If We Knew Then - A Down Syndrome Advocacy Podcast

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If We Knew Then - A Down Syndrome Advocacy Podcast Hello and welcome to the If We Knew Then Podcast, hosted by Stephen and Lori Saux.

22/04/2024

The world lost pioneering Down syndrome advocate Carl Erskine on April 16, 2024, at the age of 97. Carl and his wife Betty, were involved deeply with the Special Olympics and charities which aimed at helping people with developmental disabilities such as his son Jimmy. Carl Erskine was a MLB All-Star, World Series Champion, ally of Jackie Robinson and the last surviving member of the “Boys of Summer” Brooklyn teams of the 1950’s. To honor Carl’s life, we revisit our episode with documentarian Ted Green discussing his film ’The Best We’ve Got: The Carl Erskine Story’. As Ted says in this conversation, Carl and Betty are the perfect embodiment of what is on Jackie Robinson’s tombstone.

“A life is not important except for the impact it has on other lives“.

Godspeed Carl.

FULL EPISODE: https://ifweknewthen.podbean.com/e/170-celebrating-the-life-of-carl-erskine-with-ted-green/

If you are a fan of the podcast you know about the Easterseals Disability Film Challenge. Last week the Saux’s made thei...
13/04/2024

If you are a fan of the podcast you know about the Easterseals Disability Film Challenge.

Last week the Saux’s made their 5-minute short film for this year’s challenge!

Please watch and share, to help raise awareness of disability representation in media.


When Del experiences an existential crisis her brother Neal takes her on an adventure that reminds her that the best way to move forward is by accepting that...

It’s  !If you have someone like Liam in your life, then you know what a better world we live in when we include ALL peop...
21/03/2024

It’s !
If you have someone like Liam in your life, then you know what a better world we live in when we include ALL people with ALL abilities.

Pass it on.

15/03/2024

This is the best!!!!

.

Don’t have time to listen to a full podcast episode?Interested in Down syndrome advocacy information?Check out 1-2 minut...
05/02/2024

Don’t have time to listen to a full podcast episode?

Interested in Down syndrome advocacy information?

Check out 1-2 minute clips of our episodes here -
ifweknewthen.com/clips

22/01/2024

NEW EPISODE!
This week, we discuss Charlotte Fien's path to advocacy, breaking down the barriers of education, the love story between her and her husband Riley, and how her infectious can-do attitude has influenced him to break down barriers in his own life.

It is the story of two humans creating the life they want to live and never taking no for an answer.

Visit their FB Page: https://www.facebook.com/autismintune

FULL EPISODE: https://ifweknewthen.podbean.com/e/164-charlotte-and-riley-not-taking-no-for-an-answer/

Our children are beautiful, intelligent and an asset in the classroom/community.  Like all children, children with Down ...
20/01/2024

Our children are beautiful, intelligent and an asset in the classroom/community.

Like all children, children with Down syndrome are the future.

Say that again… from the rooftops.

 4 years ago!
12/01/2024



4 years ago!

07/01/2024

Always a great time at Disneyland.

27/12/2023

Playing with Backgammon dice is a fun way to practice math. 

Merry Christmas and Happy Holidays everyone!✌️❤️
26/12/2023

Merry Christmas and Happy Holidays everyone!
✌️❤️

23/12/2023

Repetition and keep encouraging.
Just know: It will happen.

22/12/2023

Sometimes it’s the little things. Airport!

22/11/2023

Feeling out the Cello.
Let’s make a goal of getting an instrument in our kid’s hands a few times a week. No pressure are first, just make some music!! 💛💙

21/11/2023

Very impressive!

20/11/2023

Ellison says “Stop!”

This beautiful video is of Cincinnati-based barber
Vernon Jackson cutting his client Ellison's hair.
First of all, this lovely attitude from Vernon would help all kids when getting a haircut.
Secondly, if there's one thing this video shows, it's that this kid with Down syndrome is just that...
a kid.

06/11/2023

ATTENTION ADVOCATES:

You need to know that your efforts matter and that the world needs more people like you who stand up for others.
Keep it up!

03/11/2023

Because life comes at you fast, consciously make time for the moments. Think back when you were a child and the snippets that you remember. Many times it’s the little things, so the moments you make today don’t need to be epic adventures…
Just loving interactions. ❤️

02/11/2023

“Disability doesn’t make you exceptional, but questioning what you think you know about it does”

— Stella Young

Hey Liam, meet Tommy’s.Two L.A. originals!
26/10/2023

Hey Liam, meet Tommy’s.

Two L.A. originals!

16/10/2023
Wow! Just beautiful. 💛💙The Rio Grande Down Syndrome Network balloon at the Albuquerque International Balloon Fiesta.
14/10/2023

Wow! Just beautiful. 💛💙
The Rio Grande Down Syndrome Network balloon at the Albuquerque International Balloon Fiesta.

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If We Knew Then

We are Stephen and Lori Saux and welcome to the If We Knew Then Podcast. We are parents of two children and one of them has Down Syndrome, Liam. When Liam was born we didn't know very much about Down Syndrome and most of the information we did have didn't seem very hopeful and positive. Well this podcast aims to share honest and useful conversations about supports, therapies, education and society as it pertains to Down Syndrome advocacy and parenting. Thank you for listening.