2024

Micah Samuel caw stay in here rent free and nah pick up him book 🤣🤣🤣🤣

Wi juss starting out 😆

01/02/2024

One of those rare moments

Micah Samuel will not lay down unless he's sleeping,sit or stand for one minute

He's always on the go 😊😊😊

31/01/2024

I think my son's physiotherapist thinks I'm a physiotherapist as well 🥹🥹🥹

Address

Manchester

Website

facebook.com

Alerts

Be the first to know and let us send you an email when Micah-Samuel Journey With CP posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Videos

Sometimes it's the memories that keeps me going❤️ Nobody like papa Boris 👌

I'm going to be a grumpy mommy all day 🥹🥹🥹🥹🥹🥹 Micah Samuel will play from sun up until sun down 🤨

Been waiting on Micah Samuel all day to do this again but it seems like a only nights him plan fi dweet He's at it again ❤️ This video also illustrate how weak his core muscles are,his physiotherapist said that he's not using the stomach muscles but the back muscles. I'm trying to be consistent with his physiotherapy,we need to build and strengthen those core muscles and have them working. Sometimes after he fall he's able to get up, sometimes he's not able to.... When he's not able to my heart hurts because it's difficult to watch. I can't always be quick to assist,there are times when I just have to watch and observe, hoping he'd figure it out. Sometimes he does, sometimes he don't Both times I'm present ready to save the day with him👌 Because in short his physiotherapist said that he should have been showing more progress but I'm babying him,so basically I'm enabling his disability. I really don't want to do that ,well keep doing it 🥹 🥹🥹🥹🥹🥹

So this is Micah Samuel play area It is made using a 3 sofa,a mattress,and a sponge as the gate..... I rearranged my whole living room to do this,so that Micah Samuel can have a safe place to play The floor was no longer ideal as he had once fell and broke off a piece of his front tooth Now I saw him trying to walk in the play area and he could only manage maybe 6 steps before falling My son is so determine,I can't express how much I love him Inna di night ya look pon mi baby 🥹🥹🥹

I pretended like I was sleeping to see what he'd do🤣🤣🤣🤣🤣

It's one of those mornings when I don't know what's wrong. I don't know if his stomach hurts. I don't think he's constipated. I don't know if he's in pain. I don't know what's wrong. But something is wrong. My heart hurts,this is all so painful to endure but what's else to do

Working on one of our many goals ❤️❤️ #fypシ゚viralシ #reelsfypシ #fypシ゚viral #reel2023 #2023reels #cerebralpalsyawareness #cerebralpalsywarrior #foryouシ #specialneedsmom #fypシ゚

My baby does talk to me in his own little,it is just that I don't understand 💔💔💔 It is my hope that one day we will talk and understand each other verbally He knows what's certain words mean like "juice " he leaned back into my shoulder for juice. This is very frustrating for him,not being able verbalize himself,not being understood. I pray that this manifestation will take place and I pray that it is in his destiny 🙏🙏🙏🙏 I can't help but imagine what his voice will sound like❤️ I can't help but imagine how much easier our life would be because this is really just a guessing game rn. #fypシ゚viralシ #reelsfypシ #2023reels #fypシ゚ #reel2023 #cerebralpalsyawareness #cerebralpalsywarrior #specialneedsmom #fypシ゚viral #foryouシ

He's gotten so tall he can now reach the tv 🤨🤨🤨🤨and as such I can't leave him by himself out of the stroller to watch tv..... Anyways he seems happy to provide me with evidence of himself misbehaving Bwoy a try run up mi pressar eno

Look what he's learning to do🥰🥰 We've been practicing for awhile now 🥰🥰🥰 #fypシ゚viralシ #reelsfypシ #reel2023 #cerebralpalsyawareness #cerebralpalsywarrior #specialneedsmom #foryouシ #fypシ゚ #fypシ゚viral #2023reels

So Micah Samuel rarely uses his right hand to do anything,I've only ever seen him used it to aide the left when climbing up. The goal here is to have him start using it as he does the left. The right side is weaker than the left The right hand is weak and stiff so I double whatever physiotherapy I do on the left side. It requires more work. He can't pick things up using the right hand nor can he hold things apart from the rattle. So it's my hope the rattle will be the encouragement he needs. #fypシ゚viralシ #2023reels #fypシ゚viral #reelsfypシ #fypシ゚ #cerebralpalsyawareness #cerebralpalsywarrior #specialneedsmom #foryouシ #reel2023

Was walking around inside until Micah Samuel found this small pile of his dirty laundry.🤣🤣🤣 I don't know if he's unable to bend because his muscles are too tight or it's because he does not know how to ,however it will be discussed in January at our next physiotherapy session. It pleases my heart so much to know that he understands certain words and sentences. I can't wait to talk to him and have him talk back to me. Kadima!!! #fypシ゚viralシ #2023reels #reelsfypシ #fypシ゚viral #reel2023 #foryouシ #cerebralpalsyawareness #specialneedsmom #fypシ゚ #cerebralpalsywarrior

As him think mi nah look he's back at it 🤨🤨 Maybe I should just leave him be 🤔🤔 #fypシ゚viralシ #reelsfypシ #fypシ゚viral #2023reels #fypシ゚ #foryouシ #cerebralpalsyawareness #cerebralpalsywarrior #specialneedsmom #reel2023

Working on us walking together holding hands,but here Ms had another idea It was windy and he liked the strong wind ❤️❤️❤️ #fypシ゚viralシ #reelsfypシ #fypシ゚viral #fypシ゚ #cerebralpalsyawareness #reel2023 #2023reels #specialneedsmom #cerebralpalsywarrior #foryouシ

Papa Bear always wants to be on the go He especially loves climbing up the steps #fypシ゚viralシ #2023reels #reelsfypシ #fypシ゚viral #fypシ゚ #foryouシ #cerebralpalsyawareness #specialneedsmom #cerebralpalsywarrior #reel2023

🤣🤣🤣the lil puppy in me wah porridge 🤣🤣 Ms wasn't fazed

Ms wasn't in the mood for church #fypシ゚viralシ #2023reels #fypシ゚ #fypシ゚viral #cerebralpalsyawareness #specialneedsmom #cerebralpalsywarrior #foryouシ #reelsfypシ #reel2023

Drive out now tuts sleeping #fypシ゚viralシ #2023reels #reelsfypシ #fypシ゚viral #reel2023 #fypシ゚ #foryouシ #specialneedsmom #fyp #specialneedsparenting #cerebralpalsy #cerebralpalsyawareness #cerebralpalsywarrior

Got up really fussy kicking and crying 😩😩 Nothing was calming him down,hey mi even swaddle him eno 😆😆but then I remember his favorite song. I've been croaking this song for 45 minutes 😭😭😭 n everytime mi stop it's waterworks all over again. Mi caw sing fi save mi very life 😒🙈 The most embarrassing thing this child got me doing 😓 I'm beyond mortified but anything to make my baby happy 😒💯 The most embarrassing thing this child got me doing 😓 #fypシ゚viralシ #2023reels #fypシ゚viral #reel2023 #reelsfypシ #foryouシ #fyp #fypシ゚ #memories #goviral #specialneedsparenting #specialneedsmom

Memories 💥💕 #fypシ゚viralシ #2023reels #reelsfypシ #fypシ゚viral #reel2023 #fypシ゚ #foryouシ #memories #goviral #fyp

Shortcuts

Address
Alerts
Videos
Claim ownership or report listing
Want your business to be the top-listed Media Company?

Country:

City:

28/02/2024

27/02/2024

25/02/2024

21/02/2024

20/02/2024

19/02/2024

19/02/2024

13/02/2024

13/02/2024

12/02/2024

12/02/2024

11/02/2024

11/02/2024

11/02/2024

10/02/2024

10/02/2024

10/02/2024

08/02/2024

07/02/2024

07/02/2024

07/02/2024

06/02/2024

05/02/2024

05/02/2024

04/02/2024

04/02/2024

01/02/2024

01/02/2024

31/01/2024

Address

Website

Alerts

Videos

Shortcuts

Share