Majic Messengers

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Majic Messengers Messages of Hope, Bravery, & Inspiration - heroic stories of families facing the unthinkable.
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(Part 3 of 3) - “I hope people remember Olivia too. I hope — no, I know — she makes a difference in the lives she touche...
17/11/2021

(Part 3 of 3) - “I hope people remember Olivia too. I hope — no, I know — she makes a difference in the lives she touches. Everyone she meets, it seems, ends up wrapped around her little finger. Even when she was born, she was making a difference; the hospital we were in happened to be a teaching hospital, and I remember all the students watching us because there were so few babies born at 23 weeks. She has put people on their knees before that have never been on their knees for anyone. I even have a picture of her with an outlaw motorcycle club that fell in love with her. She’s changed lives.

Lord knows she’s changed mine. She’s taught me strength. She’s taught me grace. She’s taught me how to keep faith. I always had faith, but I remember the nights when I was standing by the incubator asking God why. Seeing how she goes into each new day just knowing it’s going to be better than the day before, she’s changed me. She’s changed all of us.

I know the odds. Only ten people in the world have ever experienced what Olivia is going through and none of them are still with us. But I don’t want to hear she is going to leave us. The day she tells us she’s ready we’ll have that conversation, but today I want her to live. I want to let her be a kid. I want her to know how much she’s loved, to enjoy today, to look forward to tomorrow, and to never, ever give up.

This year it’s just going to be us for the holidays. Because of COVID-19 we can’t really risk much more than that. But even still, we’re going to get to see the magic in her eyes one more year. Blessings like that make me believe that she’s going to be the one in 10. She believes it, and so do I. That’s enough.”

📍 Give Kids The World | 📸 /ig
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(Part 2 of 3)  -  “Olivia’s pulmonologist once told me something I’ll never forget: “She writes her own history.” I’ve c...
17/11/2021

(Part 2 of 3) - “Olivia’s pulmonologist once told me something I’ll never forget: “She writes her own history.” I’ve come to truly believe this. This is why we haven’t had a conversation yet about what the future might hold. We don’t want her to be defined by some predetermined fate. Olivia defines her destiny. We want her to write her story.

I think she’s internalized this, too, even if I haven’t told her to. There’s no doubt about it, she’s bossy. She’s in charge. When she’s at the hospital, she calls the doctors “assholes.” Don’t get us wrong, we have wonderful doctors. But at the same time, the doctors are not God. They don’t know everything. When Olivia was born, they recommended that I give birth and let her die on my chest. It’s good to listen to them, but Olivia knows implicitly her life is hers. No matter what, she’s in control.

Olivia actually handles it better than I do sometimes. There are times where I just have to cry to get it all out somehow. After the PBS diagnosis, I actually had to look at her and say, “Okay, Mommy needs to pull into the gas station for a minute.” I went into the bathroom, had my cry, and then walked out. And there were other hard times where I would lay next to her as she slept, holding her hand just to make sure she still had a heartbeat.

In these times, a little kindness can go a long way. People forget this. I remember in the hospital one night a nurse sat a Mountain Dew on the nightstand for me. Another nurse once put Olivia’s hair (when she had some) into pigtails for her. One day after coming home from the hospital we discovered someone had cleaned our house for us. There’s an older lady I know who sends Olivia and her little sister Everly a card in the mail every three months, complete with little stickers. Not too long ago a kind soul left us a couple bottles of wine on our doorstep. I will always remember these little things. There’s still good in the world.”

📍 Give Kids The World | 📸 Chris Glenn

(Part 1 of 3) - “Olivia is a true miracle child. At birth, she weighted only 1 pound, 4 ounces and was given less than a...
17/11/2021

(Part 1 of 3) - “Olivia is a true miracle child. At birth, she weighted only 1 pound, 4 ounces and was given less than a 5% chance of survival. From head to toe, she was just 12 inches long. According to our doctors, she was in the .5 percent size range of kids her age. As far as they know, she’s the smallest child ever born in the state of Indiana to survive. In 23 years working, the doctor who delivered her said he had had never seen a baby cry who was born under those circumstances. Even then, she had sass.

When Olivia first got to come home six months later, she had a variety of diagnoses including cerebral palsy, chronic lung disease, and patent ductus arteriosus (PDA) — a congenital heart defect. Then, six months after that, she started having seizures, which led to a diagnosis of Lynnox-Gastaut Syndrome – essentially meaning you have epilepsy that can’t be controlled by medication. If that wasn’t enough, just over half a year ago we got another gut punch with a diagnosis known as PBS (Pilarowski-Bjornsson Syndrome) – leading to another life expectancy estimation of 6-9 months. In literature, there are only 10 people in the whole world that have had this diagnosis, and none of them have survived more than a couple of years.

Looking at her today, I know the first thing people think. Everyone can tell she’s sick, especially after she lost her hair. We actually never cut it; she had beautiful hair almost as long a she was. But after you just talk with her for a minute, watch her interact with the world, you remember that she’s still just a little kid. No matter what is going on in her life, she hasn’t changed. She wants to be Elsa when she grows up. She’ll be the first kid to dive into a fresh pile of mulch, no matter what she’s wearing. She gets to be a cheerleader once a week and even got “dancer of the year” at her recital for her strength and courage. Yes, she got a raw deal in this life, but she doesn’t know that. Of course, she knows she’s sick, but at the same time, she doesn’t know anything different. It is her life, and she’s committed to making it her own.”

📍 Give Kids The World | 📸 Chris Glenn
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16/11/2021

After watching his 9-year-old daughter beat childhood cancer, father of 5, Jimmy Riley, talks about never giving up and how your story is meant to be a testimony to others. "You're going through this for a reason. Get up, push through, and drive on, and remember there's always someone out there that loves you."

📍 Give Kids The World
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16/11/2021

Dad, Jimmy Riley, talks about the moment his daughter was born, what he wants to do before he dies, and how to choose happiness despite devastating challenges.

📍 Give Kids The World
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15/11/2021

Wish child, Sa’Nyla, who just beat childhood cancer, gives advice on never giving up, staying positive, and finding happiness. She likes to make dancing videos, laugh at her brother’s jokes, and eat lots of ice cream. When asked what makes her happy, her answer was simple – love. 😭❤️

📍 Give Kids The World
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(Part 3 of 3)  “As of now, Piper’s cancer has been in remission for 19 months, and now hopefully for the rest of her lif...
12/11/2021

(Part 3 of 3) “As of now, Piper’s cancer has been in remission for 19 months, and now hopefully for the rest of her life. Remarkably, other than the scar on her back, there have been no lingering effects. Her speech development is perfect, and she’s shown no signs of hearing loss. Actually, she’s developing into something of an adrenaline ju**ie; she’s really developing a liking of rollers coasters. We are so thankful, and I like to think that her fight, even this early in life, has changed her, has given her something like a superpower that’s going to do some good in this world.

Piper’s experience has changed us, too. It opened our eyes to the good around us. It has made us want to pay it forward, to give back where we can. In some ways, we actually feel bad we never noticed it all before. On our hospital visits, we all too often see families and children that are far worse off than we are. We want to make volunteering, and giving back, a part of our lives to show others all the wonderful things we now see. You are never alone, and we want to dedicate our lives to helping others realize that.

Richard and I aren’t big religious people, but we do believe in praying out loud. I know the thoughts that go through parents’ minds. What kind of God would let a child get sick? But I want these parents to know they are loved. We love you.

When hope feels lost, I want you to say that to yourself. You are loved. You are loved by us. You are loved by your family. You are loved by people that you may not even know, that may just send their prayers to you on a Facebook comment. Feel it. Embrace it without shame. Use it to cherish every waking moment and make the most of the time you have. This life is a gift. This very moment, right now, is a gift.

We love you. Please, remember that.”

Via: Give Kids The World
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(Part 2 of 3)   “I remember everything I felt at that moment. We were heartbroken. No child should be sick. They did not...
12/11/2021

(Part 2 of 3) “I remember everything I felt at that moment. We were heartbroken. No child should be sick. They did nothing wrong. Piper did nothing wrong. She’s my ray of light, my fighter. When we first started chemo, Piper hated needles, but now she has no issue with them. Sometimes when we get into the car just to go to the store, she looks at me and asks, “Doctor now?” When the doctor needs blood work, she’ll smile and hold out her arm for them. A child deserves to be healthy, I believe that. But we didn’t get that. Piper didn’t get that, and no matter how hard I might pray that God let me take her place, I can’t.

Every day was an experience staring into the unknown, scared to death of what might happen next. We were required to constantly monitor her blood work for the next five years. One bad report, and our lives would change forever. And even if that report never comes, what about what’s already happened? I thought about what children might say about Piper’s scar on her back, the teasing she might experience. I thought about what consequences she might have to deal with throughout her life, all for something that she never deserved to have happen to her.

But we never lost hope. Never. Even at times when we saw the worst of what life can offer, we also saw the best. The outpouring of support we’ve experienced has been incredible, from our family, friends, doctors, even strangers. And in some ways, we’ve actually got to play a small part in something bigger than us. For example, Piper has gotten to take part in a study for SCTs with the hope that researches will get to find some answers for families down the road so they don’t have to go through what we did.

We also learned just exactly who are daughter really was. We learned that she is a fighter. Nothing in this world will ever make her back down. She will never give up, never stop advocating for what is right and what she is passionate about. Seeing the kind of woman she is growing up to be right before my eyes give me hope — no, certainty — that no matter what happens everything will be okay.”

Via: Give Kids The World

(Part 1 of 3)  “What can you say to someone that has given up hope?This is a question that I was asked to answer, and fr...
12/11/2021

(Part 1 of 3) “What can you say to someone that has given up hope?

This is a question that I was asked to answer, and frankly, my husband and I were floored. How can someone even ask such a thing? How can such a possibly even exist in one’s mind? Are there really people out there in a position so dark they are considering an existence without the possibly of hope?

It was my husband Richard who answered first. He said the first thing that came to his mind: “We love you.”

We know how it feels to see your child suffer. My amazing daughter Piper was dealt a bad hand before she was even born. Twenty-six weeks into my pregnancy, she was diagnosed with Type IV sacrococcygeal teratoma, or SCT. Essentially, SCT refers to a tumor growth that appears on Piper’s coccyx/tailbone, with Type IV meaning that was internal and had the highest rate of malignancy. When she was only four days old, she had surgery to remove a tumor the size of a golf ball, along with her tailbone. Unfortunately, during surgery, there was a rupture that leaked out into her body. Our doctor, who is wonderful, flushed out the area as best as he could, and even though he was as aggressive during removal as he felt he could be, the following pathology report came back with positive tumor markers on everything that was removed. If the tumor came back, he told us, it would probably come back before Piper was five.

She was 15-months old when it reoccurred.

On December 2019, an MRI found what we dreaded. The tumor was small, about the size of a pea, but it was there. It was also in one of the worst places it could be — right under her belly button on her spine.

Theoretically, it could be removed, but it would be an exploratory surgery that would almost certainly leave her with life-long side effects. The best option was to install a port and begin chemotherapy. The risks were significant, including potential hearing loss and an increased susceptibility to other cancers when she is older, but it was the only realistic option left.”

Via: Give Kids The World

(Chapter 3 of 3)“Three months after her last treatment, our worst fears were realized. Lana’s tumor behind her chiasm wa...
09/11/2021

(Chapter 3 of 3)
“Three months after her last treatment, our worst fears were realized. Lana’s tumor behind her chiasm was the largest it had ever been and was pushing on her hypothalamus, causing her headaches, nausea, and balance issues. The scale of the growth even shocked our doctors. They said that if we wanted to do something with Give Kids the World, we needed to do it now before the tumor becomes fatal. Right now, at this moment, we are trying to make the best of the situation and not think of the sad things.

But sometimes I can’t help but think of the sad things. I can’t not. I am trying to be happy, but I am so scared. A part of me feels jealous of the other families around me, because their kids are getting to live their dreams with their conditions in remission. They are getting better. But we are here because we are fighting death.

But you know what? Even now, looking at my child and knowing time is short, I find myself thankful and full of love. I have learned in the hardest way to not take life for granted. Before Lana, I used to be a neat freak. I was highly organized; I lived my life through the lists I’d make. Everything had to be planned. But now if I’m doing the dishes, when my little girl asks me, “Mommy, do you want go to play Barbies?” Instead of saying ‘just a second while I finish,’ I say, ‘let me dry my hands.’ I’m never too busy. Nothing is ever too important to put it in front of the things that really matter. I refuse to take a single second for granted. Despite so much sadness, it makes me happy knowing that I can now let life go and make the most of the moment that life has gifted me with.

For those who may be experiencing tragedy, who may be or may one day be feeling what I’m feeling, remember to play Barbies when asked. Remember to make the day, the minute, the second count. My daughter taught me that, and that is something I will cherish forever.”

Via: Give Kids The World
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(Chapter 2 of 3)“Three months later, we did an MRI to see if any of the tumors had grown, and we found an active tumor o...
09/11/2021

(Chapter 2 of 3)
“Three months later, we did an MRI to see if any of the tumors had grown, and we found an active tumor on the chiasm – the tube that connects your eyes. That’s when we knew we had to begin treatment. The first treatment at St. Jude’s lasted about a year, but had little to no effect, so they started a second drug. And after 6 months on the new drug, an MRI revealed that the tumors were in fact still growing, with an even larger tumor growing behind the chiasm.

With few options left, we later traveled to Memphis to get a second opinion. Their MRI revealed the tumors were still growing, which at that point, they recommended us to be put on a new drug that was still in the trial phase. Each treatment when administered required us to spend three nights at the hospital to see if she got sick, and if she did, the stay had to be extended for two weeks. This whole time I essentially wasn’t working at all, and as a single mom with no support, it was really, really hard.

But through the heartbreaking struggles, we caught another glimpse of the kindness in people to help us. We were lucky enough to be recognized by a company called, Go Shout Love, which told Lana’s story and asked people to purchase items throughout the month — all the proceeds of which went to us. In our darkest time, we got to see the best the world had to offer. I’m so thankful for that.

The experimental drug Lana was put on seemed to work very well at first, but it came at a price. It was the most wonderful drug, but it was also the worst drug. Over two years, it did the most horrible things to her body, but yet, the tumor was becoming less active. And then there was the condition that came with the drug: no matter what, after the treatment ended, Lana could never go back on that drug again.”

Via: Give Kids The World
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(Chapter 1 of 3)  “My daughter Lana, my world, has just turned four. Some of her favorite movies are Frozen, Monsters In...
09/11/2021

(Chapter 1 of 3) “My daughter Lana, my world, has just turned four. Some of her favorite movies are Frozen, Monsters Inc., and Over the Hedge. If I had to use a word describe her, I would use “bossy.” It fits! She’s been in and out of the hospital since she was a newborn, and as a result, she knows exactly what’s going to happen, when it’s going to happen, and when she wants it done. She’s in charge – her body is her body, and no one is going to tell her what to do with it.

Shortly after her birth, Lana was diagnosed with Neurofibromatosis type 1 (NF1). There is a lot that comes with this condition, but essentially this means that tumors can grow on any nerve in her body at any time. And since nerves are everywhere, no part of her body is off limits. The first tumors we found were behind her eyes on the optic nerve. They were so compacted we couldn’t count them all. As scary as that was, there was a chance that none of these tumors would become active or grow. But unfortunately, this wasn’t meant to be, and as a result, we ended up spending a lot of time in the hospital.

At this time, however, we witnessed a miracle: with the help of our social worker, the Doula Foundation decided to make an exception for us and extended their help beyond Lana’s birth for a full year. At a point when I was basically living at the hospital, they were there with me every step of the way. They would play with Lana while I slept, cooked while I worked, kept Lana company while I sorted through mountains of paperwork. They were complete strangers, but I am deeply indebted to them. We even got to share Lana’s story as part of their fundraiser – it was magical.” via: Give Kids The World
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(Part 3 of 3) “Give Kids The World has been a support system in itself. Till the day I die I’m never going to forget Den...
13/09/2021

(Part 3 of 3) “Give Kids The World has been a support system in itself. Till the day I die I’m never going to forget Dennis, our greeter at the airport. The guy even got me excited. From the very first moment, it really felt like coming home. Adalyn mentioned to me the first night that they’re making us all feel like VIPs.

“You’re the VIP,” I told her. “We’re here with you.”

She even took the occasion today to crank out her Cinderella dress, Florida heat or no Florida heat. “No one else is probably going to be wearing dresses like this,” she said. “But…I don’t care!”

What’s going to pull you through it more than anything, though, is going to be your child. Sometimes in my desire to protect her, to keep her safe, I forget how deep Adalyn’s inner strength runs. Early on I wanted to micromanage everything, but from the very beginning she was driven by a desire to do things right. She wants to check her glucose levels when she needs to, she counts her carbs exactly like the doctors tell her to, and when things go wrong, she knows exactly how to get help. As this girl prancing around in a Cinderella dress at my feet becomes a woman right before my eyes, I know deep down that when the time comes to let go, she’s going to be fine. She’s going to grow up, and she’s going to live her own life.

I may not be able to change her diagnosis, but I don’t need to. It’s a part of her now, and she’s going to wear that hat. She’s going to be okay.” 📸 Chris Glenn | 📍 Give Kids The World
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(Part 2of 3) "It all just hit me at once. I knew that she was going to be affected by this for the rest of her life. Whe...
13/09/2021

(Part 2of 3) "It all just hit me at once. I knew that she was going to be affected by this for the rest of her life. When she walks down the aisle to graduate high school, she’s going to be dealing with this. When she’s hanging out with her friends in college, she’s going to be dealing with this. It’s even going to follow her down the aisle of her wedding one day. I couldn’t even imagine the thought of leaving her side for fear of losing her, of not being there to save her the day she needed me. It all just hit me like a truck, and for just a moment I felt alone.

But to anyone that may relate to this, who may be dealing with something similar, I promise you’re never alone. I know it’s easy to lock yourself in your room scared, but there are support systems out there. Of course, I have Ashely, who is always there to put my overreactions in check, and I have my two amazing daughters whose lives I am so thankful to be a part of, but the more you look for support, the more you find. Even just finding a stranger on the street with a CGM (continuous glucose monitor) is enough to remind you of the connections you have to those around you should you choose to see them.

Facebook, believe it or not, was an incredible resource for me. You can find medical suppliers and little tips and tricks there, but you’ll also find communities who will understand exactly what you are going through and will be there for you every step of your journey. Today, I actually check those Facebook groups regularly to offer advice where I can as my way of paying it forward. People just need to hear sometimes that it’s not the end of the world. Your child’s life — and your own — is going to be different from here on out, but it’s going to be okay." 📍 Give Kids The World | 📸 Chris Glenn
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(Part 1of 3) "God made Adalyn special. Our daughter says this to us often. Every detail — her sass, her kindness, her co...
09/09/2021

(Part 1of 3) "God made Adalyn special. Our daughter says this to us often. Every detail — her sass, her kindness, her courage, her calling to be a farmer when she grows up — it’s what makes her who she is, and she wouldn’t change a single thing.

And that includes her Type 1 diabetes that she has managed for almost five years now.

For a while, especially early on when we were still trying to figure things out, I hated hearing her say that. When you see your baby, an extension of yourself, down and hurting and there’s nothing you can do, it’s the hardest thing in the world. Like any parent in our situation, if I could take her diagnosis away from her, I would. But I don’t have that power, at least not until the day a cure comes. Coming to terms with that, honestly, can be a struggle.

We definitely had our rough times where we couldn’t shake our negative thoughts. We thought about our first trip to the emergency room, when just a week before the doctor told us her unquenchable thirst was just because of the heat and a positive sign she was growing. We thought about how just two weeks after she got out of the emergency room, my wife Ashley had to go in for emergency back surgery, forcing me, Adalyn, and her sister Aubrey to take on this new way of life ourselves. We thought about how we were early on plagued by this constant fear that we needed to check her glucose almost every waking moment, before we really knew what we were doing, thinking if things were out of balance just a little bit our world could end. And we thought about one particularly scary incident on vacation where a stomach bug prevented her from getting down any food — a dangerous situation for anyone with Type 1 Diabetes.

I personally tried really hard to put on this tough guy façade, but if I’m being honest, I threw a bit of a pity party. I never told Ashley this, but one day after I put her and Aubrey down for a nap, I sat at the kitchen table and cried." 📍 Give Kids The World | 📸 Chris Glenn

(Part 3 of 3) We really only saw this change a few months ago, so we’re still getting used to seeing our 10-year-old boy...
18/08/2021

(Part 3 of 3) We really only saw this change a few months ago, so we’re still getting used to seeing our 10-year-old boy being a 10-year-old boy again. To see him here at Give Kids The World smiling and being free is such a joy. We originally found out we were coming back in September, but Beckett could barely acknowledge what was happening. But as the date got closer, and the stimulator began to work, we got to see our boy slowly come back into himself. Beckett wants to be an engineer someday, so, the moment we told him we were getting a behind-the scenes look at Universal’s new ‘VelociCoaster,’ that’s when the excitement really took off. It was the happiest we had seen him since before the seizures began. He was so excited that he even climbed onto the couch and began jumping for joy – that was a special moment.

Give Kids helped us see the boy who for a while we thought we had lost. He’s eating ice cream, playing putt-putt, running from ride to ride — watching him come back resembling the kid we remember is enough to bring tears to our eyes. And we even got to have some fun of our own, turning into fanboys, and meeting the designer of Hagrid's Magical Creatures Motorbike Adventure – we’re big Harry Potter fans.

Through all of this, we have come to realize and accept that we can’t control the situations we are put into. What we can control, however, is how we react to them. What happened to Beckett was something we could have never imagined, but at the end of it, there’s an amazing story to be told, that is still being told. A story that might help someone else who may be going through something of their own. We believe this with all our heart. Beckett, like all of us, was put on this earth to help others, to be a part of something bigger.

If you ever feel afraid to share your story, don’t be. It might be exactly what someone needs to hear when they need to hear it. 📍 Give Kids The World | 📸 Chris Glenn
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(Part 2 of 3) “At his peak, Beckett was having about 100 seizures a day. The first medicine he tried seemed to eliminate...
18/08/2021

(Part 2 of 3) “At his peak, Beckett was having about 100 seizures a day. The first medicine he tried seemed to eliminate them entirely for six weeks, but just a short time later, they came back stronger and more frequent than ever. During a seizure, he had absolutely no control over anything he did. He would speak gibberish, climb on furniture, and in the car, he would sometimes unbuckle his seatbelt and stand in the seat. One time he even opened his car door and tried to get out at a red light. In total we tried seven different medications, and each one resulted in failure.

The ordeal began taking a toll on Beckett’s emotional state, as well. The parts of the brain most affected by his seizures control brain functions such as short-term memory and emotional response. Some things that used to bring him so much joy, like Christmas morning, no longer had any effect. At times, it felt like we were mourning the loss of our own child who was still with us. We would look at old pictures of all of us smiling and happy, and all we could think was we missed our little boy – we all did, especially Lila and Audrey, who would even cry into the night worrying about their brother.

According to his test results, he was experiencing seizures independently in four different parts of the brain, and the frequency of them meant that his brain was slowly deteriorating. To slow this process, it was determined that the best course of action was to implant a device called a Responsive NeuroStimulator, into his skull to help regulate the seizures. Normally this action is reserved for people at least 18 years old, but Beckett’s case was severe enough to make an exception. Once the device is turned on, it slowly learns the brain patterns that telegraph when a seizure is going to occur and sends electrical impulses to counteract it. The device was successfully implanted in December and turned on in late February. In early March, the frequency was the worse it had ever been, but after that it started to work. The results were dramatic. Today, we see about 10 seizures a week…” 📍

Give Kids The World | 📸 Chris Glenn
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(Part 1 of 3) “Everyone is part of a story. You’re not always the main character, but instead, you’re a small piece of s...
18/08/2021

(Part 1 of 3) “Everyone is part of a story. You’re not always the main character, but instead, you’re a small piece of something far greater that will only unfold with time.
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Our family has always believed this, especially once we felt called to take in foster children in need. Before finally taking the plunge, we tried to talk ourselves out of it for a good six months.
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It definitely wasn’t easy — after training on a Tuesday and receiving our license to foster on Wednesday, a 10-month-old arrived at our doorstep on Friday. They really don’t train you in how to start — they quite literally just handed her to us without even knowing if she had eaten and wished us luck. The first ten months were probably the hardest part of our marriage to date.
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Today, however, we wouldn’t have it any other way. Fast forward seven years, and we’ve had seven long-term placements, adopted one wonderful girl named Audrey, and are planning to adopt a boy that originally came to us at just two-weeks old. Along with our two biological children, Beckett, and Lila, we could not be a happier family.
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When Beckett first began his health journey, however, it took a while for us to remember that story.
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Beckett is everything you would want in a 10-year-old boy. He’s funny, kind, inquisitive, and super smart. In school one year, he competed in a speech competition and got the highest score of any child at his level. Most importantly, though, he always relished being the big brother — a role model for his siblings to look up to.
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Over a two-week period in 2019, we noticed short moments where Beckett didn’t respond and seemed confused. Then, the day before Halloween while eating dinner, we saw what we would learn later was one of his bigger seizures. As anyone who has seen a seizure knows, it can be frightening if you don’t know what to expect. We immediately scheduled a doctor appointment, and the day of the appointment he had another one at school. The ER referred us to a neurologist, and in the week-long waiting period for that appointment, Beckett had 13 more…”

📍 Give Kids The World | 📸 Chris Glenn
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